research : disease studies
Genetic Analysis of Limb Malformation Disorders
Research Study Consent Forms
Research study consent forms are available for download. Please click on the following links for the page listings of the required forms. To download all required forms, scroll to the top of each section, click on the Download all forms link to download the pdf file. There are also links available to download each form separately.
Each family must speak with a research team member for consent. Parents and children age 14 and older may watch a consent video to explain the study. Each family will receive a follow up phone call from the research team to answer any questions. All questions about participation in the study should be directed to the study coordinator or principal investigator.
Questions or comments? Contact us.
- Download all the forms
- Study summary
- Primary consent form (all participants)
- Primary assent form (additional form for children age 7-13)
- Photo consent and assent
- Research HIPAA form
- Medical records request
- Contact sheet
Additional instructions and forms
- Cases of Distal Arthrogryosis (DA): DA Questionaire
- Cases of Freeman Sheldon Syndrome (FSS): FSS Questionnaire
- Cases of Idiopathic Clubfoot: Clubfoot Questionnaire