The Washington Death with Dignity Act
Over one year ago, the Washington Death with Dignity Act went into effect.
Faculty in the Department of Bioethics & Humanities have been involved in educational efforts to prepare clinicians for requests under the new law.
Click here for a fact sheet summarizing clinician responsibilities under the Act and a reading list for further information. Click here for an updated powerpoint presentation summarizing the Washington law, the experience in Oregon, and data from a study conducted by Dr. Helene Starks and colleagues examining the experience from patient and family view points.
To link to the NWABR site click here
May 29, 2012
RARE Screening and Discussion at Seattle Science Festival
We are excited to announce that Heather Kirkwood, who is featured in the film RARE and who serves as Director of Outreach/Vice President for the Hermansky-Pudlak Syndrome (HPS) Network, will travel from Kansas for the event! She will be joined by the Co-Director, Dr. Maren Grainger-Monsen, and Dr. Malia Fullerton, Associate Professor of Bioethics and Humanities at the University of Washington School of Medicine, in the panel discussion after the screening.
Monday, June 4th
Film presentation at 7:00pm followed by a panel discussion concluding by 9:00pm
PACCAR Theater at Pacific Science Center
Click here for tickets and more info.
Free to NWABR and Pacific Science Center members | $5 for public
***Teachers and Students who have participated in NWABR programs qualify for the NWABR member rate.
Come learn about one mother’s struggle to mobilize research that could potentially help her daughter and others with a rare form of albinism. The Seattle Science Festival will have the exclusive opportunity to premiere the film, RARE, co-directed by award-winning filmmaker Dr. Maren Grainger-Monsen, Director of the Program in Bioethics and Film and Nicole Newnham, filmmaker and writer at the Stanford University Center for Biomedical Ethics.
This engaging film provides insight into the lives of people with Hermansky-Pudlak Syndrome (HPS) and illustrates the efforts of the HPS community to attract researchers and study participants to fight this rare genetic condition. It reflects the challenges faced by any family seeking answers when research is the only pathway to a loved one's chances of survival. Learn more about the documentary by clicking here. Don't miss this RARE combination of quality film and engaging discussion, all in the comfort of the newly refurbished PACCAR theater!
This event is presented in partnership with the Department of Bioethics and Humanities, University of Washington and Pacific Science Center.
The “Collaborations to Understand Research and Ethics” (CURE) program was supported by a Science Education Partnership Award grant from the National Center for Research Resources and the Division of Program Coordination, Planning, and Strategic Initiatives of the National Institutes of Health through Grant Number R25OD011138.
Exploring the Intersections of International
Human Rights and Disability
Friday, January 10, 2014 9 a.m. - 5 p.m.
Join the University of Washington School of Law for a day of discussions about national and international disability legislation and implementation. Topics focus on the use of human rights conventions to advocate for persons with disabilities, with an emphasis on women, children and youth. Speakers include national and international scholars, policy makers, practitioners and activists.
Paul Steven Miller (1961- 2010) was the Henry M. Jackson Professor of Law at UW School of Law, a Commissioner of the Equal Employment Opportunity Commission and a special assistant to President Obama. He was a leader in the disability rights movement and an expert on anti-discrimination law.
Registration information, including a working agenda can be found here.
CLE credits pending.
Disability Studies | Center on Human Development & Disability
Gender, Women & Sexuality Studies | Program on Values in Society
Gates Public Service Law Program
Bioethics & Humanities Department | Law, Society & Justice
Center for Global Studies | Harry Bridges Center for Labor Studies
Henry M. Jackson Foundation | Disability Rights Washington
Captioning provided by the D Center
To request disability accommodations, contact the Disability Services Office at least 10 days in advance at 206.543.6450, 206.543.6452 (TTY), 206.685.7264 (fax) or email@example.com
Congratulations to Kelly Edwards
Effective October 1, Kelly begins her tenure as Associate Dean of The Graduate School. Kelly started in this role in an Acting capacity during 2012. Kelly’s work in The Graduate School focuses on professional development and support for graduate students and post-doctoral fellows.
Guest column by Dr. Thomas Montine and Dr. Wylie Burke in Puget Sound Business journal…
Rosalina D. James, PhD Assistant Professor
Rose James was appointed Assistant Professor of bioethics effective July 1. Rose joined the department in 2005 as a Senior Fellow and transitioned to an Acting Assistant Professor in 2009. Rose will continue her work involving tribal-academic partnerships in research and education. Each fall, Rose teaches BH 460 on the responsible conduct of research.
Welcome Marla Hill
The Department welcomes our newest staff member, Marla Hill. Marla joins the core administrative team. She will have primary responsibility for our undergraduate academic program and special event coordination as well as a host of administrative duties.
Hyogo College of Medicine Visiting Students
For the 9th year, Tom McCormick along with his colleague Professor Furuyama directed the week-long short course in bioethics for 5th year medical students from Hyogo College of Medicine.
Biomedical Research Integrity Program
Thank you to our 2013 Discussion Group Leaders!
We would like to acknowledge our 2013 BRI Discussion Group Leaders. These wonderful folks volunteered their time to lead the 92 UW BRI discussion groups serving 779 trainees this summer and we are so grateful. We truly could not offer this program without their support: Karin Bornfeldt, Tracy Brazg, Charles Chavkin, Anu Chaudhary, Seema Clifasefi, Wendy Cook, David Dichek, Danae Dotolo, Adrienne Fairhall, Susan Ferguson, Elaine Frawley, Irene Geisner, Dana Gold, Ted Gross, Jennifer Kett, David Kimelman, Carol Landis, Eric Larson, KC Lee, Melissa Lewis, Dana Litt, Sheila Lukehart, Dustin Maly, Anna Mastroianni, David Masuda, Dan McCloy, Isaac Mohar, Michelle Montgomery, Paul Nghiem, Tonya Palermo, David Perkel, Annemarie Relyea-Chew, Morayma Reyes, Jane Simoni, Ken Thummel, Hunter Underhill, Wes Van Voorhis, Ed Weaver, Aaron Wightman, Joe Zunt, Larry Zweifel.
Published in the December 2011 American Journal of Medical Genetics, Adjunct Faculty member Holly Tabor, PhD and colleagues discuss how they say "exome and whole-genome sequencing challenge the ethical framework of human genetics research," provide "broad guidance about interim ways to contend with these issues, and make broad recommendations for areas for novel resource and policy development."
Congratulations to our faculty members Kelly Edwards and Rose James who were honored as "innovators" at Genetic Alliance's "25 Years of Innovation" celebration.
The Celebration featured a museum-quality exhibit that highlighted innovators from the genetics, health, and advocacy community. “Innovator” includes founders of advocacy organizations, board, staff, members, volunteers, researchers, policymakers, and others who have transformed their communities.
Dr. Tom McCormick recently held his 7th consecutive "Short Course in Bioethics" for the Japanese delegation of medical students from Hyogo College of Medicine in Tokyo. This week-long intensive introduction to bioethics was hosted by Professor Furuyama of Hyogo and had many faculty participants from the UW, SCCA, Northwest Hospital, and the NW Kidney Center.
Group Health and Virginia Mason are co-sponsoring the
3rd Annual Ethics Symposium " Taking Your Pulse:
Coping with Moral Distress in Clinical Practice" Save by registering early.
Tuesday, May 1, 2012
8:30 am—12:00 noon
Virginia Mason Medical Center-Volney Richmond Auditorium
Featuring Guest Speakers:
Denise Dudzinski, Ph.D., M.T.S.
Associate Professor, University of Washington
Department of Bioethics & Humanities
Nancy Stevens, M.D., M.P.H.
Professor of Family Medicine, University of Washington
Director, WWAMI Family Medicine Residency Network
“Research Practices and Participant Preferences: The Growing Gulf”
Congratulations to our department members Sue Trinidad, Malia Fullerton, and Wylie Burke on the publication of their article in the journal Science. It is highlighted in the January 20th edition of UW Today. Written by UW and Group Health bioethicists, the article suggest ways for scientists and study volunteers to build trusting relationships.
Hot off the press by Wylie Burke, Kelly A. Edwards, Sara Goering, Suzanne Holland and Susan Brown Trinidad!
Achieving Justice in Genomic Translation:
Re-Thinking the Pathway to Benefit
This book explores implicit choices made by researchers, policy makers, and funders regarding who benefits from society's investment in health research. The authors focused specifically on genetic research and examine whether such research tends to reduce or exacerbate existing health disparities. Using case examples to illustrate the issues, the authors trace the path of genetics research from discovery, through development and delivery, to health outcomes. Topics include breast cancer screening and treatment, autism research, pharmacogenetics, prenatal testing, newborn screening, and youth suicide prevention. Each chapter emphasizes the societal context of genetic research and illustrates how science might change if attention were paid to the needs of marginalized populations.
"The Disclosure Dilemma — Large-Scale Adverse Events" was published this month in The New England Journal of Medicine. The paper was a joint effort from University of Washington faculty Denise M. Dudzinski, PhD, Mary Beth Foglia, RN, PhD, and Thomas H. Gallagher, MD, and Philip C. Hébert, MD, PhD from the Sunnybrook Health Sciences Centre, University of Toronto.
Recent Faculty Publications
Robert A. Pearlman, MD, MPH and Mary Beth Foglia, RN, PhD, adjunct and affiliate faculty in the Department of Bioethics and Humanities (respectively) are also staff members of the VA’s National Center for Ethics in Health Care and the authors of five peer-reviewed papers featured in a special issue of AJOB Primary Research, a journal of the American Journal of Bioethics.
The papers describe VA’s experiences evaluating ethics quality in the VA health care system as part of IntegratedEthicsTM (IE), VA’s comprehensive model for managing ethics in health care organizations. The issue appeared online on February 11, 2013.
The papers are available at www.tandfonline.com/toc/uabr20/current
“It can be a challenge to evaluate ethics quality in health care,” said Dr. Ellen Fox, Chief Ethics in Health Care Officer at VA. “These publications show that ethical practices and culture can be measured and managed just like every other dimension of health care quality.” In the issue’s lead article, commentators Bette-Jane Crigger,
Director of Ethics Policy for the American Medical Association, and Matthew Wynia, Director of the AMA’s Institute for Ethics, describe (continue reading...)
Wylie Burke receives IOM Health Sciences Policy Appointment
Professor and Chair Wylie burke has been appointed to a three-year term on the Institute of Medicine (IOM) Board on Health Sciences Policy. Dr. Burke was elected a member of IOM in 2007 and currently co-chairs IOM's Roundtable on Translation of Genomic-based Research for Health.
Tom Gallagher receives MITSS Hope Award
We are proud to announce that Dr. Thomas Gallagher, Associate Professor of Medicine and Bioethics & Humanities, was selected to receive the 2012 MITSS Hope Award. This award from Medically Induced Trauma Support Services (MITSS) recognizes an individual who exemplifies the MITSS mission to support healing and restore hope to patients, families, and clinicians impacted by adverse medical events. Congratulations to Tom on this well-earned recognition.
to see the entire article, click here
Kelly Edwards, Bioethics, Appointed Graduate School’s Acting Associate Dean
The UW Graduate School proudly announces that Dr. Kelly Edwards, from the Department of Bioethics in the UW School of Medicine, has been appointed acting associate dean for the 2012–13 academic year. Dr. Edwards will direct the Graduate School’s professional development programs, a series of offerings that assist graduate and professional students to translate their education into professional success.
to see the entire article, click here
Kelly Edwards receives 2012 LASER award for science education advocacy
Kelly Edwards, UW associate professor of bioethics and humanities, has been selected a 2012 Science Education Advocate Award Recipient by the Washington State Leadership and Assistance for Science Education Reform (LASER). The award recognizes outstanding individuals, organizations, or project teams who have exhibited exceptional support and advocacy for science education in the state of Washington.
The department warmly welcomes our new Adjunct Assistant Professor, Dr. David A. Harrison. He is an Assistant Professor in the Department of Psychiatry & Behavioral Sciences and collaborates with our department in teaching and research activities.
Congratulations to Dr. Stephanie Malia Fullerton on her promotion to Associate Professor in the Department of Bioethics & Humanities! She holds adjunct positions in the Departments of Genome Sciences and Epidemiology, is a co-investigator of the UW Center for Genomics and Healthcare Equality, and serves as a member of the Regulatory Support and Bioethics Core of the UW Institute of Translational Health Sciences.
The department welcomes our new Affiliate Professor, Dr. Nancy A. Press. She is a Professor in the School of Nursing and the Department of Public Health & Preventive Medicine at Oregon Health & Science University. She is also an active co-investigator in the University of Washington's Center for Genetics and Healthcare Equality.
Welcome to our new Affiliate Professor,
Dr. Bert Boyer from the University of Alaska Fairbanks. He is Professor of Biochemistry and Molecular Biology and Director for the Center for Alaska Native Health Research (CANHR). Dr. Boyer is researching the interaction between genetic and environmental risk and protective factors for obesity and diabetes in Yup'ik Eskimos. He is dual Principal Investigator with Dr. Wylie Burke, Bioethics & Humanities Department Chair, on a NIH funded grant titled "Ethics of dissemination: Communicating with participants about genetic research".
2011 McCormick Lectureship in Science and Religion
"Guns and Roses: Conscience Clauses and Contradictions"
Patricia Kuszler, MD, JD
Charles I. Stone Professor of Law
UW Law School, Room 138
Wine & Cheese Reception 6 p.m., Brotman Atrium, UW Law School
A proposed law in Florida would make it illegal for pediatricians to discuss firearm ownership with the families of their patients, subjecting pediatricians who talk about guns with children's parents to a felony conviction and a five million dollar fine or up to five years in prison. UW School of Law professor Dr. Patricia Kuszler, MD, JD will talk about conscience clauses in medical practice, social justice, and propose a set of best practices for pediatric care and firearm ownership.
For more information contact Rev. Matthew Smith, firstname.lastname@example.org or
(206) 524-2322 x. 3100
Professor Kuszler is the Charles I. Stone Professor of Law and the Director of the Center for Law, Science and Global Health. She is the Principal Investigator of the International Biomedical Research Ethics Fellowship Grant and Co-Primary Investigator of the Center for Genomics and Healthcare Equality funded by the National Human Genome Research Institute. In addition to her law faculty appointment, Professor Kuszler is an Adjunct Professor in the UW School of Medicine (Department of Bioethics and Humanities) and an Adjunct Professor in the School of Public Health (Department of Health Services).
The Cooperating Ministries in Higher Education (CMHE) at the University of Washington sponsors this annual lectureship to honor Dr. McCormick for the role he has played in fostering the teaching of medical ethics over the past 32 years. They offer this public lectureship to encourage dialogue between religion and science by engaging members of both the academic community and members of various faith communities.
Welcome to new faculty
We welcome two new faculty effective April 1, 2013.
Mithya Lewis-Newby, MD MPH, Assistant Professor of pediatrics joins the department as Adjunct Assistant Professor. Dr. Lewis-Newby’s primary appointment is with the Division of Pediatric Clinical Care. She is also affiliated faculty with the Treuman Katz Center for Pediatric Bioethics at Seattle Children’s. As co-founder and co-chair of the Seattle Ethics in ECLS Research Consortium, Dr. Lewis-Newby has been effective in promoting ethical issues and policy around use of ECLS. She has served as an effective mentor within our graduate project. We are proud that she’s joining our faculty.
The Department congratulates Max A. Hunter, PhD, who will be awarded the Gordon C. Lee Outstanding Dissertation Award for 2013 by the UW College of Education on June 15. The Gordon C. Lee Dissertation Award is given in recognition of the best dissertation from the College of Education in a given year. Dr. Hunter’s dissertation is entitled “Ambivalence in literacy narratives of black males: grounds for rethinking pedagogy” (2011, University of Washington). Max is currently a Masters of Arts in Bioethics student in our department.
Congratulations Max Hunter!
Hunter Phillips, Bonderman Travel Fellow
Congratulations to Hunter Phillips who was awarded the Bonderman Travel Fellowship. Bonderman Fellowships are designed to “enable students to undertake independent international travel to explore, be open to the unexpected, and come to know the world in new ways” (http://depts.washington.edu/bondermn/). Hunter is a senior majoring in Neurobiology with a minor in Bioethics and Humanities. He plans to travel to a number of national parks and conservation areas in South America, Africa and Southeast Asia, with the hope of seeing the great diversity of flora and fauna in some of the world’s richest ecosystems. His goal is to bear witness to the ways in which local ecosystems sustain human communities and, in turn, how recent human activities are shaping those ecosystems. Bon voyage Hunter!
Michelle Drews, 2013 President's Medal
Michelle is a B H Minor student who has taken all of Dr. Berryman's courses and most of Dr. Jecker's courses. Michelle is also a leader in the MEDIC group working closely with Dr. Berryman. Michelle will be awared the President's Medal at the UW Awards Ceremony June 13th, at 3:30 pm in Meany Hall. The President's Medal is awarded to two graduating seniors who have achieved the most distinguished academic records at the University one to a student who has completed at least three-fourths of his or her degree requirements at the UW and one to a student who entered the University from a Washington community college.
Biomedical Research Integrity Program
We would like to acknowledge our 2011 BRI Discussion Group Leaders. These wonderful folks volunteered their time to lead the 78 UW BRI discussion groups this summer and we are so grateful. We truly could not offer this program without their support.
Kristie Bjornson, Karin Bornfeldt, Donald Chi, David Dichek, Denise Dudzinski, Laura Evans, Gino Gianola, Ted Gross, Jen Guon, Rose James, Nancy Jecker, Grace John-Stewart, David Kimelman, Michael Laflamme, Carol Landis, Shelia Lukehart, Dustin Maly, Pamela Mitchell, Ray Monnat, Neil Nathanson, Maureen Neitz, Sid Nelson, Paul Nghiem, David Raible, Jane Simoni, Sherilyn Smith, Helene Starks, Alyssa Taylor, Wendy Thomas, Sue Trinidad, Wesley Van Voorhis, Thomas Vaughan, Anna Wald, Edward Weaver, Lynne Werner, Benjamin Wilfond, Joe Zunt
Thank you to all our wonderful BRI Discussion Group Leaders from the 2010 series. Thanks to these dedicated volunteers, we held 74 discussion groups this past summer as part of the responsible conduct of research BRI training.
Gino Gianola, Neil Nathanson, Andrea Civan, Jessica DeBord, Buddy Ratner, Kristie Bjornson, Miriam Treggiari, Kathryn Yorkston, David Kimelman, Peter Milgrom, Karin Bornfeldt, Jeff Munson, Wes Van Voorhis, Ram Samudrala, Deepak Sharma, Helen Lee, Horacio de la Iglasia, Anna Wald, Annemarie Relyea-Chew, Paul Nghiem, Nick Anderson, Ben Wilfond, Mitzi Murray, Janet Eary, Dave Eaton, Arian Kaci, David Raible, Michael Lee, Emily White, Jonna Clark, Nancy Jecker, Anna Mastroianni, Michael Shadlin, Sue Trinidad, Helene Starks.
THANK YOU ALL!
The School of Medicine Responsible Conduct of Research Training program for NIH funded trainees for 2010 closed on October 31st.
Please visit the BRI website to view your attendance.
Edwards receives Service Excellence Award
The Dean’s office of the School of Medicine is proud to recognize people who represent the values of excellent service and commitment to the School of Medicine’s mission. Dr. Kelly Edwards, Associate Professor in Bioethics & Humanities has been named a recipient. Recipients of the Service Excellence Award have demonstrated their dedication to the mission through effective mentoring, inspiring leadership and high standards of exemplary service to others.
Kudos to the students and faculty involved in the ENGAGE seminar, who got a shout out from Chris Mooney, author of the book “Unscientific America”, in The Intersection blog of Discover magazine. Engage is a pilot program where PhD students build their skills of communicating with the public about their work. Their current course is "Communicating Science to the Public Effectively."
The department welcomes our new Affliate Assistant Professor, Dr. Stephen D. King. He is the Director of Chaplaincy at the Seattle Cancer Care Alliance and collaborates with our department in teaching and research activities.
Welcome to our new Adjunct Assistant Professor, Dr. Stephanie Cooper. She is an Assistant Professor in the Division of Emergency Medicine in the University of Washington School of Medicine.
B&H congratulates Helene Starks, PhD MPH on her promotion to Associate Professor of Bioethics. Helene also has an Adjunct Associate Professor appointment in Health Services and serves as Associate Director of Graduate Studies for the department. Helene can be reached at email@example.com
The department congratulates Ken Thummel, chair and professor of pharmaceutics, and Wylie Burke, chair and professor of bioethics and humanities, and colleagues, on receipt of a five-year, $10 million grant from the NIH’s Pharmacogenomics Research Network (PGRN) to create a Northwest-Alaska center to study pharmacogenomics in rural and underserved populations. Click here for further details.
Congratulations to Associate Professor Tom Gallagher on his latest grant award, a demonstration project entitled Communication to Prevent and Respond to Medical Injuries: WA State Collaborative. For details, please see the June 25th edition of UW Medicine Online News. Dr. Gallagher also co-authored a recent article in NEJM titled Malpractice Reform– Opportunities for leadership by health care institutions and liability insurers.
A team of Group Health Research Institute and UW investigators report “Glad You Asked” appears in the September 2010 Journal of Empirical Research on Human Research Ethics. The team found that people want to be informed and asked for consent before deciding whether to let researchers share their genetic information in a federal database. The team lead author and senior research associate at Group Health Research Institute is Evette Ludman and the UW co-authors include Wylie Burke, professor and chair of the Department of Bioethics & Humanities and affiliate investigator at Group Health Research Institute; Gail Jarvik, professor of medicine and head of the Division of Medical Genetics; Stephanie M. Fullerton, assistant professor of bioethics and humanities, and Susan Brown Trinidad, research scientist in bioethics and humanities.
Drs. Kelly Edwards, Stephanie Cooper and Thomas Robey each contributed
articles to the June 2010 issue of the AMA's ethics journal, Virtual Mentor, which was titled "Time and Resource Constraints in the
Emergency Department." Read the UW-authored pieces and other commentaries on ethics topics from emergency medicine at the VM website.
Dr. James C. Whorton is featured in the April 26th edition of UWeek! His recently published book "The Arsenic Century", traces criminal and environmental poisoning in Victorian Britain.
Summer Seminar in Health Care Ethics 2013
Registration for this year’s Summer Seminar in Health Care Ethics is open. The 26th annual seminar runs August 5 – 9, 2013 and is heald on the UW campus. For a brochure or to register, please visit the CME site (link: http://depts.washington.edu/cme/live/)