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Archived Resources The Washington Death with Dignity Act Over one year ago, the Washington Death with Dignity Act went into effect.
Faculty in the Department of Bioethics & Humanities have been involved in educational efforts to prepare clinicians for requests under the new law.
Archived News Just announced...
Departmental News Welcome Marla HillThe Department welcomes our newest staff member, Marla Hill. Marla joins the core administrative team. She will have primary responsibility for our undergraduate academic program and special event coordination as well as a host of administrative duties. Published in the December 2011 American Journal of Medical Genetics, Adjunct Faculty member Holly Tabor, PhD and colleagues discuss how they say "exome and whole-genome sequencing challenge the ethical framework of human genetics research," provide "broad guidance about interim ways to contend with these issues, and make broad recommendations for areas for novel resource and policy development." Congratulations to our faculty members Kelly Edwards and Rose James who were honored as "innovators" at Genetic Alliance's "25 Years of Innovation" celebration.
The Celebration featured a museum-quality exhibit that highlighted innovators from the genetics, health, and advocacy community. “Innovator” includes founders of advocacy organizations, board, staff, members, volunteers, researchers, policymakers, and others who have transformed their communities. Dr. Tom McCormick recently held his 7th consecutive "Short Course in Bioethics" for the Japanese delegation of medical students from Hyogo College of Medicine in Tokyo. This week-long intensive introduction to bioethics was hosted by Professor Furuyama of Hyogo and had many faculty participants from the UW, SCCA, Northwest Hospital, and the NW Kidney Center. Group Health and Virginia Mason are co-sponsoring the Tuesday, May 1, 2012 Featuring Guest Speakers: Denise Dudzinski, Ph.D., M.T.S.
“Research Practices and Participant Preferences: The Growing Gulf” Congratulations to our department members Sue Trinidad, Malia Fullerton, and Wylie Burke on the publication of their article in the journal Science. It is highlighted in the January 20th edition of UW Today. Written by UW and Group Health bioethicists, the article suggest ways for scientists and study volunteers to build trusting relationships. Hot off the press by Wylie Burke, Kelly A. Edwards, Sara Goering, Suzanne Holland and Susan Brown Trinidad!
This book explores implicit choices made by researchers, policy makers, and funders regarding who benefits from society's investment in health research. The authors focused specifically on genetic research and examine whether such research tends to reduce or exacerbate existing health disparities. Using case examples to illustrate the issues, the authors trace the path of genetics research from discovery, through development and delivery, to health outcomes. Topics include breast cancer screening and treatment, autism research, pharmacogenetics, prenatal testing, newborn screening, and youth suicide prevention. Each chapter emphasizes the societal context of genetic research and illustrates how science might change if attention were paid to the needs of marginalized populations. "The Disclosure Dilemma — Large-Scale Adverse Events" was published this month in The New England Journal of Medicine. The paper was a joint effort from University of Washington faculty Denise M. Dudzinski, PhD, Mary Beth Foglia, RN, PhD, and Thomas H. Gallagher, MD, and Philip C. Hébert, MD, PhD from the Sunnybrook Health Sciences Centre, University of Toronto.
Faculty Kelly Edwards, Bioethics, Appointed Graduate School’s Acting Associate Dean The UW Graduate School proudly announces that Dr. Kelly Edwards, from the Department of Bioethics in the UW School of Medicine, has been appointed acting associate dean for the 2012–13 academic year. Dr. Edwards will direct the Graduate School’s professional development programs, a series of offerings that assist graduate and professional students to translate their education into professional success. to see the entire article, click here Kelly Edwards receives 2012 LASER award for science education advocacy
The department warmly welcomes our new Adjunct Assistant Professor, Dr. David A. Harrison. He is an Assistant Professor in the Department of Psychiatry & Behavioral Sciences and collaborates with our department in teaching and research activities. Congratulations to Dr. Stephanie Malia Fullerton on her promotion to Associate Professor in the Department of Bioethics & Humanities! She holds adjunct positions in the Departments of Genome Sciences and Epidemiology, is a co-investigator of the UW Center for Genomics and Healthcare Equality, and serves as a member of the Regulatory Support and Bioethics Core of the UW Institute of Translational Health Sciences. The department welcomes our new Affiliate Professor, Dr. Nancy A. Press. She is a Professor in the School of Nursing and the Department of Public Health & Preventive Medicine at Oregon Health & Science University. She is also an active co-investigator in the University of Washington's Center for Genetics and Healthcare Equality.
Welcome to our new Affiliate Professor, 2011 McCormick Lectureship in Science and Religion "Guns and Roses: Conscience Clauses and Contradictions" Patricia Kuszler, MD, JD Friday,
A proposed law in Florida would make it illegal for pediatricians to discuss firearm ownership with the families of their patients, subjecting pediatricians who talk about guns with children's parents to a felony conviction and a five million dollar fine or up to five years in prison. UW School of Law professor Dr. Patricia Kuszler, MD, JD will talk about conscience clauses in medical practice, social justice, and propose a set of best practices for pediatric care and firearm ownership. For more information contact Rev. Matthew Smith, reverendmattsmith@gmail.com or Professor Kuszler is the Charles I. Stone Professor of Law and the Director of the Center for Law, Science and Global Health. She is the Principal Investigator of the International Biomedical Research Ethics Fellowship Grant and Co-Primary Investigator of the Center for Genomics and Healthcare Equality funded by the National Human Genome Research Institute. In addition to her law faculty appointment, Professor Kuszler is an Adjunct Professor in the UW School of Medicine (Department of Bioethics and Humanities) and an Adjunct Professor in the School of Public Health (Department of Health Services). The Cooperating Ministries in Higher Education (CMHE) at the University of Washington sponsors this annual lectureship to honor Dr. McCormick for the role he has played in fostering the teaching of medical ethics over the past 32 years. They offer this public lectureship to encourage dialogue between religion and science by engaging members of both the academic community and members of various faith communities. Biomedical Research Integrity Program We would like to acknowledge our 2011 BRI Discussion Group Leaders. These wonderful folks volunteered their time to lead the 78 UW BRI discussion groups this summer and we are so grateful. We truly could not offer this program without their support.
Thank you to all our wonderful BRI Discussion Group Leaders from the 2010 series. Thanks to these dedicated volunteers, we held 74 discussion groups this past summer as part of the responsible conduct of research BRI training. Gino Gianola, Neil Nathanson, Andrea Civan, Jessica DeBord, Buddy Ratner, Kristie Bjornson, Miriam Treggiari, Kathryn Yorkston, David Kimelman, Peter Milgrom, Karin Bornfeldt, Jeff Munson, Wes Van Voorhis, Ram Samudrala, Deepak Sharma, Helen Lee, Horacio de la Iglasia, Anna Wald, Annemarie Relyea-Chew, Paul Nghiem, Nick Anderson, Ben Wilfond, Mitzi Murray, Janet Eary, Dave Eaton, Arian Kaci, David Raible, Michael Lee, Emily White, Jonna Clark, Nancy Jecker, Anna Mastroianni, Michael Shadlin, Sue Trinidad, Helene Starks. THANK YOU ALL! The School of Medicine Responsible Conduct of Research Training program for NIH funded trainees for 2010 closed on October 31st. Edwards receives Service Excellence Award
Kudos to the students and faculty involved in the ENGAGE seminar, who got a shout out from Chris Mooney, author of the book “Unscientific America”, in The Intersection blog of Discover magazine. Engage is a pilot program where PhD students build their skills of communicating with the public about their work. Their current course is "Communicating Science to the Public Effectively." The department welcomes our new Affliate Assistant Professor, Dr. Stephen D. King. He is the Director of Chaplaincy at the Seattle Cancer Care Alliance and collaborates with our department in teaching and research activities. Welcome to our new Adjunct Assistant Professor, Dr. Stephanie Cooper. She is an Assistant Professor in the Division of Emergency Medicine in the University of Washington School of Medicine. Promotions B&H congratulates Helene Starks, PhD MPH on her promotion to Associate Professor of Bioethics. Helene also has an Adjunct Associate Professor appointment in Health Services and serves as Associate Director of Graduate Studies for the department. Helene can be reached at tigiba@u.washington.edu Research The department congratulates Ken Thummel, chair and professor of pharmaceutics, and Wylie Burke, chair and professor of bioethics and humanities, and colleagues, on receipt of a five-year, $10 million grant from the NIH’s Pharmacogenomics Research Network (PGRN) to create a Northwest-Alaska center to study pharmacogenomics in rural and underserved populations. Click here for further details. Congratulations to Associate Professor Tom Gallagher on his latest grant award, a demonstration project entitled Communication to Prevent and Respond to Medical Injuries: WA State Collaborative. For details, please see the June 25th edition of UW Medicine Online News. Dr. Gallagher also co-authored a recent article in NEJM titled Malpractice Reform– Opportunities for leadership by health care institutions and liability insurers. Publications A team of Group Health Research Institute and UW investigators report “Glad You Asked” appears in the September 2010 Journal of Empirical Research on Human Research Ethics. The team found that people want to be informed and asked for consent before deciding whether to let researchers share their genetic information in a federal database. The team lead author and senior research associate at Group Health Research Institute is Evette Ludman and the UW co-authors include Wylie Burke, professor and chair of the Department of Bioethics & Humanities and affiliate investigator at Group Health Research Institute; Gail Jarvik, professor of medicine and head of the Division of Medical Genetics; Stephanie M. Fullerton, assistant professor of bioethics and humanities, and Susan Brown Trinidad, research scientist in bioethics and humanities. Drs. Kelly Edwards, Stephanie Cooper and Thomas Robey each contributed
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Kelly Edwards, UW associate professor of bioethics and humanities, has been selected a 2012 Science Education Advocate Award Recipient by the Washington State Leadership and Assistance for Science Education Reform (LASER). The award recognizes outstanding individuals, organizations, or project teams who have exhibited exceptional support and advocacy for science education in the state of Washington. 
The Dean’s office of the School of Medicine is proud to recognize people who represent the values of excellent service and commitment to the School of Medicine’s mission. Dr. Kelly Edwards, Associate Professor in Bioethics & Humanities has been named a recipient. Recipients of the Service Excellence Award have demonstrated their dedication to the mission through effective mentoring, inspiring leadership and high standards of exemplary service to others. 