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HELENE STARKS, PhD MPH
Associate Professor

Office: A-204A-2 Health Sciences Building
Phone: 206-543-9724
Email: tigiba@u.washington.edu

| Recent Publications | Recent Talks | Honors, Awards, Grants | Courses | Curriculum Vitae (PDF)

Helene Starks, PhD MPH, is an Associate Professor in the Department of Bioethics and Humanities and Adjunct Associate Professor in the Department of Health Services at the University of Washington School of Medicine. She received an MPH in Health Policy and Administration from the University of California at Berkeley and a PhD in Health Services Research from the University of Washington.

Dr. Starks’ research interests include issues related to palliative and end-of-life care for patients, their family members, clinicians, and health systems; medical decision-making and clinician-patient communication; qualitative and mixed methods research; community-based participatory research; and research ethics, especially involving indigenous communities and vulnerable human subjects in research.

Recent Publications:

  • Starks H, Vig EK, Pearlman RA.  Advance care planning. In Palliative Care: Core Skills and Clinical Competencies. Emanuel, L.L. and Librach, S.L., eds. Saunders-Elsevier, Philadelphia, 2007; Revised 2nd edition, 2011.
  • James RD, Starks H. Bringing the “best science” to bear on youth suicide: Why community perspectives matter.  In Achieving Justice in Genomic Translation: Rethinking the Pathway to Benefit. Burke W, Edwards K, Goering S, Holland S, Trinidad S, eds.  Oxford University Press, New York, 2011.
  • Edwards KL, Lemke AA, Trinidad SB, Lewis SM, Starks H, Quinn Griffin M, Wiesner GL and the GRRIP Consortium.  Attitudes toward genetic research review: Results from a survey of human genetics researchers. Public Health Genomics 2011; DOI: 10.1159/000324931.
  • Fredriksen-Goldsen K, Shiu CS, Starks H, Chen WT, Simoni J, Pearson C, Zhao H, Zhang F. “You must take the medications for you and for me”: Family caregivers in China promoting HIV medication adherence. Under revision for AIDS Patient Care and STDs 2011; in press.
  • Lemke AA, Trinidad SB, Edwards KL, Starks H, Wiesner GL and the GRRIP Consortium Attitudes toward genetic research review: Results from a national survey of professionals involved in human subjects protection. Journal of Empirical Research on Human Research Ethics 2010; 5(1):83-91.
  • Meacham M, Starks H, Burke W. Fryer-Edwards K. Researcher perspectives on disclosure of unanticipated findings in genetic research. Journal of Empirical Research on Human Research Ethics 2010; 5(3):31–41.
  • Starks H, Morris MA, Yorkston K, Gray R, Johnson K. Being in- or out-of-sync: A qualitative study of couples’ adaptation to change in multiple sclerosis. Disability and Rehabilitation 2010; 32(3):196-206.
  • Starks H, Diehr, P, Curtis JR. The challenge of selection bias and confounding in palliative care research. Journal of Palliative Medicine, 2009; 12(2):181-187.
  • Starks H, Simoni J, Zhao H, Huang B, Fredriksen-Goldsen K, Pearson C, Chen WT, Lu L, Zhang F.  Conceptualizing antiretroviral adherence in Beijing, China. AIDS Care, 2008; 20(6):607-14.
  • Valencia-Garcia D, Starks H, Simoni J, Strick L. After the fall from grace: Negotiation of new identities among HIV-positive Peruvian women. Culture, Health and Sexuality, 2008; 10(7):739-752.
  • Starks H, Trinidad SB.  Choose your method: A comparison of phenomenology, discourse analysis, and grounded theory. Qualitative Health Research, 2007; 17(10):1372-80.

Recent Talks

  • Starks H, West KM, Straub L. “Stakeholder views on data sharing policies: Who wins, who loses, and why?” Exploring the ELSI Universe, 2011 ELSI Congress, Chapel Hill, NC. April 12-14, 2011.
  • Holland S, Starks H, Fullerton SM, Burke W. “Justice in translation: Achieving benefit for all from genomic science.” Exploring the ELSI Universe, 2011 ELSI Congress, Chapel Hill, NC. April 12-14, 2011.
  • Starks H, Farber S, Vig E, VandeKiefft G.  “Words that work: Patient-centered strategies for difficult conversations.”  Half-day, pre-conference workshop, American Association of Hospice and Palliative Medicine/Hospice and Palliative Nurses Association, Annual Meeting, Vancouver, BC. February 16-19, 2011.
  • Starks H, Wang S.  “Predictors of referrals to an inpatient palliative care consult service.” Paper presentation, American Association of Hospice and Palliative Medicine/Hospice and Palliative Nurses Association, Annual Meeting, Vancouver, BC. February 16-19, 2011.

Awards, Honors and Grants Received:

  • National Research Service Award (NRSA) Pre-doctoral Traineeship, Agency for Healthcare Research & Quality (AHRQ), Grant No. T32 HS-013853, 2003-2004

Courses

Miscellaneous:

Cycling, gardening, knitting, skiing

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