HELENE STARKS, PhD MPH Assistant Professor Office: A-204A-2 Health Sciences Building Phone: 206-543-9724 Email: tigiba@u.washington.edu

• Burke W, Holland S, Kuszler P, Starks H, Press N. "Translational genomics: Seeking a shared vision of benefit." [Commentary] American Journal of Bioethics, 2008; in press.
• Starks H, Curtis JR. "Is withholding life support associated with a premature death? If so, what does this mean for ICU practice?" Chest, 2008; in press.
• Starks H, Simoni J, Zhao H, Huang B, Fredriksen-Goldsen K, Pearson C, Chen WT, Lu L, Zhang F. "Conceptualizing antiretroviral adherence in Beijing, China." AIDS Care, 2008; in press.
• Valencia-Garcia D, Starks H, Simoni J, Strick L. "After the fall from grace: Negotiation of new identities among HIV-positive Peruvian women." Culture, Health and Sexuality, 2008; in press.
• Kraft GH, Johnson KL, Yorkston K, Amtmann D, Bamer A, Bombardier C, Ehde D, Fraser R, Starks H. "Setting the agenda for Multiple Sclerosis rehabilitation research." Multiple Sclerosis, 2008; in press.
• Chen WT, Starks H, Shiu CS, Fredriksen-Goldsen K, Simoni J, Zhang F, Pearson C, Zhao H. "Chinese HIV-positive patients and their health care providers: Contrasting Confucian vs. Western notions of secrecy and support." Advances in Nursing Science, 2007; 30(4):329-42.
• Starks H, Trinidad SB. “Choose your method: A comparison of phenomenology, discourse analysis, and grounded theory.” Qual Health Res, 2007; 17(10):1372-80.
• Deming N, Fryer-Edwards K, Dudzinski D, Starks H, Culver J, Robins L, Burke W.  “Incorporating principles and practical wisdom in research ethics education: A preliminary study.”  Acad Med, 2007; 82(1):1-7.
• Starks H, Vig EK, Pearlman RA.  “Advance care planning.” In Palliative Care: Core Skills and Clinical Competencies. Emanuel, L.L. and Librach, L., eds. Saunders-Elsevier, Philadelphia, 2007.
• Starks H, Back AL, Koenig BA, Pearlman RA, Hsu C, Gordon JR, Bharucha A. “Family member involvement in hastened death.”  Death Studies, 2007; 31(2):105-130.
• Vig EK, Taylor JS, Starks H, Hopley EH, Fryer-Edwards KA.  “Beyond substituted judgment: How surrogates navigate end-of-life decision making.”  J Am Geriatr Soc, 2006; 54(11):1688-93.
  
• Vig EK, Starks H, Taylor JS, Hopley EH, Fryer-Edwards KA, Pearlman RA. “How do surrogate decision-makers describe hospice?  Does it matter?”  Am J Hosp Pall Med, 2006; 23(2):91-99.
• Starks H, Pearlman RA, Hsu C, Back AL, Gordon JR, Bharucha A. “Why now? Timing and circumstances of hastened deaths.”  J Pain Symptom Manage, 2005; 30(3):215-26.
• Pearlman RA, Hsu C, Starks H, Back AL, Gordon JR, Bharucha A, Koenig BA, Battin MP. "Motivations for physician-assisted suicide: Patient and family voices." Journal of General Internal Medicine, 2005
• Pearlman RA, Starks H, Cain KC, Cole WG. "Improvements in advance care planning in the VA: Results of a multifaceted intervention." Archives of Internal Medicine, in press for 2005
• Sharp ND, Pineros SL, Hsu C, Starks H, Sales AE. "A qualitative study to identify barriers and facilitators to implementation of pilot interventions in the Veterans Health Administration (VHA) Northwest Network." Worldviews in Evidence-based Nursing, 2004; 1(2):129-13.

• Upcoming: “Passage of I-1000: What does this mean for health care providers in Washington?” Geriatric Ground Rounds, December 19, 2008; Harborview Ethics Forum, January 14, 2009; Bioethics and Humanities Brown Bag Lecture Series, February 2009; Neurology Ground Rounds, February 19, 2009.
• “Pros and cons of physician aid-in-dying and euthanasia—weighing the moral arguments.” Introduction to Bioethics (MHE 411), June 2, 2008.
• “Justice and caregiving: Familial, national, and transnational perspectives.”  American Society for Bioethics and Medicine Annual Meeting, Denver, CO.  Oct. 26-29, 2006.
• "Caregiving and Multiple Sclerosis." State of the Science in MS Rehabilitation Research, Washington DC.  Sept. 18-19, 2006.
• "Responding to requests for physician-assisted suicide after Gonzales v. Oregon." Harborview Ethics Forum, March 8, 2006; Medical History & Ethics Brown Bag, July 26, 2006.
• "Lessons from the Schiavo family for end of life care."  St. Mark’s Cathedral, Scientific Epiphanies Winter Lecture Series, February 1, 2006
• "Substituted judgment vs. best interest standards." Conference on end of life issues and decision making, King County State Bar Association, October 26, 2005.
• “Communication strategies for talking with your health care provider.”  Hamilton House Senior Center, August 29, 2005.
• "Why now? Timing and circumstances of hastened deaths.” Annual assembly of the American Association of Hospice and Palliative Medicine/Hospice and Palliative Nurses Association, New Orleans, LA. January 22, 2005
• “Appropriate use of surrogates in end-of-life decision-making.” American Society for Bioethics and Medicine Annual Meeting, Philadelphia, PA. October 29, 2004
• “Responding to requests for aid-in-dying.” Internal Medicine Residents Ethics Conference, School of Medicine, University of Washington, June 16, 2004
• “Home care use at the end of life: Evidence from the Medical Expenditure Panel Survey.” Academy Health Annual Research Meeting, San Diego, CA. June 4, 2004
• “Dysfunctional families or devoted caregivers? Rethinking health care from 'an ethic of accommodation'.” Dept. of Medical History and Ethics, University of Washington, April 9, 2004.

• National Research Service Award (NRSA) Pre-doctoral Traineeship, Agency for Healthcare Research & Quality (AHRQ), Grant No. T32 HS-013853, 2003-2004

• MHE 597/HSERV 590D: Advanced qualitative methods, Winter 2006
• MHE 536: Research ethics, Winter 2007

Miscellaneous:

Cycling, gardening, knitting, skiing