|

|
Community-Based Participatory
Research
Overview
Reports and Presentations
Examples
of Funded Proposals
Peer-Reviewed Journal
Articles
Syllabi
and Course Materials
Online Curriculum
Electronic Discussion
Groups
Principles and Policies
MOUs/MOAs
Ethics and IRBs
How You Can Contribute to this
Page
Web
Links
Community-based participatory research is a "collaborative
approach to research that equitably involves all partners in the
research process and recognizes the unique strengths that each brings.
CBPR begins with a research topic of importance to the community, has
the aim of combining knowledge with action and achieving social change
to improve health outcomes and eliminate health disparities."
WK Kellogg Foundation
Community Health Scholars Program
In recent years, national organizations, funding agencies
and researchers have called for a renewed focus on an approach to public
health research that recognizes the importance of social, political and
economic systems to health behaviors and outcomes. This renewed focus
is due to many converging factors, including our increased understanding
of the complex issues that affect health, the importance of both qualitative
and quantitative research methods, and the need to translate the findings
of basic, interventional, and applied research into changes in practice
and policy.
As a result, participatory models of research, in which
communities are actively engaged in the research process through partnerships
with academic institutions, have become central to the national prevention
research agenda as articulated by the Institute of Medicine, the Centers
for the Disease Control and Prevention (CDC), Research!America, Partnership
for Prevention, the Public Health Foundation and others.
A number of recent public and private national initiatives
have invested in community-based participatory research (CBPR) in public
health, including the CDC's urban research centers and prevention research
centers, the National Institute of Environmental Health Sciences' translational
research grants,and the WK Kellogg Foundation's Community-Based Public
Health Initiative and Community Health Scholars Program.
A 1998 review authored by Barbara Israel and colleagues
in the Annual
Review of Public Health summarized a decade of peer-reviewed
literature on the principles, processes, outcomes, challenges and facilitators
of CBPR, and a paper commissioned for Community-Campus Partnerships for
Health's 5th
annual conference in the Spring of 2000 took the review a step
further by making specific policy recommendations to support CBPR.
Reports
and Presentations
Below is a selected list of reports and presentations.
Click here
for additional listings.
Please click here
to view additional reports and presentations on CBPR based on CCPH research
and evaluation projects.
Please click here
to view additional presentations on CBPR based on CCPH research and evaluation
projects.
| Name |
Description |
|
| Resources
for Community-Based Participatory Research |
This flyer highlights community-based participatory
research resources available through Community-Campus Partnerships
for Health. We encourage you to print copies as handouts for meetings
and conferences.
|
|
Community-Based
Participatory Research Resources
|
This annotated listing of CBPR articles, reports
and websites was prepared by Community-Campus Partnerships for Health
for the Robert Wood Johnson Clinical Scholars Program
|
|
Community Policy Briefs
|
The journal Progress
in Community Health Partnerships: Research, Education and Action
regularly publishes online Community
Policy Briefs that are intended to inform community-based organizations,
public health policy makers, and other individuals whose primary
interest is not research, but who would be interested in the application
and translation of research findings for practical purposes.
CCPH members get a 20%
discount on subscriptions to the journal.
|
|
A
Snapshot of Community-Based Research in Canada
|
Authored by Sarah Flicker and Beth Savan and published
by the Wellesley Institute, this June 2006 report presents the results
of a web-based survey of community and university community-based
research (CBR) practitioners designed to learn more about the context
and efficacy of CBR in Canada.
Click here for the peer-reviewed article based on the study: Flicker S*, Savan B, Kolenda B and Mildenberger M. A Snapshot of Community-Based Research in Canada: Who? What? Why? How? Health Education Research Advance Access published on February 25, 2007.
|
|
Tips
& Strategies for Developing Strong Community-Based Participatory
Research Proposals
|
This handout was developed by CCPH as a resource
for those seeking funding to support CBPR. It contains a list of
"what drives reviewers crazy," suggestions for ways to
strengthen proposals, and a list of resources for staying on top
of CBPR funding opportunities.
|
|
Canadian Aboriginal AIDS
Network Publications & Presentations
|
The Canadian Aboriginal
AIDS Network (CAAN) is a non-profit coalition of individuals
and organizations which provides leadership,support, and advocacy
for Aboriginal people living with and affected by HIV/AIDS, regardless
of where they reside. CAAN's Aboriginal Capacity-Building Program
for Aboriginal Community-Based Research is developing culturally-appropriate
and methodologically-sound research, analysis and dissemination
strategies.
Click on the title of the publication or presentation to learn
more:
|
|
An
Overview of Models for Community Based Aboriginal HIV/AIDS Research
|
This 2002 report, was prepared for Healing
Our Spirit BC Aboriginal HIV/AIDS Society by Namaste Marsden
to provide a general overview of models for Aboriginal HIV/AIDS
community based research. It provides an overview of the current
situation in Canada; a vision of a model for community based research
that can beimplemented as Aboriginal institutional development continues;
and highlights models that are currently being used to conduct Aboriginal
HIV/AIDS research.
|
|
Community-Based
Participatory Research: Engaging Communities as Partners in Health
Research
|
In the spring of 2000, Community-Campus Partnerships
for Health commissioned Barbara Israel, Amy J. Schulz, Edith A.
Parker, and Adam B. Becker to write this paper on community-based
participatory research and the policy issues affecting such research.
|
|
Evidence
Report on Community-Based Participatory Research
|
In 2002, the Agency
for Health Care Research and Quality commissioned the Research
Triangle Institute-University of North Carolina Evidence-Based Practice
Center to conduct a systematic review of the literature on CBPR
approaches to improved health. Published in July 2004, the review
was designed to establish the nature of the current literature and
to assist academics, community participants and funders by identifying
gaps in implementing this approach.
On December 2, 2004, CCPH and the Northwest Center
for Public Health Practice co-sponsored a webconference based on
the report. Entitled "Community-Based Participatory Research:
A Systematic Review of the Literature and Its Implications,"
the webconference featured three of the report's authors as presenters.
To access the webconference archive, along with presenter powerpoints
and handouts, click here.
|
|
Directory
of Funding Sources for Community-Based Participatory Research
|
Published by CCPH and the Northwest
Health Foundation in June 2004, this directory includes funding
agency descriptions, deadlines, contact information, examples of
previously funded CBPR projects, and an annotated listing of funding
resource websites.
We welcome your comments and suggestions for an
improved future edition of the directory! Please complete and return
this reader feedback form.
|
|
Academic-Community
Partnerships: Keeping Rigor & Relationships in Research
|
The Center
for the Advancement of Health Disparities Research is a collaborative
partnership between the University of Washington and the University
of Hawaii at Manoa Schools of Nursing that is fostering sustainable
mechanisms for scholarship development in health disparities.
The Center's Spring 2004 Educational Institute
included the sessions below. Click here
to view the powerpoint slides and streaming video.
Using Social and Health Indicator Data in Community
Intervention Research by Sandra Ciske, MN, Manager, Epidemiology,
Planning & Evaluation, Public Health, Seattle & King County
Community Intervention Research Applied: Exemplars
from the Field by Gloria Rodriguez, MPH, CEO, Alliance for Multi-Cultural
Health
Partner Power: How to Design Community Intervention
Research by Dr. Noel Chrisman, Professor, UW Psychosocial &
Community Health Department
Mixed Methods to Explore Environmental Exposures
in Low-income Rural Families by Dr. Patricia Butterfield, Assoc.
Professor, UW Psychosocial & Community Health
|
|
Examining
Community-Institutional Partnerships for Prevention Research
|
Click here
for a powerpoint presentation on the project given at the January
2004 meeting of the Federal
Interagency Working Group on Community-Based Participatory Research.
|
|
Developing
and Sustaining Community-University Partnerships for Health Research:
Infrastructure Requirements
|
CCPH was commissioned by the NIH
Office of Behavioral and Social Sciences Research to prepare
this report. Published in January 2003, the paper identifies nine
critical issues that affect the infrastructure required for community-university
research partnerships and, consequently, the future of the field.
Attention to these issues is critical in order to provide the necessary
support for both academic and community partners.
To learn more about the project on which this paper is based, click
here.
|
|
Speaking
Truth, Creating Power: A Guide to Policy Work for Community-Based
Participatory Research Practitioners
|
Authored by CCPH
Fellow Cassandra Ritas ,this tool-kit is designed for community-based
participatory research institutional and community partners who
want to create or change policies that affect health in their communities.
|
|
Presentation
at the CUexpo - Community-University Research: Partnerships, Policy,
and Progress Conference
|
Click here
for a presentation based on the CCPH research project entitled "Developing
and sustaining community-university research partnerships: Infrastructure
requirements.
|
|
| Community-Based Participatory
Research Conference |
CCPH, the University
of Washington School of Public Health and Community Medicine and Seattle
Partners for Healthy Communities jointly sponsored this one-day conference
in April 2003.
Click here
for the conference flyer.
View the day’s agenda
and the speakers biosketches
The keynote
presentation was presented by Robert M. Goodman, Usdin
Family Professor; Tulane University School of Public Health and
Tropical Medicine
CBPR
& Domestic Violence
-presented by Sharyne Shiu-Thornton, Medical Anthropologist
and Ethnic Minority Health Specialist and Lecturer in the Department
of Health Services as the University of Washington; Beruke Giday,
Domestic Violence Program Manager, Refugee Women's Alliance/ReWA;
and Kirsten Senturia, Research Anthropologist at Public Health-Seattle
& King County and affiliate Clinical Assistant Professor at
the University of Washington in the Social and Behavioral Sciences
track of the School of Public Health
CBPR
and Nutrition: Building Healthy Communities
- presented by Adam Drewnowski, Director
of the Center for Public Health Nutrition at the University of Washington
and Professor of Epidemiology in the School of Public Health and
Community Medicine; Donna Johnson, Associate Director at the Center
for Public Health Nutrition and Asst. Professor in the Nutritional
Sciences Program at the University of Washington as well as a Registered
Dietitian; Caroline McNaughton Tittel, Program Manager for the Center
for Public Health Nutrition at the University of Washington and
a Registered Dietitian; and Mayor Lee Blackwell, M.B.A.; City of
Moses Lake, Washington
Healthy
Homes: CBPR in the context of a randomized controlled trial of an
in-home environmental intervention to reduce asthma morbidity
-presented by James Krieger, Chief of the
Epidemiology, Planning & Evaluation Unit at Public Health-Seattle
& King Co.; Carol Allen, Program Manager for Seattle Healthy
Homes Project and Project Coordinator for King County’s Department
of Public Health in the Epidemiology, Planning and Evaluation Division;
and Augustine Hampton, Board Member of the Casey Foundation Committee
for the New Holly Project
|
|
Community-Based Participatory
Research Workshop
|
The American College of Epidemiology sponsored
this September 2002 workshop at its annual conference. Click here
for the powerpoint presentation given by Nina Wallerstein of
the University of New Mexico. The presentation includes the rationale
and definition of CBPR, principles of CBPR, two epidemiologic case
examples, issues and concerns in CBPR, and the future and policy
implications.
|
|
Identifying
Characteristics of Successful Researcher/Community-Based Organization
Collaboration in the Development of Behavioral Interventions to Prevent
HIV Infection
|
This 2002 report, prepared for the Centers for
Disease Control and Prevention by Health, Social and Economics Research,
describes the types of collaborative arrangements thatare commonly
used in developing and implementing HIV prevention interventions.
It highlights barriers, challenges, and critical elements for successful
collaborations.
|
|
Participatory
Evaluation: What is it? Why do it? What are the challenges?
|
This 2002 brief lays out a framework for understanding
the special nature of participatory evaluation, comparing and contrasting
it with more traditional forms of evaluation; gives a rationale
for its use; provides a short, step-by-step set of instructions
on how to implement this approach; and then offers real-world examples
of the challenges and rewards in applying the principles of participatory
evaluation. Developed by the Partnership
for the Public's Health.
|
|
Meeting
on Community-Partnered Interventions in Nursing Research to Reduce
Health Disparities
|
The National Institute
of Nursing Research and the National
Center on Minority Health and Health Disparities convened the this
meeting in November 2001.
Click here
for an executive summary of the meeting.
|
|
| Conference on Community-Based
Participatory Research |
The Agency for Healthcare Research and Quality
in collaboration with the W.K. Kellogg Foundation, the HHS Office
of Minority Health and the NIH Office of Behavioral and Social Sciences
Research convened this
invitational conference in November 2001.
Click here
to view and print the summary report.
|
|
Research in Native Hawaiian
Communities
|
Click here
for a powerpoint presentation given during a March 2001 Workshop
on Current Human Research Issues & Solutions: Regulatory Overview
& Special Populations. Presenters: Mei Ling Chang, Hui No Ke
Ola Pono; JoAnn Tsark, Papa Ola Lokahi; and Philip Lowenthal.
|
|
Partners in Caring and
Community: Integrating Nursing Research into
Service-Learning
|
In the spring of 2001, the Partners in Caring
and Community:
Service-Learning in Nursing Education program sponsored a workshop
on community-based participatory research (CBPR) and the links between
CBPR and service-learning. The workshop was supported by a grant
from the Helene Fuld Health trust.
Click here
for this powerpoint presentation given by Carolyn Jenkins, Medical
University of South Carolina College of Nursing.
|
|
Community-Based Participatory Research
Symposium Series
|
In the fall of 2001, Community-Campus Partnerships
for Health, along with the University of Washington Health Promotion
Research Center and Seattle Partners for Healthy Communities, cosponsored
a Symposium Series on Community-Based Participatory Research. The
Series was supported by a grant from the Centers for Disease Control
and Prevention, Prevention Research Centers Program. Below are agendas
and powerpoint slide presentations from the Series. Click on the
title to view and print the corresponding document.
"From
Town and Gown to Professor in the 'Hood" - presented
by Lucille Webb, Strengthening the Black Family, Inc, Raleigh, NC
and Eugenia Eng, University of North Carolina-Chapel Hill School
of Public Health, Chapel Hill, NC
The
North Carolina Public Health Initiative Authorship Guidelines
- guidelines that partnerships can use to guide the authorship process,
order of authorship, and acknowledgments.
"Creating
and Sustaining Equitable Community-Academic Partnerships in Health
Research: The Detroit Community-Academic Urban Research Center"
- presented by Alex Allen, Butzel Family Center, Detroit, MI and
Barbara Israel, University of Michigan School of Public Health,
Ann Arbor, MI
Detroit
Community-Academic Urban Research Center Procedures for Dissemination-Related
Activities - guidelines that partnerships can use to
guide their dissemination-related activities.
Agenda
for the October 12, 2001 Symposium, including biosketches
for the above-mentioned speakers Panel Presentations on Community-Based
Participatory Research:
Presentation by June Strickland, University of
Washington School of Nursing and Michelle Cooper, Nooksack Tribe
Presentation by Sharyne-Shiu Thornton, University
of Washington School of Public Health and Community Medicine and
Beruke Giday, Domestic Violence Program, Refugee Women's Alliance
Presentation
by Sue Sohng, University of Washington School of Social Work and
Stella Chao, International District Housing Alliance and Minority
Executive Director's Coalition
Agenda
for the November 16, 2001 Symposium, including biosketches for the
above-mentioned speakers
|
|
Morehouse School of Medicine Prevention
Research Center
|
The Morehouse School of Medicine Prevention Research
Center is a member of the Morehouse School of Medicine-Southside
Atlanta partnership, one of the 2002 CCPH Award recipients. Click
here to find out more.
Click here
for a slide show that presents a brief description including the
community values, priorities and focus established by the partnership.
|
|
Successful Models of Community-Based
Participatory Research
|
Click here
for a report from this March 2000 meeting hosted by the National
Institute of Environmental Health Sciences.
|
|
Examples of Funded
Proposals
CCPH maintains a growing collection of examples of funded CBPR proposals.
Please click on a document below to view. To view and print some of these
materials, you will need Adobe
Acrobat Reader.
Help us expand our collection! To submit examples of funded CBPR proposals,
please email file attachments to ccphuw@u.washington.edu.
Be sure to include any pertinent copyright, authorship and organizational
information.
Peer-Reviewed Journal
Articles
The Institute
for Community Research sends out a monthly e-mail with the latest
bibliographic and abstract information available on publications related
to community-based research. To subscribe, send an email with the subject
line blank to:
icr-abstracts-subscribe@topica.com
The Summer 2008 issue of Progress
in Community Health Partnerships contains papers from CCPH's
10th anniversary conference. CCPH members can subscribe at a discount.
Click here
to read the CCPH-authored editorial, Mobilizing Partnerships for Social
Change.
The June 2008 issue of the Journal
of Empirical Research on Human Research Ethics is focused on the theme
of ethical considerations in CBPR. Click here
to read the introduction to the issue.
The December 2007 issue of Pimatisiwin:
A Journal of Indigenous and Aboriginal Community Health focuses on
community-based participatory research and includes papers from CCPH's
10th
anniversary conference
Recent
Publications Regarding CBPR is an annotated bibliography authored
by Julie Stevenson at the University of Colorado at Denver and Health
Sciences Center in December 2006. It was first published by the Family
Medicine Digital Resources Library.
The November 2004 issue of the Journal of Interprofessional
Care is focused on the theme of community-based participatory research.
Click here
for the table of contents and abstracts. If you are not a current subscriber,
click here
to request a free sample issue.
The July 2003 issue of the Journal
of General Internal Medicine is focused on the theme of community-based
participatory research. Click here
for a listing of articles and abstracts from the issue. Two editorials
from the issue appear as full-text PDF files below, thanks to permission
from the Journal editor.
Flicker S*, Savan B, Kolenda B and Mildenberger M. A Snapshot of Community-Based Research in Canada: Who? What? Why? How?. Health Education Research Advance Access published on February 25, 2007.
Ahmed SM, Beck B, Maurana CA, Newton G. Overcoming
Barriers to Effective Community-Based Participatory Research in US Medical
Schools. Education for Health, Vol. 17, No. 2, July 2004, 141-151.
O'Donnell M, Entwistle V. Consumer
involvement in research projects: the activities of research funders.
Health Policy 2004; 69: 229-238
Felix-Aaron K and Stryer D. Moving
from Rhetoric to Evidence-based Action in Health Care. Journal of
General Internal Medicine 2003. 8;7:589-591.
O'Toole T, Felix-Aaron, K, Chin MH, Horowitz C,
Tyson F. Community-based Participatory
Research: Opportunities, Challenges and the Need for a Common Language.
Journal of General Internal Medicine 2003. 8;7:592-594.
Eisinger A and Senturia K. Doing
Community-Driven Research: A Description of Seattle Partners for Healthy
Communities. J Urban Health 2001 78: 519-534.
Freudenberg N. Case
History of the Center for Urban Epidemiologic Studies in New York City.
J Urban Health 2001 78: 508-518.
Higgins DL and Metzler. Implementing
Community-Based Participatory Research Centers in Diverse Urban Settings.
J Urban Health 2001 78: 488-494.
Keeping
America Healthy: CDC Prevention Research Partnerships - this
issue of the journal Public Health Reports is focused on the federally
funded Prevention Research Centers and their community-based research
partnerships.
Lantz PM, Viruell-Fuentes E, Israel BA, Softley, D and
Guzman R. Can
Communities and Academia Work Together on Public Health Research? Evaluation
Results From a Community-Based Participatory Research Partnership in Detroit.
J Urban Health 2001 78: 495-507.
Israel BA,
Schulz AJ, Parker E, Becker AB. Community-Based Participatory Research:
Policy Recommendations for Promoting a Partnership Approach in Health
Research. Education for Health, Vol. 14, No. 2, 2001, 182-197. To
see the full commissioned paper on which this article is based, click
here.
Minkler
M. Using participatory action research to build healthy communities Public
Health Rep 2000 115: 191-198.
Community-Based Participatory
Research Syllabi and Course Materials
CCPH maintains a growing collection of CBPR syllabi
and course materials. Please click on a course below to view. To view
and print some of these materials, you will need Adobe
Acrobat Reader.
Help us expand our collection! To submit your CBPR syllabi
and/or course materials, please email file attachments to ccphuw@u.washington.edu.
Be sure to include any pertinent copyright, authorship and institutional
information.
Note: Inclusion of CBPR syllabi and course materials
on the CCPH website does not constitute endorsement by CCPH.
Click here
for a database of community-based research courses, syllabi, and projects
maintained by Princeton University and the Bonner Foundation.
Click here
for syllabi for health-related service-learning courses.
A
Community-Based Participatory Research Curriculum for General Pediatrics
Fellows- developed and implemented by CCPH
Fellow Darius Tandon. Twelve General Academic Pediatrics Fellows in
the Johns Hopkins University School of Medicine received this eight-hour
curriculum during the 2002-2003 academic year. To view the curriculum
click here. To view
the curriculum outline click here.
A
Community-Based Participatory Research Curriculum -
developed by CCPH Fellow Darius Tandon.
This "abridged" two-hour version of the curriculum was created with the
recognition that many academic departments and training programs within
Schools of Medicine may be interested in CBPR, but have limited time in
which to learn about CBPR. Having a shorter curriculum, therefore, may
help promote wider understanding of CBPR among medical educators and physicians.
To view the abridged curriculum click here.
To view the abridged curriculum notes click here.
Advanced Social
Research Methods, University of Toledo
Case
Studies on Ethics and Community-Based Participatory Research
Community-Based
Environmental Health Methods for Research Intervention and Evaluation,
Tufts University
Community-Based Participatory
Research, University of New England, Graduate Public Health Education
Program (draft syllabus, March 2006)
Community-Based
Participatory Research Bibliography
Community-Based
Participatory Research: An Emerging Strategy in Health Services and Prevention,
University of North Carolina-Chapel Hill Department of Family Medicine
Community-Based
Participatory Research: Theories, Principles, Methods, and Applications,
University of Washington School of Public Health and Community Medicine
Community-Based
Participatory Research, University of Michigan School of Public Health.
Click here
for course readings.
Community-Based
Research in the Clayoquot Sound Region, University of Victoria.
Click here for course
syllabus. Click here for recommended
readings.
Community-Based
Research Seminar, Temple University
Community-Based
Research, University of Denver College of Education
Community-Based Research,
University of Michigan (taught by faculty in Social Work and Urban
Planning, Sociology, Psychology and Health Behavior and Health Education)
Community
Capacity, Competence and Power, University of North Carolina-Chapel Hill
School of Public Health
Community-Driven
Epidemiology and Environmental Justice, University of North Carolina
Community
Health & Research, Prince William Campus of George Mason University
Conducting
Research with Diverse Populations, University of Washington School of
Nursing
Critical
Methodology and Participatory Action Research, University of Washington
School of Social Work
Engaged Methodologies,
Loyola University Chicago - examines all aspects of how sociology
is used, and can be used, in community-based research and in social-change
oriented initiatives.
Health,
Culture and Community, University of Washington School of Nursing
- this course focuses on individual and organizational cultural competence
relevant to health promotion/disease prevention in community-based participatory
research and other community health approaches.
Health
Studies Research Practicum, University of Toronto, University College
- As part of a unique partnership between Wellesley Central Health Corporation
and University College, University of Toronto, this course is intended
to acquaint students with CBPR, its theoretical underpinnings and guiding
principles, as well as some of its challenges and limitations.
Participatory
Action Research in Public Health, University of California-Berkeley School
of Public Health
Participatory
Action Research, University of Richmond
Research
Ethics in Research with Underserved Groups, University of Massachusetts-Lowell
- Click here
for a description of an online version of this class.
Introduction
to Community Research and Action, Arizona State University
Organizing
for Social Action in Urban Communities, University of Wisconsin-Milwaukee
Electronic
Discussion Groups
CBPR Listserv
This listserv was launched in June 2004 through a partnership
between
Community-Campus Partnerships for Health
and the Wellesley Institute
to serve the growing network of people involved and interested in CBPR.
We hope this listserv will provide a resource for sharing knowledge and
experience and contribute to strengthening the field of CBPR and ultimately
improving the health of communities.
To subscribe, go to:
https://mailman.u.washington.edu/mailman/listinfo/cbpr
Click here
for a flyer describing this listserv. Please feel free to distribute this
flyer to interested parties and at relevant meetings.
From June-September 2005, we conducted a confidential
online survey of listserv subscribers to solicit their feedback, help
to improve the listserv and continue to advance the field of CBPR. To
read the results of the survey, click here.
CBPR & Research Ethics Listserv
This listserv was established to continue the dialogue initiated by the
2007 Educational Conference Call Series on Institutional Review Boards
(IRBs) and Ethical Issues in Research co-sponsored by CCPH and the Tuskegee
Bioethics Center. The listserv is a resource for posting questions and
sharing information related to the ethical issues that arise in CBPR.
To sign up, click here.
For more information on CBPR and Research Ethics, including audiofiles
and handouts from the call series, click here.
Institute
for Community Research Abstracts Listserve
This
electronic discussion group sends out the latest bibliographic and
abstract information available on publications related to community-based
research.
To subscribe, send an email with the subject line
blank to:
icr-abstracts-subscribe@topica.com
Principles and Policies
A number of authors have advanced principles for community-based
participatory research. Drawing on over a decade of experience, Barbara
Israel and her colleagues in Michigan have identified nine key principles
of community-based participatory research that support successful research
partnerships and are widely cited [Israel B, Schulz A, Parker E and Becker
A. (1998). Review of community-based research: Assessing partnership approaches
to improve public health. Annual Review of Public Health, 19, pp. 173-202]
- Recognizes community as an unit of identity
- Builds on strengths and resources within the community
- Facilitates collaborative, equitable involvement of all partners in
all phases of the research
- Integrates knowledge and intervention for mutual benefit of all partners
- Promotes a co-learning and empowering process that attends to social
inequalities
- Involves a cyclical and iterative process
- Addresses health from both positive and ecological perspectives
- Disseminates findings and knowledge gained to all partners
- Involves long-term commitment by all partners.
Click here
for the CBPR principles in English and Spanish.
Click here
for the CBPR principles in English and Portuguese.
Click here
for the CBPR principles in Spanish and Portuguese.
While principles are a useful guide, Israel and her
colleagues caution that they should not be imposed upon a project, and
that they should be allowed to continually evolve to reflect changes in
the research context, purpose and participants The process of developing
principles and making decisions about the partnership's characteristics
is essential to building the infrastructure of the partnership.
Examples of principles and policies developed by other
CBPR partnerships and initiatives are listed below:
The Kahnawake Schools Diabetes Prevention Project (KSDPP) is a partnership of the people of the Kanien'keha:ka (Mohawk) community of Kahnawa:ke, community based researchers of the Kateri Memorial Hospital Center and the Kahnawa:ke Education System, and academic researchers of McGill University and the Université de Montréal. KSDPP has developed a Code of Research Ethics and a Vision Statement.
Access
Alliance research policies and procedures
Click here
to read more about this Toronto-based Multicultural Community Health Centre's
approach to community-based research.
University
of Washington's principles of community-based research
The Canadian Aboriginal
AIDS Network's Aboriginal HIV/AIDS Community-Based Research Capacity-Building
Initiative has developed Principles
of Research Collaboration. Ownership control access and possession
is a political term that is being used by Aboriginal Peoples to highlight
the right to self-determination in the area of HIV/AIDS research. This
fact
sheet explains the term and is meant to help guide decisions and actions
around involvement in research. For more information, contact Randy
Jackson.
Model
Tribal Research Code with materials for tribal regulation for
research and checklist for Indian Health Boards, developed by the American
Indian Law Center.
The Navajo
Nation Human Research Code sets forth the conditions under which researchers
and others may perform research activities on living human subjects within
the territorial jurisdiction of the Navajo Nation.
Policy
on Community-Based Participatory Research in Public Health - The American
Public Health Association adopted this policy on CBPR in public health
at its 2004 annual meeting. If you are unable to read the attachment,
it is also available online as policy 2004-12 at http://www.apha.org/legislative/policy/2004/
Principles
of Community-Based Action Research, Community Economic Development Center
in Canada
Principles
of Community-Based Research, University of Victoria Community Health Promotion
Coalition
Research
Principles - developed by Isles, Inc., a nonprofit community
development and environmental organization with the mission to foster
more self-reliant families in healthy, sustainable communities.
Research
protocols, principles and guidelines related to indigenous communities,
compiled by the University of Victoria
Rocky Mountain Prevention
Research Center Community Advisory Board's Procedures Manual
Standards of Conduct
for Research in North Barkley and Clayoquot Sound Communities
Bylaws,
Morehouse School of Medicine Prevention Research Center
West Virginia
Prevention Research Centers for Public Health Research and Training Mission
and Statement of Values
Yakima Valley Farm Workers
Clinic has developed policies and procedures to guide decisions about
their involvement in research: A research
involvement policy, a research
participation procedure and an application
form. For more information, contact CCPH member Vickie
Ybarra.
Ten
Principles that Guide Community Research and Evaluation at the Centre
for Research and Education in Human Services.
MOUs/MOAs
CBPR partnerships often codify their partner relationships
through a signed
memorandum of understanding (MOU) or memorandum of agreement (MOA).
These sections of the Developing
and Sustaining CBPR Partnerships: A Skill-Building Curriculum include
info on MOUs/MOAs:
See below for additional examples.
MOA between Carleton University and
the Canadian Centre on Substance Abuse
Collaborative Research Grant Agreement,
University of Alberta
MOU between the National Friendly Access
Program Office and the Community Friendly Access Coalition
MOU, Magic City Stroke Prevention Project
Sample Terms of Reference Contract, Wellesley Institute
Principles of Research Collaboration
Between The Canadian Aboriginal AIDS Network and Partners
MOU Between the Stay Healthy Coalition and
the Pleasantville School District
Healthy African American Families Community Participatory Research
Collaboration Agreement
MOU for the Community Organizing Part of Community Action Against Asthma
MOU for University of North Carolina-Chapel Hill Department of Health
Behavior and Health Education and AGENCY
How You Can Contribute to
this Page
We welcome your comments, suggestions and submissions of items to include
on this page. Please send these by e-mail
or by mail: UW Box 354809, Seattle, WA 98195-4809.
|
|
|
|