Reports and Presentations
of Funded Proposals
and Course Materials
Ethics and IRBs
You Can Contribute to this Page
participatory research is a "collaborative approach to research that equitably
involves all partners in the research process and recognizes the unique strengths
that each brings. CBPR begins with a research topic of importance to the community,
has the aim of combining knowledge with action and achieving social change to
improve health outcomes and eliminate health disparities."
Kellogg Foundation Community Health Scholars Program
In recent years, national organizations, funding agencies and researchers have
called for a renewed focus on an approach to public health research that recognizes
the importance of social, political and economic systems to health behaviors and
outcomes. This renewed focus is due to many converging factors, including our
increased understanding of the complex issues that affect health, the importance
of both qualitative and quantitative research methods, and the need to translate
the findings of basic, interventional, and applied research into changes in practice
As a result, participatory models of research,
in which communities are actively engaged in the research process through partnerships
with academic institutions, have become central to the national prevention research
agenda as articulated by the Institute of Medicine, the Centers for the Disease
Control and Prevention (CDC), Research!America, Partnership for Prevention, the
Public Health Foundation and others.
A number of recent
public and private national initiatives have invested in community-based participatory
research (CBPR) in public health, including the CDC's urban research centers and
prevention research centers, the National Institute of Environmental Health Sciences'
translational research grants,and the WK Kellogg Foundation's Community-Based
Public Health Initiative and Community Health Scholars Program.
1998 review authored by Barbara Israel and colleagues in the Annual
Review of Public Health summarized a decade of peer-reviewed literature
on the principles, processes, outcomes, challenges and facilitators of CBPR, and
a paper commissioned for Community-Campus Partnerships for Health's 5th
annual conference in the Spring of 2000 took the review a step further
by making specific policy recommendations to support CBPR.
Below is a selected list of reports
and presentations. Click here
for additional listings.
Please click here
to view additional reports and presentations on CBPR based on CCPH research and
Please click here
to view additional presentations on CBPR based on CCPH research and evaluation
for Community-Based Participatory Research ||
This flyer highlights community-based participatory research
resources available through Community-Campus Partnerships for Health. We encourage
you to print copies as handouts for meetings and conferences.
Healthy Public Policy through CBPR: Ten Case Studies |
This report includes 10 case studies of diverse CBPR partnerships
around the United States that share a commitment to foster healthy public policy.
For additional resources on impacting policy through CBPR, see the audiofile and
handouts from the October 21, 2009 CCPH educational
Participatory Research Resources |
annotated listing of CBPR articles, reports and websites was prepared by Community-Campus
Partnerships for Health for the Robert Wood Johnson Clinical Scholars Program
Community Health Partnerships: Research, Education and Action regularly publishes
Policy Briefs that are intended to inform community-based organizations, public
health policy makers, and other individuals whose primary interest is not research,
but who would be interested in the application and translation of research findings
for practical purposes.
CCPH members get a 20%
discount on subscriptions to the journal.
Snapshot of Community-Based Research in Canada|
Authored by Sarah Flicker and Beth Savan and published by
the Wellesley Institute, this June 2006 report presents the results of a web-based
survey of community and university community-based research (CBR) practitioners
designed to learn more about the context and efficacy of CBR in Canada.
here for the peer-reviewed article based on the study: Flicker S*, Savan B,
Kolenda B and Mildenberger M. A Snapshot of Community-Based Research in Canada:
Who? What? Why? How? Health Education Research Advance Access published on February
& Strategies for Developing Strong Community-Based Participatory Research
handout was developed by CCPH as a resource for those seeking funding to support
CBPR. It contains a list of "what drives reviewers crazy," suggestions
for ways to strengthen proposals, and a list of resources for staying on top of
CBPR funding opportunities.
Aboriginal AIDS Network Publications & Presentations |
The Canadian Aboriginal AIDS
Network (CAAN) is a non-profit coalition of individuals and organizations
which provides leadership,support, and advocacy for Aboriginal people living with
and affected by HIV/AIDS, regardless of where they reside. CAAN's Aboriginal Capacity-Building
Program for Aboriginal Community-Based Research is developing culturally-appropriate
and methodologically-sound research, analysis and dissemination strategies.
on the title of the publication or presentation to learn more:
Overview of Models for Community Based Aboriginal HIV/AIDS Research|
This 2002 report,
was prepared for Healing Our Spirit
BC Aboriginal HIV/AIDS Society by Namaste Marsden to provide a general overview
of models for Aboriginal HIV/AIDS community based research. It provides an overview
of the current situation in Canada; a vision of a model for community based research
that can beimplemented as Aboriginal institutional development continues; and
highlights models that are currently being used to conduct Aboriginal HIV/AIDS
Participatory Research: Engaging Communities as Partners in Health Research|
In the spring
of 2000, Community-Campus Partnerships for Health commissioned Barbara Israel,
Amy J. Schulz, Edith A. Parker, and Adam B. Becker to write this paper on community-based
participatory research and the policy issues affecting such research.
Report on Community-Based Participatory Research|
In 2002, the Agency for Health
Care Research and Quality commissioned the Research Triangle Institute-University
of North Carolina Evidence-Based Practice Center to conduct a systematic review
of the literature on CBPR approaches to improved health. Published in July 2004,
the review was designed to establish the nature of the current literature and
to assist academics, community participants and funders by identifying gaps in
implementing this approach.
On December 2, 2004, CCPH and
the Northwest Center for Public Health Practice co-sponsored a webconference based
on the report. Entitled "Community-Based Participatory Research: A Systematic
Review of the Literature and Its Implications," the webconference featured
three of the report's authors as presenters. To access the webconference archive,
along with presenter powerpoints and handouts, click here.
of Funding Sources for Community-Based Participatory Research|
Published by CCPH and the
Northwest Health Foundation in June 2004, this
directory includes funding agency descriptions, deadlines, contact information,
examples of previously funded CBPR projects, and an annotated listing of funding
We welcome your comments and suggestions
for an improved future edition of the directory! Please complete and return this
reader feedback form.
Partnerships: Keeping Rigor & Relationships in Research |
for the Advancement of Health Disparities Research is a collaborative partnership
between the University of Washington and the University of Hawaii at Manoa Schools
of Nursing that is fostering sustainable mechanisms for scholarship development
in health disparities.
The Center's Spring 2004 Educational
Institute included the sessions below. Click here
to view the powerpoint slides and streaming video.
Social and Health Indicator Data in Community Intervention Research by Sandra
Ciske, MN, Manager, Epidemiology, Planning & Evaluation, Public Health, Seattle
& King County
Community Intervention Research Applied:
Exemplars from the Field by Gloria Rodriguez, MPH, CEO, Alliance for Multi-Cultural
Partner Power: How to Design Community Intervention
Research by Dr. Noel Chrisman, Professor, UW Psychosocial & Community
Mixed Methods to Explore Environmental
Exposures in Low-income Rural Families by Dr. Patricia Butterfield, Assoc.
Professor, UW Psychosocial & Community Health
Community-Institutional Partnerships for Prevention Research|
for a powerpoint presentation on the project given at the January 2004 meeting
of the Federal Interagency
Working Group on Community-Based Participatory Research.
and Sustaining Community-University Partnerships for Health Research: Infrastructure
was commissioned by the NIH Office of Behavioral
and Social Sciences Research to prepare this report. Published in January
2003, the paper identifies nine critical issues that affect the infrastructure
required for community-university research partnerships and, consequently, the
future of the field. Attention to these issues is critical in order to provide
the necessary support for both academic and community partners.
learn more about the project on which this paper is based, click here.
Truth, Creating Power: A Guide to Policy Work for Community-Based Participatory
by CCPH Fellow Cassandra Ritas ,this tool-kit
is designed for community-based participatory research institutional and community
partners who want to create or change policies that affect health in their communities.
at the CUexpo - Community-University Research: Partnerships, Policy, and Progress
for a presentation based on the CCPH research project entitled "Developing
and sustaining community-university research partnerships: Infrastructure requirements.
Participatory Research Conference||CCPH,
the University of Washington School of Public Health and Community Medicine and
Seattle Partners for Healthy Communities jointly sponsored this one-day conference
in April 2003. |
for the conference flyer.
View the day’s agenda
and the speakers biosketches
presentation was presented by Robert M. Goodman, Usdin Family Professor;
Tulane University School of Public Health and Tropical Medicine
& Domestic Violence
-presented by Sharyne
Shiu-Thornton, Medical Anthropologist and Ethnic Minority Health Specialist and
Lecturer in the Department of Health Services as the University of Washington;
Beruke Giday, Domestic Violence Program Manager, Refugee Women's Alliance/ReWA;
and Kirsten Senturia, Research Anthropologist at Public Health-Seattle & King
County and affiliate Clinical Assistant Professor at the University of Washington
in the Social and Behavioral Sciences track of the School of Public Health
and Nutrition: Building Healthy Communities
presented by Adam Drewnowski, Director of the Center for Public Health Nutrition
at the University of Washington and Professor of Epidemiology in the School of
Public Health and Community Medicine; Donna Johnson, Associate Director at the
Center for Public Health Nutrition and Asst. Professor in the Nutritional Sciences
Program at the University of Washington as well as a Registered Dietitian; Caroline
McNaughton Tittel, Program Manager for the Center for Public Health Nutrition
at the University of Washington and a Registered Dietitian; and Mayor Lee Blackwell,
M.B.A.; City of Moses Lake, Washington
Homes: CBPR in the context of a randomized controlled trial of an in-home environmental
intervention to reduce asthma morbidity
by James Krieger, Chief of the Epidemiology, Planning & Evaluation Unit at
Public Health-Seattle & King Co.; Carol Allen, Program Manager for Seattle
Healthy Homes Project and Project Coordinator for King County’s Department
of Public Health in the Epidemiology, Planning and Evaluation Division; and Augustine
Hampton, Board Member of the Casey Foundation Committee for the New Holly Project
Participatory Research Workshop|
American College of Epidemiology sponsored this September 2002 workshop at its
annual conference. Click here
for the powerpoint presentation given by Nina Wallerstein of the University
of New Mexico. The presentation includes the rationale and definition of CBPR,
principles of CBPR, two epidemiologic case examples, issues and concerns in CBPR,
and the future and policy implications.
Characteristics of Successful Researcher/Community-Based Organization Collaboration
in the Development of Behavioral Interventions to Prevent HIV Infection|
This 2002 report, prepared
for the Centers for Disease Control and Prevention by Health, Social and Economics
Research, describes the types of collaborative arrangements thatare commonly used
in developing and implementing HIV prevention interventions. It highlights barriers,
challenges, and critical elements for successful collaborations.
Evaluation: What is it? Why do it? What are the challenges? |
This 2002 brief lays out a framework for understanding the
special nature of participatory evaluation, comparing and contrasting it with
more traditional forms of evaluation; gives a rationale for its use; provides
a short, step-by-step set of instructions on how to implement this approach; and
then offers real-world examples of the challenges and rewards in applying the
principles of participatory evaluation. Developed by the Partnership
for the Public's Health.
on Community-Partnered Interventions in Nursing Research to Reduce Health Disparities
National Institute of Nursing Research and the National
Center on Minority
Health and Health Disparities convened the this meeting in November 2001.
for an executive summary of the meeting.
on Community-Based Participatory Research|| |
Agency for Healthcare Research and Quality in collaboration with the W.K. Kellogg
Foundation, the HHS Office of Minority Health and the NIH Office of Behavioral
and Social Sciences Research convened this
invitational conference in November
to view and print the summary report.
in Native Hawaiian Communities|
for a powerpoint presentation given during a March 2001 Workshop on Current Human
Research Issues & Solutions: Regulatory Overview & Special Populations.
Presenters: Mei Ling Chang, Hui No Ke Ola Pono; JoAnn Tsark, Papa Ola Lokahi;
and Philip Lowenthal.
in Caring and Community: Integrating Nursing Research into|
In the spring of 2001,
the Partners in Caring and Community:
Service-Learning in Nursing Education
program sponsored a workshop on community-based participatory research (CBPR)
and the links between CBPR and service-learning. The workshop was supported by
a grant from the Helene Fuld Health trust.
here for this
powerpoint presentation given by Carolyn Jenkins, Medical University of South
Carolina College of Nursing.
Participatory Research Symposium Series|
the fall of 2001, Community-Campus Partnerships for Health, along with the University
of Washington Health Promotion Research Center and Seattle Partners for Healthy
Communities, cosponsored a Symposium Series on Community-Based Participatory Research.
The Series was supported by a grant from the Centers for Disease Control and Prevention,
Prevention Research Centers Program. Below are agendas and powerpoint slide presentations
from the Series. Click on the title to view and print the corresponding document.
Town and Gown to Professor in the 'Hood" - presented by Lucille
Webb, Strengthening the Black Family, Inc, Raleigh, NC and Eugenia Eng, University
of North Carolina-Chapel Hill School of Public Health, Chapel Hill, NC
North Carolina Public Health Initiative Authorship Guidelines - guidelines
that partnerships can use to guide the authorship process, order of authorship,
and Sustaining Equitable Community-Academic Partnerships in Health Research: The
Detroit Community-Academic Urban Research Center" - presented
by Alex Allen, Butzel Family Center, Detroit, MI and Barbara Israel, University
of Michigan School of Public Health, Ann Arbor, MI
Community-Academic Urban Research Center Procedures for Dissemination-Related
Activities - guidelines that partnerships can use to guide their dissemination-related
for the October 12, 2001 Symposium, including biosketches for the above-mentioned
speakers Panel Presentations on Community-Based Participatory Research:
by June Strickland, University of Washington School of Nursing and Michelle Cooper,
Presentation by Sharyne-Shiu Thornton,
University of Washington School of Public Health and Community Medicine and Beruke
Giday, Domestic Violence Program, Refugee Women's Alliance
by Sue Sohng, University of Washington School of Social Work and Stella Chao,
International District Housing Alliance and Minority Executive Director's Coalition
for the November 16, 2001 Symposium, including biosketches for the above-mentioned
School of Medicine Prevention Research Center|
Morehouse School of Medicine Prevention Research Center is a member of the Morehouse
School of Medicine-Southside Atlanta partnership, one of the 2002 CCPH Award recipients.
Click here to find out more.
for a slide show that presents a brief description including the community values,
priorities and focus established by the partnership.
Models of Community-Based Participatory Research|
for a report from this March 2000 meeting hosted by the National Institute of
Environmental Health Sciences.
of Funded Proposals
CCPH maintains a growing collection of examples of funded
CBPR proposals. Please click on a document below to view. To view and print some
of these materials, you will need Adobe
Help us expand our collection! To submit examples of
funded CBPR proposals, please email file attachments to firstname.lastname@example.org.
Be sure to include any pertinent copyright, authorship and organizational information.
goal of the Centers for Disease Control and Prevention-funded Poder es Salud/Power
for Health is to increase the capacity of members of the African American and
Latino communities in Multnomah County, Oregon, to identify health issues and
address health promotion and disease prevention, through the intervention of Community
Health Workers (CHWs) who use Popular Education. The partnership involves the
Community Capacitation Center of the Multnomah County Health Department, the Sankofaa
Institute of Cultural Learning, the Latino Network, the Urban League of Portland,
and the School of Community Health at Portland State University. ||
Click on a title below to view and print the corresponding Poder es Salud/Power
for Health proposal document:
2. Protection of Human
3. Activities Related to
But Not Supported By the Grant
|The Canadian Institutes of Health Research-funded
study, "Understanding Adolescent Access to Sexual and Reproductive Health
Services" is phase II of the Toronto Teen Survey, a collaboration between
community-based organizations, academic researchers and policy-makers that has
an overall goal of developing a sexual health strategy for diverse youth in Toronto.
Phase II employs a qualitative methodology (focus groups) with targeted youth
populations to further investigate significant findings from survey data collected
in Phase I, set a future research agenda, and explore community relevant ways
to incorporate study findings into sexual|
Click here for the study proposal.
more information about the Toronto Teen Survey, click here
|The Canadian Institutes of Health Research-funded
study, "Taking Action: Using Arts-Based Approaches to Develop Aboriginal
Youth Leadership in HIV Prevention" aims to:|
(a) build Aboriginal youth
capacity in the areas of HIV prevention knowledge and resources development to
address HIV issues in their local communities; and
(b) examine the efficacy
of engaging Aboriginal youth in HIV prevention leadership using art-based approaches.
Click here for the study proposal.
announcing the grant
Read a conference
abstract on study findings
for Community Research sends out a monthly e-mail with the latest bibliographic
and abstract information available on publications related to community-based
research. To subscribe, send an email with the subject line blank to:
The May 29, 2009 issue of Circulation contains this CCPH
co-authored article on CBPR: Horowitz CR, Robinson M, Seifer S. Community-Based
Participatory Research From the Margin to the Mainstream: Are Researchers Prepared?
Circulation. 2009; 119:2633-2642.
The Summer 2008 issue
in Community Health Partnerships contains papers from CCPH's
10th anniversary conference. CCPH members can subscribe at a discount.
to read the CCPH-authored
editorial, Mobilizing Partnerships for Social Change.
June 2008 issue of the Journal
of Empirical Research on Human Research Ethics is focused on the theme of
ethical considerations in CBPR. Click here
to read the introduction to the issue.
The December 2007
issue of Pimatisiwin:
A Journal of Indigenous and Aboriginal Community Health focuses on community-based
participatory research and includes papers from CCPH's 10th
Publications Regarding CBPR is an annotated bibliography authored by Julie
Stevenson at the University of Colorado at Denver and Health Sciences Center in
December 2006. It was first published by the Family
Medicine Digital Resources Library.
2004 issue of the Journal of Interprofessional Care is focused on the theme of
community-based participatory research. Click here
for the table of contents and abstracts. If you are not a current subscriber,
to request a free sample issue.
The July 2003 issue of
the Journal of General
Internal Medicine is focused on the theme of community-based participatory
research. Click here for a listing of
articles and abstracts from the issue. Two editorials from the issue appear as
full-text PDF files below, thanks to permission from the Journal editor.
S*, Savan B, Kolenda B and Mildenberger M. A
Snapshot of Community-Based Research in Canada: Who? What? Why? How?. Health
Education Research Advance Access published on February 25, 2007.
SM, Beck B, Maurana CA, Newton G. Overcoming
Barriers to Effective Community-Based Participatory Research in US Medical Schools.
Education for Health, Vol. 17, No. 2, July 2004, 141-151.
M, Entwistle V. Consumer involvement in research
projects: the activities of research funders. Health Policy 2004; 69: 229-238
K and Stryer D. Moving from Rhetoric to Evidence-based
Action in Health Care. Journal of General Internal Medicine 2003. 8;7:589-591.
T, Felix-Aaron, K, Chin MH, Horowitz C, Tyson F. Community-based
Participatory Research: Opportunities, Challenges and the Need for a Common Language.
Journal of General Internal Medicine 2003. 8;7:592-594.
A and Senturia K. Doing
Community-Driven Research: A Description of Seattle Partners for Healthy Communities.
J Urban Health 2001 78: 519-534.
Freudenberg N. Case
History of the Center for Urban Epidemiologic Studies in New York City.
J Urban Health 2001 78: 508-518.
Higgins DL and Metzler.
Participatory Research Centers in Diverse Urban Settings. J Urban Health
2001 78: 488-494.
America Healthy: CDC Prevention Research Partnerships - this issue
of the journal Public Health Reports is focused on the federally funded Prevention
Research Centers and their community-based research partnerships.
PM, Viruell-Fuentes E, Israel BA, Softley, D and Guzman R. Can
Communities and Academia Work Together on Public Health Research? Evaluation Results
From a Community-Based Participatory Research Partnership in Detroit.
J Urban Health 2001 78: 495-507.
BA, Schulz AJ, Parker E, Becker AB. Community-Based Participatory Research: Policy
Recommendations for Promoting a Partnership Approach in Health Research. Education
for Health, Vol. 14, No. 2, 2001, 182-197. To see the full commissioned paper
on which this article is based, click here.
M. Using participatory action research to build healthy communities Public Health
Rep 2000 115: 191-198.
Participatory Research Syllabi and Course Materials
maintains a growing collection of CBPR syllabi and course materials. Please click
on a course below to view. To view and print some of these materials, you will
Help us expand our collection!
To submit your CBPR syllabi and/or course materials, please email file attachments
Be sure to include any pertinent copyright, authorship and institutional information.
Inclusion of CBPR syllabi and course materials on the CCPH website does not constitute
endorsement by CCPH.
for a database of community-based research courses, syllabi, and projects maintained
by Princeton University and the Bonner Foundation.
here for CBPR and related syllabi
maintained by the Community Organization (comm-org) website.
for syllabi for health-related service-learning courses.
and Sustaining CBPR Partnerships: A Skill-Building Curriculum is a free, evidence-based
online curriculum to for community-institutional
partnerships that are using or planning to use a CBPR approach to improving health.
It can be used by partnerships that are just forming as well as mature partnerships.
Seven units cover such topics as defining CBPR, identifying and selecting partners,
setting priorities, establishing partnership policies and procedures, building
trust, resolving conflict, securing and distributing funds, disseminating results,
CBPR: A Partnership Approach for Public Health is a downloadable
instructional CD-ROM for people who
are in the early stages of using or considering using CBPR.
Community-Based Participatory Research Curriculum for General Pediatrics Fellows-
developed and implemented by CCPH Fellow Darius
Tandon. Twelve General Academic Pediatrics Fellows in the Johns Hopkins University
School of Medicine received this eight-hour curriculum during the 2002-2003 academic
year. To view the curriculum click here.
To view the curriculum outline click here.
Community-Based Participatory Research Curriculum - developed
by CCPH Fellow Darius Tandon. This "abridged"
two-hour version of the curriculum was created with the recognition that many
academic departments and training programs within Schools of Medicine may be interested
in CBPR, but have limited time in which to learn about CBPR. Having a shorter
curriculum, therefore, may help promote wider understanding of CBPR among medical
educators and physicians. To view the abridged curriculum click here.
To view the abridged curriculum notes click here.
Community-Based Participatory Research & Health, University of Washington School of Public Health
Social Research Methods, University of Toledo
Studies on Ethics and Community-Based Participatory Research
Environmental Health Methods for Research Intervention and Evaluation, Tufts University
Research, University of New England, Graduate Public Health Education Program
(draft syllabus, March 2006)
Participatory Research Bibliography
Participatory Research: An Emerging Strategy in Health Services and Prevention,
University of North Carolina-Chapel Hill Department of Family Medicine
Participatory Research: Theories, Principles, Methods, and Applications, University
of Washington School of Public Health and Community Medicine
Participatory Research, University of Michigan School of Public Health.
for course readings.
Research in the Clayoquot Sound Region, University of Victoria.
here for course syllabus. Click
here for recommended readings.
Research Seminar, Temple University
Research, University of Denver College of Education
Research, University of Michigan (taught by faculty in Social Work and Urban
Planning, Sociology, Psychology and Health Behavior and Health Education)
Capacity, Competence and Power, University of North Carolina-Chapel Hill School
of Public Health
Epidemiology and Environmental Justice, University of North Carolina
Health & Research, Prince William Campus of George Mason University
Research with Diverse Populations, University of Washington School of Nursing
Methodology and Participatory Action Research, University of Washington School
of Social Work
Methodologies, Loyola University Chicago - examines all aspects of how sociology
is used, and can be used, in community-based research and in social-change oriented
Culture and Community, University of Washington School of Nursing -
this course focuses on individual and organizational cultural competence relevant
to health promotion/disease prevention in community-based participatory research
and other community health approaches.
Studies Research Practicum, University of Toronto, University College - As
part of a unique partnership between Wellesley Central Health Corporation and
University College, University of Toronto, this course is intended to acquaint
students with CBPR, its theoretical underpinnings and guiding principles, as well
as some of its challenges and limitations.
Action Research in Public Health, University of California-Berkeley School of
Action Research, University of Richmond
Ethics in Research with Underserved Groups, University of Massachusetts-Lowell
- Click here
for a description of an online version of this class.
to Community Research and Action, Arizona State University
for Social Action in Urban Communities, University of Wisconsin-Milwaukee
listserv was launched in June 2004 through a partnership between
Partnerships for Health and the Wellesley
Institute to serve the growing network of people involved and interested in
CBPR. We hope this listserv will provide a resource for sharing knowledge and
experience and contribute to strengthening the field of CBPR and ultimately improving
the health of communities.
To subscribe, go to:
here for a flyer describing this
listserv. Please feel free to distribute this flyer to interested parties and
at relevant meetings.
From June-September 2005, we conducted
a confidential online survey of listserv subscribers to solicit their feedback,
help to improve the listserv and continue to advance the field of CBPR. To read
the results of the survey, click here.
& Research Ethics Listserv
This listserv was established to continue
the dialogue initiated by the 2007 Educational Conference Call Series on Institutional
Review Boards (IRBs) and Ethical Issues in Research co-sponsored by CCPH and the
Tuskegee Bioethics Center. The listserv is a resource for posting questions and
sharing information related to the ethical issues that arise in CBPR.
sign up, click here.
For more information on CBPR and Research Ethics, including audiofiles
and handouts from the call series, click here.
for Community Research Abstracts Listserve
electronic discussion group sends out the latest bibliographic and abstract
information available on publications related to community-based research.
subscribe, send an email with the subject line blank to:
A number of authors have advanced principles
for community-based participatory research. Drawing on over a decade of experience,
Barbara Israel and her colleagues in Michigan have identified nine key principles
of community-based participatory research that support successful research partnerships
and are widely cited [Israel B, Schulz A, Parker E and Becker A. (1998). Review
of community-based research: Assessing partnership approaches to improve public
health. Annual Review of Public Health, 19, pp. 173-202]
- Recognizes community as an unit of identity
- Builds on strengths
and resources within the community
- Facilitates collaborative, equitable
involvement of all partners in all phases of the research
knowledge and intervention for mutual benefit of all partners
a co-learning and empowering process that attends to social inequalities
a cyclical and iterative process
- Addresses health from both positive
and ecological perspectives
- Disseminates findings and knowledge gained
to all partners
- Involves long-term commitment by all partners.
for the CBPR principles in English and Spanish.
for the CBPR principles in English and Portuguese.
for the CBPR principles in Spanish and Portuguese.
principles are a useful guide, Israel and her colleagues caution that they should
not be imposed upon a project, and that they should be allowed to continually
evolve to reflect changes in the research context, purpose and participants The
process of developing principles and making decisions about the partnership's
characteristics is essential to building the infrastructure of the partnership.
of principles and policies developed by other CBPR partnerships and initiatives
are listed below:
The Kahnawake Schools Diabetes Prevention
Project (KSDPP) is a partnership of the people of the Kanien'keha:ka (Mohawk)
community of Kahnawa:ke, community based researchers of the Kateri Memorial Hospital
Center and the Kahnawa:ke Education System, and academic researchers of McGill
University and the Université de Montréal. KSDPP has developed a Code
of Research Ethics and a Vision
Alliance research policies and procedures
to read more about this Toronto-based Multicultural Community Health Centre's
approach to community-based research.
of Washington's principles of community-based research
Canadian Aboriginal AIDS Network's Aboriginal
HIV/AIDS Community-Based Research Capacity-Building Initiative has developed Principles
of Research Collaboration. Ownership control access and possession is a political
term that is being used by Aboriginal Peoples to highlight the right to self-determination
in the area of HIV/AIDS research. This fact
sheet explains the term and is meant to help guide decisions and actions around
involvement in research. For more information, contact Randy
Tribal Research Code with materials for tribal regulation for research
and checklist for Indian Health Boards, developed by the American Indian Law Center.
Navajo Nation Human Research Code
sets forth the conditions under which researchers and others may perform research
activities on living human subjects within the territorial jurisdiction of the
on Community-Based Participatory Research in Public Health - The American
Public Health Association adopted this policy on CBPR in public health at its
2004 annual meeting. If you are unable to read the attachment, it is also available
online as policy 2004-12 at http://www.apha.org/legislative/policy/2004/
and Guidelines for Community-University Research Partnerships, CARE: Community
Alliance for Research and Engagement
of Community-Based Action Research, Community Economic Development Center in Canada
of Community-Based Research, University of Victoria Community Health Promotion
Principles - developed by Isles, Inc., a nonprofit community development
and environmental organization with the mission to foster more self-reliant families
in healthy, sustainable communities.
protocols, principles and guidelines related to indigenous communities, compiled
by the University of Victoria
Mountain Prevention Research Center Community Advisory Board's Procedures Manual
Standards of Conduct for Research
in North Barkley and Clayoquot Sound Communities
Morehouse School of Medicine Prevention Research Center
Virginia Prevention Research Centers for Public Health Research and Training Mission
and Statement of Values
Valley Farm Workers Clinic has developed policies and procedures to guide
decisions about their involvement in research: A research
involvement policy, a research
participation procedure and an application
form. For more information, contact CCPH member Vickie
Principles that Guide Community Research and Evaluation at the Centre for
Research and Education in Human Services.
partnerships often codify their partner relationships through a signed
of understanding (MOU) or memorandum of agreement (MOA).
of the Developing and Sustaining CBPR
Partnerships: A Skill-Building Curriculum include info on MOUs/MOAs:
See below for additional
MOA between Carleton University
and the Canadian Centre on Substance Abuse
Research Grant Agreement, University of Alberta
between the National Friendly Access Program Office and the Community Friendly
MOU, Magic City Stroke
Sample Terms of Reference
Contract, Wellesley Institute
of Research Collaboration Between The Canadian Aboriginal AIDS Network and Partners
MOU Between the Stay Healthy Coalition and
the Pleasantville School District
African American Families Community Participatory Research
MOU for the Community Organizing Part of
Community Action Against Asthma
University of North Carolina-Chapel Hill Department of Health Behavior and Health
Education and AGENCY
You Can Contribute to this Page
We welcome your comments, suggestions and
submissions of items to include on this page. Please send these by e-mail
or by mail: CCPH, UW Box 354809, Seattle, WA 98195-4809