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Community-Based
Participatory Research
Overview
Reports and Presentations
Examples
of Funded Proposals
Peer-Reviewed
Journal Articles
Syllabi
and Course Materials
Online
Curriculum
Electronic
Discussion Groups
Principles
and Policies
MOUs/MOAs
Ethics and IRBs
How
You Can Contribute to this Page
Web
Links
Community-based participatory research is a "collaborative approach to research that equitably involves all partners in the research process and recognizes the unique strengths that each brings. CBPR begins with a research topic of importance to the community, has the aim of combining knowledge with action and achieving social change to improve health outcomes and eliminate health disparities."
WK Kellogg Foundation Community Health Scholars Program
In recent years, national organizations, funding agencies and researchers have called for a renewed focus on an approach to public health research that recognizes the importance of social, political and economic systems to health behaviors and outcomes. This renewed focus is due to many converging factors, including our increased understanding of the complex issues that affect health, the importance of both qualitative and quantitative research methods, and the need to translate the findings of basic, interventional, and applied research into changes in practice and policy.
As a result, participatory models of research, in which communities are actively engaged in the research process through partnerships with academic institutions, have become central to the national prevention research agenda as articulated by the Institute of Medicine, the Centers for the Disease Control and Prevention (CDC), Research!America, Partnership for Prevention, the Public Health Foundation and others.
A number of recent public and private national initiatives have invested in community-based participatory research (CBPR) in public health, including the CDC's urban research centers and prevention research centers, the National Institute of Environmental Health Sciences' translational research grants,and the WK Kellogg Foundation's Community-Based Public Health Initiative and Community Health Scholars Program.
A 1998 review authored by Barbara Israel and colleagues in the Annual Review of Public Health summarized a decade of peer-reviewed literature on the principles, processes, outcomes, challenges and facilitators of CBPR, and a paper commissioned for Community-Campus Partnerships for Health's 5th annual conference in the Spring of 2000 took the review a step further by making specific policy recommendations to support CBPR.
Below is a selected list of reports
and presentations. Click here
for additional listings.
Please click here to view additional reports and presentations on CBPR based on CCPH research and evaluation projects.
Please click here
to view additional presentations on CBPR based on CCPH research and evaluation
projects.
| Name | Description |
| Resources for Community-Based Participatory Research |
This flyer highlights community-based participatory research
resources available through Community-Campus Partnerships for Health. We encourage
you to print copies as handouts for meetings and conferences.
|
| Promoting
Healthy Public Policy through CBPR: Ten Case Studies |
This report includes 10 case studies of diverse CBPR partnerships around the United States that share a commitment to foster healthy public policy. For additional resources on impacting policy through CBPR, see the audiofile and handouts from the October 21, 2009 CCPH educational conference call
|
| Community-Based
Participatory Research Resources | This
annotated listing of CBPR articles, reports and websites was prepared by Community-Campus
Partnerships for Health for the Robert Wood Johnson Clinical Scholars Program
|
| Community Policy
Briefs | The journal Progress in Community Health Partnerships: Research, Education and Action regularly publishes online Community Policy Briefs that are intended to inform community-based organizations, public health policy makers, and other individuals whose primary interest is not research, but who would be interested in the application and translation of research findings for practical purposes. CCPH members get a 20%
discount on subscriptions to the journal.
|
| A
Snapshot of Community-Based Research in Canada |
Authored by Sarah Flicker and Beth Savan and published by the Wellesley Institute, this June 2006 report presents the results of a web-based survey of community and university community-based research (CBR) practitioners designed to learn more about the context and efficacy of CBR in Canada. Click here for the peer-reviewed article based on the study: Flicker S*, Savan B, Kolenda B and Mildenberger M. A Snapshot of Community-Based Research in Canada: Who? What? Why? How? Health Education Research Advance Access published on February 25, 2007.
|
| Tips
& Strategies for Developing Strong Community-Based Participatory Research
Proposals | This handout was developed by CCPH as a resource for those seeking funding to support CBPR. It contains a list of "what drives reviewers crazy," suggestions for ways to strengthen proposals, and a list of resources for staying on top of CBPR funding opportunities.
|
| Canadian
Aboriginal AIDS Network Publications & Presentations |
The Canadian Aboriginal AIDS Network (CAAN) is a non-profit coalition of individuals and organizations which provides leadership,support, and advocacy for Aboriginal people living with and affected by HIV/AIDS, regardless of where they reside. CAAN's Aboriginal Capacity-Building Program for Aboriginal Community-Based Research is developing culturally-appropriate and methodologically-sound research, analysis and dissemination strategies. Click on the title of the publication or presentation to learn more:
|
| An
Overview of Models for Community Based Aboriginal HIV/AIDS Research | This 2002 report, was prepared for Healing Our Spirit BC Aboriginal HIV/AIDS Society by Namaste Marsden to provide a general overview of models for Aboriginal HIV/AIDS community based research. It provides an overview of the current situation in Canada; a vision of a model for community based research that can beimplemented as Aboriginal institutional development continues; and highlights models that are currently being used to conduct Aboriginal HIV/AIDS research.
|
| Community-Based
Participatory Research: Engaging Communities as Partners in Health Research | In the spring of 2000, Community-Campus Partnerships for Health commissioned Barbara Israel, Amy J. Schulz, Edith A. Parker, and Adam B. Becker to write this paper on community-based participatory research and the policy issues affecting such research.
|
| Evidence
Report on Community-Based Participatory Research |
In 2002, the Agency for Health Care Research and Quality commissioned the Research Triangle Institute-University of North Carolina Evidence-Based Practice Center to conduct a systematic review of the literature on CBPR approaches to improved health. Published in July 2004, the review was designed to establish the nature of the current literature and to assist academics, community participants and funders by identifying gaps in implementing this approach. On December 2, 2004, CCPH and the Northwest Center for Public Health Practice co-sponsored a webconference based on the report. Entitled "Community-Based Participatory Research: A Systematic Review of the Literature and Its Implications," the webconference featured three of the report's authors as presenters. To access the webconference archive, along with presenter powerpoints and handouts, click here.
|
| Directory
of Funding Sources for Community-Based Participatory Research | Published by CCPH and the Northwest Health Foundation in June 2004, this directory includes funding agency descriptions, deadlines, contact information, examples of previously funded CBPR projects, and an annotated listing of funding resource websites. We welcome your comments and suggestions
for an improved future edition of the directory! Please complete and return this
reader feedback form.
|
| Academic-Community
Partnerships: Keeping Rigor & Relationships in Research | The Center for the Advancement of Health Disparities Research is a collaborative partnership between the University of Washington and the University of Hawaii at Manoa Schools of Nursing that is fostering sustainable mechanisms for scholarship development in health disparities. The Center's Spring 2004 Educational Institute included the sessions below. Click here to view the powerpoint slides and streaming video. Using Social and Health Indicator Data in Community Intervention Research by Sandra Ciske, MN, Manager, Epidemiology, Planning & Evaluation, Public Health, Seattle & King County Community Intervention Research Applied: Exemplars from the Field by Gloria Rodriguez, MPH, CEO, Alliance for Multi-Cultural Health Partner Power: How to Design Community Intervention Research by Dr. Noel Chrisman, Professor, UW Psychosocial & Community Health Department Mixed Methods to Explore Environmental
Exposures in Low-income Rural Families by Dr. Patricia Butterfield, Assoc.
Professor, UW Psychosocial & Community Health
|
| Examining
Community-Institutional Partnerships for Prevention Research | Click here
for a powerpoint presentation on the project given at the January 2004 meeting
of the Federal Interagency
Working Group on Community-Based Participatory Research. |
| Developing
and Sustaining Community-University Partnerships for Health Research: Infrastructure
Requirements | CCPH was commissioned by the NIH Office of Behavioral and Social Sciences Research to prepare this report. Published in January 2003, the paper identifies nine critical issues that affect the infrastructure required for community-university research partnerships and, consequently, the future of the field. Attention to these issues is critical in order to provide the necessary support for both academic and community partners.
To
learn more about the project on which this paper is based, click here. |
| Speaking
Truth, Creating Power: A Guide to Policy Work for Community-Based Participatory
Research Practitioners | Authored by CCPH Fellow Cassandra Ritas ,this tool-kit is designed for community-based participatory research institutional and community partners who want to create or change policies that affect health in their communities. |
| Presentation
at the CUexpo - Community-University Research: Partnerships, Policy, and Progress
Conference | Click here for a presentation based on the CCPH research project entitled "Developing and sustaining community-university research partnerships: Infrastructure requirements. |
| Community-Based Participatory Research Conference | CCPH,
the University of Washington School of Public Health and Community Medicine and
Seattle Partners for Healthy Communities jointly sponsored this one-day conference
in April 2003. Click here for the conference flyer. View the day’s agenda and the speakers biosketches The keynote presentation was presented by Robert M. Goodman, Usdin Family Professor; Tulane University School of Public Health and Tropical Medicine -presented by Sharyne Shiu-Thornton, Medical Anthropologist and Ethnic Minority Health Specialist and Lecturer in the Department of Health Services as the University of Washington; Beruke Giday, Domestic Violence Program Manager, Refugee Women's Alliance/ReWA; and Kirsten Senturia, Research Anthropologist at Public Health-Seattle & King County and affiliate Clinical Assistant Professor at the University of Washington in the Social and Behavioral Sciences track of the School of Public Health CBPR and Nutrition: Building Healthy Communities - presented by Adam Drewnowski, Director of the Center for Public Health Nutrition at the University of Washington and Professor of Epidemiology in the School of Public Health and Community Medicine; Donna Johnson, Associate Director at the Center for Public Health Nutrition and Asst. Professor in the Nutritional Sciences Program at the University of Washington as well as a Registered Dietitian; Caroline McNaughton Tittel, Program Manager for the Center for Public Health Nutrition at the University of Washington and a Registered Dietitian; and Mayor Lee Blackwell, M.B.A.; City of Moses Lake, Washington -presented
by James Krieger, Chief of the Epidemiology, Planning & Evaluation Unit at
Public Health-Seattle & King Co.; Carol Allen, Program Manager for Seattle
Healthy Homes Project and Project Coordinator for King County’s Department
of Public Health in the Epidemiology, Planning and Evaluation Division; and Augustine
Hampton, Board Member of the Casey Foundation Committee for the New Holly Project
|
| Community-Based
Participatory Research Workshop | The American College of Epidemiology sponsored this September 2002 workshop at its annual conference. Click here for the powerpoint presentation given by Nina Wallerstein of the University of New Mexico. The presentation includes the rationale and definition of CBPR, principles of CBPR, two epidemiologic case examples, issues and concerns in CBPR, and the future and policy implications.
|
| Identifying
Characteristics of Successful Researcher/Community-Based Organization Collaboration
in the Development of Behavioral Interventions to Prevent HIV Infection | This 2002 report, prepared
for the Centers for Disease Control and Prevention by Health, Social and Economics
Research, describes the types of collaborative arrangements thatare commonly used
in developing and implementing HIV prevention interventions. It highlights barriers,
challenges, and critical elements for successful collaborations.
|
| Participatory
Evaluation: What is it? Why do it? What are the challenges? |
This 2002 brief lays out a framework for understanding the special nature of participatory evaluation, comparing and contrasting it with more traditional forms of evaluation; gives a rationale for its use; provides a short, step-by-step set of instructions on how to implement this approach; and then offers real-world examples of the challenges and rewards in applying the principles of participatory evaluation. Developed by the Partnership for the Public's Health.
|
| Meeting
on Community-Partnered Interventions in Nursing Research to Reduce Health Disparities
| The
National Institute of Nursing Research and the National Click here for an executive summary of the meeting.
|
| Conference on Community-Based Participatory Research | The
Agency for Healthcare Research and Quality in collaboration with the W.K. Kellogg
Foundation, the HHS Office of Minority Health and the NIH Office of Behavioral
and Social Sciences Research convened this Click here
to view and print the summary report.
|
| Research
in Native Hawaiian Communities | Click here for a powerpoint presentation given during a March 2001 Workshop on Current Human Research Issues & Solutions: Regulatory Overview & Special Populations. Presenters: Mei Ling Chang, Hui No Ke Ola Pono; JoAnn Tsark, Papa Ola Lokahi; and Philip Lowenthal.
|
| Partners
in Caring and Community: Integrating Nursing Research into Service-Learning | In the spring of 2001,
the Partners in Caring and Community: Click
here for this
powerpoint presentation given by Carolyn Jenkins, Medical University of South
Carolina College of Nursing. |
| Community-Based
Participatory Research Symposium Series | In the fall of 2001, Community-Campus Partnerships for Health, along with the University of Washington Health Promotion Research Center and Seattle Partners for Healthy Communities, cosponsored a Symposium Series on Community-Based Participatory Research. The Series was supported by a grant from the Centers for Disease Control and Prevention, Prevention Research Centers Program. Below are agendas and powerpoint slide presentations from the Series. Click on the title to view and print the corresponding document. "From Town and Gown to Professor in the 'Hood" - presented by Lucille Webb, Strengthening the Black Family, Inc, Raleigh, NC and Eugenia Eng, University of North Carolina-Chapel Hill School of Public Health, Chapel Hill, NC The North Carolina Public Health Initiative Authorship Guidelines - guidelines that partnerships can use to guide the authorship process, order of authorship, and acknowledgments. "Creating and Sustaining Equitable Community-Academic Partnerships in Health Research: The Detroit Community-Academic Urban Research Center" - presented by Alex Allen, Butzel Family Center, Detroit, MI and Barbara Israel, University of Michigan School of Public Health, Ann Arbor, MI Detroit Community-Academic Urban Research Center Procedures for Dissemination-Related Activities - guidelines that partnerships can use to guide their dissemination-related activities. Agenda for the October 12, 2001 Symposium, including biosketches for the above-mentioned speakers Panel Presentations on Community-Based Participatory Research: Presentation by June Strickland, University of Washington School of Nursing and Michelle Cooper, Nooksack Tribe Presentation by Sharyne-Shiu Thornton, University of Washington School of Public Health and Community Medicine and Beruke Giday, Domestic Violence Program, Refugee Women's Alliance Presentation by Sue Sohng, University of Washington School of Social Work and Stella Chao, International District Housing Alliance and Minority Executive Director's Coalition Agenda for the November 16, 2001 Symposium, including biosketches for the above-mentioned speakers
|
| Morehouse
School of Medicine Prevention Research Center | The Morehouse School of Medicine Prevention Research Center is a member of the Morehouse School of Medicine-Southside Atlanta partnership, one of the 2002 CCPH Award recipients. Click here to find out more. Click here for a slide show that presents a brief description including the community values, priorities and focus established by the partnership.
|
| Successful
Models of Community-Based Participatory Research |
Click here for a report from this March 2000 meeting hosted by the National Institute of Environmental Health Sciences.
|
CCPH maintains a growing collection of examples of funded CBPR proposals. Please click on a document below to view. To view and print some of these materials, you will need Adobe Acrobat Reader.
Help us expand our collection! To submit examples of funded CBPR proposals, please email file attachments to info@ccph.info. Be sure to include any pertinent copyright, authorship and organizational information.
| The goal of the Centers for Disease Control and Prevention-funded Poder es Salud/Power for Health is to increase the capacity of members of the African American and Latino communities in Multnomah County, Oregon, to identify health issues and address health promotion and disease prevention, through the intervention of Community Health Workers (CHWs) who use Popular Education. The partnership involves the Community Capacitation Center of the Multnomah County Health Department, the Sankofaa Institute of Cultural Learning, the Latino Network, the Urban League of Portland, and the School of Community Health at Portland State University. |
Click on a title below to view and print the corresponding Poder es Salud/Power for Health proposal document: 1. Research
Plan |
| The Canadian Institutes of Health Research-funded
study, "Understanding Adolescent Access to Sexual and Reproductive Health
Services" is phase II of the Toronto Teen Survey, a collaboration between
community-based organizations, academic researchers and policy-makers that has
an overall goal of developing a sexual health strategy for diverse youth in Toronto.
Phase II employs a qualitative methodology (focus groups) with targeted youth
populations to further investigate significant findings from survey data collected
in Phase I, set a future research agenda, and explore community relevant ways
to incorporate study findings into sexual health programming. |
Click here for the study proposal. For more information about the Toronto Teen Survey, click here |
| The Canadian Institutes of Health Research-funded
study, "Taking Action: Using Arts-Based Approaches to Develop Aboriginal
Youth Leadership in HIV Prevention" aims to: (a) build Aboriginal youth capacity in the areas of HIV prevention knowledge and resources development to address HIV issues in their local communities; and (b) examine the efficacy of engaging Aboriginal youth in HIV prevention leadership using art-based approaches. |
Click here for the study proposal. Read an article announcing the grant Read a conference abstract on study findings |
Peer-Reviewed Journal Articles
The Institute
for Community Research sends out a monthly e-mail with the latest bibliographic
and abstract information available on publications related to community-based
research. To subscribe, send an email with the subject line blank to:
icr-abstracts-subscribe@topica.com
The May 29, 2009 issue of Circulation contains this CCPH co-authored article on CBPR: Horowitz CR, Robinson M, Seifer S. Community-Based Participatory Research From the Margin to the Mainstream: Are Researchers Prepared? Circulation. 2009; 119:2633-2642.
The Summer 2008 issue
of Progress
in Community Health Partnerships contains papers from CCPH's
10th anniversary conference. CCPH members can subscribe at a discount.
Click here
to read the CCPH-authored
editorial, Mobilizing Partnerships for Social Change.
The June 2008 issue of the Journal of Empirical Research on Human Research Ethics is focused on the theme of ethical considerations in CBPR. Click here to read the introduction to the issue.
The December 2007 issue of Pimatisiwin: A Journal of Indigenous and Aboriginal Community Health focuses on community-based participatory research and includes papers from CCPH's 10th anniversary conference
Recent
Publications Regarding CBPR is an annotated bibliography authored by Julie
Stevenson at the University of Colorado at Denver and Health Sciences Center in
December 2006. It was first published by the Family
Medicine Digital Resources Library.
The November 2004 issue of the Journal of Interprofessional Care is focused on the theme of community-based participatory research. Click here for the table of contents and abstracts. If you are not a current subscriber, click here to request a free sample issue.
The July 2003 issue of the Journal of General Internal Medicine is focused on the theme of community-based participatory research. Click here for a listing of articles and abstracts from the issue. Two editorials from the issue appear as full-text PDF files below, thanks to permission from the Journal editor.
Flicker S*, Savan B, Kolenda B and Mildenberger M. A Snapshot of Community-Based Research in Canada: Who? What? Why? How?. Health Education Research Advance Access published on February 25, 2007.
Ahmed SM, Beck B, Maurana CA, Newton G. Overcoming Barriers to Effective Community-Based Participatory Research in US Medical Schools. Education for Health, Vol. 17, No. 2, July 2004, 141-151.
O'Donnell M, Entwistle V. Consumer involvement in research projects: the activities of research funders. Health Policy 2004; 69: 229-238
Felix-Aaron K and Stryer D. Moving from Rhetoric to Evidence-based Action in Health Care. Journal of General Internal Medicine 2003. 8;7:589-591.
O'Toole
T, Felix-Aaron, K, Chin MH, Horowitz C, Tyson F. Community-based
Participatory Research: Opportunities, Challenges and the Need for a Common Language.
Journal of General Internal Medicine 2003. 8;7:592-594.
Eisinger A and Senturia K. Doing Community-Driven Research: A Description of Seattle Partners for Healthy Communities. J Urban Health 2001 78: 519-534.
Freudenberg N. Case History of the Center for Urban Epidemiologic Studies in New York City. J Urban Health 2001 78: 508-518.
Higgins DL and Metzler. Implementing Community-Based Participatory Research Centers in Diverse Urban Settings. J Urban Health 2001 78: 488-494.
Keeping America Healthy: CDC Prevention Research Partnerships - this issue of the journal Public Health Reports is focused on the federally funded Prevention Research Centers and their community-based research partnerships.
Lantz PM, Viruell-Fuentes E, Israel BA, Softley, D and Guzman R. Can Communities and Academia Work Together on Public Health Research? Evaluation Results From a Community-Based Participatory Research Partnership in Detroit. J Urban Health 2001 78: 495-507.
Israel
BA, Schulz AJ, Parker E, Becker AB. Community-Based Participatory Research: Policy
Recommendations for Promoting a Partnership Approach in Health Research. Education
for Health, Vol. 14, No. 2, 2001, 182-197. To see the full commissioned paper
on which this article is based, click here.
Community-Based Participatory Research Syllabi and Course Materials
CCPH maintains a growing collection of CBPR syllabi and course materials. Please click on a course below to view. To view and print some of these materials, you will need Adobe Acrobat Reader.
Help us expand our collection! To submit your CBPR syllabi and/or course materials, please email file attachments to info@ccph.info. Be sure to include any pertinent copyright, authorship and institutional information.
Note: Inclusion of CBPR syllabi and course materials on the CCPH website does not constitute endorsement by CCPH.
Click here for a database of community-based research courses, syllabi, and projects maintained by Princeton University and the Bonner Foundation.
Click
here for CBPR and related syllabi
maintained by the Community Organization (comm-org) website.
Click here for syllabi for health-related service-learning courses.
Developing and Sustaining CBPR Partnerships: A Skill-Building Curriculum is a free, evidence-based online curriculum to for community-institutional partnerships that are using or planning to use a CBPR approach to improving health. It can be used by partnerships that are just forming as well as mature partnerships. Seven units cover such topics as defining CBPR, identifying and selecting partners, setting priorities, establishing partnership policies and procedures, building trust, resolving conflict, securing and distributing funds, disseminating results, and more!
CBPR: A Partnership Approach for Public Health is a downloadable instructional CD-ROM for people who are in the early stages of using or considering using CBPR.
A Community-Based Participatory Research Curriculum for General Pediatrics Fellows- developed and implemented by CCPH Fellow Darius Tandon. Twelve General Academic Pediatrics Fellows in the Johns Hopkins University School of Medicine received this eight-hour curriculum during the 2002-2003 academic year. To view the curriculum click here. To view the curriculum outline click here.
A Community-Based Participatory Research Curriculum - developed by CCPH Fellow Darius Tandon. This "abridged" two-hour version of the curriculum was created with the recognition that many academic departments and training programs within Schools of Medicine may be interested in CBPR, but have limited time in which to learn about CBPR. Having a shorter curriculum, therefore, may help promote wider understanding of CBPR among medical educators and physicians. To view the abridged curriculum click here. To view the abridged curriculum notes click here.
Community-Based Participatory Research & Health, University of Washington School of Public Health
Advanced Social Research Methods, University of Toledo
Case Studies on Ethics and Community-Based Participatory Research
Community-Based Participatory Research, University of New England, Graduate Public Health Education Program (draft syllabus, March 2006)
Community-Based Participatory Research Bibliography
Community-Based Participatory Research, University of Michigan School of Public Health. Click here for course readings.
Community-Based
Research in the Clayoquot Sound Region, University of Victoria.
Click
here for course syllabus. Click
here for recommended readings.
Community-Based Research Seminar, Temple University
Community-Based Research, University of Denver College of Education
Community-Based Research, University of Michigan (taught by faculty in Social Work and Urban Planning, Sociology, Psychology and Health Behavior and Health Education)
Community-Driven Epidemiology and Environmental Justice, University of North Carolina
Community Health & Research, Prince William Campus of George Mason University
Conducting Research with Diverse Populations, University of Washington School of Nursing
Engaged
Methodologies, Loyola University Chicago - examines all aspects of how sociology
is used, and can be used, in community-based research and in social-change oriented
initiatives.
Health, Culture and Community, University of Washington School of Nursing - this course focuses on individual and organizational cultural competence relevant to health promotion/disease prevention in community-based participatory research and other community health approaches.
Health Studies Research Practicum, University of Toronto, University College - As part of a unique partnership between Wellesley Central Health Corporation and University College, University of Toronto, this course is intended to acquaint students with CBPR, its theoretical underpinnings and guiding principles, as well as some of its challenges and limitations.
Participatory Action Research, University of Richmond
Research Ethics in Research with Underserved Groups, University of Massachusetts-Lowell - Click here for a description of an online version of this class.
Introduction to Community Research and Action, Arizona State University
Organizing
for Social Action in Urban Communities, University of Wisconsin-Milwaukee
CBPR Listserv
This
listserv was launched in June 2004 through a partnership between
Community-Campus
Partnerships for Health and the Wellesley
Institute to serve the growing network of people involved and interested in
CBPR. We hope this listserv will provide a resource for sharing knowledge and
experience and contribute to strengthening the field of CBPR and ultimately improving
the health of communities.
To subscribe, go to:
http://mailman.u.washington.edu/mailman/listinfo/cbpr
Click here for a flyer describing this listserv. Please feel free to distribute this flyer to interested parties and at relevant meetings.
From June-September 2005, we conducted a confidential online survey of listserv subscribers to solicit their feedback, help to improve the listserv and continue to advance the field of CBPR. To read the results of the survey, click here.
CBPR & Research Ethics Listserv
This listserv was established to continue the dialogue initiated by the 2007 Educational Conference Call Series on Institutional Review Boards (IRBs) and Ethical Issues in Research co-sponsored by CCPH and the Tuskegee Bioethics Center. The listserv is a resource for posting questions and sharing information related to the ethical issues that arise in CBPR.
To sign up, click here.
For more information on CBPR and Research Ethics, including audiofiles and handouts from the call series, click here.
Institute for Community Research Abstracts Listserve
This electronic discussion group sends out the latest bibliographic and abstract information available on publications related to community-based research.
To
subscribe, send an email with the subject line blank to:
icr-abstracts-subscribe@topica.com
A number of authors have advanced principles for community-based participatory research. Drawing on over a decade of experience, Barbara Israel and her colleagues in Michigan have identified nine key principles of community-based participatory research that support successful research partnerships and are widely cited [Israel B, Schulz A, Parker E and Becker A. (1998). Review of community-based research: Assessing partnership approaches to improve public health. Annual Review of Public Health, 19, pp. 173-202]
- Recognizes community as an unit of identity
- Builds on strengths and resources within the community
- Facilitates collaborative, equitable involvement of all partners in all phases of the research
- Integrates knowledge and intervention for mutual benefit of all partners
- Promotes a co-learning and empowering process that attends to social inequalities
- Involves a cyclical and iterative process
- Addresses health from both positive and ecological perspectives
- Disseminates findings and knowledge gained to all partners
- Involves long-term commitment by all partners.
Click
here
for the CBPR principles in English and Spanish.
Click here
for the CBPR principles in English and Portuguese.
Click here
for the CBPR principles in Spanish and Portuguese.
While principles are a useful guide, Israel and her colleagues caution that they should not be imposed upon a project, and that they should be allowed to continually evolve to reflect changes in the research context, purpose and participants The process of developing principles and making decisions about the partnership's characteristics is essential to building the infrastructure of the partnership.
Examples of principles and policies developed by other CBPR partnerships and initiatives are listed below:
The Kahnawake Schools Diabetes Prevention Project (KSDPP) is a partnership of the people of the Kanien'keha:ka (Mohawk) community of Kahnawa:ke, community based researchers of the Kateri Memorial Hospital Center and the Kahnawa:ke Education System, and academic researchers of McGill University and the Université de Montréal. KSDPP has developed a Code of Research Ethics and a Vision Statement.
Access
Alliance research policies and procedures
Click here
to read more about this Toronto-based Multicultural Community Health Centre's
approach to community-based research.
University of Washington's principles of community-based research
The Canadian Aboriginal AIDS Network's Aboriginal HIV/AIDS Community-Based Research Capacity-Building Initiative has developed Principles of Research Collaboration. Ownership control access and possession is a political term that is being used by Aboriginal Peoples to highlight the right to self-determination in the area of HIV/AIDS research. This fact sheet explains the term and is meant to help guide decisions and actions around involvement in research. For more information, contact Randy Jackson.
Model Tribal Research Code with materials for tribal regulation for research and checklist for Indian Health Boards, developed by the American Indian Law Center.
The Navajo Nation Human Research Code sets forth the conditions under which researchers and others may perform research activities on living human subjects within the territorial jurisdiction of the Navajo Nation.
Policy on Community-Based Participatory Research in Public Health - The American Public Health Association adopted this policy on CBPR in public health at its 2004 annual meeting. If you are unable to read the attachment, it is also available online as policy 2004-12 at http://www.apha.org/legislative/policy/2004/
Principles of Community-Based Action Research, Community Economic Development Center in Canada
Principles
of Community-Based Research, University of Victoria Community Health Promotion
Coalition
Research Principles - developed by Isles, Inc., a nonprofit community development and environmental organization with the mission to foster more self-reliant families in healthy, sustainable communities.
Rocky Mountain Prevention Research Center Community Advisory Board's Procedures Manual
Standards of Conduct for Research in North Barkley and Clayoquot Sound Communities
Bylaws, Morehouse School of Medicine Prevention Research Center
Yakima Valley Farm Workers Clinic has developed policies and procedures to guide decisions about their involvement in research: A research involvement policy, a research participation procedure and an application form. For more information, contact CCPH member Vickie Ybarra.
Ten Principles that Guide Community Research and Evaluation at the Centre for Research and Education in Human Services.
CBPR
partnerships often codify their partner relationships through a signed
memorandum
of understanding (MOU) or memorandum of agreement (MOA).
These sections of the Developing and Sustaining CBPR Partnerships: A Skill-Building Curriculum include info on MOUs/MOAs:
- Developing a CBPR Partnership: Creating the Glue
- Trust and Communication in a CBPR Partnership:
Spreading the Glue and Having
it Stick
See below for additional examples.
MOA between Carleton University
and the Canadian Centre on Substance Abuse
Collaborative Research Grant Agreement, University of Alberta
MOU between the National Friendly Access Program Office and the Community Friendly Access Coalition
MOU, Magic City Stroke Prevention Project
Sample Terms of Reference Contract, Wellesley Institute
Principles of Research Collaboration Between The Canadian Aboriginal AIDS Network and Partners
MOU Between the Stay Healthy Coalition and
the Pleasantville School District
Healthy
African American Families Community Participatory Research
Collaboration Agreement
MOU for the Community Organizing Part of Community Action Against Asthma
How You Can Contribute to this Page
We welcome your comments, suggestions and submissions of items to include on this page. Please send these by e-mail or by mail: CCPH, UW Box 354809, Seattle, WA 98195-4809
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