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Disclaimer: To help you manage the vast amount of information on the Web, we have provided these resources. Our purpose is to support your search for knowledge and encourage the further exploration of information available. These links are provided for your convenience and do not represent an endorsement by CCPH or the Center for the Health Professions.

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ADVOCACY

  • How and Why to Influence Public Policy: An Action Guide for Community
    Organizations
    - this action guide shows you how to do effective advocacy, select issues, how much and what kind of lobbying and voter work your group can do, what more power for the states will mean for community groups, and more! Published by the Center for Community Change
  • Academy for Health Services Research and Health Policy - serves as a professional home and technical assistance resource for researchers and health policy professionals.
  • Ad Hoc Group for Medical Research Funding - is a coalition in support of increased funding for the National Institutes of Health.
  • Advocacy 101 - is presented on the Center for Community Change Web site provides some helpful articles on how to advocate, how to pick winning issues, and what you can and cannot do legally.
  • Advocacy and Lobbying without Fear: What Is Allowed within a 501 (c) (3) Charitable Organization - is an article by Thomas Raffa, Nonprofit Quarterly that helps readers to understand the distinction between lobbying and advocacy as an important first step in knowing what is permissible in efforts to affect public policy.
  • Advocacy, Oh, Yes You Can - is a whole issue of the Nonprofit Quarterly that focuses on advocacy as a core competency for nonprofits.
  • Advocacy Toolkit - offers tools including the basics for planning an advocacy campaign, tips for communicating with policymakers, and the nitty-gritty on communicating with the media.
  • Alliance for Better Campaigns - promotes political campaigns so that the most useful information reaches the greatest number of citizens in the most engaging ways. Website offers information on top news stories, as well as publications, resources, and more.
  • Alliance for Health Policy and Systems Research - aims to contribute to health development and the efficiency and equity of health systems through research on and for policy.
  • Alliance for Health Reform - provides unbiased information on health care to elected officials, journalists, advocates, and policy analysts.
  • The Alliance for Justice offers advocacy and lobbying information and services for nonprofits whose work brings them into the public policy and advocacy arena. One of the guides you may want to check out is "Worry-free Advocacy for Nonprofits."
  • American Health Decisions - is a national network of grassroots citizens groups that aims to empower citizens in the public process of health policy. Its 16 state member groups engage in a variety of activities to facilitate community dialogue on health values, inform and collaborate with policy makers and health providers, and activate a sense of community responsibility around specific issues.
  • American Public Health Association Legislative Website - including advocacy and lobbying tips, basics of communicating with legislators and links to sites to identify whom to contact in Washington on particular policy.
  • Center on Budget and Policy Priorities - a non-profit research organization and policy institute that conducts research and analysis on a range of government policies and programs, with an emphasis on those affecting low- and moderate-income people.
  • Center for Health Care Strategies - promotes high quality health care services for low-income populations and people with chronic illnesses and disabilities through awarding grants and providing "real world" training and technical assistance to state purchasers of publicly financed health care, health plans, and consumer groups.
  • Charity Lobbying in Public Interest - offers resources on lobbying that charitable organizations can use to help them achieve their missions.
  • CitizenSpeak - is a free email advocacy service for grassroots organizations. Grassroots organizations can launch web-based email campaigns (also known as "action alerts"), track participation and invite supporters to make a donation, volunteer or become a member.
  • Communities Joined in Action - is working to revolutionize health care by helping communities ensure health care access for all.
  • Community Catalyst - is a national advocacy organization that helps consumers and communities participate in decisions that shape their health care systems.
  • Congress at Your Fingertips - information by zip code on congress and the media. Guide to issues before Congress
  • Congresslink - provides comprehensive information on the U.S. Congress and is divided into four major parts, an information center, features, classroom resources, and endorsements.
  • Congressional Black Caucus Health Brainstrust - transcripts, speeches and other resources on urban health.
  • Congressional Black Caucus Foundation - home to a wealth of information on legislation and health initiatives, public policy issues, and local events that relate to the health of African Americans around the world.
  • Congressional Budget Office - analyses of health-related legislation and documents describing CBO's mandate and budget analysis process.
  • Coalition for Health Funding - a nonprofit alliance of 40 national health organizations that works in a nonpartisan fashion to ensure that health discretionary spending remains highly visible as Congress and the Administration set federal budget priorities. Its members include 40 million health care professionals, researchers, lay volunteers, patients and their families.
  • Council for Responsible Public Investment - The Council's Tobacco Divestment Project assists tobacco control coalitions, unions, educational institutions and policymakers in their efforts to make public funds tobacco free.
  • Covering the Uninsured - a national campaign of The Robert Wood Johnson Foundation and twelve major national organizations to raise awareness of the challenges facing the 39 million Americans with no health insurance. Site includes fact issue fact sheets and legisative tracking.
  • Electronic Advocacy - contains many resources on social work, including a list of links to a variety of technology sites, online advocacy sites, and more.
  • Express Lane Eligibility - is designed to provide advocates, community leaders, and policymakers with the tools they need to provide health insurance to more than 4 million uninsured children enrolled in such public programs as Food Stamps and School Lunch.
  • Families USA - a non-profit organization that is committed to helping provide high quality, affordable long-term healthcare to all Americans. The website provides information and resources on health issues such as children's health, Medicare and
    Medicaid, the uninsured, prescription drugs, and more.
  • Federal Election Commission - created in 1975 to disclose campaign finance information, enforce limits and prohibitions on contributions, and oversee public funding of Presidential elections.
  • Foundations & Public Policymaking: Leveraging Philanthropic Dollars, Knowledge, and Networks - discusses the benefits, costs, and risks to grant makers in trying to influence public policy.
  • Give Voice- provides information on nonprofit advocacy on the Federal level.
  • Government Affairs and Advocacy - this Association of American Medical Colleges website is organized around legislative and regulatory information "hubs," including: Education, Graduate Medical Education and Indirect Medical Education Payments, health information privacy, Labor-Health and Human Services Appropriations, Research, Teaching Hospitals, Teaching Physicians, Veterans Administration-Housing and Urban Development Appropriations, and Workforce.
  • Health Education Advocate - provides a central source of timely advocacy information so that health professionals can take a more proactive role in shaping public policy that supports healthier individuals, communities, and environments. The site enables users to search the status of specific bills, send emails to their Congresspersons, access health resolutions and policy statements of sponsoring organizations, identify advocacy training opportunities, and provides tips for working with the media.
  • Health Professions and Nursing Education Coalition - an informal alliance of over 50 organizations representing a variety of schools, programs, and individuals dedicated to educating professional health personnel.
  • Improving Public Health through Policy Advocacy - is a briefing paper from the Partnership for the Public's Health.
  • Institute of Medicine - advances and disseminates scientific knowledge to improve human health, providing information concerning health and science policy to government, the corporate sector, the professions, and the public.
  • Jumping into the Political Fray: Academics and Policy-Making, - authored by Daniel Cohn of Simon Fraser University, this report concludes that academics have substantial opportunities to influence public policy and looks at the ways in which state actors can best make use of scholarly advice.
  • League of Women Voters - gives the most up-to-date information on how to get involved in the democratic process at the federal, state, and local levels.
  • Lobbying and Advocacy Handbook for Nonprofit Organizations - available from the Amherst H. Wilder Foundation, provides some very practical approaches to influencing policy at the local, state, and national levels and includes help on creating a planning process.
  • National Conference of State Legislators - gives legislators, as well as the public, access to NCSL reports, meetings, schedules, publications, and more.
  • National Conference of State Legislators - Health - link to NCSL's health site, which offers news, publications, information on meetings, and much more.
  • National Health Law Program - a national public interest law firm that seeks to improve health care for America's working and unemployed poor, minorities, the elderly and people with disabilities.
  • National Older Women's League - a non-profit organization that works to provide a voice for and improve the status of older women.
  • National Association of Community Health Centers Policy Guide - provides basics of how Capitol Hill works, how to contact your representative, and how to be effective in communicating with legislators and staff
  • Nonprofit Advocacy Alliance offers information and technical assistance about national policies under consideration that affect nonprofits.
  • Nonprofit Advocacy Project - works to strengthen the voice of the nonprofit sector in important public policy debates by giving tax-exempt organizations a better understanding of the laws that govern their participation in the policy process.
  • Nonprofit Lobbying Guide - an essential resource for any nonprofit wanting to take on more of a role in lobbying. It includes background on the lobbying laws, on grassroots coalitions, and on using electronic media and other topics.
  • OMB Watch - monitors concerns about the federal government's institutional responsiveness to public needs in five issue areas: Budget and government performance; Regulatory and government accountability; Information for democracy and community; Nonprofit advocacy and other cross-cutting nonprofit issues; and Nonprofit policy and technology.
  • Poverty & Race Research Action Council - is a non-partisan, national, not-for-profit organization convened by major civil rights, civil liberties and anti-poverty groups. Their purpose is to link social science research to advocacy work in order to successfully address problems at the intersection of race and poverty.
  • Primary Care Advocacy Tool Kit - this educational toolkit is designed to promote access and utilization of primary health care services. For the health care provider, this toolkit provides guidance on collaborating with other stakeholders in the health care systems in primary care models and engaging in health care policy change. For the health care consumer, it facilitates understanding of the value of primary care and how to access quality primary care.
  • Race, Healthcare, and the Law - dedicated to improving the health status of persons who are discriminated against based on race and/or ethnicity. They approach this goal by helping legislators, policy makers, lawyers, health care professionals and consumers examine race, health and human rights.
  • Race, Racism, and the Law - includes statutes, cases, excerpts of law review articles, annotated bibliographies and other documents related to race and racism.
  • Robert Graham Center: Policy Studies in Family Practice and Primary Care - brings a family practice and primary care perspective to health policy deliberations in Washington. The site contains numerous policy statements, articles, and presentations of issues related to primary care policy.
  • Rock the Vote - committed to protecting the freedom of expression and encouraging young people to vote.
  • Roll Call - a leading source for news and information on Congress.
  • State Health Facts - provides state-by-state information on health and health care, courtesy of the Kaiser Family Foundation
  • Student Action with Farmworkers - a non-profit organization that works to build a partnership between campus projects and farmworker issues. The website contains links to publications, resources, and information on how to get involved with farmworker projects.
  • THOMAS - the official U.S. Congressional website for legislative information.
  • Toolkit for Communications and Advocacy is designed to help people who care about low-wage workers and their families and the conditions, issues and policy solutions that affect them.
  • Toolkit on Budget Cuts - the Praxis Project has just released a web resource to support groups doing advocacy on budget cuts and their impact on health programs and funding. The "kit" features 'how to' info on doing your own budget research and analysis of state budgets, understanding state and local budget processes, developing alternative budget, media messaging, organizing and more.
  • Understanding Research: Top Ten Tips for Advocates and Policymakers - this monograph is a useful tool for translating research into policy and action.
  • United States General Accounting Office - the investigative arm for Congress.
  • Urban Institute - is a policy research and educational organization, providing information and analysis to public and private decision-makers to help them address U.S. social, economic, and governance problems.
  • U.S. House of Representatives - information about members, Committees, and bills, as well as legislative news and important links to congressional information.
  • U.S. Senate - information about Senators, Committees, as well as Senate bills.
  • The Virtual Activist 2.0 - teaches activists how to use email and the Web as effective, inexpensive, and efficient tools for organizing, outreach, and advocacy. It covers multiple areas including mailing lists; tips for effective Online media; membership and fundraising; and privacy, copyright, and censorship.
  • Vote Smart - a source for political information.
  • Washington Advocacy Pages - a project of the Statewide Poverty Action Network (SPAN) Washington, an alliance of community organizations and individuals advocating for policies that provide equal access to the American Dream for all individuals to live free from poverty.

ART AND HEALTH

ASSESSMENT AND EVALUATION

  • Assessing the Health of Communities: Indicator Projects & Their Impacts - from the Canadian Population Health Initiative at the Canadian Institute for Health Information, this report reviews the use of community-level indicators of health and quality of life. To learn more, click here.
  • Behaviors of Professionalism - the National Board of Medical Examiners is spearheading this project to look at the behaviors that comprise professionalism in the health professions.
  • CDC Framework for Program Evaluation of Public Health - developed by the Centers for Disease Control and Prevention.
  • Compendium of Assessment and Research Tools - includes descriptions of research instruments, tools, rubrics, and guides and is intended to assist those who have an interest in studying the effectiveness of service-learning, safe and drug-free schools and communities, and other school-based youth development activities."
  • Evaluating Capacity Building Efforts for Nonprofit Organizations - this article explains how funders, management support organizations, evaluators, and nonprofits can evaluate efforts to enhance the management and governance of nonprofit organizations. It describes the process for determining who will conduct and participate in the evaluation, stating evaluation questions and potential success indicators, implementing evaluation methods, and using and sharing results.
  • Evaluation Tools- provided by the Center for Substance Abuse Prevention.
  • Evidence-Based Medicine - sponsored by the New York Academy of Medicine, this site includes links to various resources for evidence-based medicine.
  • Evidence-Based Medicine Tool Kit - developed by the University of Alberta, Canada.
  • The Healthy Development Measurement Tool provides San Francisco residents, community organizations, and public agencies with a source of data on neighborhood and city conditions that are important to healthy living. The tool is organized around seven elements that comprise a healthy city: environmental stewardship; sustainable and safe transportation; public safety; public infrastructure; adequate and healthy housing; health economy; and, community participation
  • InnoNet - offers The Workstation, a set of tools that guides nonprofits through a program planning and evaluation process.
  • Marguerite Casey Foundation Organizational Capacity Assessment Tool - is a self-assessment instrument that helps nonprofits identify capacity strengths and challenges and establish capacity building goals. It is primarily a diagnostic and learning tool. Click here for an article in the Summer 2005 issue of The Evaluation Exchange that describes the tool.
  • McKinsey Capacity Assessment Grid - Click here for an article on three foundations' experiences using this grid.
  • Netting the Evidence - is a UK-based website for finding a wide variety of evidence-based medicine resources.
  • Outcome Measurement Resource Network - is a resource library that contains excerpts from the United Way's manual, Measuring Program Outcomes: A Practical Approach.
  • Pathways To Outcomes - provides an extensive collection of information about "what works" to improve targeted outcomes for children and families. Each Pathway displays actions that lead to measurable progress. The initial Pathway contains information about effective community efforts to ensure that all children are ready for school at the time of school entry.
  • What Works Clearinghouse - is a project of the U.S. Department of Education's Institute of Education Sciences, established to provide educators, policymakers, and the public with a central, independent, and trusted source of scientific evidence of what works in education.

AWARDS

  • The Frank Newman Leadership Award recognizes undergraduate students with financial need and civic leadership potential and provides both financial support and mentorship to help them achieve their academic and civic goals. Winning students receive a cash award to support community work as well as national recognition for their efforts.
  • Sloan Awards for Excellence in Online Teaching & Learning
  • The Howard R. Swearer Student Humanitarian Award recognizes undergraduate students for their innovative strategies in addressing community issues and needs, and their efforts to build and sustain this work among their peers and within their institution. Winning students
    receive a cash award to support community work as well as national recognition for their efforts.

CENTERS AND CLEARINGHOUSES

  • Click here for a directory of federal health information centers and clearinghouses listed by keyword. Many of them provide toll-free numbers.
  • American Self-Help Group Clearinghouse - provides a keyword-searchable database of over one thousand member-run "self-help" support groups for a broad range of illnesses and situations. It also contains suggestions for starting both community and online groups.
  • CDC Spanish Language Web Site - provides health-related information to the Hispanic/Latino professional and to the Spanish-speaking community.
  • Center to Advance Palliative Care - is dedicated to increasing the availability of quality palliative care services in hospitals and other health care settings for people with life-threatening illnesses, their families, and caregivers.
  • Center for the Advancement of Collaborative Strategies in Health - information for partnerships, researchers, policy makers, and funders interested in using collaborative approaches to improve community health and well-being.
  • Center for the Advancement of Health - provides useful information on a wide range of health issues, such as disease prevention, personal exercise, and more.
  • Center for the Advancement of Interprofessional Education - a charitable organization that promotes interprofessional education for health, social care and the related professions. The website contains links to information on conferences, publications, other sites of interest, an online bibliography and more.
  • Center for Advancing Community Health - assists clients from the public and private sectors who are interested in establishing partnerships to improve health care in communities.
  • Center for American Indian Health, The Johns Hopkins School of Public Health - works with tribes to promote strategies that will provide American Indians with the highest possible level of health and well-being.
  • Compassion Capital Fund National Resource Center - was established as President Bush's faith-based initiative to increase the scale and effectiveness of faith-based and community organizations through research and other supportive means. The Center serves as an expert resource regarding faith-based and community-based initiatives and best practices, serves as a developer of and repository and distribution center for information, and tools and resources needed by faith-based and community organizations and organizations that work with them to improve their capacity, knowledge, and skills.
  • Electronic Resource Centre for Human Rights Education is an on-line repository of human rights education and training materials, listings of training courses, databases and links to other organizations and resources.
  • Epicenter - database that can help you find ways to more effectively serve communities and support members, volunteers, and students.
  • Health Educational Assets Library - is a multi-institutional, collaborative project funded by the National Science Foundation since the Fall of 2000. The primary goals of HEAL are to improve access to teaching resources for health sciences educators, promote the sharing of teaching resources, and foster the interoperability of resources.
  • Join Together, Boston University School of Public Health - a group sponsored by Boston University's School of Public Health that is committed to the prevention of substance abuse and gun violence.
  • Medicine and Public Health Initiative - offers resources and information on the Medicine and Public Health Initiative, which works to integrate medicine and public health education.
  • National Center for Education in Maternal and Child Health - dedicated to improving the health and well-being of families by providing leadership and support to the maternal and child health community.
  • National Commission on Correctional Healthcare - works to improve the healthcare system in prisons, jails, and juvenile detention centers and offers a wide variety of information on issues dealing with healthcare in correctional facilities.
  • Nursing, Consultant, Educational and Health Services Home Page - provides resources related to nursing and healthcare.
  • University of Alberta Health Information Page - provides information and software on health issues relating to young adults, including AIDS, alcohol, birth control, stress and nutrition.
  • VegWeb - is a vibrant Internet vegetarian community, VegWeb was born at Indiana University in 1994. The site includes over 5,000 vegetarian recipes, busy discussion boards as well as orginal articles on nutrition, news, events, gardening and other veg-related content.
  • Volunteers in Health Care - serves as a resource for health care providers who are committed to providing medical and dental care to uninsured individuals in their communities.
  • HandsNet's WebClipper Digest - The WebClipper Digest is HandsNet's weekly overview of cross-cutting human services news from throughout the World Wide Web. Offers daily news summaries, policy analyses, legislative alerts, professional level discussions on public policy, and much more.

CHILD AND ADOLESCENT HEALTH

  • Action for Healthy Kids - was launched at the Healthy Schools Summit in October 2002 to help school districts create healthy school environments that support sound nutrition and physical activity programs.
  • Advocacy and Research Resources - compiled by the Foundation Center
  • Children's Health Fund - is committed to providing health care to the nation's most medically underserved children through the development and support of innovative primary care medical programs and the promotion of guaranteed access to appropriate health care for all children.
  • CLIKS: County, City, Community-Level Information on Kids - this database provides detailed state- and community-level data on children and families in thirty states, including information on demographics, education, health, safety, and family economics. Developed by the KIDS COUNT initiative at the Annie E. Casey Foundation.
  • The Data Resource Center for Child and Adolescent Health, eliminates barriers and reduces time and resources needed to obtain key findings on the health and health care of children, youth, and families. It includes over 100 standardized measures.
  • First Book - is a national non-profit organization that gives children from low-income families the opportunity to read and own their first new books. First Book primarily works with community-based volunteer chapters to provide existing local literacy programs with grants of brand-new books.
  • General Health and Early Intervention Resources - compiled by the Foundation Center
  • Healthy Families America - an initiative of Prevent Child Abuse America, is intended for use by policymakers, educators, families, and others interested in promoting positive parenting, enhancing child health and development, and preventing child abuse and neglect.
  • Healthy Youth Funding Database formerly known as the Adolescent and School Health Funding Database, this resource contains information on federal, foundation, and state-specific funding sources for school health programs.
  • Injury Free Coalition for Kids: a Passion for Prevention - lessons and techniques learned from eight Injury Prevention Program sites sponsored by the Robert Wood Johnson Foundation.
  • The National Committee on Partnerships for Children's Health - seeks to improve the health and wellbeing of children across the country. Working at the state level, it connects local and state agencies of health, education or social welfare with a virtually untapped resource: higher education.
  • National Healthy Mothers, Healthy Babies Coalition - provides information and resources designed to improve the health and safety of mothers, babies, and families.
  • Pediatrics in Practice is a faculty development health promotion curriculum based on the Bright Futures principles that prevention works, families matter, and health promotion is everyone's business. This website supports child health educators and clinicians with effective strategies to convey health promotion content using core teaching methods.
  • Protecting Children from Substance Abuse: Lessons from Free to Grow Head
    Start Partnerships
    - is the evaluation report for the Robert Wood Johnson Foundation initiative that targets Head Start children with the goal of creating change to protect
    them from substance abuse and related problems in alter life.
  • Search Institute - works with community and organizational leaders, as well as state and national groups, to promote knowledge that will help improve the well being of adolescents and children. Provides information on current research, publications, training, and more.
  • Teen Pregnancy Resources - compiled by the Foundation Center

CIVIC EDUCATION AND ENGAGEMENT

  • American Democracy Project - seeks to increase the number of undergraduate students who understand and are committed to engaging in meaning civic actions. All public colleges and universities participating in this project are members of the American Association of State Colleges and Universities.
  • Center for Civic Partnerships - provides intensive technical assistance and consultation services to communities both within and outside of California to help groups develop, implement and sustain community improvements.
  • The Center for Information & Research on Civic Learning & Engagement - promotes research on the civic and political engagement of Americans between the ages of 15 and 25.
  • Citizen Science Toolbox - is a free resource of principles and strategies to enhance meaningful stakeholder involvement in decision-making. It includes: (1) over 60 community involvement tools, from public meetings to consensus conferences; (2) case studies of the uses of various tools and the reflections of stakeholders who participated; (3) an annotated bibliography of over 500 citizen science references and (4) theoretical discussions of citizen science issues.
  • The Civic and Political Health of the Nation: A Generational Portrait - describes the civic and political behavior of the American public, with a special focus on youth ages 15 to 25. Using an extensive national telephone survey
  • Civic Practices Network - is a collaborative and nonpartisan project bringing together a diverse array of organizations and perspectives that share a commitment to bring practical methods for public problem solving into every community and institutional setting in America. The site contains tools and guides for civic participation and also lists a number of affiliates available at the state, local and regional levels.
  • CollegeValues.Org - devoted exclusively to information and scholarship about moral and civic education in college. Features include public diaries by college and university presidents, student essays, feature articles by leading scholars and educators, and information on exemplary programs.
  • Community College National Center for Community Engagement - advances programs and innovations that stimulate active participation of community colleges in community engagement for the attainment of a vital citizenry.
  • Dialogue Resources - assembled by the Department of Psychology at the University of Massachusetts Lowell.
  • Effective Citizens - is a position statement by The National Council for the Social Studies has published on educating effective citizens, declaring that students should have opportunities to apply civic knowledge to solve real problems in their schools. The organization defines an effective citizen as "one who has the knowledge, skills, and attitudes required to assume the office of citizen in our democratic republic."
  • National Alliance for Civic Education - is a national membership organization committed to advancing civic knowledge and engagement.
  • National Dialogue Project: Journey Towards Democracy: Power, Voice and the Public Good- offers a means through which campuses can gain deeper institutional understanding about how to educate students for democracy, how liberal education can foster civic engagement, what stands in the way of these efforts, and what new directions institutions might take in making civic learning a core component of every graduate's education. Visit this website to learn more about the project and its participating institutions.
  • The Pew Partnership for Civic Change - is a civic research organization whose mission is to identify and document promising solutions crucial to strong communities.

COMMUNITY-BASED ORGANIZATIONS

  • The Community Partner Listserv was established by CCPH to help build the capacity of community partners through information-sharing, collaborative problem-solving and advocacy.
  • Click here for the Community Partner Summit webpage that contains products and resources intended to support community partners in their community-higher education partnership work.
  • The Alliance for Nonprofit Management is a professional association of member organizations and individuals devoted to building the capacity of nonprofit organizations in order to increase their effectiveness and impact.
  • The Aspen Institute - is a global forum for leveraging the power of leaders to improve the human condition. Website features a list of recurring and upcoming leadership policy programs and seminars.
  • Association of Asian Pacific Community Health Organizations - is a source for information that is relevant to improving the health status of Asian Americans and Pacific Islander populations.
  • Association for Research on Nonprofit Organizations and Voluntary Action - is a community of people dedicated to fostering the creation, application and dissemination of research on voluntary action, nonprofit organization and philanthropy.
  • The Association of Community Organizations for Reform Now (ACORN) - is the nation's largest community organization of low- and moderate-income families, with over 120,000 member families organized into 600 neighborhood chapters in 45 cities across the country.
  • Association of Occupational and Environmental Clinics - is a non-profit organization that is committed to improving the practice of occupational and environmental health through information sharing and collaborative research.
  • Community Development Organization Search Engine - is a database maintained by the Federal Reserve Bank of Boston that allows users to search by keyword and a city or state to find community development-related organizations nationwide
  • Migrant Clinician's Network - is a national clinical network of health care providers who serve migrant farmworkers and other underserved mobile populations.
  • National Association of Community Health Centers - is the one stop source for information about America's health center safety net of community and migrant health centers.
  • National Center for Nonprofit Boards - improves the effectiveness of nonprofit organizations by strengthening their board of directors.
  • The National Council of Nonprofit Associations is a network of 38 state and regional associations of nonprofits representing more than 17,000 nonprofits throughout the country.
  • National People's Action - is a coalition of hundreds of community organizations from across the country that work on issues effecting their communities such as predatory lending, community reinvestment, neighborhood safety, education and immigration.
  • National Training and Information Center provides training and technical assistance to grassroots organizations around the country and publishes Disclosure "The National Newspaper of the Neighborhoods."
  • The People Pages: Resources for Social Change - is a new national resource directory for activists, community organizers, and grassroots nonprofit organizations. The book includes contact information for 2500 social change organizations, 25 articles and 10 planning worksheets about organizational development and management, lists of books and films, and a directory of educational programs in nonprofit management. Free sample articles are on this website, including Fundraising Planning, Volunteering, and Strategic Planning.
  • The Peter F. Drucker Foundation for Nonprofit Management - provides educational opportunities and resources to the leadership of social sector organizations.

COMMUNITY-BASED PARTICIPATORY RESEARCH

  • Click here for CCPH's webpage on community-based participatory research (CBPR), including definitions, tools and resources, and CBPR course syllabi
  • Click here for the Community Partner Summit webpage that contains products and resources intended to support community partners in their community-higher education partnership work.
  • Access to Research initiative enables accredited universities, medical schools, research centers, and other public institutions in the developing countries to gain access to the wealth of scientific information contained in more than 1,000 biomedical journals published by the participating publishers.
  • APHA Policy on Community-Based Participatory Research in Public Health - The American Public Health Association adopted this policy on CBPR in public health at its 2004 annual meeting. If you are unable to read the attachment, it is also available online as policy 2004-12 at http://www.apha.org/legislative/policy/2004/.
  • Bending The Ivory Tower: Communities, Health Departments And Academia - a March 2003 policy brief prepared by the Partnership for the Public's Health, highlights the rationale and strategies for community-campus partnerships in public health.
  • Building a Truly Engaged Community Through Participatory Research - is an article by
    William Tindall et. al. at Wright State University School of Medicine that defines and describes participatory research and includes web-linked resources.
  • The Community-Based Public Health Caucus of the American Public Health Association is guided by the belief that community lies at the heart of public health, andthat interventions work best when they are rooted in the values, knowledge, expertise, and interests of the community itself.
  • CBPR Listserv - launched by Community-Campus Partnerships for Health and the Wellesley Institute in June 2004 to serve the growing network of people involved and interested in CBPR.
  • CDC Prevention Research Centers (PRCs) - are a network of 28 academic centers, public health agencies, and community partners conducting applied research and practice in chronic disease prevention and control. Click here to view a nine minute video, Community Connections, introducing the PRCs and their philosophy of involving communities as partners in research.
  • CDC Urban Research Centers (URCs) were established in 1995 to identify what works to promote the health and improve the quality of life of inner-city disadvantaged populations. Each URC includes a coalition of representatives from community organizations, academic centers, health departments, and other private organizations.
  • The Center for Information and Study on Clinical Research Participation is a nonprofit group dedicated to educating and informing the public, patients, medical/research communities, the media, and policy makers about clinical research participation.
  • Collaborative Initiative for Research Ethics in Environmental Health - provides course development, training, educational resources and case study development on improving research ethics in environmental health.
  • Community Based Collaboratives Research Consortium - seeks to understand and assess collaborative efforts involving natural resource issues and community development. The consortium provides a venue for researchers, community groups, government agencies, funders and individuals to share their research, find out about new developments and studies concerning community based collaborative groups and work in partnership with others on research projects.
  • Community-Based Participatory Research Bibliography
  • Community Health Scholars Program - Offers information on this post-doctoral fellowship program in community-based participatory research in public health. The program is offered at three Schools of Public Health: The University of Michigan, the University of North Carolina-Chapel Hill and Johns Hopkins University.
  • Community Research Project - This project brings together colleges and universities to develop campus-based, local and regional community research centers.
  • Directory of Funding Sources for Community-Based Participatory Research - published by CCPH and the Northwest Health Foundation in June 2004, this directory includes funding agency descriptions, deadlines, contact information, examples of previously funded CBPR projects, and an annotated listing of funding resource websites. We welcome your comments and suggestions for an improved future edition of the directory! Please complete and return this reader feedback form.
  • Enhancing Public Input and Transparency in the National Institutes of Health Research Priority-Setting Process - an April 2004 report from the NIH Council of Public Representative.
  • Federal Interagency Working Group on CBPR - works to strengthen communication among federal agencies with an interest in supporting community-based participatory research (CBPR) methodologies in the conduct of biomedical research, education, health care delivery, or policy.
  • Guidelines and Categories for Classifying Participatory Research Projects in Health Promotion - intended for use by grant application reviewers to appraise whether proposals for funding as participatory research meet participatory research criteria.
    These guidelines can also be used as a checklist by academic and community researchers in planning their projects.
  • HSRR - is a searchable database containing information about research datasets and instruments/indices employed in Health Services Research, and the Behavioral and Social Sciences with links to PubMed and additional resources.
  • INTERACTS - Improving Interaction between NGO's, Science Shops and Universities: Experiences and Expectations and ISSNET - Improving Science Shop Networking - These are international organizations of science shops. Science shops are organizations created as mediators between citizen groups and research institutions.
  • The Just Connections Toolbox - contains essays on the nature and uses of community-based research, stories about how partners have conducted CBR in the past, reflections from community members and college faculty who have participated in CBR projects, and tools for others interested in doing CBR in their classrooms and/or communities. The tools in the Toolbox include sample grant proposals, workshop outlines, consent form templates, sample community service applications, sample information letters, reading lists, course syllabi and more.
  • LINK is a nonprofit organization that allows community-based organizations to post research projects and enables researchers to find meaningful research topics.
  • Living Knowledge Database is a free, web-based database of organizations involved in community-based research.
  • Loka Institute - dedicated to making science and technology more responsive to social and environmental concerns. The website offers news, articles, publications, and project information dealing with issues concerning science and technology.
  • Measures for Community Research - is a collection of measures used to evaluate outcomes viewed as important by Comprehensive Community Initiatives, public policy makers, program funders and experts in relevant research fields. This collection of measures covers eight substantive areas: Community Building, Economic Development, Employment, Education, Housing and Neighborhood Conditions, Neighborhood Safety, Social Services, and Youth Development.
  • The National Community-Based Research Networking Initiative is a network of community-based research practitioners funded by Learn & Serve America and spearheaded by Princeton University and the Bonner Foundation.
  • Native Research Network (NRN) is a leadership community of American Indian, Alaska Native, Kanaka Maoli, and Canadian Aboriginal persons promoting integrity and excellence in research. NRN provides networking and mentoring opportunities, a forum to share research expertise, sponsorship of research events, assistance to communities and tribes, and enhanced research communication. The NRN places a special emphasis on ensuring that research with Indigenous people is conducted in a culturally sensitive and respectful manner.
  • Negotiating Research Relationships with Inuit Communities: A Guide for Researchers - published by the Inuit Tapiriit Kanatami and Nunavut Research Institute, this guide was written as a follow-up, and complement, to the 1998 joint Nunavut Research Institute/Inuit Tapiriit Kanatami booklet entitled Negotiating Research Relationships: A Guide for Communities that was written to help Inuit community members understand their rights and responsibilities in negotiating research relationships.
  • North American Primary Care Research Group - formed in 1972 as a multidisciplinary organization with a mission to develop and disseminate new knowledge regarding primary medical care.
  • Nursing Partnership Centers on Health Disparities - are funded by the National Institute of Nursing Research to foster the development of nursing partnerships between researchers, faculty, and students at Minority Serving Institutions and institutions with established health disparity research programs. They seeks to 1) expand the cadre of nurse researchers involved in minority health or health disparities research; 2) increase the number of research projects aimed at eliminating health disparities, and 3) enhance the career development of potential minority nurse investigators.
  • Office for Human Research Protections - together with the Food and Drug Administration, the Office oversees programs for the protection of human subjects at more than 4,000 HHS-funded universities, hospitals and other medical and behavioral research institutions and private research sites in the United States and abroad.
  • Pfizer Faculty Scholar Award in Public Health - is a nationally competitive career development award intended to support junior faculty in schools and programs in public health who are interested in pursuing community-based, public health practice research.
  • The Role of Community-Based Participatory Research: Creating Partnerships, Improving Health - is intended to provide leaders of community-faith-based organizations with an overview of the issues involved in community-based participatory research. For more information, click here
  • Society for Community Research and Action - is affiliated with the American Psychological Association as is devoted to the many different disciplines that focus on community research and action.
  • Sociological Initiatives Foundation - provides grants to support community-based research and social action projects.
  • University + Community Research Partnerships: A New Approach - is a report from The Pew Partnership for Civic Change that summarizes the findings from a 19-site participatory research initiative that partnered community-based organizations with academics from area colleges and universities. It also highlights the conversation and general themes that arose during a roundtable discussion with representatives from higher education, the philanthropic sector, and the nonprofit community. CCPH was among the organizations represented at the roundtable.
  • University-Community Partnership: Global Networking Platform for Social Action Research - hosted by Arizona State University, the network is devoted to sharing knowledge, ideas and best practices of university-community partnerships. Its mission is to encourage involvement in community and promote participatory social action research.

COMMUNITY-BASED PARTICIPATORY RESEARCH: EXAMPLES

  • Click here for CCPH's webpage on community-based participatory research (CBPR), including definitions, tools and resources, and CBPR course syllabi
  • Appalachia Cancer Network - addresses cancer issues in Appalachia through a consortium of regional, state, and local partners.
  • Center for Urban Epidemiologic Studies - was established by The New York Academy of Medicine in partnership with the The New York City Department of Health, and in cooperation with multiple collaborating institutions. The Center's purpose is to study social determinants of health using a community-based participatory research approach, with an emphasis on investigating the role of social support and social cohesion. The geographical communities of focus are East and Central Harlem; areas where a substantial proportion of the residents are poor people of color.
  • Center for Urban Research and Learning - promotes cooperation between Loyola University researchers-- faculty and students-- and community based organizations, citywide organizations, social service agencies, health care providers and government. By establishing collaborative relationships with organizations outside the university, the Center recognizes the importance of working with communities and organizations in seeking new solutions to pressing urban problems.
  • Citizen Participation in Health Decision-Making- a study of regional health authorities in British Columbia
  • Colorado Community-Based Research Network is a network of university and college faculty, staff, and students; non-profit and community-based organizations; and foundations interested in conducting community-based research that benefits the metro-Denver area. They provide research support and training; library access and information gathering services; and coordination of fundraising efforts.
  • Community Linked Interdisciplinary Research - the mission of this initiative is to link together community research needs in the public and private sectors with research expertise among University of Buffalo faculty to provide additional opportunities for undergraduates to participate in research that is of use to Western New York industry, government, community groups, schools, and social service agencies.
  • Community Research and Learning Network - links up university faculty and students in the DC metro area with community-based organizations. The CoRAL Network website provides opportunities for researchers and CBOs to list their interests in CBR and find ways to work together.
  • Detroit Community: Academic Urban Research Center - works to establish partnerships between the University of Michigan School of Public Health, Detroit Health Department, and six community-based organizations, so that they may work together to improve the quality of life of the communities on the east and southwest sides of Detroit. Click here for a fact sheet on the Center.
  • East St. Louis Action Research Project establishes and nurtures mutually enhancing partnerships between community-based organizations in distressed urban areas, and students, staff, and faculty at the University of Illinois and on other campuses. Through these innovative partnerships, ESLARP promotes the revitalization of distressed areas as well as advances the University's research, teaching, and service missions.
  • Eliminating Ethnic Health Disparities Through Community-Based Research and Action - a brochure about resources available through Puentes & Associates, a Washington-DC based organization.
  • Healthy Aging Research Network - the Network's mission is to understand the determinants of healthy aging in older adult populations; to identify interventions that promote healthy aging; and to assist in the translation of such reserch into sustainable community-based programs throughout the nation.
  • Improving Science Shop Networking - is a European Community-funded project to establish a network of science shops.
  • The Institute for Community Research - is an independent, nonprofit research organization in Hartford, CT dedicated to using research to promote equal access to health, education, and cultural resources in a diverse society. It collaborates with community and institutional partners in research and development to improve services,
    foster individual and community strengths, influence public policy, and contribute to social science theory and practice.
  • INTERACTS is a study on science shops funded by the The European Commission to strengthen the interaction between research institutions and society. INTERACTS aims to improve cooperation in science, research and development of small to medium non-governmental organizations with universities through intermediaries such as science shops.
  • Johns Hopkins University Center for Adolescent Health Promotion and Disease Prevention - addresses the health and health care needs of urban youth through applied research, communication, and education and training. The Center's theme, Promoting the Health of Adolescents through Families and Communities, reflects its collaborative approach to prevention research.
  • Just Connections invigorates grassroots democracy among residents of distressed mountain communities by creating and using models for participatory research and service.
  • Markey Cancer Center Cancer Control Program - the Center's mission is to reduce the cancer burden in Appalachian Kentucky by identifying problems and proposing community-based solutions.
  • Morehouse School of Medicine Prevention Research Center - the Center's mission is to advance scientific knowledge in the field of prevention in African American and other minority communities and to disseminate new information and strategies of prevention.
  • The Office of Community-Based Research at the University of Victoria, British Columbia, Canada is part of the University's strategic vision of increasing civic engagement. They are about democratizing knowledge, supporting community-driven research initiatives, and supporting students and faculty who are doing or who wish to do community-based research.
  • Partners in Health and Housing Prevention Research Center Boston University - the Center's theme is Health and Public Housing - From "Projects" to Community.
  • Prevention Research Center of Michigan - the Center's mission is to expand and share knowledge to strengthen the capacity of the community, the public health system, and the university to improve the public's health.
  • Promises and Dilemmas of Participation: Action Research, Search Conference Methodology and Community Development - a paper authored by Kai A. Schafft and Davyd J. Greenwood that presents a case study assessment of two socially and organizationally distinct communities and their use of action research strategies as participatory-based approaches to community strategic planning and action.
  • Seattle Partners for Healthy Communities - dedicated to improving urban health through the collaboration of community agencies, activists, public health professionals, academics, and health providers. The goal of Seattle Partners is to prevent disease and promote healthy behaviors and environments.
  • Southeast Community Research Center - was established to promote, facilitate, and conduct participatory and community-based research throughout the Southeastern United States.
  • University of New Mexico Prevention Research Center - the Center's goal is to work in partnership with American Indian communities to improve health and well being through participatory research, evaluation, education, training and practice.
  • University of North Carolina at Chapel Hill Center for Health Promotion and Disease Prevention is committed to improving the health of the people of North Carolina and the southeast through interdisciplinary research, teaching and public service. Particular emphasis is paid to the needs of vulnerable and disadvantaged populations,
  • University of South Florida Center for Community-Based Prevention Marketing - the Center's mission is to develop and evaluate an evidence-based model for applying community-based prevention marketing to strengthen local capacity for sustained disease prevention and health promotion, while advancing scientific research in CBPM on a national level.
  • West Virginia University Prevention Research Center - provides leadership and training in multidisciplinary research that addresses the needs of West Virginia and Appalachia, with special emphasis on disadvantaged populations; improves health and quality of life through the reduction of preventable risk factors and morbidity; advances the science of health promotion and disease prevention; and enhances through collaboration the effectiveness of community.
  • Yale-Griffin Prevention Research Center - is committed to establishing Community Action Teams composed of Yale faculty; staff of Griffin Hospital, health promotion agencies, and the Lower Naugatuck Valley Health District; community members; and Yale students in medicine and public health to develop innovative public health interventions in response to community priorities. The efforts of the Yale-Griffin PRC are intended to measurably raise the standard of health and quality of life in the Lower Naugatuck Valley.

COMMUNITY BUILDING

  • The Community Partner Listserv was established by CCPH to help build the capacity of community partners through information-sharing, collaborative problem-solving and advocacy.
  • Click here for the Community Partner Summit webpage that contains products and resources intended to support community partners in their community-higher education partnership work.
  • Access Project - works to strengthen community action, promote social change, and improve health, especially for those who are most vulnerable. By supporting local initiatives and community leaders, The Access Project is dedicated to strengthening the voice of underserved communities in the public and private policy discussions that directly affect them.
  • ACORN - The Association of Community Organizations for Reform Now, is the nation's largest community organization of low- and moderate-income families, with over 100,000 member families organized into 500 neighborhood chapters in 40 cities across the country
  • Aspen Institute Roundtable on Comprehensive Community Initiatives - was established in 1992 as a forum in which people engaged in the field of comprehensive community initiatives could meet to discuss the lessons that are being learned by initiatives across the country and to work on common problems they are facing. Comprehensive Community Initiatives are neighborhood-based efforts that seek improved outcomes for individuals and families as well as improvements in neighborhood conditions by working comprehensively across social, economic and physical sectors. Additionally, CCIs operate on the principle that community building -- that is, strengthening institutional capacity at the neighborhood level, enhancing social capital and personal networks, and developing leadership -- is a necessary aspect of the process of transforming distressed neighborhoods.
  • Asset-Based Community Development Institute - a group that participates in community development research and spreads its knowledge by interacting with and providing useful information to community builders.
  • Association of Community Organizing and Social Administration - members in a variety of disciplines and professional fields whom are devoted to strengthening community organization and social administration.
  • Center for Assessment and Policy Development - is a non-profit research, planning and policy organization based that works to improve the quality of life for children, adolescents, families and neighborhoods by helping to build the capacity of organizations, collaborations, government, schools and others who do the day-to-day work on their behalf. Through their evaluation, CAPD helps people use the tools of democracy - leadership, civic engagement, anti-racism work, system reform, public will, outcome tracking - to build stronger communities, particularly for children, adolescents and families.
  • Center for Civic Partnerships - provides intensive technical assistance and consultation services to communities both within and outside of California to help groups develop, implement and sustain community improvements.
  • Center for Community Change - is committed to rebuilding low income communities by helping people to develop the skills and resources they need to improve their communities as well as change olicies and institutions that adversely affect their lives.
  • Citizen's Guide - is hosted by the Vancouver CommunityNet and contains an on-line how-to guide to community organizing, links to other tools and library.
  • COMM-ORG - an online seminar on the history of community organizing, containing syllabi, research resources, and more.
  • Community Building Resource Exchange - provides a forum for exchanging resources and information by providing links to a wide range of materials covering the theoretical bases and practical applications of comprehensive, community building approaches to neighborhood revitalization.
  • Community Development Organization Search Engine - is a database maintained by the Federal Reserve Bank of Boston that allows users to search by keyword and a city or state to find community development-related organizations nationwide
  • Community Organizing: A Populist Base for Social Equity and Smart Growth - is a paper that describes the efforts of low-income community organizations to understand and address the regional inequities of sprawl, published by the Funders' Network for Smart Growth and Livable Communities.
  • Community Teamwork, Inc. - an organization that is committed to assisting low-income people by helping them deal with the effects of poverty and providing resources that support them in becoming self-sufficient.
  • Community Toolbox- promotes community health and development by connecting people, ideas, and resources.
  • Family Economic Success - was developed by the Annie E. Casey Foundation to provide a more comprehensive way to address the difficulties low-income working families face in trying to move up the economic ladder. FES uses a three-pronged approach, incorporating strategies for workforce development, family economic support and community investment.
  • Freedom Trainers - offers trainings on organizational change and development with a focus on community organizing and growth.
  • Funders' Collaborative Fund for Racial Justice Innovation - is a partnership of private and corporate foundations, family foundations, and individual donors, was created to support a broad range of activities designed to promote and sustain collaborations between lawyers and community activists in communities around the country.
  • Higher Education Consortium for Urban Affairs - provides students, faculty, and practitioners with necessary resources to help promote social transformation and community building.
  • Journalism That Connects: Communities, Practices and Vision is a primer for broadcast and print journalists wanting to incorporate the principles of community-based journalism within their newsrooms.
  • LISC Online Resource Library - web-based resource for community development practitioners, offering best practices and lessons learned, industry tools, links, and interactive chats with industry experts.
  • Making Connections is a 10-year investment begun in 1999 by the Annie E. Casey Foundation to improve the outcomes for families and children in tough or isolated neighborhoods in 22 cities.
  • Mid-South Delta Initiative - is a partnership among Delta communities, regionally focused organizations, Delta residents engaged in leading change at all levels, the W. K. Kellogg Foundation and many other foundations, public agencies and investors. It focuses on community, enterprise and leadership development in the 55 contiguous counties and parishes along the Mississippi River in Arkansas, Louisiana, and Mississippi.
  • National Community Building Network - is an alliance of locally-driven urban initiatives working to reduce poverty and create social and economic opportunity through comprehensive community-building strategies.
  • National Neighborhood Indicators Partnership - offers information on NNIP, a group that encourages partnerships between local governments, community leaders, and NNIP local partners. Local partners are involved in setting up neighborhood indicator systems that are used to influence policy making and neighborhood building.
  • National People's Action - is a coalition of hundreds of community organizations from across the country that work on issues effecting their communities such as predatory lending, community reinvestment, neighborhood safety, education and immigration.
  • Neighborhoods Online - a network of political activists, volunteers, and government workers that provides information and resources on neighborhood improvement. Addresses many of the problems that neighborhoods are facing, such as crime, poverty and inadequate housing.
  • The People Pages: Resources for Social Change - is a new national resource directory for activists, community organizers, and grassroots nonprofit organizations. The book includes contact information for 2500 social change organizations, 25 articles and 10 planning worksheets about organizational development and management, lists of books and films, and a directory of educational programs in nonprofit management. Free sample articles are on this website, including Fundraising Planning, Volunteering, and Strategic Planning.
  • Philanthropic Capacity Building Resource Database - offers information on nearly 200 capacity-building programs (including their structure, funding, evaluation, and type of work) offered by various U.S. foundations.
  • The Project Change Anti-Racism Initiative - was established in 1991 as an initiative of Levi Strauss & Company through its corporate foundation. The project addresses racial prejudice and institutional racism in four communities throughout the United States: Albuquerque, New Mexico; El Paso, Texas; Knoxville, Tennessee; and Valdosta, Georgia. Project Change unites community leaders serving diverse constituencies and assists them in developing leadership capacities that both complement and transcend their racial and ethnic interests.
  • The Praxis Project - supports and partners with communities to achieve health justice by providing resources and capacity for policy development, advocacy and leadership.
  • Promising Practices Network on Children, Families and Communities - offers easy-to-understand descriptions and reliable evaluations of services, activities, approaches and policies that have been shown to achieve positive results for children and their families.
  • Technical Assistance Resource Center - is an information exchange website developed by the Annie E. Casey that provides a wealth of resources, including best practices for community change and leadership development, and using strategic communications to meet community needs.
  • Teens as Community Builders - profiles individual projects, lists a host of organizations that help teens accomplish their visions, and provides tip sheets on how both adults and youth can work to build positive environments for young people.
  • Using Public Schools as Community-Development Tools: Strategies for Community-Based Developers - published by the Harvard Joint Center for Housing Studies and Neighborhood Reinvestment Corporation, examines ways in which community developers can learn from and contribute to efforts that link public schools and neighborhoods.
  • We're Hired by the Hospital But We Work for the Community: Examining Hospital Involvement in Community Action - article by Blake Poland and colleagues from the Spring 2001 issue of Hospital Quarterly.

COMMUNITY-CAMPUS PARTNERSHIPS