Wylie Burke, MD, PhD
Principal Investigator
University of Washington, School of Medicine
Box 357120
Seattle, WA 98195
Email: wburke@u.washington.edu
Phone: 206.221.5482
Fax: 206.685.7515Research interests include using both empiric and analytic methods to evaluate the clinical use of genetic information, with a focus on ethical, social, and policy implications.

Robert Anderson, JD
Co-Investigator
University of Washington, School of Law
Box 353020
Seattle, WA 98195
Email: boba@u.washington.edu
Phone: 206.685.2861
Fax: 206.616.2436 Director of the University of Washington Indian Law Center, Professor Anderson’s areas of interest include federal Indian law, public land law, and property law.

Dedra Buchwald, MD
Co-Investigator
University of Washington, School of Medicine
Box 359780
Seattle WA 98195
Email: dedra@u.washington.edu
Phone: 206.543.2260
Fax: 206.543.3830Interests include American Indian/Alaska Native health, twin research, chronic pain and chronic fatigue, and complementary and alternative medicine.

David Eaton, PhD
Co-Investigator
University of Washington, School of Public Health
Box 354695
Seattle, WA 98195
Email: deaton@u.washington.edu
Phone: 206.685.3785
Fax: 206.685.4696Research and teaching programs focus in the area of the molecular basis for environmental causes of cancer, and how human genetic differences in biotransformation enzymes may increase or decrease individual susceptibility to chemicals found in the environment. Dr. Eaton also oversees an active program that develops interactive curricular materials in environmental health sciences for K-12 education

William Freeman, MD, MPH
Northwest Indian College
2522 Kwina Road
Bellingham, WA 98226-9217
Email: wfreeman@nwic.edu
Phone: 360.392.4284
Fax: 360.647.7084Interests include the health of American Indian and Alaska Native people, communities, and tribes; research ethics, IRBs, etc.; community-based participatory research; and communication across cultural and group divides.

Stephanie Malia Fullerton, PhD
Co-Investigator
University of Washington, School of Medicine
Box 357120
Seattle, WA 98195
Email: smfllrtn@u.washington.edu
Phone: 206.616.1864
Fax: 206.685.7515

Interests include scientific decision-making, the relationship of basic research to clinical research and practice (especially as it pertains to use of racial and/or ethnic identification), research ethics, and genome scientists' understandings of the genetic basis of common complex traits and diseases.

Arno G Motulsky, MD
Advisor
University of Washington School of Medicine
UW Box 357730
Seattle, WA 98195
Email: agmot@u.washington.edu
Phone: 206.543.3593
Fax: 206.685.7301Dr. Motulsky introduced the concept of genetically determined drug reactions and is considered the founder of pharmacogenetics. His interests include the role of heredity-environment interactions in the pathogenesis of disease, the extension of pharmacogenetics to other environmental and nutritional agents (ecogenetics), and the social impact of human genetics (including genetic testing.

Nancy Press, PhD
Co-Investigator
Schools of Nursing & Medicine
Oregon Health & Science University
3455 SW U.S. Veterans Hospital Road
Portland, OR 97239-2941
Email: pressn@ohsu.edu
Phone: 503.494.2535
Fax: 503.494.3878

Paul Spicer, PhD
Co-Investigator
Department of Psychiatry
University of Colorado
Mail Stop F800
P.O. Box 6508
Aurora, CO 80045-0508
Email: paul.spicer@uchsc.edu
Phone: 303.724.1470
Fax: 303.724.1474A cultural anthropologist by training, Dr. Spicer specializes in research on genetics, substance abuse, obesity, and child development in American Indian communities, with a particular emphasis on policy, services, and intervention. Since 2000, Dr. Spicer has pursued research on the ethical, legal, and social implications of genetic research in American Indian and Alaska Native communities and he has just been awarded a new grant (HG 003891) to extend this work to other U.S. racial and ethnic communities

Kenneth Thummel, PhD
Co-Investigator
University of Washington
Box 357610
Seattle, WA 98195
Email: thummel@u.washington.edu
Phone: 206.543.0819
Fax: 206.543.3204

Carolyn Watts, PhD
Co-Investigator
School of Public Health
University of Washington
Box 357660
Seattle, WA 98195
Email: watts@u.washington.edu
Phone: 206.616.2986
Fax: 206.543.3964Areas of research and teaching include healthcare industry organization and financing; evaluation of public programs and policies in health care; policy research and analysis relating to insurance coverage, health care access, malpractice, and regulatory programs; utilization of complementary and alternative medicine; and genetic services policy.

Staff:

Dana Gold
Research Coordinator
UW Center for Genomics and Healthcare Equality
Box 358771
Seattle, WA 98195
Email:
deg4@u.washington.edu Phone: 206.616.4979
Fax: 206.616.4978

Patricia Kuszler, JD, MD
Co-Principal Investigator
University of Washington, School of Law
Box 353020
Seattle, WA 98195
Email: kuszler@u.washington.edu
Phone: 206.685.0511
Fax: 206.543.5671

Teaching and research interests include the impact of law and regulation upon health care delivery, health care finance, emerging integrated delivery systems, health insurance fraud and abuse, research standards, research misconduct, and legal, ethical, and policy issues presented by genetic information and the biotechnology industry.

Rick Carlson, JD
Co-Investigator
University of Washington, School of Public Health
620 N 34th St. #620
Seattle, WA 98103
Email: rickjcarl@aol.com
Phone: 206.545.7294

Interests include the policy and health care system implications of genomics, the strategic evolution of managed care, and the evolution of emerging healthcare programs, projects, products, services, and needs.

Karen Edwards, PhD
Co-Investigator
University of Washington, School of Public Health
Box 357236
Seattle, WA 98195
Email: keddy@u.washington.edu
Phone: 206.616.1258
Fax: 206.685.9651

Dr. Edwards is a genetic epidemiologist whose research focuses on understanding genetic susceptibility to several chronic diseases including diabetes and the metabolic syndrome. Dr. Edwards also directs the CDC funded Northwest Center for Genomics and Public Health. The mission of the NWCGPH is to facilitate the translation of genomic information into health policy and programs.

Kelly Fryer-Edwards, PhD
Co-Investigator
University of Washington, School of Public Health Genetics
Box 357120
Seattle, WA 98195-7120
Email: edwards@u.washington.edu
Phone: 206.221.6622
Fax: 206.685.7515

Research interests include clinical decision making, effective approaches to ethics education, and research ethics; special interests include cultural differences, communication, feminist and narrative approaches to bioethics, and integrating ethics into medicine and science education.

Rose James, PhD
Senior Fellow
University of Washington, Dept. of History and Medical Ethics
Center for Genomics and Healthcare Equality
Box 358771
Seattle, WA 98195
Email: rdjames@u.washington.edu
Phone: 206.616.4979
Fax: 206.616-4978

Interests include defining best practices for partnerships that build research capacity among American Indians and Alaska Natives to reduce health disparities. Current projects focus on issues of access to mammography screening for older Native women, and identifying tribal perspectives on genetics and health research for use in tribal college curriculum.

Maynard Olson, PhD
Co-Investigator
University of Washington, School of Medicine
Box 352145
Seattle, WA 98195
Email: mvo@u.washington.edu
Phone: 206.685.7346
Fax: 206.616.5242

Dr. Olson is the Acting Head of the Division of Medical Genetics in the UW Department of Medicine and Director of the University of Washington Genome Center. He is involved in research on human genetic variation and is a participant both in the scientific program and in policy development for the Human Genome Project.

Scott Ramsey, MD, PhD
Co-Investigator
Fred Hutchinson Cancer Research Center,
1100 Fairview Ave N., M3-B232
Seattle, WA 98195
Email: sramsey@fhcrc.org
Phone: 206.667.7846
Fax: 206.667.5977

Primary research interest is the economic aspects of new medical technologies, with expertise in genetic epidemiology and the conducting of cost-effectiveness studies alongside clinical trials. Dr. Ramsey has directed economic studies of new therapies for osteoarthritis, asthma, diabetes, emphysema, and lung, colon and prostate cancer.

Helene Starks
Co-Investigator
University of Washington Dept of Medical History and Ethics
Box 357120
Seattle, WA 98195
Email: tigiba@u.washington.edu
Phone: 206.543.9724
Fax: 206.685.7515

David Veenstra, PharmD, PhD
Co-Investigator
University of Washington. Department of Phamaceutics
Box 357630
Seattle, WA 98195
Email: veenstra@u.washington.edu
Phone: 206.221.6936
Fax: 206.299.9303

Primary research interests are the clinical, economic, and policy implications of pharmacogenomic-based drug therapies, specifically including studying the association between drug metabolizing enzymes and adverse drug reactions, estimating the cost-effectiveness of pharmacogenomic interventions, and evaluating the impact of pharmacogenomics on the health care system and pharmaceutical industry.

Ron Whitener, JD
Co-Investigator
University of Washington, School of Law
Box 353020
Seattle, WA 98195
Email: ronw@u.washington.edu
Phone: 206.543.4099
Fax: 206.685.2388