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Burke W, Edwards K, Goering S, Holland S, Trinidad S. Eds., Making Good on the Promise of Genetics: Justice in Translation, Oxford University Press, August 2011.

 

Publications 2009-2010

Journal Articles(* indicates trainee)

Beskow LM, Burke W. Offering individual genetic research results: context matters. Sci Transl Med. 2010 Jun 30;2(38):38cm20.

Burke W, *Laberge A-M, Press N.  Debating clinical utility.  Public Health Genom. 2010;13:215-23. Epub 2010 Apr 15.

Edwards KL et al.  Attitudes toward Genetic Research Review: Results from a Survey of Human Genetics Researchers.  Pub Health Genom, in press.

Fullerton SM, Anderson NR, Guzauskas G, Freeman D, Fryer-Edwards K. Meeting the governance challenges of next-generation biorepository research.Sci Transl Med. 2010 Jan 20;2(15):15cm3.

Fullerton SM, Yu JH, Crouch J, Fryer-Edwards K, Burke W. Population description and its role in the interpretation of genetic association. Hum Genet. 2010;127:563-72.

*Henrikson N, Bowen D, Burke W.  Does genomic risk information motivate people to change their behavior? Genome Med. 2009 Apr 2;1(4):37.

*Laberge AM, Burke W. Clinical and public health implications of emerging genetic technologies. Semin Nephrol. 2010 Mar;30(2):185-94. Review.

*Laberge AM, Watts C, Porter K, Burke W. Assessing the potential success of cystic fibrosis carrier screening: lessons learned from Tay-Sachs disease and beta-thalassemia.Public Health Genomics. 2010;13(5):310-9. Epub 2009 Oct 26.

*Laberge AM, Psaty BM, Hindorff LA, Burke W. Use of Factor V Leiden genetic testing in practice and impact on management.  Genet Med. 2009 Oct;11(10):750-6.

Hindorff LA, Burke W, *Laberge AM, Rice KM, Lumley T, Leppig K, Rosendaal FR, Larson EB, Psaty BM. Motivating factors for physician ordering of factor V Leiden genetic tests. Arch Intern Med. 2009 Jan 12;169(1):68-74.

Lemke AA, Trinidad SB, Edwards KL, Wiesner GL for the GRIPP Consortium. Attitudes toward genetic research review: results form a national survey of professionals involved in human subject protection. J Empir Res Hum Res Ethics 2010; 5:83-91.

*Meacham MC, Starks H, Burke W, Edwards K. Researcher perspectives on disclosure of incidental findings in genetic research. J Empir Res Hum Res Ethics 2010; 5:31–41.

Roth JA, Garrison LP, Burke W, Ramsey SD, Veenstra DL.  Stakeholder perspectives on a risk-benefit framework for genetic testing.  Public Health Genom. 2010 Apr 20. [Epub ahead of print].

*Segrest V, James R, *Madrid T, Fernandes R.  Launching Native health leaders:  students as community-campus ambassadors. Prog Commun Health Partnerships 2010:4:81-86.

Veenstra DL, Burke W.  Pharmacogenomics and public health. Public Health Genom 2009;12(3):131-3.

Veenstra DL, Roth JA, Garrison LP Jr, Ramsey SD, Burke W. A formal risk-benefit framework for genomic tests: Facilitating the appropriate translation of genomics into clinical practice. Genet Med. 2010 Aug 30. [Epub ahead of print]

*Yu J-H, Goering S, Fullerton M.  Race Based Medicine and Justice as Recognition: Exploring the Phenomenon of BiDil. Cambridge Quarterly of Health Care Ethics 2009 Winter;18(1):57-67.

 

Chapters in Other Books

Burke W. Clinical validity and clinical utility of genetic tests. Curr Protoc Hum Genet. 2009 Jan; Chapter 9:Unit 9.15.

Shields, AE, Fullerton, SM, & Olden, K.  Genes, environment, and cancer disparities.  In Dimensions of Cancer Disparities, ed. H.. Koh, Springer: New York, NY, 2009, pp.49-82 (Part 1).

 

Participation in Consensus Statements

Caulfield, T, Fullerton, SM, Ali-Khan, SE, Arbour, L, Burchard, EG, Cooper, R, Hardy, BJ, Harry, S, Hyde-Lay, R, Kahn, J, Kittles, R, Koenig, B, Lee, SSJ, Malinowski, M, Ravitsky, V, Sankar, P, Scherer, SW, Séguin, B, Shickle, D, Suarez-Kurtz, G, & Daar, AS.  Race and ancestry in biomedical research: exploring the challenges.  Genome Medicine 2009; 1(1): 39-46.

Royal, CD, Novembre J, Fullerton SM, Goldstein DB, Long JC, Bamshad MJ, & Clark AG.  Inferring genetic ancestry: opportunities, challenges, and implications.  American Journal of Human Genetics 2010; 86(5): 661-673.