Family History Links and Resources

How to Create a Family History (Tools/Guides for the Public)

My Family Health Portrait, US Surgeon General's Family Health History Initiative: The US Surgeon General, in cooperation with agencies within the US Department of Health and Human Services, has launched a national public health campaign to encourage all Americans to learn more about their family history. The campaign includes the tool, My Family Health Portrait, available online.

Centers for Disease Control and Prevention's Office of Public Health Genomics' Family History Public Health Initiative.

Family Health Tools, Brigham and Women's Hospital has My Family Health Portrait translated into Spanish, Chinese, French, Portuguese, and Polish.  These are all downloadable as a PDF that can be filled in by hand.

Family Health History Toolkit, Chronic Disease Genomics Program, Utah Department of Health has a downloadable PDF explaining how to complete a family health history.

Genetic Alliance: A Guide to Family Health History  is a downloadable guide for creating a family history.

The National Society of Genetic Counselors explains how to collect family health history and gives contact information for how to find a genetic counselor in your area.

Family History, Risk Assessment, and Disease

Ohio State University Medical Center's James Cancer Hospital and Solove Research Institute has an interactive tool to estimate cancer risk by reviewing patterns of cancer in a family.

Previous Compilation of Family History-Related Questions from Surveys (BRFSS, NHANES, Healthstyles, etc.)

Genomics and Family History Survey Questions (including BRFSS) [pdf]:
1999-2007 compilation of genomics and family history survey questions from select state and federal population-based surveys.  

Resources on Inheritance, Family History, and Monogenic Disease

The Merck Manual Online Medical Library

Medline's Medical Encyclopedia

The University of Utah's Genetic Science Learning Center explains family history and how to use family history information to assess risk.

Family History Information for Healthcare Practitioners

American Medical Association: Family Medical History in Disease Prevention gives resources for health care practitioners and includes a guide for using family history in medical practice [pdf] and information on common genetic conditions.

The Family History Public Health Initiative in Genomics and Population Health: Centers for Disease Control and Prevention. A guide to the Family History Public Health Initiative.

Calculating Genetic Risk, Genetics Science Learning Center, The University of Utah. A user-friendly guide to understanding genetics and risk.

Family History: The Three-Generation Pedigree, American Family Physician, American Academy of Family Physicians.

Evaluating Family History for Preventive Medicine and Public Health, National Office of Public Health Genomics, Centers for Disease Control and Prevention.

GeneTests' Screening and Public Health for Care Providers and information on genetic testing and its use in diagnosis, management, and genetic counseling.

Newborn Screening in the United States

Newborn Screening Overview and information about which tests are required in individual states. Also includes links to further information on new born screening.

National Conference of State Legislatures' Genetic Technologies Project

National Newborn Screening and Genetic Resource Center, information and resources on newborn screening and genetics.

U.S. National Screening Status Report [pdf] lists the status of newborn screening in the United States.

Information from the Centers for Disease Control and Prevention on Single Gene Disorders.

Glossary of Terms

National Human Genome Research Institute (NHGRI)'s Talking Glossary of Genetic Terms.

Human Genome Project Information provides more information on genetic diseases.

Pedigree Drawing Software for Health Care Professionals and the Public

Cyrillic: www.cyrillicsoftware.com
Progeny: www.progenygenetics.com

 

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