Useful Links to Genetic Testing Resources

The field of genetic testing involves many government agencies, nonprofit organizations and corporate firms. You can learn more about topics related to genetic testing by checking the references and websites below. For more topics related to genomics,  browse more resources available on our Training page and our Resources page:

American College of Medical Genetics - Organization that provides education, resources, and advocacy for members in the medical genetics profession. 

Association of State and Territorial Health Officials (ASTHO) - National, nonprofit organization representing public health agencies. ASTHO's mission is to formulate and influence sound public health policy and to assure excellence in state-based public health practice.

Collaboration, Education, and Test Translation Program for Rare Genetic Diseases (CETT) - Pilot program to promote the development of new genetic tests and better understanding of rare diseases.

Centre for Evidence-based Medicine - Located at Oxford University, one of several centers in the United Kingdom promoting evidence-based health care.

Evaluation of Genomic Applications in Practice and Prevention (EGAPP) - As part of an effort to facilitate the consistent assessment of new genomic applications, the CDC's Office of Public Health Genomics launched the Evaluation of Genomic Applications in Practice and Prevention (EGAPP) in 2005.

Ethical, Legal, and Social Issues (ELSI) - Important topics surrounding genetic testing.

Gene Tests - Medical genetics information resource developed for physicians, other health-care providers, researchers, and the public funded by the National Institutes of Health. This site includes a directory of clinical laboratories that provide testing for genetic disorders.

Genetic Alliance - Coalition of hundreds of genetic advocacy organizations, health professionals, clinics, hospitals and companies, which leverages the voices of millions of individuals and families living with genetic conditions.

Genetics and Public Policy Center - Center established to be an independent and objective source of credible information on genetic technologies and genetic policies for the public, media, and policymakers. The Center is supported by Johns Hopkins University with funding from The Pew Charitable Trust.

Michigan Center for Public Health and Community Genetics - Along with the University of Washington Center for Genomics and Public Health, the Michigan Center works to integrate genomic discoveries into public health practice.

National Coalition for Health Professional Education in Genetics (NCHPEG) - Interdisciplinary group of leaders from health professional organizations, consumer groups, government agencies, private industry, managed care organizations, and genetics professional societies, committed to promoting health professional education and access to information about advances in human genetics. 

National Human Genome Research Institute (NHGRI) - Initially chartered to represent the National Institutes of Health (NIH) on the Human Genome Project, NHGRI now applies genome technologies to the study of specific diseases.

National Society of Genetic Counselors - Group that promotes the professional interests of genetic counselors and provides a network for professional communications and continuing education.

Understanding Gene Testing - Site supported by the Department of Health and Human Services that offers comprehensive information about genetic testing for people with all levels of knowledge about the subject.

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