Links to Other Educational Materials and Resources
For further links and resources, please click on the topics listed below.
Background Information on Genetics and Genomics
Introduction to Genetics and Genomic Analysis
Federal Agencies and Projects Related to Genetics and Genomics
National Organizations Related to Genetics and Genomics
Universities and Programs of Study on Public Health Genetics
Databases and Scientific Resources
How to Start/Organize a Genetic Program
Genetic Testing
Family History
Pharmacogenetics
Ethical, Legal and Social Issues
Background Information on Genetics and Genomics
Dolan DNA Learning Center, Cold Spring Laboratory
Cold Spring Harbor Laboratory provides information on DNA science, genetic medicine, and biotechnology for students, teachers, and nonscientists.
Genetic Education Center, University of Kansas Medical Center
Provides links to education resources for educators interested in human genetics and the Human Genome Project.
Genetics Science Learning Center, University of Utah
Aims to produce genetics curricula for publication on the web, develop programs for teachers, and provide science enrichment and career programs for students.
Human Genome Project Information
Provides information about the U.S. and worldwide Human Genome Project, a 13-year effort coordinated by the Department of Energy and the National Institutes of Health that began in 1990.
National Human Genome Research Institute Educational Resources
Provides genetics education resources for students, teachers and the general public.
National Institute of Health, International HapMap Project
Information on the International HapMap project and haplotypes.
Introduction to Genetics and Genomic Analysis
Department of Energy, Genetics Primer
Department of Energy, Dictionary of Genetic Terms
National Center for Biotechnology Information, Molecular Genetics Primer
National Center for Biotechnology Information, Bioinformatics Primer
National Center for Biotechnology Information, Genome Mapping
A guide to genetic and physical maps of the human genome.
National Center for Biotechnology Information, SNPs Primer
An introduction to Single Nucleotide Polymorphisms and there usage.
Federal Agencies and Projects Related to Genetics and Genomics
Centers for Disease Control and Prevention's National Office of Public Health Genomics
Human Genome Project, Department of Energy
National Human Genome Research Institute
National Newborn Screening and Genetic Resource Center
Pacific Northwest Regional Genetics Group
National Organizations Related to Genetics and Genomics
American College of Medical Genetics
Association of State and Territorial Health Officials
Council for Responsible Genetics
Genetic Technologies Project, National Conference of State Legislatures
Genetics and Public Policy Center
National Association of Chronic Disease Directors
National Coalition for Health Professional Education in Genetics
Committed to a national effort to promote health professional education and access to information about advance in human genetics.
National Coalition of State Genetics Coordinators
Universities and Programs of Study on Public Health Genetics
Institute for Public Health Genetics, University of Washington School of Public Health and Community Medicine
Established in 1997 with funding from the University Initiatives Fund. The mission of the Institute is to provide broad, multidisciplinary training for future public health professionals, to facilitate research in public health genetics, and to serve as a resource for continuing professional education.
Interdepartmental Concentration in Public Health Genetics, University of Michigan School of Public Health
Provides graduates with a basic grounding in public health genetics that will enable them to function as public health professionals at the cutting edge of this important new area.
Programs for Genomic Applications, National Heart, Lung and Blood Institute
Databases and Scientific Resources
National Center for Genome Resources
Online Mendelian Inheritance in Man
How to Start/Organize a Genetic Program
Genomics & Chronic Disease Summit. A Report from the Association of State and Territorial Chronic Disease Directors 2002.
Harnessing Genetics to Prevent Disease and Improve Health: The Partnership for Prevention
Harnessing Genetics To Prevent Disease & Improve Health: A State Policy Guide Executive Summary
Integrating Genetics Into State Chronic Disease Programs. Recommendations for Actions (FY 2000-2001). A Report from the Association of State and Territorial Chronic Disease Directors' Genetics Retreat.
Genetic Testing
Association of Public Health Laboratories
Working to strengthen the role of public health laboratories in genetics testing and designs strategies to address changes in the newborn screening field.
ACCE Model System: CDC
System for collecting, analyzing and disseminating information on genetic tests.
Short Course in ACCE: CDC
Materials from a CDC short course intending to inform participants about systematic approaches for evidence-based assessment of genetic tests.
Evaluation of Genomic Applications to Practice and Prevention (EGAPP):Centers for Disease Control and Prevention (CDC)
As Part of an effort to facilitate the consistent assessment of new genomic applications, the CDC launched the Evaluation of Genomic Applications in Practice and Prevention in 2005.
GeneTests
A publicly funded medical genetics information resource developed for physicians, other healthcare providers, and researchers.
National Society of Genetic Counselors
Promotes the professional interest of genetic counselors and provides a network for professional communications and continuing education.
Understanding Gene Testing: Department of Health and Human Services
Site supported by the DHHS that offers comprehensive information about genetic testing for people with all levels of knowledge about the subject.
Family History
American Medical Association: Family Medical History in Disease Prevention
A guide to the use of family history in medical practice and information on common genetic conditions.
Genetic Alliance: A Guide to Family Health History
A guide to the importance of family history on health outcomes. (PDF)
Genomics and Family History Survey Questions
We now have a comprehensive collection of genomics and family history survey questions from select state and federal population-based surveys from 1999-2007. This compilation includes the Behavioral Risk Factor Surveillance System Survey, the National Health and Nutrition Examination Survey, and the Healthstyles survey. If we have missed any questions, please contact us and we will include your question(s).
US Surgeon General's Family History Initiative
The US Surgeon General, in cooperation with agencies within the US Department of Health and Human Services, has launched a national public health campaign to encourage all American families to learn more about their family history.
Pharmacogenetics
My Very Own Medicine: University of Cambridge
Discusses the need for a policy framework for phramcogenetics and discusses aspects of the field that need to be examined more closely. (PDF)
Pharmacogenomics: American Association for Clinical Chemistry
A resource page for information on phramacogenomics.
Pharmacogenomics: American Medical Association
Basic information on pharmacogenomics and links to resources.
Pharmacogenomics: A Public Health Perspective: CDC
CDCs guide to resources on pharmacogenomics.
Ethical, Legal and Social Issues
The Belmont Report: Department of Health, Education and Welfare
The Belmont Report attempts to summarize the basic ethic principles identified by the National Commission for the Protection of Human Subjects of biomedical and Behavioral Research.
Centre for Evidence-based Medicine
Located at Oxford University, one of several centers in the United Kingdom promoting evidence-based health care.
Collaboration, Education, and Test Translation Program for Rare Genetic Diseases (CETT)
A pilot program designed to promote the development of new genetic tests and better understanding of rare diseases.
ELSI Research and Policy Discussions: Human Genome Project
Recognizing the many issues raised from the Human Genome Project, the U.S. Department of Energy and the National Institutes of Health funded ELSI research and policy discussions.
ELSI in Science: Lawrence Berkeley National Laboratory
The Lawrence Berkeley National Laboratory launched an ELSI in Science pilot project to stimulate discussions about the implications of some research, including genetics.
Genetics, Genomics and the Patenting of DNA: World Health Organization
A review of potential implications for health in developing countires. (PDF)
NHLBI Working Group on Reporting Genetic Results in Research Studies: National Heart, Lung, and Blood Institute
Recommendations for reporting genetic results to study participants involved in genetic research.