UCEDD Products
Adolesence
| Adults & Elders | Assistive
Technology | Autism l Infants
and Toddlers | PKU | Prenatal
Diagnosis | General Health
The following list of current products is geared towards
families and caregivers. Products below are accessible as PDF's,
PowerPoint presentation, and web-based materials or can be ordered.
Adolesence
Health
History Summary — This form (MS Word) is designed
for individuals transitioning from pediatric to adult health care.
It captures adolesences health history and may be used in preparation
for going to a new doctor or health care provider.
Information
for Parents and Families — This website slide
show contains information for parents and families with children
with special health care needs. Information provided helps parents
teach children the life skills they need for independent living
in the future.
Transition
Timeline for Children and Adolescents with Special Needs: Chronic
Illnesses/Physical Disabilities — This
website presentation contains a transition timeline for children
and adolescents. This timeline may help parents think about the
future and includes tips/ideas about how your child may achieve
independence in their own health care and other areas of life
as he/she grows.
Working
Together for Successful Transition: Washington State Adolescent
Transition Resource Notebook — The
purpose of this notebook is to serve as a resource on transition
from schools, communities, agencies, families, students, and health
care providers in Washington State.
Adults & Elders
Getting
Good Health Care — This PowerPoint slide show
has information about different types of health care providers,
what to look for and expect from a health care provider, and how
to prepare for a visit.
Medication:
Promoting Safe and Appropriate Use — This PowerPoint
presentation contains information on proper medication usage,
including safety tips in storing medication, adverse drug effects,
and reading the prescription. Descriptions of various types of
drugs are provided.
Supporting
People with Developmental Disabilities during the Aging Process
— This PowerPoint slide show
provides information on aging and various support strategies.
Toward
Healthy Aging: Promoting Health Through Lifestyle Changes
— This PowerPoint slides how contains information
on healthy aging, unhealthy and healthy lifestyle choices, self-efficacy
theory, and how to change one's lifestyle.
Assistive Technology
Washington
Assistive Technology Alliance (WATA) Bulletin — The
WATA Bulletin is a quarterly publication that covers
legal issues relevant to the funding, acquisition, or use of adaptive
technology and provides legislative updates on disability issues.
To locate bulletins that cover a specific topic, type topic into
"Search Site".
Paying
for the Assistive Technology You Need: A Consumer Guide to Funding
Sources in Washington State — This website
provides a comprehensive overview of funding sources, tips, and
strategies.
What Is Accessible Electronic and Information Technology?
— This website has answers to common questions
regarding accessible information technology in education. It is
maintained by Access IT and the ten regional DBTACs. One may use
the search engine to locate specific information in our Knowledge
Base or browse the complete list of Q&A's by Topic.
Autism
Autism
Disorders and Medications: Answers to Common Questions
— A questionnaire/checklist for autism about your child's
behavior.
Autism
Spectrum Disorders (ASD): Medications — This
handout covers issues about the uses of medications in the treatment
of symptoms related to ASD. FAQs are answered and additional resources
to learn more about autism are also listed.
Autism
Fact Sheet — This PDF provides basic information
about autism along with information about the University of Washington's
Autism Center.
Infants and Toddlers
Child
Health Note Topics — Child Health Notes (CHN)
provide information for early identification and management of
special health and developmental concerns. Formatted as a concise
double-sided newsletter, each CHN covers a specific topic.
BabyCues
— BabyCues is a deck of cards with photos and explanations
to help parents, grandparents, and other caregivers become more
"tuned into" their baby or young child's feelings and
needs by learning to read and respond to their child's behavioral
cues. Ordering information is included on the web page.
CHILD
Profile Translated Health Promotion Materials —
This site provides health promotion materials (PDF) for all parents
of children from birth to age six in Washington State. The materials
contain age-specific information about growth, development, safety,
nutrition, and other parenting issues. Each mailing contains an
age-appropriate letter and may contain other useful brochures
and pamphlets.
Critical
Elements of Care - Supplement: Extremely Low Birth Weight Infants
—The Critical Elements for Care Project has developed
clinical guidelines and information resources (PDF). This information
is for primary health care providers and families in the monitoring
and management of low birth weight and very low birth weight infants.
Other information is avaliable throughout the website.
Was
Your Baby Born Early? Was Your Baby Born Small? —
This brochure (PDF) provides information for families who have
a baby who was born too early or too small, including what questions
to ask to health care providers and other ways to support their
child's development.
Phenylketonuria (PKU)
Choices
You can Live With — This website represents
up-to-date information in video (VDO) format. That can be watched
over the internet or ordered about maternal PKU and the importance
of making well-informed decisions prior to pregnancy.
PKU
Adolescent Transition Curriculum — PDF's designed
to help high school juniors and seniors manage their PKU independently.
The goal of this transition is for indivudals to develop a personal
plan of responsibility for their health care and PKU management.
Really
Living with PKU — Online video "Really
Living with PKU" was created to give families with newly
diagnosed infants the reassurance that, with proper medical and
nutritional care, their newborn will lead a normal life. The video
shows infants, children, adolescents, and their families adapting
to PKU, discussing the changes PKU has made for families, and
promoting day-to-day activities and long-term treatment.
Prenatal Diagnosis
Focus
on Prenatal Diagnosis for Joubert Syndrome — This
PowerPoint slide show provides information on prenatal diagnosis
and reproductive options for couples who have had a child with
Joubert syndrome. The purpose of prenatal diagnosis is to provide
information to couples so that they can make informed reproductive
decisions ranging from termination of an affected fetus to preparation
for the birth of an affected child.
General Health
Medical
Home Information on Attention Deficit Hyperactivity Disorder (ADHD):
Diagnoses and Conditions
— This website contains PDF's with information
on ADHD and a variety of websites and PDFs to keep members and
professionals current on research advances, medications, and treatments
affecting individuals with ADHD.
Medical
Home: Families and Providers Working Together —
This PDF is a brochure for the Medical Home Program that includes
information on definitions, benefits, and tips for families about
having a Medical Home for their child.
Stepping
Up — This website provides links to various
PDF files called Crib Sheets, which are intended for informational
and educational purposes. Topics include exercise and escaping
domestic violence. Information should not be used for diagnosing
or treating health or behavioral problems or diseases.
Tyrosinemia
Pal — The Tyrosinemia Pal website was developed
to help families in the management of tyrosinemia.
Washington
State Info Sheet: Ticket to Work —This website
contains information about Washington State's employment program
for individuals with disabilities.
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