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Nutrition for Children with Special Health Care Needs, Washington State
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Children with Special Health Care Needs (CSHCN)

Nutrition Interventions
Disaster Preparedness Checklist - NEW Family Resource
Nutrition Care Handbook
Nutrition Focus Newsletter
Nutrition Screening
Child Health Notes
Medicaid Reimbursement
Community Based Nutrition Services
Cost Considerations
Gaining and Growing

Nutrition Interventions, rev 4/10

Nutrition Interventions for Children with Special Health Care Needs, 3rd edition. Yang Y, Lucas B, Feucht S, editors. Washington State Department of Health, Olumpia, WA. April 2010. 425 pages including a glossary and index; 23 chapters, 21 appendices.

This publication includes 3 sections:

  1. Determination of Nutrition Status
  2. Problem-Based Nutrition Interventions
  3. Condition-Specific Intervention

AND:

  • addresses the complex needs related to growth, nutrition and feeding in this varied population;
  • features easy to follow tables containing assessment guidelines, intervention strategies and evaluation/outcome parameters.

This resource has been designed by and for registered dietitians and others who provide nutrition care for children with special health care needs. Thirty-one practitioner/authors and more than 50 reviewers provide a wealth of knowledge and experience in the field.

To download a copy of the entire publication (425 page pdf) or request a free CD from the Washington State Department of Printing General Store (link above).

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NEW! Disaster Preparedness for Children with Special Nutrition Needs - Resource for Families of CSHCN

This 2 page checklist will help families prepare for emergencies for their children who have specialized nutrition needs including considerations for formula stores, formula preparation and/or administration without power and planning for those who care for each child. In the next 6 months additional information and links will be provided to this checklist. For additional information or to comment about this checklist please contact us.

Disaster Checklist.pdf

Nutrition Care Handbook

Children with Special Health Care Needs: Nutrition Care Handbook, Lucas B. Editor. American Dietetic Association, Chicago, IL. 2004

This publication fulfills the need for a practical handbook for the many dietetic professional who serve an ever-increasing number of children with special health care needs, such as developmental disorders, birth defects, low birth weight and metabolic disorders. 

The handbook is organized by common functional nutrition problems seen by dietetic professionals, primary care providers and medical specialists.  Sections include feeding problems related to oral-motor or behavior difficulties, growth differences, nutrition assessment, dietary modifications, considerations for non-oral feedings, fluid and bowel management, and community services for children with special health care needs.  This handbook equips the dietetic professional with the information necessary to better communicate with children with special health care needs, their families, and their specialty service providers whether in an outpatient or community setting.

To obtain a copy of this publication contact:

American Dietetic Association
www.eatright.org/catalog
Product # 3400
1-800-877-1600 ext 5000

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Nutrition Focus Newsletter

NUTRITION FOCUS for Children with Special Health Care Needs Newsletter, Center on Human Development and Disability, University of Washington, Seattle, WA. 6 issues per year. Back issues are also available.
http://depts.washington.edu/cshcnnut/nutfocus.html

Nutrition Screening

Nutrition Screening for Infants and Young Children with Special Health Care Needs: Spokane County, Washington, Gilliam, J and Laney S. Children with Special Health Care Needs Program - Washington State Department of Health. 2008 (13 pages).

This report describes the nutrition problems of young children (birth to age three years) entering early intervention programs in Spokane County, and documents the need for regular nutrition screening of children with special health care needs, both by medical home providers and early intervention programs. The reports also demonstrates the need for referral networks of registered dietitians for helping children and families get the nutrition services they require. Information provided in this report can be used by policy makers, Interagency Coordinating Council members, early intervention program directors, and health care providers to advocate for including nutrition as a reimbursable service in government and private health plans as well as federal early intervention legislation.

To view this publication - DOH website (pdf)

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Child Health Notes

These are double-sided newsletters developed as part of the Child Health Notes project to assist health care providers and others in early identification and management of health and developmental concerns. It is intended for use in Washington State, and can be customized for community or county use.

Child Health Notes specific to nutrition and growth for children:

Many other Child Health Notes topics are available on the Washington State Medical Home Partnerships Project website. CHNs developed more than 4 years ago are archived here.

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Medicaid Reimbursement

Medicaid Reimbursement for Medical Nutrition Products and Nutrition Services for Children with Special Health Care Needs: A Washington State Case Studies Report. Lucas B, Feucht S and Nardella M (eds). Children with Special Health Care Needs Program - Washington State Department of Health. 2004 (53 pages).

This report features 17 case studies of children in Washington State who used medical nutrition products. The report provides cost summaries for Medicaid reimbursement of the nutrition products and medical nutrition services provided by a registered dietitian. Positive nutrition outcomes from this report included improved oral feeding, decreased failure to thrive and reflux, decreased constipation and diarrhea, and improved weight gain and growth. The reimbursement systems for medical nutrition products and medical nutrition therapy for these children with special health care needs resulted in fewer complications and improved health status.

To view this publication - DOH website (pdf)

For additional information, or to receive a copy of the report contact:

Nutrition Consultant
Children with Special Health Care Needs Program
Washington State Department of Health
PO Box 47880
Olympia, WA 98504-7880
Phone: 360-236-3561
Fax: 360-586-7868

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Community Based Nutrition Services

Community Based Nutrition Services for Children with Special Health Care Needs in Spokane County, Washington. Gilliam J, Laney S and Yang Y (eds). Children with Special Health Care Needs Program, Division of Community and Family Health – Washington State Department of Health, 2006 (35 pages).

The Children with Special Health Care Needs (CSHCN) Program in Washington produced a report identifying nutrition problems that can be improved with nutrition intervention conducted by CSHCN Registered Dietitians. The report recommends that early identification and nutrition referral to dietitian and frequent nutrition follow-up visits are necessary to improve the outcomes for certain nutritional concerns, such as feeding difficulties and underweight issues.

To view and download this publication in PDF format, go to: www.doh.wa.gov/cfh/mch/documents/Spokane_nutrition_data.pdf PDF document

For additional information, contact us or to receive a copy of the report contact:

Yuchi Yang, MS, RD, CD
Nutrition Consultant
Children with Special Health Care Needs Program
Washington State Department of Health
PO Box 47880
Olympia, WA 98504-7880
Phone: 360-236-3561
Fax: 360-586-7868
email: yuchi.yang@doh.wa.gov

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Cost Considerations

Cost Considerations: The Benefits of Nutrition Services for a Case Series of CSHCN in Washington State. Lucas B. and Feucht S. (eds). Office of Children with Special Health Care Needs, Community and Family Health - Washington State Department of Health. 1998 (71 pages).

A case series of 30 children with a wide variety of special health care needs and nutrition related problems was collected by registered dietitians and community feeding teams in Washington State between 1993 and 1996. The children ranged in age from 11 months to 17 years, and had multiple visits over variable time periods within a variety of settings. The estimated medical costs avoided exceeded the intervention costs for nutrition and feeding teams services for 28 of the 30 children. The ratio of intervention costs to medical costs avoided ranged from 1:0.8 to 1:20. The report demonstrates that an investment in professional time with multiple family/child contacts can achieve improvements in nutrition and feeding problems and results in savings in overall health care expenditures.

To view and download this publication in PDF format, go to: www.doh.wa.gov/cfh/mch/documents/CostConsiderations.pdf PDF document

For additional information, contact us or to receive a copy of this publication contact:

Yuchi Yang, MS, RD, CD
Nutrition Consultant
Children with Special Health Care Needs Program
Washington State Department of Health
PO Box 47880
Olympia, WA 98504-7880
Phone: 360-236-3561
Fax: 360-586-7868
email: yuchi.yang@doh.wa.gov

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Gaining and Growing

Gaining and Growing: Assuring Nutritional Care to Preterm Infants
http://staff.washington.edu/growing

This web site is designed to provide information to community health professionals who work with premature infants, especially those with very low birthweight (<1500g) in hopes that assuring adequate nutritional status will improve outcomes and family life for these children. Included are:

  • nutrition assessment
  • nourishing the very low birth weight (VLBW) infant after discharge
  • feeding the VLBW infant at home
  • parent focus groups
  • decision trees for clinical services
  • case studies
  • resources

Additional nutrition resources can be found at the Assuring Pediatric Nutrition in the Hospital & Community website.

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