Family Health Hotline
A toll free line is available to help families with children with special health care needs find information and resources within the state of Washington. The hotline is a service of WithinReach, supported by the WA CSHCN Program. Call 1-800-322-2588 (TTY: 1-800-833-6388) or visit the WithinReach website, www.withinreachwa.org.
Center for Children with Special Needs
The Center for Children with Special Needs is a program of Seattle Children's Hospital in Seattle. The Web site has useful information and resources to help parents and providers care and advocate for children with special health care needs. Visit the Center and find the Linkages newsletter, Starting Point Resource Guide for parents, the continuing education events calendar, online resource guides, online educational materials and information about the Center's ongoing programs and projects.
The focus of the Center for Children with Special Needs is to improve care for children with special needs and their families. While the Center provides many resources for families and health care professionals, the Center does not provide direct care or coordinate care for children with special needs.
Under the County Resource Lists, many counties have a section called “Nutrition and Feeding”, which includes registered dietitians that serve children with special needs, local feeding teams, WIC programs and other resources.
For more information on obtaining nutrition services for children with special needs in Washington, see Obtaining Medical Nutrition Therapy.
Early Support for Infants and Toddlers (ESIT)
Formerly Infant and Toddler Early Intervention Programs (ITEIP), the ESIT directs the coordination of the statewide system of early intervention services for families with children age birth to three that have developmental delays.
Medical Home Leadership Network
The Washington State Medical Home website identifies practical tools and information that support family-centered, coordinated care (e.g. medical homes) for children and youth with special health care needs in Washington. Resources include select diagnosis-specific care guidelines, patient handout and weblinks as well as links to state and community services. There are specific sections for families, physicians and other primary care providers (PCP), as well as for community service providers such as nutritionists whose work supports the family and PCP.
Washington's Adolescent Health Transition Project
The Adolescent Health Transition Project is designed to help smooth the transition from pediatric to adult health care for adolescents with special health care needs. This site is a resource for information, materials, and links to other people with an interest in health transition issues.
Family Village is a global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support. Resources include information about specific diagnoses, adaptive technology, products and educational opportunities.