Global Organizations
by subject
Chronic Disease & Illness
University of Washington
Seattle Cancer Care Alliance
SCCA
unites three internationally renowned cancer care institutions—Fred
Hutchinson Cancer Research Center, UW Medicine, and Children's
Hospital and Regional Medical Center—to offer a variety of treatment
options, designed from the latest research, for malignant and non-malignant
diseases.
Professor Edward H. Wagner , MD, MPH, FACP Health Services
wagner.e@ghc.org
Dr.
Wagner is a general internist/epidemiologist and Director of the W.A.
MacColl Institute for Healthcare Innovation at the Center for Health
Studies (CHS), Group Health Cooperative of Puget Sound. He is also Professor
of Health Services at the University of Washington School of Public Health
and Community Medicine. Current research interests include the development
and testing of population-based care models for diabetes, frail elderly,
cancer, and other chronic illnesses; the evaluation of the health and
cost impacts of chronic disease and cancer interventions, and interventions
to prevent disability and reduce depressive symptoms in older adults.
Professor Gail Kieckhefer ARNP, CS-PNP, PhD, Family and
Child Nursing gailmk@u.washington.edu
Dr.
Kieckhefer's research expertise is in childhood chronic illness; childhood
asthma most commonly. She was principal investigator on several studies
examining health outcomes in children with asthma using parent/child
dyads examining concordance patterns and on a randomized clinical trial
examining the effects of a parent education program. In addition, she
was co-investigator on two studies that recruited a large number of
ethnically diverse school age children with asthma and one testing
a model of educating MD residents to work more effectively with parents
of children having asthma.
Research Professor Jack Goldberg, PhD, MA Epidemiology
goldie1@u.washington.edu
Dr.
Goldberg's primary research focus is on twin research. He has devoted
more than 20 years to the construction of twin registries that serve
as a platform for investigating the genetic and non-genetic basis of
disease. He was one of the founders of the Vietnam Era Twin Registry
which is one of the largest population-based samples of adult twins
in the United States . He also co-founded the Black Elderly Twin Study
(BETS) and the Chronic Fatigue Syndrome Twin Registry. He has recently
established a UW Twin Registry consisting of nearly 1,000 adult twins
living in Washington State . Methodologically his work has included
univariate and multivariate classical twin studies as well as co-twin
control studies examining exposure and disease associations. Much of
his research has focused on the relationship of service in Vietnam
and combat exposure to the long-term physical and psychological health
of veterans.
Research Assistant Professor Annette L. Fitzpatrick , PhD,
MA Epidemiology
fitzpal@u.washington.edu
Dr.
Fitzpatrick's research interests include studies of aging and
chronic diseases; physical and cognitive functioning in the elderly,
dementia including Alzheimer's disease and vascular dementia, health
aging, and alternative and complementary approaches to health .
Associate Professor Gary Goldbaum, MD, MPH Epidemiology,
Health Services
gary.goldbaum@metrokc.gov
Research
interests: preventing HIV, chronic disease and injury
Adjunct Associate Professor Daniel Lessler , MD, MHA Health
Services
dlessler@u.washington.edu
Research
interests: chronic disease management, clinical quality improvement,
behavior change counseling in chronic disease.
Professor Jeffrey Harris, MD, MPH Health Services
jh7@u.washington.edu
Research
interests: health-care quality, economic evaluation, systematic reviews
of community-based prevention, older adults, physical activity, tobacco,
chronic disease , adult immunization.
Clinical Associate Professor Joyce Jackson, MHA, MS Health
Services
Joyce@nwkidney.org
Research
interests: Management, Chronic Disease
Seattle Area
Improving
Chronic Illness Care (ICIC)
is a national program of The Robert
Wood Johnson Foundation, based at the MacColl Institute for Healthcare
Innovation, within Group Health Cooperative of
Seattle. Its staff is dedicated to helping the millions of people
in the United States who suffer from chronic illness, by teaching health
care systems to keep patients as healthy as possible through planning,
proven strategies and management.
Northwest Kidney Centers
Our
mission is to promote the optimal health, quality of life and independence
of people with kidney disease, through patient care, education, and research.
We partner with the Northwest Kidney Centers Foundation (formerly known
as Northwest Kidney Foundation) to raise support to advance this mission.
We offer dialysis and
related kidney services for people with end stage renal disease (kidney
failure) at 12 facilities
in the Seattle area, in local hospitals and through our home dialysis
program. Our website contains information on chronic
kidney disease, high
blood pressure, diabetes, organ
donation and much more.
Alzheimer's Association
The
Alzheimer's Association Western and Central Washington State Chapter,is
a nationally affiliated, community-based, volunteer driven, non-profit
501 (c) (3) agency that relies upon private funding from individuals
and corporations to meet the needs of approximately 100,000 people in
Western and Central Washington who have Alzheimer's disease and
related disorders. As a national network of chapters, the Alzheimer's
Association is dedicated to Alzheimer's research and supporting those
affected by Alzheimer's including their families and friends. The
Alzheimer's Association also provides a voice for those with Alzheimer's
disease on a local, state, and national level.
American Diabetes Association
Seattle
The American Diabetes Association is the nation's leading
nonprofit health organization providing diabetes research, information
and advocacy. Founded in 1940, the American Diabetes Association conducts
programs in all 50 states and the District of Columbia , reaching more
than 800 communities. The mission of the organization is to prevent
and cure diabetes and to improve the lives of all people affected by
diabetes.
Seattle Cancer Care Alliance
SCCA unites three internationally renowned cancer care institutions—Fred
Hutchinson Cancer Research Center, UW Medicine, and Children's Hospital
and Regional Medical Center—to offer a variety of treatment options, designed
from the latest research, for malignant and non-malignant diseases.
Fred Hutchinson Cancer Research Center is
an independent, nonprofit biomedical-research institution and is one
of 39 National Cancer Institute-designated comprehensive cancer centers
nationwide. At the Hutchinson Center, our interdisciplinary team of world-renowned
scientists and humanitarians work together to prevent, diagnose and treat
cancer. Our researchers, including three Nobel laureates, bring a relentless
pursuit and passion for health, knowledge and hope to their work and
to the world.
International
*Also see the following website for a list of chronic disease-specific
links: http://www.pbs.org/inthebalance/archives/whocares/resources.html
Centers for Disease Control and
Prevention: National Center for Chronic Disease Prevention and Health
Promotion is at the forefront of the nation's efforts to
prevent and control chronic diseases. The center conducts studies to
better understand the causes of these diseases, supports programs to
promote healthy behaviors, and monitors the health of the nation through
surveys. Critical to the success of these efforts are partnerships
with state health and education agencies, voluntary associations, private
organizations, and other federal agencies. Together, the center and
its partners are working to create a healthier nation. http://www.cdc.gov/nccdphp/
The National Chronic Care Consortium (NCCC)
is a mission-driven organization of leading-edge health networks dedicated
to transforming the delivery of chronic care services. Member organizations
share a vision of integrated care for individuals with chronic health
conditions, from the time of earliest condition awareness until problem
resolution or death. NCCC's mission is to change the delivery structures,
administration, payment methods, and health care regulations that are
fundamentally inconsistent with the nature of chronic illness.
Center for Healthcare Strategies (CHCS)
Since
1995, the Center for Health Care Strategies (CHCS) has strived to continuously
improve the quality of health and health related services for beneficiaries
of our nation's health coverage safety net—Medicaid and the
State Children's Health Insurance Program. With resources from
the nation's leading philanthropies—The Robert Wood Johnson Foundation,
The Annie E. Casey Foundation, The Commonwealth Fund, The California
HealthCare Foundation, The David and Lucile Packard Foundation, and others—CHCS
works with state officials, health plan leaders, and consumer organizations
across the country to improve health services for low-income families
and for people with severe illnesses and disabilities whose needs cross
over from the routine to the highly specialized.
Center for Research on Chronic
Illness (University of NC , Chapel Hill) has been funded by the
National Institute of Nursing Research (NIH) since 1994 to promote
excellence in nursing research. The center includes 24 federally funded
research projects, a pilot study program, and a range of services to
advance research on preventing and managing chronic illness in vulnerable
people.
National Multiple Sclerosis
Society
The mission of the National Multiple Sclerosis Society
is to end the devastating effects of MS. The Society and its network
of chapters nationwide promote research, educate, advocate on critical
issues, and organize a wide range of programs—including support
for the newly
diagnosed and those living
with MS over time.
National Organization for Rare
Disorders (NORD), a 501(c)(3) organization, is a unique
federation of voluntary health organizations dedicated to helping people
with rare "orphan" diseases
and assisting the organizations that serve them. NORD is committed
to the identification, treatment, and cure of rare disorders through
programs of education, advocacy, research, and service.
The American Geriatrics
Society (AGS) is a nationwide,
not-for-profit association of geriatrics health care professionals,
research scientists, and other concerned individuals dedicated to improving
the health, independence and quality of life of all older people. The
AGS promotes high quality, comprehensive and accessible care for America
's older population, including those who are chronically ill and disabled.
The organization provides leadership to health care professionals,
policy makers and the public by developing, implementing and advocating
programs in patient care, research, professional and public education,
and public policy.
Chronic Liver
Disease Foundation (USA) is
a nonprofit 501(c)(3) educational organization dedicated to increasing
awareness of the effect of chronic liver disease (CLD) in the United
States . The foundation's goal is to provide health professionals with
the most current education and information on CLD. Educational programs
are designed so physicians, nurses, nurse practitioners, physician
assistants, and pharmacists have information about the latest medical
developments and their implications for patient management. Information
is drawn from academia, medical societies, government health agencies,
and the pharmaceutical industry, and is integrated into balanced, up-to-date
educational programs and materials for health professionals.
Chronic Disease Fund, Inc.
(Texas , USA) is a non-profit organization
founded in 2003. Our Focus is to provide assistance to those under-insured
patients who are diagnosed with chronic or life altering diseases that
require the use of expensive, specialty therapeutics. Our mission is
to provide the greatest good to the greatest many. Our goal is to improve
patient health and quality of life.
CDPAC: Chronic Disease
Prevention Alliance of Canada
Our mission is to foster and help
sustain a coordinated, countrywide movement towards an integrated population
health approach for prevention of chronic diseases in Canada through
collaborative leadership, advocacy, and capacity building.
WHO: Dept. of Chronic Diseases
and Health Promotion (CHP)
Our mission: To lead and strengthen
global efforts to prevent and control chronic diseases and to promote
health. The five main components of the CHP department are: global
advocacy, communication and resource mobilization; reducing population
risks; promoting health; managing diseases; and measuring progress.
Chronic Disease Research Foundation
London
, England The Chronic Disease Research Foundation (CDRF) was set up to
look at new ways of exploring the genetics of diseases associated with
ageing. Our mission is to target those common diseases, such as; osteoporosis,
arthritis, back pain, migraine, asthma and diabetes, that we inherit
from our parents, and prevent and alleviate them now and for future generations.
Alzheimer Europe
Alzheimer
Europeis a non-profit organization which aims to improve the care
and treatment of Alzheimer patients through intensified collaboration
between its member associations. In the longer term, AE is striving to
become the coordination and information centre for all organizations
working in this specific field, such as day care centers, sitting services,
training centers for professionals and related organizations.
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