University of Washington Department of Psychiatry And Behavioral Sciences

Facilitating pathways to care: A qualitative study of the self‐reported needs and coping skills of caregivers of young adults diagnosed with early psychosis

Facilitating pathways to care: A qualitative study of the self‐reported needs and coping skills of caregivers of young adults diagnosed with early psychosis

Publication Date: 
Sunday, January 12, 2020

 

Caregivers play a critical role in detecting and managing psychotic symptoms before young people diagnosed with early psychosis present to care. Little is known about the specific needs of caregivers in navigating pathways to care for their loved one. The purpose of this study is to understand the needs of family caregivers and their ways of coping on the pathway to care for early psychosis.Twenty family caregivers of individuals diagnosed with early psychosis participated in three focus groups that explored caregiving needs provision for early psychosis. Thematic analysis was conducted. We identified four major themes: education and skill training; raising wider awareness, such as police offers and teachers; adopting technologies for coping; effective coping strategies.These findings provide important insights into caregiving needs and the ways for nurses to address those needs and better equip carers to recognize early symptoms, monitor behavior changes, and navigate care to support people with first episode psychosis. Nursing researchers can use the information to develop on‐demand and tailored family‐centered intervention in addressing caregivers' needs in education, increasing awareness of early psychosis, and fostering effective coping strategies.