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Director
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J. Randall Curtis, MD, MPH
Professor of Medicine
Division of Pulmonary and Critical Care Medicine, Harborview Medical Center |
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Co-Director
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Donald L. Patrick, PhD, MSPH
Professor of Health Services
Department of Health Services, University of Washington |
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| Associate Director |
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Ruth Engelberg, PhD
Associate Director
Division of Pulmonary and Critical Care Medicine, Harborview Medical Center |
| Research Staff |
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Katie Breihof
Research Assistant
Division of Pulmonary and Critical Care Medicine, Harborview Medical Center |
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Danae Dotolo, MSW
Research Coordinator
Division of Pulmonary and Critical Care Medicine, Harborview Medical Center |
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Lois Downey, MA
Data Analyst and Consultant
Department of Health Services, University of Washington |
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Lexa Galanti
Research Assistant
Division of Pulmonary and Critical Care Medicine, Harborview Medical Center |
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Jimmy Hoard
Research Coordinator
Division of Pulmonary and Critical Care Medicine, Harborview Medical Center |
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Elizabeth Nielsen, MPH
Research Coordinator
Division of Pulmonary and Critical Care Medicine, Harborview Medical Center |
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Patsy Treece, RN, MN
Research Nurse
Division of Pulmonary and Critical Care Medicine, Harborview Medical Center |
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Kevin Xiao
Research Assistant
Division of Pulmonary and Critical Care Medicine, Harborview Medical Center |
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Jessica Young, MSW, MPH
Research Coordinator
Division of Pulmonary and Critical Care Medicine, Harborview Medical Center |
| Faculty Investigators |
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Anthony L. Back, MD
Investigator; Associate Professor of Medicine University of Washington
Seattle Cancer Care Alliance |
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Sarah E. Shannon, PhD, RN
Investigator; Associate Professor, Biobehavioral Nursing and Health Systems
University of Washington |
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Overall Purpose
The End of Life Care Research Program is composed of clinical and health services investigators and staff focused on specific projects that have as their overall goal the improvement of end-of-life care. In addition to providing the core support for these specific projects, the Program serves as a resource to other investigators conducting related research.
It is also a goal of the Program to participate in education by providing the resources for medical students, medical residents, physician-fellows, and nurses to participate in these projects and conduct related research projects. The Program personnel also conduct clinical education for medical and nursing staff interested in improving patient-clinician communication about end-of-life care and improving the quality of care at the end of life.
Finally, several of the assessment tools being developed through the research of the Program, once validated, will be used in quality improvement projects targeting end-of-life care. The ultimate goal of these instruments is to improve care at the end of life.
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Current Specific Research Goals
- Measure and improve the quality of patient-clinician communication about end-of-life care.
- Identify and overcome barriers to patient-clinician communication about end-of-life care.
- Develop interventions that will improve the quality of patient-clinician communication about end-of-life care and the quality of care at the end of life.
- Develop a series of process and outcome measures that can be used as an end-point in evaluations of end-of-life care.
- The quality of communication about end-of-life care
- The quality of dying and death
- The quality of physician skill at providing end-of-life care
- The quality of clinician-family communication in the ICU
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