The End of Life Care Research Program's Publications

Curtis JR, Rubenfeld GD (eds.). The Transition from Cure to Comfort: Managing Death in the ICU. Oxford University Press: New York, 2001.

124. Kross EK, Engelberg RA, Shannon SE, Curtis JR. Potential for Response Bias in Family Surveys About End-of-Life Care in the ICU. Chest. 2009 Jul 17. [Epub ahead of print]

123. Ehlenbach WJ, Barnato AE, Curtis JR, Kreuter W, Koepsell TD, Deyo RA, Stapleton RD. Epidemiologic study of in-hospital cardiopulmonary resuscitation in the elderly. N Engl J Med. 2009 Jul 2;361(1):22-31.

122. Downey L, Engelberg RA, Standish LJ, Kozak L, Lafferty WE. Three Lessons From a Randomized Trial of Massage and Meditation at End of Life: Patient Benefit, Outcome Measure Selection, and Design of Trials With Terminally Ill Patients. Am J Hosp Palliat Care. 2009 Apr 24. [Epub ahead of print]

121. Curtis JR, Morrison RS. The future of funding for palliative care research: suggestions for our field. J Palliat Med. 2009 Jan;12(1):26-8.

120. Back AL, Young JP, McCown E, Engelberg RA, Vig EK, Reinke LF, Wenrich MD, McGrath BB, Curtis JR. Abandonment at the end of life from patient, caregiver, nurse, and physician perspectives: loss of continuity and lack of closure. Arch Intern Med. 2009 Mar 9;169(5):474-9.

119. Starks H, Diehr P, Curtis JR. The challenge of selection bias and confounding in palliative care research. J Palliat Med. 2009 Feb;12(2):181-7.

118. Engelberg RA, Wenrich MD, Curtis JR. Responding to families' questions about the meaning of physical movements in critically ill patients. J Crit Care. 2008 Dec;23(4):565-71.

117. Thornton JD, Pham K, Engelberg RA, Jackson JC, Curtis JR. Families with limited English proficiency receive less information and support in interpreted intensive care unit family conferences. Crit Care Med. 2009 Jan;37(1):89-95.

116. Kross EK, Gries CJ, Curtis JR. Post-traumatic stress disorder following critical illness. Crit Care Clin. 2008 Oct;24(4):875-87, ix-x.

115. Curtis JR, White DBPractical guidance for evidence-based ICU family conferences. Chest. 2008 Oct;134(4):835-43. Review.

114. White DB, Engelberg RA, Wenrich MD, Lo B, Curtis JR.The Language of Prognostication in Intensive Care Units. Med Decis Making. 2008 Aug 27. [Epub ahead of print]

113. Gerstel E, Engelberg RA, Koepsell T, Curtis JR. Duration of withdrawal of life support in the intensive care unit and association with family satisfaction. Am J Respir Crit Care Med. 2008 Oct 15;178(8):798-804.

112. Selph RB, Shiang J, Engelberg R, Curtis JR, White DB. Empathy and life support decisions in intensive care units. J Gen Intern Med. 2008 Sep;23(9):1311-7.

111. Downey L, Engelberg RA, Curtis JR, Lafferty WE, Patrick DL.Shared Priorities for the End-of-Life Period. J Pain Symptom Manage. 2008 Aug 20.

110. Starks H, Curtis JR. Is withholding life support associated with a premature death? If so, what does this mean for ICU practice? Chest. 2008 Jun;133(6):1298-300.

109. Kross EK, Curtis JR.Burden of psychological symptoms and illness in family of critically ill patients: what is the relevance for critical care clinicians? Crit Care Med. 2008 Jun;36(6):1955-6.

108. Curtis JR, Treece PD, Nielsen EL, Downey L, Shannon SE, Braungardt T, Owens D, Steinberg KP, Engelberg RA. Integrating palliative and critical care: evaluation of a quality-improvement intervention. Curtis JR, Treece PD, Nielsen EL, Downey L, Shannon SE, Braungardt T, Owens D, Steinberg KP, Engelberg RA. Am J Respir Crit Care Med. 2008 Aug 1;178(3):269-75.

107. Curtis JR, Engelberg R, Young JP, Vig LK, Reinke LF, Wenrich MD, McGrath B, McCown E, Back AL. An Approach to Understanding the Interaction of Hope and Desire for Explicit Prognostic Information among Individuals with Severe Chronic Obstructive Pulmonary Disease or Advanced Cancer. J Palliat Med. 2008 May;11(4):610-20.

106. Reinke LF, Engelberg RA, Shannon SE, Wenrich MD, Vig EK, Back AL, Curtis JR. Transitions Regarding Palliative and End-of-Life Care in Severe Chronic Obstructive Pulmonary Disease or Advanced Cancer: Themes Identified by Patients, Families, and Clinicians. J Palliat Med. 2008 May;11(4):601-9.

105. Ehlenbach WJ, Curtis JR. Noninvasive ventilation for patients near the end of life: What do we know and what do we need to know? Crit Care Med. 2008 Mar;36(3):1003-4.

104. Truog RD, Campbell ML, Curtis JR, Haas CE, Luce JM, Rubenfeld GD, Rushton CH, Kaufman DC; American Academy of Critical Care Medicine. Recommendations for end-of-life care in the intensive care unit: a consensus statement by the American Academy of Critical Care Medicine. Crit Care Med. 2008 Mar;36(3):953-63.

103. Glavan BJ, Engelberg RA, Downey L, Curtis JR. Using the medical record to evaluate the quality of end-of-life care in the intensive care unit. Crit Care Med. 2008 Apr;36(4):1138-46.

102. Curtis JR. Caring for patients with critical illness and their families: the value of the integrated clinical team. Respir Care. 2008 Apr;53(4):480-7.

101. Pham K, Thornton JD, Engelberg RA, Jackson JC, Curtis JR. Alterations During Medical Interpretation of ICU Family Conferences that Interfere with or Enhance Communication. Chest. 2008 Mar 17; [Epub ahead of print]

100. Shanawani H, Wenrich MD, Tonelli MR, Curtis JR. Meeting physicians' responsibilities in providing end-of-life care. Chest. 2008 Mar;133(3):775-86.

99. Ward NS, Teno JM, Curtis JR, Rubenfeld GD, Levy MM. Perceptions of cost constraints, resource limitations, and rationing in United States intensive care units: results of a national survey. Crit Care Med. 2008 Feb;36(2):471-6.

98. Gries CJ, Curtis JR, Wall RJ, Engelberg RA. Family Member Satisfaction with End-of-Life Decision-making. Chest. 2008 Jan 15; [Epub ahead of print].

97. Stapleton RD, Curtis JR. End-of-life considerations in older patients who have lung disease. Clin Chest Med. 2007 Dec;28(4):801-11,vii.

96. Norris K, Merriman MP, Curtis JR, Asp C, Tuholske L, Byock IR. Next of kin perspectives on the experience of end-of-life care in a community setting. J Palliat Med. 2007 Oct;10(5):1101-15.

95. Curtis JR, Burt RA. Point: the ethics of unilateral "do not resuscitate" orders: the role of "informed assent". Chest. 2007 Sep;132(3):748-51; discussion 755-6.

94. Diehr P, Lafferty WE, Patrick DL, Downey L, Devlin SM, Standish LJ. Quality of life at the end of life. Health Qual Life Outcomes. 2007 Aug 3;5(1):51.

93. McCormick AJ, Engelberg R, Curtis JR. Social workers in palliative care: assessing activities and barriers in the intensive care unit. J Palliat Med. 2007 Aug;10(4):929-37.

92. White DB, Curtis JR, Wolf LE, Prendergast TJ, Taichman DB, Kuniyoshi G, Acerra F, Lo B, Luce JM. Life support for patients without a surrogate decision maker: who decides? Ann Intern Med. 2007 Jul 3;147(1):34-40.

91. Wall RJ, Curtis JR, Cooke CR, Engelberg RA. Family satisfaction in the ICU: Differences between families of survivors and non-survivors. Chest. 2007 Jun 15; Epub.

90. Curtis JR, Puntillo K. Is There an Epidemic of Burnout and Post-traumatic Stress in Critical Care Clinicians? Am J Respir Crit Care Med. 2007 Apr 1;175(7):634-6.

89. White DB, Braddock CH 3rd, Bereknyei S, Curtis JR. Toward shared decision making at the end of life in intensive care units: opportunities for improvement. Arch Intern Med. 2007 Mar 12;167(5):461-7.

88. Wall RJ, Engelberg RA, Gries CJ, Glavan B, Curtis JR. Spiritual care of families in the intensive care unit. Critical Care Medicine. 2007 Apr;35(4):1084-90.

87. Lautrette A, Darmon M, Megarbane B, et al. A communication strategy and brochure for relatives of patients dying in the ICU. New England Journal of Medicine. 2007 Feb 1;356(5):469-78.

86. White DB, Engelberg RA, Wenrich MD, Lo B, Curtis JR. Prognostication during physician-family discussions about limiting life support in intensive care units. Critical Care Medicine. 2007 Feb;35(2):442-8.

85. Hsieh HF, Shannon SE, Curtis JR. Contradictions and communication strategies during end-of-life decision making in the intensive care unit. Journal of Critical Care. 2006 Dec;21(4):294-304.

84. Wall RJ, Engelberg RA, Downey L, Heyland DK, Curtis JR. Refinement, scoring, and validation of the Family Satisfaction in the Intensive Care Unit (FS-ICU) survey. Critical Care Medicine. 2007; 35(1):271-9.

83. Mularski RA, Curtis JR, Billings JA, et al. Proposed quality measures for palliative care in the critically ill: a consensus from the Robert Wood Johnson Foundation Critical Care Workgroup. Critical Care Medicine. 2006 Nov;34(11 Suppl):S404-11.

82. Treece PD, Engelberg RA, Shannon SE, Nielsen EL, Braungardt T, Rubenfeld GD, Steinberg KP, Curtis JR. Integrating palliative and critical care: description of an intervention. Critical Care Medicine. 2006 Nov;34(11 Suppl):S380-7.

81. Curtis JR, Engelberg RA. Measuring success of interventions to improve the quality of end-of-life care in the intensive care unit. Critical Care Medicine. 2006 Nov;34(11 Suppl):S341-7.

80. Downey L, Engelberg RA, Shannon SE, Curtis JR. Measuring intensive care nurses' perspectives on family-centered end-of-life care: evaluation of 3 questionnaires. Am J Crit Care. 2006 Nov;15(6):568-79.

79. Engelberg R, Downey L, Curtis JR. Psychometric characteristics of a quality of communication questionnaire assessing communication about end-of-life care. Journal of Palliative Medicine. 2006 Oct;9(5):1086-98.

78. Engelberg RA. Measuring the quality of dying and death: methodological considerations and recent findings. Curr Opin Crit Care. 2006; Oct;12(5):381-7.

77. Wenrich MD, Curtis JR. Narratives of critical care: the missing link. Journal of Critical Care. 2006 Sep;21(3):248-9.

76. White DB, Curtis JR. Establishing an evidence base for physician-family communication and shared decision making in the intensive care unit. Critical Care Medicine. 2006 Sep;34(9):2500-1.

75. White DB, Curtis JR, Lo B, Luce JM. Decisions to limit life-sustaining treatment for critically ill patients who lack both decision-making capacity and surrogate decision-makers. Critical Care Medicine. 2006 Aug;34(8):2053-9.

74. Stapleton RD, Engelberg RA, Wenrich MD, Goss CH, Curtis JR. Clinician statements and family satisfaction with family conferences in the intensive care unit. Critical Care Medicine. 2006 Jun;34(6):1679-85.

73. Curtis JR. Interventions to improve care during withdrawal of life-sustaining treatments. Journal of Palliative Medicine. 2005;8 Suppl 1:S116-31.

72. Au DH, Udris EM, Fihn SD, McDonell MB, Curtis JR. Differences in health care utilization at the end of life among patients with chronic obstructive pulmonary disease and patients with lung cancer. Arch Intern Med. 2006 Feb 13;166(3):326-31.

71. Engelberg RA, Patrick DL, Curtis JR. Correspondence between patients’ preferences and surrogates' understandings for dying and death. Journal of Pain and Symptom Management. 2005 Dec;30(6):498-509.

70 Curtis JR, Cook DJ, Wall RJ, Angus DC, Bion J, Kacmarek R, Kane-Gill SL, Kirchhoff KT, Levy M, Mitchell PH, Moreno R, Pronovost P, Puntillo K. Intensive care unit quality improvement: a "how-to" guide for the interdisciplinary team. Critical Care Medicine. 2006 Jan;34(1):211-8.

69. Curtis JR, Engelberg RA, Wenrich MD, Au DH. Communication about palliative care for patients with chronic obstructive pulmonary disease. Journal of Palliative Care. 2005 Autumn;21(3):157-64.

68. Curtis JR, Shannon SE. Transcending the silos: toward an interdisciplinary approach to end-of-life care in the ICU. Intensive Care Med. 2006 Jan;32(1):15-7.

67. White DB, Curtis JR. Care near the end-of-life in critically ill patients: a North American perspective. Curr Opin Crit Care. 2005 Dec;11(6):610-615.

66. Norris WM, Wenrich MD, Nielsen EL, Treece PD, Jackson JC, Curtis JR. Communication about End-of-Life Care between Language-discordant Patients and Clinicians: Insights from Medical Interpreters. Journal of Palliative Medicine. 2005 Oct;8(5):1016-24.

65. Yaguchi A, Truog RD, Curtis JR, Luce JM, Levy MM, Melot C, Vincent JL. International differences in end-of-life attitudes in the intensive care unit: results of a survey. Arch Intern Med. 2005 Sep 26;165(17):1970-5.

64. Curtis JR, Rubenfeld GD. Improving palliative care for patients in the intensive care unit. Journal of Palliative Medicine. 2005 Aug;8(4):840-54.

63. West HF, Engelberg RA, Wenrich MD, Curtis JR. Expressions of nonabandonment during the intensive care unit family conference. Journal of Palliative Medicine. 2005 Aug;8(4):797-807.

62. Hough CL, Hudson LD, Salud A, Lahey T, Curtis JR. Death rounds: end-of-life discussions among medical residents in the intensive care unit. Journal of Critical Care. 2005 Mar;20(1):20-5.

61. Mularski RA, Heine CE, Osborne ML, Ganzini L, Curtis JR. Quality of dying in the ICU: ratings by family members. Chest. 2005 Jul;128(1):280-7.

60. Knauft ME, Nielsen EL, Engelberg RA, Patrick DL, Curtis JR. Barriers and facilitators to end-of-life care communication for patients with COPD. Chest. 2005;127: 2188-2196.

59. Norris WM, Nielsen EL, Engelberg RA, Curtis JR. Treatment preference for resuscitation and critical care among homeless persons. Chest. 2005; 127: 2180-2187.

58. Levy CR, Ely EW, Payne K, Engelberg RA, Patrick DL, Curtis JR. Quality of dying and death in two medical ICUs: perceptions of family and clinicians. Chest. 2005 May;127(5):1775-83.

57. Hough CL, Curtis JR. Long-term sequelae of critical illness: memories and health-related quality of life. Crit Care. 2005 Apr;9(2):145-6. Epub 2005 Feb 23.

56. Stapleton RD, Nielsen EL, Engelberg RA, Patrick DL, Curtis JR. Association of Depression and Life-Sustaining Treatment Preferences in Patients With COPD. Chest. 2005 Jan;127(1):328-34.

55. Curtis JR, Engelberg, RA, Wenrich MD, Shannon SE, Treece PD, Rubenfeld GD. Missed Opportunities during Family Conferences about End-of-Life Care in the Intensive Care Unit. J Respir Crit Care Med. 2005; 171: 844-849.

54. Mularski RA, Curtis JR, Osborne ML, Engelberg RA, Ganzini L. Agreement among family members in their assessment of the quality of dying and death. Journal of Pain and Symptom Management. 2004 Oct; 28 (4): 306-15.

53. Curtis JR, Engelberg RA, Nielsen EL, Au DH, Patrick DL. Patient-physician communication about end-of-life care for patients with COPD. European Respiratory Journal. 2004; 24: 200-205.

52. Hodde NM, Engelberg RA, Treece PD, Steinberg KP, Curtis JR. Factors associated with nurse assessment of the quality of dying and death in the ICU. Critical Care Medicine. 2004, Aug;32(8):1648-53.

51. Chan JD, Treece PD, Engelberg RA, Crowley L, Rubenfeld GD, Steinberg KP, Curtis JR. Narcotic and benzodiazepine use after withdrawal of life support: association with time to death? Chest. 2004; 126:286-93.

50. McDonagh JR, Elliott TB, Engelberg RA, Treece PD, Shannon SE, Rubenfeld GD, Patrick DL, Curtis JR. Family satisfaction with family conferences about end-of-life care in the ICU: Increased proportion of family speech is associated with increased satisfaction. Critical Care Medicine. 2004; 32:1484-1488.

49. Clarke EB, Luce JM, Curtis JR, Levy M, Nelson J, Solomon MZ, for the Robert Wood Johnson Foundation Critical Care End-of-Life Peer Workgroup Members. A content analysis of forms, guidelines, and other materials documenting end-of-life care in intensive care units. Journal of Critical Care. 2004; 19:108-17.

48. Treece PD, Engelberg RA, Crowley L, Chan JD, Rubenfeld GD, Steinberg KP, Curtis JR. Evaluation of a standardized order form for the withdrawal of life support in the intensive care unit. Critical Care Medicine. 2004; 32:1141-1148.

47. Curtis JR. Communicating about end-of-life care with patients and families in the ICU. Clinics in Critical Care. 2004; 20:363-80.

46. Rubenfeld GD, Curtis JR. Improving care for patients dying in the intensive care unit. Clin Chest Med. 2004; 20:363-80. 2003 Dec;24(4):763-73.

45. Clark EB, Curtis JR, Luce JM, et al. Quality indicators for end-of-life care in the intensive care unit. Critical Care Medicine. 2003 Sep;31(9):2255-62

44. Patrick DL, Curtis JR, Engelberg RA, Nielsen EL, McCown EB. Measuring and Improving the Quality of Dying and Death. Annals of Internal Medicine. 2003 Sep2; 139 (5 pt 2): 410-5.

43. Rocker GM, Curtis JR. Caring for the dying in the intensive care unit: in search of clarity. (editorial). JAMA. 2003;290:820-822.

42. Curtis JR, Patrick DL. Assessment of health status among patients with COPD. European Respiratory Journal Supplement. 2003 Jun;41:36s-45s.

41. Curtis JR, Burt RA. Why are critical care clinicians so powerfully distressed by family demands for futile care? Journal of Critical Care. 2003 Mar;18(1):22-4.

40. Rubenfeld GD, Curtis JR. Beyond ethical dilemmas: improving the quality of end-of-life care in the intensive care unit. Crit Care. 2003 Feb;7(1):11-2. Epub 2002 Dec 18.

39. Wenrich MD, Curtis JR, Ambrozy DM, Carline JD, Shannon SE, Ramsey PG. Dying patients' need for emotional support and personalized care from physicians: perspectives of patients with terminal illness, families and health care providers. Journal of Pain and Symptom Management. 2003; Mar25(3):236-46.

38. Carline JD, Curtis JR, Wenrich MD, Shannon SE, Ambrozy DM, Ramsey PG. Physicians' Interactions with health care teams and systems in the care of dying patients: perspectives of dying patients, family members, and health care professionals. Journal of Pain and Symptom Management. 2003; Jan; 25(1): 19-28.

37. Way J, Back AL, Curtis JR. Withdrawing life support and resolution of conflict with families. BMJ. 2002 Dec 7;325(7376):1342-5.

36. Pierson CM, Curtis JR, Patrick DL. A good death: a qualitative study of patients with advanced AIDS. AIDS Care. 2002 Oct;14(5):587-98.

35. Curtis JR, Engelberg RA, Wenrich MD, et al. Studying communication about end-of-life care during the ICU family conference: development of a framework. Journal of Critical Care Medicine. 2002;17:147-160.

34. Curtis JR, Patrick DL, Engelberg RA, Norris K, Asp C, Byock I. A measure of the quality of dying and death: initial validation using after-death interviews with family members. Journal of Pain and Symptom Management. 2002 Jul; 24(1):17-31.

33. Curtis JR, Wenrich MD, Carline JD, Shannon SE, Ambrozy DM, Ramsey PG. Patients' perspectives on physician skill in end-of-life care: differences between patients with COPD, cancer, and AIDS. Chest. 2002 Jul; 122(1):356-62.

32. Back AL, Curtis JR. Communicating bad news. West J Med. 2002 May;176(3):177-80.

31. Byock I, Norris K, Curtis JR, Patrick DL. Improving end-of-life experience and care in the community: a conceptual framework. Journal of Pain and Symptom Management. 2001 Sep; 22(3):759-72.

30. Patrick DL, Engelberg R, Curtis JR. Evaluating the quality of dying and death. Journal of Pain and Symptom Management. 2001; Sep 22(3):717-26.

29. Back AL, Curtis JR. When does primary care turn into palliative care? West J Med. 2001 Sep;175(3):150-1.

28. Wenrich MD, Curtis JR, Shannon SE, Carline JD, Ambrozy DM, Ramsey PG. Communicating with dying patients within the spectrum of medical care from terminal diagnosis to death. Archives of Internal Medicine. 2001; Mar 26;161(6):868-74.

27. Curtis JR, Wenrich MD, Carline JD, Shannon SE, Ambrozy DM, Ramsey PG. Understanding physicians’ skills at providing end-of-life care: perspectives of patients, families, and health care workers. Journal of General Internal Medicine. 2001; 16:41-9.

26. Curtis JR, Patrick DL, Shannon SE, Treece PD, Engelberg RA, Rubenfeld GD. The family conference as a focus to improve communication about end-of-life care in the ICU: opportunities for improvement. Critical Care Medicine. 2001; 29:N26-33.

25. Rubenfeld GR, Curtis JR. Palliative respiratory care. Respiratory Care. 2000; 45:1318-9.

24. Curtis JR. Communicating with patients and their families about advance care planning and end-of-life care. Respiratory Care. 2000, 45:1385-1394.

23. Diehr P, Patrick DL, Burke GL, Williamson J, Bild DE (2001) Patterns of self-rated health in older adults before and after sentinel health events. Journal of American Geriatric Society. 49:36-44.

22. Curtis JR, Patrick DL, Caldwell E, Collier AC. Why don’t patients with AIDS and physicians talk about end-of-life care? Barriers to communication for patients with acquired immunodeficiency syndrome and their primary care clinicians. Archives of Internal Medicine. 2000; 160:1597-1601.

21. Curtis JR, Patrick DL, Caldwell E, Collier AC. The attitudes of patients with advanced AIDS towards use of the medical futility rationale in decisions to forego mechanical ventilation. Archives of Internal Medicine. 2000; 160:1690-6.

20. Patrick DL, Kinne S, Engelberg RA, Pearlman RA. (2000). Functional status and perceived quality of life in adults with and without chronic conditions. Journal of Clinical Epidemiology. 53(8): 779-785

19. Curtis JR, Patrick DL, Caldwell E, Greenlee H, Collier AC. The quality of patient-clinician communication about end-of-life care: A study of patients with AIDS and their primary care clinicians. AIDS. 1999; 13:1123-31.

18. Stewart AL, Teno J, Patrick DL, Lynn J, and Wilkinson A. The concept of quality of life of dying persons in the context of health care. Journal of Pain and Symptom Management. 1999; 17: 93-108.

17. Curtis JR, Bennett CL, Horner RD, Rubenfeld GD, DeHovitz JA, Weinstein RA. Variations in ICU utilization for patients with HIV-related Pneumocystis carinii pneumonia: Importance of Hospital Characteristics and Geographic Location. Critical Care Medicine. 1998; 26:668-75.

16. Curtis JR. The “patient-centered” outcomes of critical care: What are they and how should they be used? New Horizons. 1998; 6:26-32.

15. Curtis JR, Patrick DL. Barriers to communication about end-of-life care in AIDS patients. Journal of General Internal Medicine. 1997; 12:736-41.

14. Curtis JR, Rubenfeld GD. Aggressive medical care at the end of life: does capitated reimbursement encourage the right care for the wrong reason? (editorial). JAMA. 1997, 278:1025-6.

13. Patrick DL, Pearlman RA, Starks HE, Cain KC, Cole WG, Uhlmann RF. (1997). Validation of preferences for life-sustaining treatment: implications for advance care planning. Annals of Internal Medicine. 127 (7): 509-517.

12. Committee on Care at the End of Life, Field MJ, Cassel CK (eds) (1997) Approaching Death: Improving Care at the End of Life. Institute of Medicine. National Academy Press, Washington, D.C. [Donald Patrick was a member of this committee and authored the chapter on quality of life.]

11. Badia X, Diaz-Prieto A, Rue M, Patrick DL. (1996). Measuring health and health state preferences among critically ill patients. Intensive Care Medicine. 22 (12): 1379-1384.

10. Pearlman RA, Cole WG, Patrick DL, Starks HE, Cain KC. (1995). Advance care planning: eliciting patient preferences for life-sustaining treatment. Patient Education and Counseling. 26:353-61.

9. Curtis JR, Park DR, Krone MR, Pearlman RA. Use of the medical futility rationale in do-not-attempt-resuscitation orders. JAMA. 1995 Jan 11;273(2):124-8.

8. Patrick DL, Starks HE, Cain KC, Pearlman RA, Uhlmann RF. (1994). Measuring preferences for health states worse than death. Medical Decision-Making. 14 (1): 13-27.

6. Danis M, Garrett J, Harris R, Patrick DL. (1994). Stability of choices about life-sustaining treatments. Annals of Internal Medicine. 120 (7): 567-573.

5. Pearlman RA, Cain KC, Patrick DL, Appelbaum-Maizel M, Starks HE, Jecker NS, Uhlmann RF. (1993). Insights pertaining to patient assessments of states worse than death. Journal of Clinical Ethics. 4(1): 33-41.

4. Danis M, Southerland LI, Garrett JM, Smith JL, Hielema F, Pickard CG, Egner DM, Patrick DL. (1991) A prospective study of advance directives for life-sustaining care. New England Journal of Medicine. 324 (13): 882-888.

3. Danis M, Gerrity MS, Southerland LI, Patrick DL. (1988). A comparison of patient, family, and physician assessments of the value of medical intensive care. Critical Care Medicine. 16(6): 594-600.

2. Danis M, Patrick DL, Southerland LI, Green ML. (1988). Patients' and families' preferences for medical intensive care. JAMA. 260 (6): 797-802.

1. Patrick DL, Danis ML, Southerland LI., Hong G. (1988). Quality of life following intensive care. Journal of General Internal Medicine. 3(3):218-223.