|University of Washington • School of Public Health • Department of Health Services|
Translational Genetics Public Policy
The overall purpose of this project is to translate research relevant to genetic services into practice for those audiences and stakeholders who can benefit most from a focused and objective communications program. Such a program will promote appropriate and cost effective access to a broad range of genetic services to patients, families and consumers who will benefit from them.
The impetus for this project is rapid projected growth in the clinical availability of genetic technologies. As this growth continues, all the major stakeholder groups involved in the delivery of these and related services will be affected. The overarching dissemination or translational challenge is to conceptualize the differing types of information best suited to the decision-makers in each stakeholder group. We have chosen to organize our objectives for translating this information into three broad categories
Goals and Objectives
Our three specific goals for the Translational Genetics Public Policy project are to
We use 5 principal methodologies.
Specific measures related to the work plan will include the satisfaction of stakeholder groups with informational materials developed and their dissemination. Also, the number of stakeholder groups who choose to support ongoing development of updated informational materials even after the conclusion of this project will be measured.
The Washington State Department of Health partners with the University of Washington's Resource Center for Health Policy and Institute for Public Health Genetics to conduct this project. Project staff are nationally known for their expertise in multiple areas including delivering genetic services, conducting cost effectiveness analyses, legal and policy analyses, socio-cultural analyses, developing policy options, facilitating dialogs, working with advisory committees, and communicating information in understandable formats.
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This website is supported in part by Projects # U35MC02601 and # U35MC02602 from the Maternal and Child Health Bureau (Title V, Social Security Act), #11223, Health Resources and Services Administration, Department of Health and Human Services