Final Report of the GSPP
The final report may be downloaded in its entirety or by chapter.
Full final report:
Final Report with appendices (199 pgs)
Final Report without appendices (155 pgs)
Appendices (44 pgs)
By chapter:
Chapter 1: Introduction
Chapter 2: The Delivery of Genetic Services in the United States
Chapter 3: Policy Briefs and Vignettes (79 pgs)
- (Individual)
- Policy Brief: Inherited breast cancer
- Policy Brief: Genetic techonologies in the management of breast cancer
- Policy Brief: Cystic fibrosis
- Policy Brief: Multiple congenital anomalies
- Policy Brief: Sickle cell disease
- Policy Brief: Type 2 diabetes
- Vignette: Inherited breast cancer
- Vignette: Genetic techonologies in the management of breast cancer
- Vignette: Cystic fibrosis
- Vignette: Multiple congenital anomalies 1
- Vignette: Multiple congenital anomalies 2
- Vignette: Sickle cell disease
- Vignette: Type 2 diabetes
Chapter 4: The Role of Cost-Effectiveness Analysis in Decision Making about Genetic Services
Chapter 5: Analysis of Media Messages about Genetics
Chapter 6: Personal Genomics Services and Direct Access Genetic Tests
Chapter 7: A Changing Health Care World
Chapter 8: Recommendations
Appendix A: Dissemination Activities
Appendix B: Analysis of GINA Through the Advocacy Coalition Framework
Appendix C: Case Study of Intermountain Healthcare's Clinical Genetics Institute
Appendix D: The Emerging Landscape of Genetic Services
Genetic Services Policy Project
1107 NE 45th St., Suite 400
Seattle, WA 98105
UW Box: 354809
Phone: 206-685-2371 Fax: 206-543-9345
genpol@u.washington.edu
Technical difficulties or broken links?
Please email Anne Doherty Renz at aed2@u.washington.edu.
Equal Opportunity and Disability Accommodation Privacy Statement Terms and Conditions of Use
This website is supported in part by Projects # U35MC02601 and # U35MC02602 from the Maternal and Child Health Bureau (Title V, Social Security Act), #11223, Health Resources and Services Administration, Department of Health and Human Services
1107 NE 45th St., Suite 400
Seattle, WA 98105
UW Box: 354809
Phone: 206-685-2371 Fax: 206-543-9345
genpol@u.washington.edu
Technical difficulties or broken links?
Please email Anne Doherty Renz at aed2@u.washington.edu.
Equal Opportunity and Disability Accommodation Privacy Statement Terms and Conditions of Use
This website is supported in part by Projects # U35MC02601 and # U35MC02602 from the Maternal and Child Health Bureau (Title V, Social Security Act), #11223, Health Resources and Services Administration, Department of Health and Human Services