Personnel
Investigators
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Wylie Burke, PhD, MD
University of Washington
206-221-5482
wburke@u.washington.edu
Bio
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Rick Carlson, JD
University of Washington
206-545-7294
rickjcarl@aol.com
Bio
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Debra Lochner Doyle, MS, CGC
Washington State Department of Health
253-395-6742
debra.lochnerdoyle@doh.wa.gov
Bio
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David Veenstra, Pharm D., PhD
University of Washington
206-221-6936
veenstra@u.washington.edu
Bio
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Carolyn (Cindy) Watts, PhD
University of Washington
206-616-2986
watts@u.washington.edu
Bio
Project Staff
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Katherine (Kay) Collins
University of Washington
206-543-3675
kcollins@u.washington.edu
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Anne Doherty
University of Washington
206-685-2371
aed2@u.washington.edu
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Amber Roche, MPH
Washington State Department of Health
253-395-6743
amber.roche@doh.wa.gov
Advisory Committee
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Jeffrey Bauer, PhD
ACS Healthcare Solutions
Senior Vice President
jeff.bauer@acs-hcs.com
Bio
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Don Black
Child Health Corporation of America
President
don.black@chca.com
Bio
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Joann Boughman, PhD
American Society of Human Genetics
Executive Vice President
jboughman@ashg.org
Bio
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Randy Burkholder
PhRMA
randy.burkholder@phrma.org
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Daragh Conrad, MS
National Society of Genetic Counselors
Co-Chair Genetic Service Delivery Model Task Force
dconrad@wfubmc.edu
Bio
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Brett Davis
IBM Healthcare and Life Sciences
Global Solutions Executive, Healthcare
davisbr@us.ibm.com
Bio
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Patricia Deverka, MD, MS
Duke University
Institute for Genomic Sciences & Policy
pat.deverka@duke.edu
Bio
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Anne Gramiak, MPH, CHES
American Academy of Pediatrics
agramiak@aap.org
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Alissa Johnson, MA
National Conference of State Legislatures
Senior Policy Specialist
alissa.johnson@ncsl.org
Bio
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Celia Kaye, PhD
National Newborn Screening & Genetics Resource Center
Director
celia.kaye@uchsc.edu
Bio
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Donald Kemper, MPH
Healthwise
Chairman and CEO
dkemper@healthwise.org
Bio
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Edward J. Larson, JD, PhD
University of Georgia
edlarson@uga.edu
Bio
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Judith Lewis, PhD, RNC, FAAN
International Society of Nursing Genetics
jalewis@vcu.edu
Bio
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Frances Margolin, MA
Health Research and Educational Trust
American Hospital Association
fmargolin@aha.org
Bio
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Joe McInerney, MS, CGC
National Coalition for Health Professional Education in Genetics
Director
jdmcinerney@nchpeg.org
Bio
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Robert Michel
The Dark Group
labletter@aol.com
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Dan Perry, PhD
Alliance for Aging Research
Executive Director
dperry@agingresearch.org
Bio
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Inger Saphire-Bernstein, MHSA
Blue Cross Blue Shield
Inger.saphirebernstein@bcbs.com
Bio
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Christine Schmidt
American Cancer Society
christy.schmidt@cancer.org
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Jayson Slotnik
BIO.org
jslotnik@bio.org
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Barry Steinhardt
American Civil Liberties Union
Director, Technology & Liberty Program
bsteinhardt@aclu.org
Bio
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Peggy Stupca, MS, CLSp (CG), CLSup
Association of Genetic Technologists
AGT Representative to the NCA
pstupca@mayo.edu
Bio
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Katherine Johansen, PhD
American Medical Association
Genetics and Molecular Medicine
katherine.johansen@ama-assn.org
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Sharon Terry, MA
Genetic Alliance
President and CEO
sterry@geneticalliance.org
Bio
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Leslie Wainwright, PhD
Sg2
Vice President
lwainwright@sg2.com
Bio
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Michael S. Watson, PhD, FACMG
American College of Medical Genetics
Executive Director
mwatson@acmg.net
Bio
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Andrew Webber
National Business Coalition on Health
President and CEO
awebber@nbch.org
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David Weismiller, MD, MSc
American Academy of Family Physicians
weismillerd@mail.ecu.edu
Bio
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Mark Yarborough, PhD
UCHSC Center for Bioethics and Humanities
Director and Associate Professor
mark.yarborough@uchsc.edu
Bio
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