- In health care settings, a parent is frequently asked to speak for a child, even
when the child can speak for him- or herself. If the child is able to speak and answer,
address him or her directly. Ask the child about his or her needs and preferences, and let
the child know you respect them. This gives the young person an opportunity to assume some
personal responsibility for health and wellness.
- As children grow, check their perception of their disability or chronic illness
from time to time. Then, help them fill in the gaps in their understanding. This
understanding becomes increasingly important as children become adults and begin assuming
responsibility for managing their own health care.
- Take a holistic perspective that combines typical health and development issues
with those specific to the person.
- Provide condition-specific information at appropriate developmental stages,
points of transition, and when the person is ready or needing to hear it. It may be
necessary to review the same information several times. Information packages should
include videotapes and interactive media as well as printed material. The material should
also include information on support groups.
- Provide resource lists, referral sources, and opportunities to learn about
alternatives.
- Train health care technicians in appropriate handling and communication
techniques for persons with disabilities.
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