Transition
and Disability Related Resources
- Washington
State Transition Resources
- Other
Washington State Resources for Disability/Chronic Illness
- National
Transition and Health Resources
- Web
Sites of Interest to Teens
Health
Adolescent
Health Transition Project
A health and transition resource for adolescents with special
health care needs, chronic illnesses, physical or developmental disabilities.
Adult
Metabolic Transition Project
Provides information and assistance to young adults with
metabolic disorders transitioning to adult care. Provides knowledge
and assistance to their health care providers.
Adolescent
Transition Curriculum for Phenylketonuria
A curriculum developed by the University of Washington PKU
Clinic to help juniors and seniors in high school prepare to manage
their PKU independently.
General
Center
for Change in Transition Services
A state-needs grant funded by the OSPI. This web site provides
special education teachers, directors, students and their families
with resources, information and news regarding secondary special education
and transition services.
Parents
are Vital in Education (PAVE)
PAVE is a Washington State Parent Training and Information
Center for consumers with special educational needs, their families
and communities. They have transition and other resources and can
provide advocacy for families around transition issues and schools.
Project
CORE
The Choices, Options, Resources, and Education Project. Provides accurate
and consistent information about adult services for people with disabilities,
their families, and supporters in Washington State.
Family/Educator
Partnership Project
FEPP is funded by the OSPI. The purpose is to help create
partnerships between families, educators and community agencies to
support children and youth that need special education services. They
have developed School-to-Work Transition Objectives to include in
IEPs of students with disabilities from age 14 to graduation. Among
their publications is "Family Educator Guide to Special Education
Services in Washington" which contains a section on transition.
This guide is available in many languages.
The
ARC of Washington
Promotes the education, health, self-sufficiency, self-advocacy,
inclusion and choices of individuals with developmental disabilities
and their families.
Easter
Seals Washington
This non-profit community based health and human service
organization provides services such as Accessibility Design, Vocational
Rehabilitation, Camping and Respite Care, Housing Assistance Services,
Inclusive Childcare, Computer- Assistive Technology and the Computer
Loan Program.
Social
Security Seattle Region (Washington, Oregon, Idaho, Alaska)
This site is part of the larger Social Security Administration
site. Local offices with hours and directions are included as well
as links to the main site that explain Supplemental Security Income
(SSI) for children and adults, SSI Work Incentives, and more.
Disabilities,
Opportunities, Internetworking, and Technology (DO-IT)
DO-IT recruits youth with disabilities into challenging college
programs and careers. This program enables high school students with
disabilities to explore careers and to gain the prerequisite knowledge
needed for success in college and employment. A two-week, live-in
summer program at the University of Washington is a highlight.
Governors
Committee of Disability Issues and Employment (DCDE)
Contact: Debbie Himes
PO Box 9046
Olympia, WA 98507-9046
DCDE sponsors a Youth Leadership Forum for high school juniors or
seniors with disabilities. The Forum is a week-long live-in summer
experience located at the Evergreen State College.
Washington
State Division of Developmental Disabilities (DDD)
Endeavors to make a positive difference in the lives of people
with developmental disabilities eligible for services, through offering
quality supports and services.
Washington
State Division of Vocational Rehabilitation (DVR)
A Washington employment resource for businesses and people
with disabilities whose mission is to enable individuals with disabilities
to obtain and keep employment..
Centers for Independent
Living in Washington State
Centers for Independent Living (CILs) are non-residential
offices located around the state that offer guidance and support to
people with disabilities, fight for the rights of people with disabilities,
and offer training and information on living independently in the
community. This is a list of the Centers for Independent Living in
Washington with contact information.
Washington
State Medical Assistance Administration (Medicaid)
Maximizes opportunities for low-income people to obtain appropriate,
quality health services. Provides health insurance for people with
disabilities on SSI and CAP Waivers.
Washington
State Insurance Commissioner’s Office
Oversees the insurance industry in Washington. Has a toll-free
Consumer Advocacy line and trained Statewide Health Insurance Benefits
Advisors.
Back
to Top
Children
with Special Health Care Needs (CSHCN) Program
A program for children with special health care needs and their families.
Each County has a CSHCN Coordinator that can provide case management
and information about resources. Toll Free Hot Line Answers for Special
Kids (ASK): 800-322-2588 (for referral to CSHCN Coordinators and other
resource information).
National
Information Center for Children and Youth with Disabilities (NICHCY)
- Washington State Resource Listing
This page, from the National Information Center for Children
and Youth with Disabilities, contains a list of resources in Washington
for children and youth with disabilities.
Infant
Toddler Early Intervention Program (ITEIP)
The ITEIP directs the coordination of the statewide system
of early intervention services for families with children age birth
to three that have developmental delays.
Center
on Human Development and Disability (CHDD)
Located at the University of Washington, CHDD makes important
contributions to the lives of people with developmental disabilities
and their families, through a comprehensive array of research, clinical
services, training, community outreach, and dissemination activities.
Children’s
Hospital and Regional Medical Center (CHRMC)
Tertiary care center for children in the Pacific Northwest.
Center
for Children with Special Needs
This site offers information and resources for parents and
professionals who advocate and care for children with special health
care needs. It is sponsored by Children's Hospital and Regional Medical
Center.
University
of Washington Medical Center Health On-Line
A project of the Patient and Family Education Services of
University of Washington Medical Center (UWMC) to provide an inventory
of patient education materials used throughout UWMC.
Washington
State Library Resource Directory for Families with Children with Special
Health Care Needs [pdf document]
A listing of books pertinent to children with special health care
needs and their families available in Washington State libraries.
Washington
State Fathers Network (WSFN)
A network of fathers of children with special health care
needs, the WSFN celebrates and supports fathers and families raising
children with special health care needs and developmental disabilities.
Washington
State Parent to Parent
Support programs that provide emotional support and information
to families of children with special needs and/or disabilities.
Sibling
Support Project
A national program dedicated to the interests of brothers
and sisters of people with special health and developmental needs
with the primary goal to increase the availability of peer support
and education programs for this population. Many "Sibshops"
(daycamps for siblings) exist in Washington State.
Washington
Assistive Technology Alliance (WATA)
A consumer advocacy network that includes the University
of Washington Center for Technology and Disability Studies and the
Assistive Technology Resource Center at Easter Seal Society in Spokane.
Center
for Technology and Disabilities (University of Washington)
An interdisciplinary program focusing on research, education,
advocacy and information systems related to assistive technology and
accessible information systems.
People
First of Washington
PO Box 648
Clarkson, WA 99403
800-758-1123
A self-advocacy program for people with developmental disabilities.
Chapters of People First exist in different areas of Washington.
Back
to Top
Transition
to Adult Health Care: A Training Guide in Two Parts (pdf)
Developed by Debra Gillman and Ben Schlicht, the Waisman Center,
January 2005. This training guide is intended to serve as a framework
for anyone interested in helping young people with special health
care needs and their parents prepare for the transition to adult health
care. This framework includes how to structure a transition workshop
and includes handouts. Part One is aimed at parents and Part Two is
aimed at teens.
MyPHR:
Personal Health Record
MyPHR.com is a public resource designed to help you understand
your personal health information and the importance of creating and
managing your own personal health record. This site will empower you
to become an active partner in managing your personal health information
in order to improve the quality of treatment and care you receive.
Healthy
and Ready to Work (HRTW) National Center
Provides information and connections to health and transition
expertise nationwide — from those in the know, doing the work
and living it!
Illinois
Division of Specialized Care for Transition Resources
This site, within the larger Web site for Illinois DSCC, focuses on
transition. It provides practical information and handouts for families
and youth: Transition Information Sheet for Families, Transition Worksheet
for Parents, Transition Worksheet for Youth, Teaching Sheets (Ages
0 - 5, 6 - 13, 14 - 21), the Transition Timeline, Health Care Checklist,
School to Work Checklist, Employment Information Sheet, Preparing
for the Future: Transition to Adulthood, Questions to Ask Potential
Adult Care Physicians, Bridging the Gap Between Pediatric and Adult
Services.
Health
Care Transitions
This site is supported by the Promising Practices
in Health Care Transition Research Project based at the Institute
for Child Health Policy at the University of Florida. The focus
of the site is health care transition for youth with disabilities
and special health care needs.
Health
Care Transitions Listserv
Listserv for youths/young adults with special health
care needs, family members and health care providers, policy makers,
insurers, and others with knowledge and experience in the transition
from child-centered (pediatric) to adult-oriented health care.
DisabilityInfo.gov
A comprehensive Federal Web site of disability-related government
resources.
SSA
Work!
This site describes the Social Security Administration (SSA) Work
Incentives Programs. Youth and adults with disabilities can explore
new roads to pursue Dreams, accomplish Career Goals and get a Job.
Videos describing Ticket to Work and Plan for Achieving Self Support
(PASS) as well as a CD-ROM are embedded in this site. Hard copies
of the videos and CD-ROM (one per person) can be ordered from the
site.
Federal
Office of Personnel Management (Jobs)
Includes opportunities for youth with disabilities. Make sure to check
out the e-Scholar link, which contains specific information about
funding for education and employment!
The
Department of Labor (Youth Focus)
This section of the larger Department of Labor Web site is youth focused.
National
Center on Secondary Education and Transition (NCSET)
The mission of the National Center on Secondary Education and Transition
(NCSET) is to create opportunities for youth with disabilities to
achieve successful futures. The NCSET Web site features Web Topics
containing research-based information and resources related to topics
in the field; E-News, NCSET's monthly electronic newsletter with national
resources including new publications, projects, grant opportunities,
scholarships, legislative announcements, and more; the full text of
NCSET's publications, transcripts, and Institute proceedings; a national
events calendar including NCSET's monthly teleconferences and regular
capacity building institutes; and more.
Smooth
Transitions
To assist teens, parents, doctors and other medical professionals,
social workers, vocational rehabilitation centers and anyone involved
in the transition process for teens with disabilities.
Transition
& The Internet
This site provides comprehensive Internet resources for transition
including general information, career interest inventories, employment,
health, civil rights and legal information, post-secondary education,
transportation, programs and benefits, and supports for youth and
young adults.
| Some
examples of these Web sites: |
|
disABILITY.gov
Web site supported by the Federal Government
that contains many topics of interest to people with disabilities;
extensive links. Has a Children and Youth section.
The
Work Site
Promotes the employment of Social Security beneficiaries
with disabilities. Includes programs and services that facilitate
entry into the workforce.
Social
Security Online Disability Programs
Describes the Social Security Disability Program.
Has a screening tool to find out which programs may be able
to pay benefits.
HEATH
Resource Center
This is a national clearinghouse on postsecondary
education for individuals with disabilities.
|
Back
to Top
Financial
Aid for Students with Disabilities, 2005 Edition
HEATH's 2004 revision of this popular resource guide available online.
It contains completely updated and revised information to help individuals
with disabilities to seek and obtain financial assistance for postsecondary
education. The guide describes federal financial aid programs, state
vocational rehabilitation services, and regional and local sources.
A listing of nationally awarded grants and a pre-college checklist
to organize the search for funds complete the guide.
Summer
Pre-college Programs for Students with Disabilities
A listing of summer pre-college programs for students with
disabilities in the United States.
Teens Health:
Answers and Advice
This website is created for teens looking for honest, accurate
information and advice about health, relationships, and growing up.
The information is "doctor-approved".
The DRM WebWatcher Just for Kids
Sites for, by, and about kids and teens with disabilities
and chronic illnesses.
Ability
OnLine Support Network
"An electronic mail system that connects young people
with disabilities or chronic illness to disabled and non-disabled
peers and mentors." Provides information, educational strategies,
employment opportunities, peer support and a list o links to web
sites about chronic illness.
Kids
as Self Advocates (KASA)
Youth with special health care needs speaking on behalf of
themselves.
Winners
on Wheels (WOW) Online
WOW empowers kids in wheelchairs by encouraging personal
achievement through creative learning and expanded life experiences
that lead to independent living skills.
Teens
with Chron's Disease
Chat rooms, message boards, game room, advice, and University of Hard
Knocks.
Managing
Your Own Healthcare
An article excerpted from "Be a savvy Healthcare Consumer, Your
Life may Depend on It" by June Isaacson.
Office
of Employment Support Program - Youth with Disabilities - Social Security
Administration
This section of the larger TheWork Site is dedicated to youth with
disabilities. Information in this section is helpful to youth with
disabilities, their parents and families, teachers, and counselors.
Starbright
Foundation
A computer network where hospitalized children and teens can interact
with a community of peers and help each other cope with the day-to-day
realities of living with illness.
Common
Thread
This Web community is for young people with illness and disability
in their lives, as a patient, sibling, or friend.
Bright Futures Encounter Forms for Families
Encounter forms are forms that are used to record information and
questions before a visit to a healthcare provider. The Ages 6 Years-Adolescence
section has forms for teens.
Teen
Chronic Illness Resources
Biographies of teens with chronic illness developed by a student at
Dartmouth University. Links include diagnosis specific sites and other
on-line support for teens with chronic illnesses.
LD
Online: Kid Zone
For children and teens with learning disabilities that includes stories,
articles, and artwork from different kids and teens.
National Youth Leadership
Network!
The National Youth Leadership Network (NYLN) is dedicated to advancing
the next generation of disability leaders.
Wrong Planet
An online resource and community for those with Asperger's Syndrome.
The site was developed and is maintained by an 18 year old High School
senior with Asperger's Syndrome.
Tools
for Youth
This page helps youth prepare for upcoming transition events in their
lives including how to advocate for their own healthcare and medical
home.
Coping with
Chemo
A collection of online animated stories, called "webisodes"
that meet the unique needs of teenagers 13 to 17 with cancer. This
website uses colorful graphics, animation, and an engaging storyline
to help teens:
- Learn
to cope with having cancer and undergoing treatment
- Talk
more openly about their illness and treatment with friends, family
and the health care team
- Maintain
a positive outlook throughout treamtment
- Feel
less isolated
- Better
manage interactions with friends and peers
Back to Top
|
