MD Forum: For Medical and Scientific Professionals

The Registry is providing a forum area for medical professionals and scientific investigators. We want this Forum to be a useful tool for sharing information among professionals, furthering the mission of the Registry to encourage research into better methods of diagnosis and treatment for these disorders.    The Forum is designed to allow password-protected access for individuals in these groups to discuss with each other difficult cases as well as areas of research interest.    To use the Forum we ask you to submit identifying information (below) that can be verified to authenticate your professional standing in the medical or scientific community. We will try to send you your password within 72 hours or reply with an explanation if a password was not assigned.

CLICK HERE to enter the MD Forum

Application for MD Forum Membership

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