LEND Program at the University of Washington |
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Leadership
Education in Neurodevelopmental and Related
Disabilities
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LEND Description and General InformationUW
LEND Program
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The LEND at the University of Washington is a graduate level interdisciplinary training program that prepares professionals and graduate students for leadership roles in providing health and related services for children with neurodevelopmental disabilities and their families. We are one of 36 LEND programs in the United States.
The interdisciplinary training program provides opportunities in:
Leadership: Preparation for leadership positions across the nation to meet the complex needs of infants, children and youth with neurodevelopmental and related disabilities and their families.
Partnership: Participation with faculty on collaborative activities with the Maternal and Child Health Bureau (MCHB), MCHB funded activities state Title V agencies, families, and other national and regional resources to provide continuing education and technical assistance.
Scholarship: Utilization of emerging technologies for learning and dissemination of information.
LEND programs are supported by the Maternal and Child Health Bureau of the Health Resources and Services Administration. The goal of the LEND program is to improve the health of children who have, or are at risk for developing, neurodevelopmental or related disabilities. This is accomplished by preparing trainees from a variety of disciplines to assume leadership roles and to ensure of clinical competence. LEND program objectives include the following:
1. Advance the knowledge and skills of health professionals to improve health care delivery systems for children with developmental disabilities.
2. Provide health professionals with the skills to foster community-based partnerships and community leadership.
3. Promote innovative practice models that are based on interdisciplinary partnerships and cultural competency, and family-centered approaches.
For more information on other LEND programs in the U.S., visit the AUCD's Web site at www.aucd.org/aucd_lend.htm.
Source: Athey J, Kavanagh L, Bagley K, Hutchins V. 2000. Building the Future: The Maternal and Child Health Training Program. Arlington, VA: National Center for Education in Maternal and Child Health.
The Leadership Education in Neurodevelopmental and Related Disabilities (LEND) program has a rich and evolving history. This program, currently administered through the Maternal and Child Health Bureau (MCHB) has its beginnings in the Children's Bureau, which was established in 1912. This Act gave a very broad grant of power to the Children's Bureau. In 1921 the Children's Bureau administered the Maternity and Infancy Act (Sheppard-Towner Act), the first national Maternal and Child Health program and the first significant federal grant-in-aid program in the health field.
In 1935, Congress enacted
Title V of the Social Security Act, which authorized the Maternal and Child
Health Services Programs and provided a foundation and structure for assuring
the health of mothers and children. Title V established federal and state partnerships
to promote maternal and child health, to provide a range of services for handicapped
children, and to develop public child welfare services.
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| Pearl S. Buck |
From the early to mid-1900s children with severe disabilities were institutionalized. Physicians explained that the children were burdens to their parents and it was believed they would be better off and happier in institutions. Parents went along with the recommendations of the physicians rather than disagree with them. Pearl S. Buck wrote a book in 1950, "The Child Who Never Grew," about her daughter who had mental retardation. That same year, the first advocacy organization for people with mental retardation, the National Association for Retarded Citizens, was established.
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Martha May Eliot, Chief of the Children's Bureau, identified children with mental retardation as a Title V program priority in her report to Congress in the mid-1950s. By 1955, services for people with mental retardation were a priority within the federal government. In 1961 President John F. Kennedy, who had a sister with mental retardation, appointed a panel on mental retardation. The panel's recommendation was to establish research centers to expand the knowledge base about mental retardation, construct University Affiliated Facilities to treat children and train providers, and provide money for training providers. |
| Martha May Eliot |
In 1963, P.L. 88-164, authorized construction of University Affiliated Facilities to "offer a complete range of services for the mentally retarded and to serve as a resource for the clinical training of physicians and other specialized personnel needed for research, diagnosis, training or care." Amendments to Title V, in 1965, provided grants for the multidisciplinary training of specialists to work with children having handicapping conditions.
Today, Title V is administered by the Maternal and Child Health Bureau as part of the Health Resources and Services Administration, Public Health Service, US Department of Health and Human Services. LEND projects are funded by training grants authorized under the Maternal and Child Health Services Block Grant, Title V of the Social Security Act. They are located within Centers of Excellence in Developmental Disabilities, formerly referred to as University Affiliated Programs. LEND projects are dedicated to training interdisciplinary health professionals who will be leaders in efforts "to improve the health status of children with, or at risk for, neurodevelopmental and related disabilities, and their families." The Center on Human Development and Disability, established in 1963, is one of these Centers.
Additional information related to the history and mission of the Maternal and Child Health Bureau can be found on their Web site at www.mchb.hrsa.gov/html/historymission.html
To learn more about Title V, visit the Title V Information System's Web site at https://performance.hrsa.gov/mchb/mchreports. For Title V History and the Title V Information System, click on "LEARN More".
A comprehensive history of Maternal and Child Health Training Programs "Building the Future: The MCH Training Program", can be found on the Web site for the National Center for Education in Maternal and Child Health, a research program of Georgetown University's Graduate Public Policy Institute: http://www.ncemch.org/spr/Training.pdf. This links to a PDF and requires Adobe Acrobat Reader® which can be downloaded free of charge from the Adobe Web site.
The LEND collaborates closely with the other four MCHB leadership training programs located at the UW to form the MCHB Leadership Consortium. These include:
The four MCHB training programs interact collaboratively to provide extensive resources to trainees in each leadership training program. The administrative structure that enables coordination of joint leadership training is the UW-MCH Leadership Consortium. The consortium is responsible for UW-MCH Leadership Training activities including the Administrative Skills Workshop, the Leadership Workshop, the Leadership Seminar Series, and the Mentored Leadership Projects.
Updated October 27, 2006
© 2001-2008 LEND at
the University of Washington. All rights reserved.
Box 357920, Seattle, WA 98195-7920;
206/685-1350; FAX 206/543-5771; e-mail: lend@u.washington.edu
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