UW LEND Program
Leadership Education in Neurodevelopmental and Related Disabilities
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WA State
Family Resources

Washington State

Children with Special Health Care Needs Program
website link
Promotes integrated systems of care for children with special health care needs in WA state. View description of CSHCN statewide activities, county and state data about CSHCN, and links to CSHCN coordinators in each of WA counties.

ARC of Washington
Advocates for quality services and necessary funding to meet the needs of people with developmental disabilities and their families.

WA State Medical Home
Information, tools, and resources that support a medical home for children and youth with special health care needs and their families.

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AUCD – The Association of University Centers on Disabilities
A network of interdisciplinary centers advancing policy and practice for and with individuals with developmental and other disabilities, their families, and communities.
News and Events
• Search other LEND programs across the state
Trainees and Virtual Trainees

Health Resources and Services Administration (HRSA)

MCHB – Maternal and Child Health Bureau
The HRSA Maternal and Child Health Bureau strives to improve the health of mothers, children and their families
Title V Information System

The MCH NAVIGATOR is a learning portal to online competency-based learning and health transofmation tools for maternal and childhealth professionals and students.

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Family Resources

Seattle Children's – The Center for Children with Special Needs
Find information on diagnoses, organize medical information with a Care Notebook, create a plan of care, find support through others with similar experiences, or look up community-based resources.

Developmental & Behavioral Pediatrics
Find an array of links to resources for families.


Graduate Certificate in Developmental Disabilities
This 15-credit Certificate in Developmental Disabilities prepares graduate students in health, behavioral, educational, and related fields of study to meet the needs of individuals with developmental disabilities (DD) across the lifespan.


Appendix 2-Sample Surveys
Care Coordination Measures Atlas
CMHI-MHI Adult Primary-Care - Full-Version
CMHI-MHI-Pediatric_- Full-Version
Family Centered Care Clinical_Report 2014
Family Centered Self Assessment Tool
Rural Health Network Profile Tool - December 2000
The National Survey of Children with Special Health Care Needs Chartbook 2009–2010
YVFWC CV Network Evaluation Plan Final


Cardiology Lecture from 3/3/15 (adobe connect)
Congenital Heart Disease Overview: Primer for Developmental Pediatricians (slides pdf)

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