UW LEND Program
Leadership Education in Neurodevelopmental and Related Disabilities
 
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Links

WA State
National
Family Resources

Washington State

Children with Special Health Care Needs Program
website link
Promotes integrated systems of care for children with special health care needs in WA state. View description of CSHCN statewide activities, county and state data about CSHCN, and links to CSHCN coordinators in each of WA counties.

ARC of Washington
www.arcwa.org
Advocates for quality services and necessary funding to meet the needs of people with developmental disabilities and their families.

WA State Medical Home
www.medicalhome.org
Information, tools, and resources that support a medical home for children and youth with special health care needs and their families.

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National

AUCD – The Association of University Centers on Disabilities
www.aucd.org
A network of interdisciplinary centers advancing policy and practice for and with individuals with developmental and other disabilities, their families, and communities.
News and Events
• Search other LEND programs across the state
Trainees and Virtual Trainees

Health Resources and Services Administration (HRSA)
www.hrsa.gov

MCHB – Maternal and Child Health Bureau
www.mchb.hrsa.gov
The HRSA Maternal and Child Health Bureau strives to improve the health of mothers, children and their families
Title V Information System

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Family Resources

Seattle Children's – The Center for Children with Special Needs
http://cshcn.org
Find information on diagnoses, organize medical information with a Care Notebook, create a plan of care, find support through others with similar experiences, or look up community-based resources.

Developmental & Behavioral Pediatrics
https://depts.washington.edu/dbpeds/Resources.html
Find an array of links to resources for families.

RHND

Appendix 2-Sample Surveys
Care Coordination Measures Atlas
CMHI-MHI Adult Primary-Care - Full-Version
CMHI-MHI-Pediatric_- Full-Version
Family Centered Care Clinical_Report 2014
Family Centered Self Assessment Tool
Parent Patient Activation Measure
Rural Health Network Profile Tool - December 2000
The National Survey of Children with Special Health Care Needs Chartbook 2009–2010
YVFWC CV Network Evaluation Plan Final

Videos

Cardiology Lecture from 3/3/15 (adobe connect)
Congenital Heart Disease Overview: Primer for Developmental Pediatricians (slides pdf)

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