Case Study: John
John is eligible for special education services through age 21. His IEP should address his educational, behavioral, and vocational needs. John's IEP should include a statement of transition services which are planned and organized activities to promote his movement from school to post-school services. The statement of transition services should include goals and objectives as well as a statement of the interagency responsibilities and linkages before he leaves the school setting. John should also receive vocational testing as part of his educational program.
Division of Developmental Disabilities
The Division of Developmental Disabilities provides an array of family support services designed to strengthen the family's role as primary caregivers and maintain family unity. These services include case management, respite care, behavior management, and other individualized services.
Supplemental Security Income, Medicaid, Medicaid Personal Care
John may be eligible for Supplemental Security Income, Medicaid, and the Medicaid Personal Care Program. Eligibility is based on parent's income until a child turns 18, at which time it is based on their own income.
Special Needs Trust
There are several important issue to consider when developing a will or estate plan for a child with a disability to ensure he/she does not become ineligible for government benefits. A Special Needs Trust will ensure that John continues to be eligible for entitlement programs. An inheritance or gift not protected by a trust arrangement could result in a loss of eligibility or a reduction in government benefits.
There are several organizations that offer support and information to the parents of children who have developmental disabilities: The Arc, Autism Society, National Information Center for Children with Disabilities, Washington PAVE, etc.
Camp Easter Seal through the Easter Seal Organization provides camping experiences for children with disabilities. Special Olympics also provides recreational activities for children.
Center on Human Development and Disability,
Clinical Training Unit, University of Washington,
Box 357920, Seattle, WA 98195-7920 email@example.com