Participation in Research & Brain Donation

Scientists want to learn more about the diseases that cause memory loss and dementia. Our center is looking for a variety of people who are willing to partner with us in Alzheimer's research. We think of study participants as our partners in the effort to find a prevention for neurological conditions that lead to dementia. New opportunities for studies or clinical trials appear over time, and these may involve different groups of patients. The goals of these studies may be to:

 

►Help us understand more about how these diseases change the brain

►Help us understand what triggers these changes

►Test treatments that may prevent or delay these changes.

 

ADRC Research Inquiries

Are you interested in learning about the enrolling in the ADRC observational study or ongoing clinical trials? Contact us:

 

Phone: 206-744-0588 or 855-744-0588 (toll-free) | Email: uwadrc@uw.edu

Mail:

UW Alzheimer's Disease Research Center

Box 359791

Harborview Medical Center 325 9th Avenue Seattle, WA 98104

 

Clinical Trials & Studies - Currently Enrolling

(for people living with Alzheimer's disease, Frontotemporal degeneration (FTD), Dementia with Lewy bodies, Normal cognition)

Please visit: http://depts.washington.edu/mbwc/research/clinical-trials

 

Registries (Nationwide)

Alzheimer’s Prevention Registry (nationwide)—Get information and updates about participating in future Alzheimer’s prevention trials.

GeneMatch (nationwide)—Enroll to get matched to Alzheimer’s genetics studies.

Brain Health Registry (nationwide)—Sign up for an online study of brain health and learn about possible research-study opportunities.

Alzheimer's Prevention Trials (APT) Webstudy (nationwide)—Enroll to track memory and thinking skills and learn about Alzheimer’s trials.

Get more information about these and other Alzheimer’s clinical trials. Or, call the Azheimer's Disease Education and Referral Center at 1-800-438-4380 (toll-free) or email adear@nia.nih.gov.

 

Veterans

Veterans interested in traumatic brain injury (TBI) research

Research hotline: 206-277-5566 or toll free at 800-329-8387 x65566

 

Brain Donation

Brain donation is the most precious and valuable gift that a patient and family can give, with unique benefits. A brain autopsy provides a family with a definitive neuropathological diagnosis of a loved one and an explanation of the symptoms. Importantly, the samples allow researchers to study the link between brain aging and neurodegeneration, and to perform analyses that will identify molecular targets for early detection, treatments, and cures. Please see the below options for brain donation and autopsy services.

 

Brain Donation to the UW Alzheimer's Disease Research Center (requires participation in study)

The UW ADRC primarily accepts brain donations from currently enrolled ADRC research participants and a limited number of non-ADRC research subjects.

For help in determining your eligibility, please contact the Keene research lab (uwnp@uw.edu)

 

Non-Research Brain Autopsy Inquiries

Visit the UW Medicine Pathology Brain Autopsy page for information on how to arrange a brain autopsy for postmortem characterization of various neurological diseases, done on a case-by-case basis by the UW Neuropathology lab.

For questions, please contact the Keene research lab (uwnp@uw.edu)

 

For members of the public interested in brain donation for research, please explore these further options:

Harvard Brain Tissue Resource

NIH Neurobiobank

OSHU Brain Bank

 

 

Military Veterans

The Pacific Northwest Brain Donor Network 

The UW ADRC Neuropathology Core runs a brain bank with the goal of helping researchers to understand the impact of mild traumatic brain injury (mTBI) on active-duty military members and veterans. Veterans can begin helping now by enrolling today, even though the tissue donation may occur many years from now.

Families and military veterans interested in the Pacific Northwest Brain Donor Network, please contact our staff at uwnp@uw.edu.

If you would like to make a financial gift to help the ADRC sustain this unique brain donor network, please visit our donations page and include a note about your specific interest in the ADRC Neuropathology Core.

 

Support Us

If you would like to make a financial gift to help the ADRC sustain brain banking, please visit our Donations page and include a note about your specific interest in the ADRC Neuropathology Core.

 

 

 

Dr. Dirk Keene, leader of the ADRC Neuropathology Core, talks to King5 News about how he thinks that neuropathological research will lead to ways to protect football players and athletes in contact sports from the cognitive impacts of brain injury.