Support Groups
Area Huntington Disease Support Groups
***********Toll Free HELPLINE: 1-888-264-HDSA***************
If it is your first time attending a support group, please contact the support group facilitator to let him or her know that you will be attending the group. The facilitator will give you information about the group and what you can expect at the meeting. Thank you!
Alaska
Alaska ShieldMarti Bradley, 907-258-5665, 907-222-5264
Additional Information: This group meets on the 3rd Wednesday of each month. Please call for directions.
Idaho
Carolyn Vogel, 208-266-026653270 Highway 200
Clarksfork, Idaho
Additional Information: This group meets on the 2nd Tuesday of each month at 5:30PM.
Montana
Patty Morris, 406-862-3977P.O. Box 94
Helena, MT 59937
Additional Information: Please call Patty for more information.
Joanne Friedenberg, 406-892-3179
232 Midway Drive
Colombia Falls, Mt 59912
North Valley Hospital
Canyon Room
Additional Information: This group meets on the 2nd Monday of each month. This group welcomes at risk, pre-symptomatic individuals, symptomatic individuals and family members. This group is run by the parent of an adopted adult child with HD.
Oregon
Karen Kovak, MS, 503-494-8307CDRC Genetics, 503-494-5606
P.O. Box 574
Portland, Oregon 97207
Additional Information: This group meets at Oregon Health Science University in the CDRC Building, Room 3110 in Portland. Meeting times are the 1st Thursday of each month from 6:30PM to 8:30PM.
Washington
Hans Wold, 425-353-4002, HWold@richpoor.netLinda Dixon, 360-653-6465
10909 107th Ave NE W
Mukilteo, WA 98223
425-356-1333
Additional Information: This group meets at Mukilteo Fire Station #1 at 5th & Lincoln in Mukilteo. Meeting times are the 2nd Tuesday of each month from 7PM to 8:30PM.
Tony Hoyt, 253-863-0217
Cosetta Stroud, 360-402-4633
Olympia, WA
Additional Information: This is a support group for at risk individuals and caregivers. This group meets at St. Pete’s/ Providence Hospital on the 3rd Friday of each month. The meetings are held on the 3rd floor Out Patient Surgery Building in Classroom #1. Please call for meeting time.
Catherine Kendall, LICSW, MSW, 206-221-5390
Seattle, WA
Additional Information: Catherine is a staff member of the University of Washington HD Center of Excellence. Catherine is a social worker with 22 years of experience. Catherine is offering a support group for at risk and symptomatic individuals with Neurogenetic disorders, including Huntington Disease. This group meets in the CHDD building, Room 454 on the 1st, 3rd and 5th (only some months have a 5th Thursday) Thursdays of each month from 2:00PM to 3:30PM.
Carin Mack, MSW, 206-230-0166
Seattle, WA
Greenwood Senior Activity Center, 206-297-0875
Additional Information: This is support group for caregivers that is sponsored by the Well Spouse Foundation. The group meets at the Greenwood Senior Activity Center located at 525 North 85th Street in Seattle, WA. Please contact Carin for meeting times.
Rebecca Logsdon, PhD, 206-685-1758
Seattle, WA
Co-facilitator: Amelia Schultz, PhD, MSW, 206-363-4304
Additional Information: This group provides support for people at risk for HD and those diagnosed with HD. Spouses and supportive others are welcome to attend. This group meets on the 2nd Monday of each month from 6:30PM to 8:00PM in the Conference Room at the Swedish Medical Center in Ballard.
Rhea Kline, 509-747-4735
Nick Suksdorf, (evenings) 509-838-6369
Spokane, WA
Additional Information: This support group is for people with HD, at risk for HD, and their families, friends, and caregivers. This group meets on the 3rd Wednesday of the even months (February, April, June, August, October and December) from 7:00PM to 8:00PM at the Deaconess Health and Educational Building on West 910 5th Ave. in Spokane.
Tom Gillihan, 360-425-8477
Co-facilitator: Russ Kastberg, 360-425-9338
Vancouver, WA
Additional Information: This group is for caregivers. The group meets on the 3rd Thursday of each month from 6:30PM to 8:30PM at the Northside Baptist Church at 5201 NE Minnehaha St. (63rd) in Vancouver.
Joyce Korevaar, (H) 509-965-8934, (W) 509-225-4429
Fax: 509-575-2284
Yakima, WA
Additional Information: This group meets at the Women’s Health Center next to Yakima Memorial Hospital. Cross streets are Tieton Drive and South 28th Ave. This group meets on the 3rd Saturday of each month (no meetings in July or August).
Area Huntington Disease Support Contact People
***********Toll Free HELPLINE: 1-888-264-HDSA***************
Idaho
Peggy Webb, 208-683-2704132 County Rd 22
Atoll, Idaho 83801
Carolyn Vogel, (W) 208-266-0266
Clarkfork, Idaho
Washington
Joan Greiger, 360-683-3798
Clallam County
Angie Gordon, 360-697-6870
Kitsap County
Amelia Schultz, PhD, MSW, 206-363-4304
Seattle, WA
Russ Kastberg, 360-425-9338, rkastberg@kalama.com
110 Bellevue Place
Kelso, WA 98626
Tom Gillihan, 360-425-8477
Southwest, WA
Bill Pew, 425-745-9468
Mukilteo, WA
Patti Wolf, (H) 509-663-0399, (W) 509-548-7622
1614 Horse Lake RD
Wenatchee, WA 98801
Joyce Korevaar, (H) 509-965-8934, (W) 509-225-4429
226th N 73rd Ave
Yakima, WA 98408
Area Ataxia Support Groups
Seattle Ataxia Support Group
Milly Lewendon, Group Leader
(425) 823-6239
mmlewendon@comcast.net
Area Charcot-Marie-Tooth Support Groups
Seattle Charcot-Marie-Tooth Support Group
UW Hospital Plaza Café
Ruth Oskoloff, Group Leader
(206) 598-6300
rosk@u.washington.edu