Culturally-Competent Care
Articles
Adler, N., Boyce, W., Chesney, M., Folkman, S. & Syme, S. (1993). Socioeconomic inequalities in health: No easy solution. JAMA 269(24): 3140-45.
PubMed Abstract.
Alford, J. & Catlin, G. (1993). The role of culture in grief. J Soc Psych 133(2): 173-84.
PubMed Abstract.
Barker, J. & Clark, M., (Eds.) (1992). Cross-cultural medicine: A decade later. West J Med 157(3): all pages. The entire issue is devoted to cross-cultural medicine. Individual articles are listed under relevant topics.
Barrett, R. & Heller, K. (2001). Death and dying in the black experience: An interview with Ronald K. Barrett. Innovations in End-of-Life Care 3(5): Available at. www.edc.org/lastacts.
Beech, L. (1983). Eastern and Western attitudes in the management of death and the Shanti Project as an experimental synthesis. Diss Abs Int'l 43(9-b): 3013.
Berger, J. (1998). Culture and ethnicity in clinical care. Arch Int Med 158(19): 2085-90.
PubMed Abstract.
Berlin, E. & William, C. (1983). A teaching framework for cross-cultural health care. West J Med 139(6): 934-38.
PubMed Abstract.
Blackhall, L., Murphy, S., Frank, G., Michel, V. & Azen, S. (1995). Ethnicity and attitudes toward patient autonomy. JAMA 274(10): 820-25.
PubMed Abstract.
Boyce, J., Hodnicki, D. & Ferrell, J. (1999). Patterns of resistance: African American mothers and adult children with HIV illness. Scholarly Inquiry for Nursing Practice 13(2): 111-133.
Brownlee, A. (1978). The family and health care: Explorations in cross-cultural settings. Soc Work Hlth Care 4(2): 178-9.
Burrs, F. (1995). The African American experience: Breaking the barriers to hospices. Hospice J 10(2): 15-18.
PubMed Abstract.
Callahan, D. (1995). Frustrated mastery - The cultural context of death in America. West J Med 163(3): 226-230.
PubMed Abstract.
Candelaria, E. & Adkins, E. (1994). A Mexican-American perspective on death and the grief process. The Forum Sept/Oct: 7-19.
Carrese, J. & Rhodes, L. (1995). Western bioethics on the Navajo reservation: Benefit or harm? JAMA 274: 826-9.
PubMed Abstract.
Cassetta, R. (1994). Cultural competency: Essential to HIV/AIDS care and prevention. Am Nurse 26(7): 15.
PubMed Abstract.
Chatters, L. (1994). HIV/AIDS within African American communities: Diversity and interdependence. Health Education Quarterly 20(3): 321-326.
Chester, B. & Holtan, N. (1992). Working with refugee survivors of torture. West J Med 157: 301-304.
PubMed Abstract.
Chin, D. & Kroesen-Kendall, W. (1999). Disclosure of HIV infection among Asian/Pacific Islander-American women: Cultural stigma and support. Cultural Diversity and Ethnic Minority Psychology 5(3): 222-235.
Cohen, M. & Palos, G. (2001). Culturally-competent care. Seminars in Oncology Nursing 17(3): 153-158.
PubMed Abstract.
Cowles, K. (1996). Cultural perspectives of grief: An expanded concept analysis. J Adv Nurs 23: 287-94.
PubMed Abstract.
Crawley, L. (2001). Palliative care in African-American communities. Innovations in End-of-Life Care 3(5): Available at. www.edc.org/lastacts.
Crawley, L., Marshall, P., Lo, B., & Koenig, B. (2002). Strategies for culturally-effective end-of-life care. Ann Intern Med 136(9): 673-9.
PubMed Abstract.
Crawley, L., Payne, R., Bolden, J., Payne, T., Washington, P. & Williams, S. (2000). Palliative and end-of-life care in the African American community. JAMA 284(19): 2518-21.
PubMed Abstract.
Curtis, J. & Patrick. D. (1993). Race and survival from AIDS: A synthesis of the literature. Am J Pub H 83: 1425-28.
PubMed Abstract.
Cuthbert-Allman, C. & Chausse, M. (1996). Crossing cultural barriers to care for people with AIDS. Caring 15(8): 14-8.
PubMed Abstract.
Feldman, J. (1992). The French are different: French and American medicine in the context of AIDS. West J Med 157(3): 345-9.
PubMed Abstract.
Fetters, M. (1998). The family in medical decision making: Japanese perspectives. J Clin Ethics 9(2): 132-46.
PubMed Abstract.
Fong, C. (1985). Ethnicity and nursing practice. Top Clin Nurs 7(3): 1-10.
PubMed Abstract.
Freeman, H. & Payne, R. (2000). Racial injustices in health care. The New England Journal of Medicine 342(14): 1045-46.
PubMed Abstract.
Gordon, A. (1996). Hospice and minorities: A national study of organizational access and practice. Hospice J 11(1): 49-69.
PubMed Abstract.
Graison, B., O'Leary, L. & Wagner, J. (1984). Cultural assessment: How well do we know our patients. J Nephrol Nurs 1(3): 132-35.
PubMed Abstract.
Hallenbeck, J. & Goldstein, M. (1999). Decisions at the end of life: Cultural considerations beyond medical ethics. Generations Spring: 24-29.
Hallenbeck, J., Goldstein, M. & Mebane, E. (1996). Cultural considerations of death and dying in the United States. Clin Ger Med 12(2): 393-406.
PubMed Abstract.
Hepburn, K. & Reed, R. (1995). Ethical and clinical issues with Native-American elders: End-of-life decision making. Clin Ger Med 11(1): 97-111.
PubMed Abstract.
Hopp, F. & Duffy S. (2000). Racial variations in end-of-life care. JAGS 48: 658-663.
PubMed Abstract.
Jecker, N., Carrese, J. & Pearlman, R. (1995). Caring for patients in cross-cultural settings. Hastings Ctr Rep 25(1): 6-14.
PubMed Abstract.
Kagawa-Singer, M., Martinson, M. & Munet-Vilaro, F. (1998). A multicultural perspective on death and dying. Onc Nurs For 25(10): 1751-63.
Karim, K., Bailey, M. & Tunna, K. (2000). Non-white ethnicity and the provision of specialist palliative care services: Factors affecting doctors' referral patterns. Palliative Med 14(6): 471-48.
PubMed Abstract.
Keovilay, L., Rasbridge, L. & Kemp, C. (2000). Cambodian and Laotian health beliefs and practices related to the end of life. J Hospice Pall Med 2(4): 143-51.
Kleinman, A., Eisenberg, L. & Good, B. (1978). Culture, illness, and care: Clinical lessons from anthropologic and cross-cultural research. Ann Int Med 88(2): 251-58.
PubMed Abstract.
Koenig, B. & Gates-Williams, J. (1995). Understanding cultural difference in caring for dying patients. West J Med 163(3): 244-249.
PubMed Abstract.
Krakauer, E. & Truog, R. (1997). Mistrust, racism, and end-of-life treatment. Hastings Cent Rep 27(3): 23-5.
PubMed Abstract.
Kreier, R. (1999). Crossing the cultural divide: A physician's need to be sensitive to a patient's cultural concerns is amplified when the illness is terminal and end-of-life issues are at stake. Amer Med News 1/25/99. : Available on the AMA website . www.ama-assn.org/sci.pubs/amnews/pick_99/fadd0125.htm.
Leininger, M. (1993). Towards conceptualization of transcultural health care systems: Concepts and a model. J Transcult Nurs 4(2): 32-40.
PubMed Abstract.
Loudon, R., Anderson, P., Gill, P. & Greenfield, S. (1999). Educating medical students for work in culturally-diverse societies. JAMA 282(9): 875-880.
PubMed Abstract.
Martin, M., Rissmiller, P. & Beal, J. (1995). Health-illness beliefs and practices of Haitians with HIV disease living in Boston. J Assoc Nurses AIDS Care 6(6): 45-53.
PubMed Abstract.
McKusick, L. (1992). Cultural diversity training on the HIV frontline. HIV Frontline 10 (Oct/Nov).
McKusick, L. & Tafoya, T. (1992). Steps to survival: Cross-cultural healing elements in the treatment of AIDS. HIV Frontline 9 (July/Aug).
McNeil, C. (1992). From migration to palliation: Uncharted waters. J Pall Care 7(4): 26-30.
PubMed Abstract.
McNeil, C. (1990). Culture: The impact on health care. J Cancer Education 5(1): 13-16.
PubMed Abstract.
Moser, M. (1975). Death in Chinese: A two-dimensional analysis. J Thanatology 3(3-4): 169-85.
Munet-Vilaro, F. (1998). Grieving and death rituals of Latinos. Onc Nurs For 25(10): 1761-63.
PubMed Abstract.
Munro-Ludders, B. (1992). Deaf and dying: Deaf people and the process of dying. J Amer Deaf Rehab Assoc 24(1): 31-41.
Neubauer, B. & Hamilton, C. (1990). Racial differences in attitudes toward hospice care. Hospice J 6: 37-48.
PubMed Abstract.
Nilchaikovit, T., Hill, M. & Holland, J. (1993). The effects of culture on illness behavior and medical care: Asian and American differences. Gen Hosp Psych 15(1): 41-50.
PubMed Abstract.
Nishimoto, P. & Foley, J. (2001). Cultural beliefs of Asian Americans associated with terminal illness and death. Seminars in Oncology Nursing 17(3): 179-89.
PubMed Abstract.
Noggle, B. (1995). Identifying and meeting needs of ethnic minority patients. Hosp J 10(2): 85-93.
PubMed Abstract.
O'Connor, B. (1996). Promoting cultural competence in HIV/AIDS care. J Assoc Nurses AIDS Care 7(Suppl 1): 41-53.
PubMed Abstract.
Payne, R., Payne, T. & Heller, K. (2001). The Harlem palliative care network: An interview with Richard Payne and Terrie Reid Payne. Innovations in End-of-Life Care 3(5): Available at. www.edc.org/lastacts.
Pickett, M. (1993). Cultural awareness in the context of terminal illness. Cancer Nursing 16(2): 102-106.
PubMed Abstract.
Price, J. & Cordell, B. (1994). Cultural diversity and patient teachings. J Cont Ed Nurs 25(4): 163-66.
PubMed Abstract.
Reinert, B. (1986). The health care beliefs and values of Mexican-Americans. Home Hlthcr Nurs 4(5): 23-31.
PubMed Abstract.
Rothschild, S. (1998). Cross-cultural issues in primary care medicine. Dis Mon 44(7): 293-319.
PubMed Abstract.
Ryan, J. (1983-84). Silent Barter. Omega Examines process of dying in a Squamish Indian society, a Plains Indian society, and an Irish society: 145-54.
Sarhill, N., LeGrand, S., Islambouli, R., Davis, M. & Walsh, D. (2001). The terminally ill Muslim: Death and dying from the Muslim perspective. American Journal of Hospice & Palliative Care 18(4): 251-5.
PubMed Abstract.
Seibert, P., Stridh-Igo, P. & Zimmerman, C. (2002). A checklist to facilitate cultural awareness and sensitivity. J Med Ethics 28(3): 143-146.
PubMed Abstract.
Shanahan, M. & Brayshaw, D. (1995). Are nurses aware of the differing health care needs of Vietnamese patients? J Adv Nurs 22(3): 456-464.
PubMed Abstract.
Siefken, S. (1993). The Hispanic perspective on death and dying: A combination of respect, empathy, and spirituality. Pride Inst J Long Term Home H Car 12(2): 26-28.
PubMed Abstract.
Trill, M. & Holland, J. (1993). Cross-cultural differences in the care of patients with cancer. Gen Hosp Psych 15(1): 21-30.
PubMed Abstract.
Wright, F., Cohen, S. & Caroselli, C. (1997). Diverse decisions: How culture affects ethical decision making. Crit Care Nurs Clin 9(1): 63-74.
PubMed Abstract.
Books
Andrews, M. & Boyle, J. (1995). Transcultural concepts in nursing care (2nd ed). Philadelphia, PA: J.B. Lippincott.
Boyd-Franklin, N., Aleman, J., Jean-Gilles, M. & Lewis, S. (1995). Cultural sensitivity and competence: African-American, Latino, and Haitian families with HIV/AIDS. In: Boyd-Franklin, N., Steiner, G., et al., (Eds.). Children, families and HIV/AIDS: Psychosocial and therapeutic issues. New York, NY: The Guilford Press.
Braun, K., Pietsch, J. & Blanchette, P. (2000). Cultural issues in end-of-life decision making. Thousand Oaks, CA: Sage Publications.
Clark, D. (1993). Cultural issues in terminal care. Philadelphia, PA: Open University Press.
Committee on understanding and eliminating racial and ethnic disparities in health care, Board on Health Sciences Policy, Institute of Medicine (2003). Smedley BD, Stith, AY, and Nelson AR, (Eds.). Unequal treatment: confronting racial and ethnic disparities in health care.. Washington DC National Academies Press.
Cross-Cultural Health Care Program (2000). Death and dying in ethnic America. Seattle, WA: Cross-Cultural Health Care Program.
Danis, M. (2001). The roles of ethnicity, race, religion, and socioeconomic status in end-of-life care in the ICU. In: Curtis, J. & Rubenfeld, G., (Eds.). Managing death in the ICU. New York, NY: Oxford University Press.
Die-Trill, M. (1998). The patient from a different culture. In: Holland, J., et al., (Eds.). Psycho-oncology. New York, NY: Oxford University Press.
Ellis, R. (1998). Multicultural grief counseling. In: Doka, K. & Gordon, J., (Eds.). Living with grief: Who we are and how we grieve. Florence, KY: Brunner-Routledge.
Fadiman, A. (1997). The spirit catches you and you fall down: A Hmong child, her two doctors, and the collision of two cultures. New York, NY: The Noonday Press.
Galanti, G. (1997). Caring for patients from different cultures: Case studies from American hospitals. Philadelphia, PA: University of Pennsylvania Press.
Geiger, J. & Davidhizar, R. (1995). Transcultural nursing: Assessment and intervention. St. Louis, MO: Mosby.
Gropper, R. (1996). Culture and the clinical encounter: An intercultural sensitizer for the health professions. Yarmouth, MN: Intercultural Press.
Irish, D., Lundquist, K. & Nelsen, V. (1993). Ethnic variations in dying, death, and grief: Diversity in universality. Philadelphia, PA: Taylor & Francis.
Lipson, J., Dibble, S. & Minarik, P. (1998). Culture and nursing care: A pocket guide. San Francisco, CA: UCSF Nursing Press. Includes a set of guidelines for working with a variety of cultures on the topics of health, illness, symptom expression, self-care, birth, death, religion, family participation in care, etc. Groups included are American Indians, Arab Americans, Black/African Americans, Brazilians, Cambodians, Central Americans, Chinese Americans, Colombians, Cuban Americans, Ethiopians, Filipinos, Gypsies, Haitians, Hmong, Iranians, Japanese Americans, Koreans, Mexican Americans, Puerto Ricans, Russians, Samoans, South Asians & Vietnamese..
Michal-Johnson, P. & Perlmutter-Bowen, S. (1992). The place of culture in HIV education. In: Edgar, T., Fitzpatrick, M., et al., (Eds.). AIDS: A communication perspective. Hillsdale, NJ: Lawrence Erlbaum Associates, Inc..
Parry, J. & Shen-Ryan, A. (1995). A cross-cultural look at death, dying, and religion. Chicago, IL: Nelson-Hall.
Pipher, M. (2002). The middle of everywhere: The world’s refugees come to our town. New York, NY: Harcourt, Inc..
Poulson, J. (1998). Impact of cultural differences in care of the terminally ill. In: MacDonald, N., (Eds.). Palliative medicine: A case-based manual. New York, NY: Oxford University Press.
Roberts, T. (1995). African American gay males with HIV/AIDS: Building upon cultural capacities to survive. In: Lloyd, G. & Kuszelewica, M., (Eds.). HIV disease: Lesbians, gays, and the social services. New York, NY: Haworth Press, Inc..
Spector, R. (1991). Cultural diversity in health and illness (3rd ed). Norwalk, CT: Appleton & Lange.
Videos
Midwest Bioethics Center
www.midbio.org.
Available on their website:
Nick and Sheila and the world: A case study about patient rights and cultural diversity.
Websites
Access to End of Life Care: A Community Initiative - www.access2eolcare.org. ACCESS is dedicated to improving end-of-life care services for the ethnically diverse populations of the San Francisco Bay Area. The website includes an extensive bibliography, resource links, and information about outreach services available in the San Francisco Bay area.
Asian and Pacific Islander Wellness Center - www.apiwellness.org. This San Francisco organization is primarily focused on education and prevention. They have produced a free, downloadable pamphlet, Clinician's Guide to Working with Asians and Pacific Islanders Living with HIV . They also provide links with API organizations throughout the country.
Association of American Indian Physicians - www.aaip.com. AAIP is dedicated to pursuing excellence in Native American healthcare by promoting education in medical disciplines and honoring traditional Native healing methods. The website has links to many resources and opportunities for Native American patients and healers/physicians, as well as educational resources about HIV/AIDS and other diseases.
BlackAIDS.org - www.kujisource@aaainstitute.org. African American AIDS Policy and Training Institute website.
Cross-Cultural Health Care Program - www.xculture.org. The mission of CCHCP is to "serve as a bridge between communities and health care institutions to ensure full access to quality health care that is culturally and linguistically appropriate." CCHCP provides cultural competency trainings, interpreter trainings, a library, books, videos and articles, and translation services. Voices of the Community profiles are available online. The communities profiled include Arab, Cambodian, Eritrean, Ethiopian, Lao, Mien, Oromo, Samoan, Somali, South Asian, Soviet Jewish, and Ukranian. Longer booklets can be ordered which include information about Cambodian, Chinese, Filipino, Hmong, Japanese, Lao, and Vietnamese communities.
Cuidados Paliativos, Complexo Hospitalario Xeral-Cies - www.paliativos.com. A Spanish language palliative care hospice site provided by Complexo Hospitalario Xeral-Cies of Vigo, Spain. This site provides a portal to the Spanish language forum which is part of the Inter-Institutional Collaborating Network on End-of-Life Care (IICN). You can search the Growth House database using a Spanish language selection menu from this site.
Diversity Rx - www.diversityrx.org. This site describes its mission as “promoting language and cultural competence to improve the quality of health care for minority, immigrant, and ethnically diverse communities.” The website has information on cultural-competency models and practices, as well as curricula and training programs. A report entitled Multicultural Health Best Practices is also available.
Ethnomed - www.ethnomed.org. This site contains information about cultural beliefs, medical issues, and other related issues pertinent to the health care of recent immigrants to Seattle. Culture specific pages include Amharic, Cambodian, Chinese, Eritrean, Ethiopian, Mexican, Oromo, Somali, Tigrean, and Vietnamese. The site also includes clinical topics, journal articles, immigration, and general information about cross-cultural care.
Growth House - www.growthhouse.org/pages.html. This is a comprehensive international clearinghouse of information regarding life-threatening illness and end-of-life care. Topics include palliative medicine, advance directives, grief, and professional resources. Articles, resources lists, a sophisticated search feature and extensive international web links are available. Asian AIDS resources are covered well.
HIV Basics - hiv.hypermart.net. Investigacion Basica y Tratamiento de la Infeccion por HIV.
HRSA HIV/AIDS Bureau - www.hab.hrsa.gov. The site contains publications and resources on HIV/AIDS, including the comprehensive book A Clinical Guide to Supportive and Palliative Care for HIV/AIDS.
Initiative to Improve Palliative Care for African Americans - www.iipca.org. The mission of IIPCA is to promote research, education, and policies for the improvement of care for African American patients facing serious illness.
Manager's Electronic Resource Center - erc.msh.org/. Designed to assist health care organizations in providing high quality, culturally-competent services to multi-ethnic populations. Includes The Provider's Guide to Quality and Culture. Cultural information is available about African Americans, Asian Americans, Hispanic/Latino Americans, Native Americans, and Pacific Islanders.
Midwest Bioethics Center - www.midbio.org. The community-based Midwest Bioethics Center is dedicated to integrating ethical considerations into health care decision making. It offers workshops and educational programs for professionals and lay people. It also assists health care providers in integrating ethics into clinical work and administrators in integrating ethics into organizations. The Center recently hosted a summit on cultural diversity in health care. Many books and videos are available to assist in communication, advance directives, and palliative care issues.
National Minority AIDS Council (NMAC) - www.nmac.org. This national AIDS organization specifically develops its programs and services for community-based organizations serving people-of-color affected by HIV/AIDS. Their website provides information about NMAC conferences (including the U.S. Conference on AIDS), public policy efforts, research and treatment advocacy programs, technical assistance activities, and publications.
Sociedad Espanola de Cuidados Paliativos - www.secpal.com. SECPAL is the national professional organization for palliative care in Spain. Website is in Spanish and includes information about regional services as well as international links.
University of California-San Francisco, School of Medicine - medicine.ucsf.edu/resources/guidelines/culture.html. This website has a good cross-cultural medicine resource page.
Last Updated 7/1/04 at 3:05 PM
