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Ethics
and Professionalism Benchmarks for Pediatrics
Many of the ethical principles that apply to caring
for adults also apply to caring for children. These
benchmarks outline several topics unique to pediatric
patients that are highlighted in your clerkship. This
is not an all-inclusive list. Useful links to additional
cases are also included in the final section of the
document.
ETHICS:
Parental rights to guide care
Know
Parental
rights:
Society has given the right of making medical care decisions to parent because
they are viewed as uniquely capable of determining the child's best interest.
This included authorizing treatments AND refusing treatments (even life sustaining
treatments).
Limitations to parental rights:
If the parents' actions appear not to be in the child's best interest, the
parents' rights can be challenged. You have the ethical responsibility to advocate
for the patient if you believe the parents' actions are imminently dangerous,
neglectful or abusive.
-
Fully
elicit parents' reasons for therapeutic decisions.
-
Explore perceived differences in an open and
accepting manner (even if you really disagree).
-
Assess whether parents are capable/competent
to make medical decisions
-
Determine (through conversations with your resident
and faculty supervisors) whether there are
concerns about
the parents advocating for the child's
best interests.
Child
abuse reporting
Know
Caregivers'
legal responsibility:
Physicians who care for children have a legal
obligation to report suspected child abuse. It
is not your responsibility to determine whether
the abuse
occurred, what person may have perpetrated the
abuse or any other specific details. This
is a critical role to understand. There are often
complicated social interactions and caring for
abused children is a team effort. We work
with nurses, social
workers, other physicians and child protective
services as a team to help determine what happened.
If you do NOT report it and you suspect
it you are legally liable.
-
Be vigilant about this issue
-
Be non judgmental-just because you suspect abuse
doesn't
mean it happened OR you know who the abuser
might be.
-
Be honest about what you
see with the parents
and ask for
their explanation
of your findings.
-
Discuss your observations
with your faculty
supervisor
-
Clearly
document
what you
see
and what
you
are told
-
You SHOULD NOT disclose
your
concerns
to
the family
before
discussing
this
you're
your
supervisors…discussing
these issues is the faculty/attending's
responsibility.
Care of adolescent patients
Know
General approach:
Adolescent patients are capable of participating and guiding their medical
therapy. The extent of each patient's ability will depend on the developmental
maturation of the patient. In general, parents retain the responsibility to
direct care for patients less than 18 years of age unless there is disagreement
about the course of therapy.
Special considerations:
As a caregiver for pediatric patients you should be able to define the following
special categories of patients:
As a caregiver for pediatric patients you should be
able to define the difference between:
1.
Informed consent: requires that the patient
be competent to make health care decisions,
physician disclosure
of relevant information, patient
understanding of the information and a voluntary,
un-coerced patient
decision.
2. Parental permission: parents give
permission for therapy provided to
their children. The same standards
and procedures for giving informed
consent to
a competent patient apply
3. Child Assent: helps patients acquire
a developmentally appropriate understanding
of her condition, telling
the patient what he can expect from
the treatment, assessing the patient's
understanding of the situation,
including determining whether they
feel pressured to accept/reject the
treatment. It also includes
soliciting the patient's willingness
to undergo the procedure (you can
see how this is probably a team
effort with the parents!) This approach
is not limited to adolescent patients
but is appropriate for
ALL pediatric patients.
-
Use appropriate language for the patient's developmental
level when explaining medical care options.
-
Respect the patient's privacy.
-
Discuss sensitive issues when you are alone with
older patients (e.g. drug or alcohol use,
sexual practices/preferences,
suicide risk
etc.)
-
Obtain parental
permission
about
therapeutic interventions
-
Obtain
child assent
from patients
about therapeutic
interventions.
PROFESSIONALISM
Admitting Mistakes
Know
A medical error or mistake is a preventable or unexpected
outcome of a medical treatment. An adverse event is
a side effect that is may occur in a certain percentage
of cases that are treated.
Medical mistakes are usually
not due to negligence. They arise
from incomplete knowledge base,
an error
of judgment, lapse in attention
or a "systems" error.
You have a professional responsibility
as a health care provider to
disclose errors to your patients.
Although it is difficult and
uncomfortable disclosing
errors, most patients appreciate
honesty (wouldn't you?). Loss
of trust usually arises from
nondisclosure
of errors.
When you identify a medical error:
-
Determine the effect (actual or potential) on
the patient
-
Investigate/identify possible causes
-
Explain in a calm, unhurried, truthful
and apologetic
manner that an error has occurred.
-
Answer all questions
the patient
has and be open for
additional
questions
in the future
-
Provide
information
about
follow up of the
incident
-
Accept
responsibility and apologize
if necessary
Balancing Learning and Care for the patient
Know
As a student is a common dilemma and each case
should be approached on an individual basis.
The primary conflict
in these cases is the
care for THIS patient vs. the need to learn
to care for FUTURE patients. Balancing
the risk to the patient
you are caring for presently compared to what
you will learn must be determined.
There is an adage "see one, do one, teach one",
that may or may not be
appropriate based on
the risk to the patient
and your own unique abilities.
You must
be honest and provide
adequate informed consent.
An additional stressor
for most students is
also balancing
care for the patient
and being evaluated.
-
Provide
informed consent: - You
should clearly indicate who will be doing the
procedure and what the level of training
is. You must answer
additional follow
up questions (like…how
many of these have you
done?).
-
-
Communicate
your abilities clearly with your supervisors
-
First
do no harm to your patients
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