Ben Wilfond, MD
Certified Pediatric Pulmonologist
Professor and Head, Division of Bioethics, Department of Pediatrics, University of Washington School of Medicine
Director, Treuman Katz Center for Pediatric Bioethics
Adjunct Professor, Department of Medical History and Ethics, University of Washington School of Medicine
Benjamin S Wilfond, MD is the director of the Treuman Katz Center for Pediatric Bioethics, Chief of the Division of Bioethics, and attending physician at the Seattle Children’s Hospital. Dr. Wilfond is also a Professor for the Department of Pediatrics and an Adjunct Professor for the Department of Medical History and Ethics at the University of Washington School of Medicine. He conducts research on ethical and policy issues related to genetic testing, genetic research, and pediatric research. He recently has worked on issues related to newborn screening, disclosure of genetic research results, pediatric biobanks, and direct to consumer advertising of genetic tests.
He received his MD from UMDNJ-New Jersey Medical School and trained in Pediatrics, Pediatric Pulmonology and Medical Ethics at the University of Wisconsin. As a faculty member at the University of Arizona, he was the director of the Apnea/Bronchopulmonary dysplasia Clinic and the Co-Director of the Tucson Cystic Fibrosis Center. He has been on the medical staff at the NIH Clinical Center and the Pediatric Pulmonary Clinic and the Cystic Fibrosis Center at Johns Hopkins University.
He is currently on Data Monitoring Committees for the Cystic Fibrosis Foundation Therapeutic Development Network and for National Heart, Lung and Blood Institute studies.
Elected to the American Pediatrics Society in 2006
Editorial Board, American Journal of Bioethics
Bookman EB, Langehorne AA, Eckfeldt JH, Glass KC, Jarvik GP, Klag M, Koski G, Motulsky A, Wilfond B, Manolio TA, Fabsitz RR, Luepker RV. Reporting genetic results in research studies: Summary and recommendations of an NHLBI working group. Am J Med Genet. 2006;140A:1033-1040.
Botkin JR, Clayton EW, Fost NC, Burke W, Murray TH, Baily MA, Wilfond BS, Al Berg A, Ross L. Newborn screening technology: Proceed with caution. Pediatrics. 2006;17:1793-1799.
.Grosse SD, Boyle CA, Kenneson A, Khoury MJ, Wilfond BS. From public health emergency to public health service: The implications of evolving criteria for newborn screening panels. Pediatrics. 2006;117:923-929.
Henderson GE, Easter MM, Zimmer C, King NMP, Davis AM, Rothschild BB, Churchill LR, Wilfond BS, Nelson DK. Therapeutic misconception in early phase gene transfer trials. Soc Sci Med. 2006:62:239-253.
Loud JT, Weissman N, Giusti R, Wilfond BS, Burke W, Greene MH. Deliberate deceit of family members: A challenge to providers of clinical genetics services. J Clin Oncol. 2006;24:1643-1646.
Ravitsky V and Wilfond BS. Disclosing individual genetic results to research participants. Am J Bioethics. 2006;6(6):8-17.
Wade CH and Wilfond BS. Ethical and clinical practice dilemmas for genetic counselors associated with direct-to-consumer marketing of genetic tests. Am J Med Gen. 2006;142(4):284-292.