Arthritis Source
The Arthritis Source (online at www.orthop.washington.edu) is
a Web-based information resource created to help self-motivated,
geographically dispersed learners ("learners at large") find information about arthritis. It was developed to support the needs of
everyone who interacts with it: the users ("learners"), the site managers,
and the content creators ("teachers").
The Arthritis Source represents an important genre of educational technology--a Web-based educational information system--as well as an
effort to reach learners beyond traditional academic boundaries. Over 2800 people from around the world visit the Arthritis Source every
day (on average). For example, on one day in December 2001, we had visitors from 44 countries (see world map of visitors).
For the past two years, PETTT has used a science of learning framework to explore the
development of a unique content creation system that meets the needs of both learners and
teachers using the Arthritis Source. Developed by PETTT, this system of creating,
organizing, and maintaining useful information has the potential to be of service to
many information domains on campus.
The Arthritis Source meets PETTT's goals in several direct ways:
- Explore the interplay of technology and pedagogy in real settings: The
Arthritis Source was created by a UW faculty member, Dr. Matsen of Orthopaedics, who
had a strong desire to share information with learners outside the university's
boundaries. PETTT has focused on exploring how to discover and meet the learning
needs of learners-at-large, and how campus faculty members can use technology to
easily and effectively address these needs.
- Facilitate thoughtful and innovative educational technology uses: This system supports our vision of a sustainable and scalable Web-based
educational source that will allow other faculty members to share information in
similar ways.
- Make strong connections between research, design, and practice: PETTT
developed the Arthritis Source in response to the results of our research about
learners at large and literature about patient education.
We are now researching the effectiveness of its design
and organization. Our iterative cycle of evaluation, design, and research helps us
ensure that learners are successfully using the site and that the site changes in
response to the learners' needs.
Collaborators
Examples of work
Research
Moving Toward Knowledge Building Communities in Health Information Website Design
by Tracey Wagner, Jennifer Turns, Kristen Shuyler, and Aaron Louie
University of Washington Department of Orthopaedics and Sports Medicine 2002 Research Report
August 2002
Read: Full paper (PDF; pages 55-57 in a 76-page document)
Transforming Patient Education at the University of Washington and Beyond
by Kristen Shuyler, Tracey Wagner, Scott Macklin, Aaron Louie, Brett Shelton, Eric Maddox, Jennifer Turns, and Frederick A. Matsen III, M.D.
May 2002
Read: Full paper (PDF; 26 pages)
Asynchronous Web-based Patient-centered Home Telemedicine System
Technology Adoption as Process: A Case of Integrating an Information-Intensive Website into a Patient Education Helpline
Moving Toward Knowledge-building Communities in Health Information Website Design
Continuing Medical Education: Observations of
CME Course on Feb. 8 and 9, 2001
by Jennifer Turns and Tracey Wagner
March 2001
Read: Full paper (PDF; 24 pages)
Understanding Users of a Medical Information Website: A Phone Interview Study of Arthritis Source Users
by Kristina Liu, Jennifer Turns, and Tracey Wagner
2001
Read: Full paper (PDF; 50 pages)
Online Surveys: Guidelines and Summary of Research
by Julianne Fondiller
March 2000
Download: Full paper (Microsoft Word document; 17 pages)
Improving Search Engine Position of Internet Educational Materials: Design Heuristics and Indexing Methods
by Aaron J. Louie, Jacob S. Burghardt, Ralph Warren, Jr., Scott K. Macklin, and Frederick A. Matsen III, M.D.
February 2000
Read: Full paper (PDF; 17 pages)
Synthesis of Results of "Interview with Designer": Goals of the Designer and Implications
for Research & Re-Design
by Julianne Fondiller, Jennifer Turns, Jake Burghardt, Brett Shelton, and Scott Macklin
January 2000
Download: Full paper (Microsoft Word document; 11 pages)
Arthritis Source: On-Line Survey Results
by Jennifer Turns and Kristina Liu
January 2000
Read: Full paper (PDF; 73 pages)
Guidelines: Web Data Collection for Understanding and Interacting with Your Users
by Judith Ramey
2000
Download: Full paper (Microsoft Word document; 22 pages)
Exploratory Arthritis Source Log Analysis, Part 1 and Part 2
by Brett Shelton and Jennifer Turns
November/December 1999
Download: Part 1 (Microsoft Word document; 6 pages)
Download: Part 2 (Microsoft Word document; 21 pages)
Interview with the Designer: Interview Questions
by Julianne Fondiller and Jennifer Turns
October/November 1999
Download: Full paper (Microsoft Word document; 3 pages)
Dissemination
What are Patients Seeking When They Turn to the Internet? Questions asked
by Visitors to an Orthopaedics Website
Moving Toward Knowledge-building Communities in Health Information
Listening to the Learners: A Case Study in Health Information Website Design
An Application of Audience Analysis in Web-based Health Information System Design
Moving Toward Knowledge-building Communities in Health Information
Designing a Web-Based System to Support Learners-at-Large
Presentation to UW Technical Communication 521: Current Issues in Technical Communication
by Jennifer Turns, Tracey Wagner, and Kristen Shuyler
November 2001
Demonstration of Interactive Tools for Arthritis Source
Presentation to Education Curriculum and Instruction 581: Design Experimentation and Implementation in Context
By Tracey Wagner and Kristen Shuyler
November 2001
Design Heuristics for the Arthritis Source Web Site: Improving Search Engine Position and Processing User Feedback for Quality Improvement
Moving Toward Health Knowledge Management 2010
Demonstration of Arthritis Source to Juvenile Arthritis Patients and Their Families
QX -> QC -> AC: Questions from Phone Interview
Presentation to Arthritis Source Research Group
by Jennifer Turns, Tracey Wagner, and Kristina Liu
June 2001
Integrating an Information-Intensive Website into Pedagogical Practice
Listening to the Learner: Strategies, Examples, and Implications from Research on a Medical Information Website
Design Heuristics for Creating Tailored Patient Education Materials for the Web
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