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Web Sites by Category
Bones and
Joints (Arthritis)
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Arthritis Foundation
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National Institute of Arthritis and Musculoskeletal
and Skin Diseases
Cancer
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American Cancer Society
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National Cancer Institute
Child
Health
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Gaining and Growing: Assuring Nutritional Care of
Preterm Infants
Diabetes
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American Diabetes Association
Digestion
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National Digestive Disease Information Clearinghouse
Diseases
and Public Health
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Center for Disease Control
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Internet Resources for Health Education and Health
Promotion
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National Guideline Clearinghouse
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National Organization for Rare Disorders
Drug Abuse
(Alcohol)
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National Clearinghouse - Alcohol & Drug Information
Eyes
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National Eye Institute
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National Library Service for the Blind and Physically
Handicapped
Handicapped
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National Library Service for the Blind and Physically
Handicapped
Head
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National Head Injury Foundation
Heart and
Circulation
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American Heart Association
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National Heart, Lung and Blood Institute
Lungs
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American Lung Association
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National Heart, Lung and Blood Institute
Nutrition
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Gaining and Growing: Assuring Nutritional Care of
Preterm Infants
Sexual
Health
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American Social Health Association
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National Prevention Intervention Network
Skin
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American Academy of Dermatology
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National Institute of Arthritis and Musculoskeletal
and Skin Diseases
UW Links
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EthnoMed
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Health Online
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Internet Resources on Patient Education
There are hundreds of
patient education and consumer health Web sites. Listed here are select
sites to help you locate credible materials on the Internet to support your
patient teaching.
Before using any
material for patient teaching, please critically review them for accuracy,
cultural appropriateness, and readability.
Guidelines for Evaluating Health Information on the Web
Some things to keep in mind when using
the Web to find out information about your health or illness:
·
It should be clear who is
providing the medical data; their names and qualifications should be posted.
·
Find out who owns the site
and consider possible biases.
·
Make sure there is a way to
contact the site owner(s). If you use the site and need to contact them,
keep track to see if they respond in a timely manner.
·
Look for sites with recent
postings; health information gets outdated.
·
If you have questions about
something you find on the Web, ask your doctor or health care provider.
·
Be aware that as you
click-and-link through sites, you may be linked to another site and may need
to re-evaluate the source.
For more information
about evaluating Web sites, please visit University of Washington Medical
Center’s Health Information Resource Center Web site:
·
http://depts.washington.edu/healthed/healthwebsites.htm
Selected Health Sites
American Academy of Dermatology,
888-462-3376,
www.aad.org
Offers a wealth of dermatology related patient education information, as
well as information for health care professionals.
American Cancer Society,
800-227-2345,
www.cancer.org
Provides information on prevention (including diet, smoking, exercise,
alcohol, hormones), risk factors, mammograms (with tips on how to get a good
mammogram), BSE, and treatment options. There is a directory of resources,
including books and organizations. There is an on-line order form for
obtaining materials from ACS (click on the "Publications" link on the home
page).
American Diabetes Association,
800-342-2383,
www.diabetes.org
Includes an on-line postgraduate course for health care professionals. There
is little patient education material. You can search by state for local
diabetes foundations, research, and resources. Some of these foundations
have patient education material. For example, the Washington affiliate’s
page has information on diabetes and sex, pregnancy, nutrition, fitness,
etc.
American Heart Association,
214-706-1220 (or call 800-242-8721 for local chapter),
www.amhrt.org
Includes an index to nearly 300 subjects from the American Heart
Association. Information on children, nutrition, exercise, and support
groups is included. There is a listing of books and cookbooks available for
purchase, and a toll-free number for placing orders (click on the "Home,
Health, and Family" link on the home page, then click on the "Other AHA
Publications" link).
American Lung Association,
800-586-4872,
www.lungusa.org
Contains patient education materials on lung health and disease. There are
links to many local chapters. When brochures or other items are available
for order, they are listed at the end of the information on a particular
topic. For example, a search for "girls and smoking" brings you to the
"Pregnancy and Smoking" page. At the bottom of this page are items related
to pregnancy and smoking that one can order.
American Social Health Association,
800-227-8922,
www.ashastd.org
Provides a sexual health glossary, and information about STDs, women’s
health, and education materials.
Arthritis Foundation,
800-283-7800,
www.arthritis.org
Comprehensive site covers causes for and treatment of arthritis, links to a
couple hundred local chapters, as well as information on ordering video and
audio tapes and other materials. There are free brochures available (go to
"Resource Room" link; then go to "For Health Professionals" link).
Brain Injury Association of America,
www.biausa.org
From the home page, click on “About Brain Injury” for a complete list of
brain injury related topics, detailed information on the topics listed,
publications, and fact sheets. This site also covers information on
research, living with brain injury, policy and legislation, and links to
topics ranging from case management to education.
Cancer Care,
800-813-4673,
www.cancercareinc.org
Contains practical help and tips for people with cancer, along with
information for professionals. There is also information on support groups
and links to on-line support groups. On-line articles are provided: click on
the "Library" link from the home page.
EthnoMed,
www.ethnomed.org/
Provides information about cultural beliefs and medical issues pertinent to
the health care of patients from East Africa and Southeast Asia. The profile
of each ethnic group covers cultural topics, symptoms, health and illness,
community resources, and patient education materials, as well as further
reading and links to other Web sources.
Gaining and Growing: Assuring
Nutritional Care of Preterm Infants,
http://depts.washington.edu/growing/
Designed to provide information to community health professionals who work
with premature infants, especially those with very low birth weight (1500 g)
in hopes that assuring adequate nutritional status will improve outcomes and
family life for these children. Topics include: Nutrition Assessment,
Nourishing the Very Low Birth Weight Infant After Discharge, Feeding the
Very Low Birth Weight Infant at Home, What Parents Say About Feeding Preterm
Infants, Decision Trees for Clinical Services, Case Studies, and Resources
for Nutritional Services. Also provided is a Gaining and Growing Brochure in
pdf format. This site was developed by University of Washington Nutritional
Sciences Program and the Pediatric Pulmonary Center, with funding from the
Maternal Child Health Bureau.
Internet Resources for Health
Education and Health Promotion,
http://www.gwumc.gwu.edu/library/eresources/inetres.cfm/
subject/Health-Education-Health-Promotion
Contains a selected bibliography of Internet resources on health education
and promotion. It was compiled by the George Washington University Medical
Center.
National Cancer Institute,
www.nci.nih.gov
From home page, click on CancerNet for patient education materials for
patients, health professionals, and basic researchers.
National Clearinghouse
for Alcohol & Drug Information,
800-729-6686,
www.health.org/index.htm
The information service of the Center for Substance Abuse Prevention of the
Substance Abuse and Mental Health Services Administration in the U.S.
Department of Health & Human Services. NCADI is the world’s largest resource
for current information and materials about substance abuse. From the home
page, click on "Resources and Referrals" and then click on either "Documents
Available On-line" or "Publications Available from NCADI" for patient
information resources.
National Digestive Disease Information
Clearinghouse, 301-907-8906
(Fax),
www.niddk.nih.gov/
Includes information for patients and health care professionals on diabetes,
digestive diseases, endocrine diseases, kidney diseases, nutrition and
obesity, and urologic diseases. There are links to other sources of
government information.
National Eye Institute,
301-496-5248,
www.nei.nih.gov
There is little patient education material at this site. However, clicking
on the "Publications" link on the home page will lead you to resources
available to order from NEI.
National Guideline Clearinghouse,
800-359-9295 (Publication Clearinghouse),
www.ahcpr.gov
Consumer information on specific health conditions, surgery, prescriptions,
heath plans, and other health care issues. From main page, click on
"Consumer Health."
National Heart, Lung and Blood
Institute,
301-251-1222,
www.nhlbi.nih.gov/
Contains information about sleep disorders and cardiovascular, lung, and
blood conditions. Click on the "Educational Materials Catalog" link to see
brochures, posters, audio and video resources that can be ordered.
National Institute of Arthritis and
Musculoskeletal and Skin Diseases,
301-496-8188,
www.nih.gov/niams
Contains information on fibromyalgia, Lyme disease, lupus, psoriasis,
Raynauds phenomenon, vitiligo, and other skin, arthritic, and
muskuloskeletal diseases.
National Institute of Mental Health,
www.nimh.nih.gov
Comprehensive site provides information on mental health topics,
including getting help, research, funding, publications, and mental health
information and organizations. Available in English and Spanish and with
options to view text in various sizes.
National Library Service for the Blind
and Physically Handicapped,
800-424-8567,
www.lcweb.loc.gov/nls
Although you cannot order materials through this Web site, you can search
the online NLS Union Catalog for materials in Braille or large print, audio
materials and listening equipment. All of the materials can be requested for
free loan through participating NLS libraries. There is also an FTP site
where visitors can anonymously download NLS materials.
National Prevention Intervention
Network, 800-458-5231,
www.cdcnpin.org/
Material on many aspects of AIDS and HIV. There are hundreds of items
available to order from the CDC and many other organizations. From the home
page, click on "Available Information."
National Organization for Rare
Disorders, 800-999-6673,
www.rarediseases.org
A brief description of each of several hundred rare disorders is provided,
along with links to other sites about that disease.
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