The PKU Pal was developed to help families in the management of Phenylketonuria.

It is divided into sections to help keep papers, appointments, and other information organized. Each section begins with a short introduction that describes its purpose and suggests information that could be added. Many families find it helpful to take their PKU Pal to clinic and to other medical appointments. That way, all necessary information is in one place.

The PKU Pal was developed by the University of Washington PKU Clinic. Distribution is funded by the PKU Action Group. It is provided to families of newly diagnosed infants with PKU, served by the University of Washington PKU Clinic.

Download the PKU Pal below.

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Table of Contents and Introductory Material

Introductory letter
About PKU
Things to do
Advice from other parents who have children with PKU
Table of contents

Section 1: Contact Information

Introduction
Emergency contact information
Insurance information
Medical expenses
Health care information

Section 2: Clinic Information

Introduction
University of Washington PKU Clinic Management Guidelines
University of Washington PKU Clinic Schedule
PKU Self-Management Timeline
University of Washington PKU Clinic website
National PKU News website
Low Protein Food List order form
Low Protein Cookery for PKU order form
PKU Newsletter order form and information
Special article: The Discovery of PKU
Babysitter's Guide to PKU
New Parents' Guide to PKU
PKU Action Group

Section 3: Food and Formula

Introduction
Phenyl-Free formula facts
Formula intake record sheets
How to keep a food record
Diet record sheets
Finger food suggestions and recipes
Finger Foods are Fun
Look-alike Foods
Chef Lophe

Section 4: Records

Introduction
Growth record
Growth charts
Recommended childhood immunization schedule
Phenylalanine levels
Example of a star chart

Section 5: Personal

Introduction