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Child
Treatment Protocol: age 3-8 years
Describes the protocol for treatment for children between 3 and 8 years
of age, with continued emphasis on increasing self-management skills.
Games
That Teach: Learning by Doing for Preschoolers with PKU.
A booklet of activities for children, providing opportunities to learn
about appropriate food choices for PKU.
Making
the Change: from High Phe to Low Phe. Fink KJ, Trahms CM. University
of Washington PKU Clinic, 1993.
A
booklet that describes how to change recipes to fit into a low-phe food
pattern.
Monitoring
Blood Phenylalanine Levels at Home.
A guide for collecting Guthrie filter paper blood samples at home.
PKU
for Children: Learning to Measure.
A guide to help school-age children become more responsible for their
PKU diet management.
PKU
Self-Management Timeline.
A guideline of suggested tasks for children to adopt as they progress
from infancy to adulthood.
PKU
Food Target.
A food target tool, developed by the University of Washington PKU Clinic,
to help with food choices for PKU diet management.
Padgett D. Tips for dealing with blood draws at different ages. National PKU News 1991;3:1:4-5.
Sulzbacher
S. Living with PKU: dealing with food stealing and teasing.
National PKU News 1994;5:3:4-5.
Trahms C.M.
Self-management skills: the key to successful PKU treatment, Part II.
National PKU News 1992;4:1:4-5.
Trahms C.M.
Self-management skills: the key to successful PKU treatment, Part
III.
National PKU News 1992;4:2:4-5.
Schuett
VE, Taylor ME. You and PKU, 2nd edition. National PKU News, 1998.
A book for children 3 to 8 years of age. Available from the National
PKU News website, under "Diet-Related Information."
Case
Study
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currently under development]
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