New
Patient Protocol
Describes protocol for initial treatment for an infant with newly diagnosed
PKU.
Infant
Treatment Protocol: age 0-6 months
Describes the treatment protocol for infants younger than 6 months of
age, who have not started eating solid foods.
Infant
Treatment Protocol: age 6-12 months
Describes the treatment protocol for infants between 6 and 12 months of
age, who are starting solid foods.
Monitoring
Protocol: Infants and children with mild phenylketonuria
Describes the treatment and monitoring protocol for infants and children
with mild phenylketonuria, ages 0-5 years.
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Checklist
for Families New to the PKU Clinic at University of Washington
An information sheet/checklist to guide the initial clinic visits of a
family with a newly diagnosed infant.
PKU
Pal
A notebook developed by the University of Washington PKU Clinic to help
families in the management of Phenylketonuria.
A
Babysitter's Guide to PKU
Guidelines and helpful hints for babysitting a child with PKU.
Finger
Foods Are Fun
Guidelines for assisting in the development of self-feeding skills and
familiarization with some of the mainstays of the PKU diet.
Look-Alike
Foods: A solution or a Pandora's box?
Questions to consider when deciding on an appropriate food strategy for
your child.
Making
the Change: from High Phe to Low Phe. Fink KJ, Trahms CM. University
of Washington PKU Clinic, 1993.
A
booklet that describes how to change recipes to fit into a low-phe food
pattern.
Monitoring
Blood Phenylalanine Levels at Home.
A guide for collecting Guthrie filter paper blood samples at home.
New
Parents' Guide to PKU.
A booklet to help familiarize new parents with PKU and its treatment.
PKU
Self-Management Timeline.
A guideline of suggested tasks for children to adopt as they progress
from infancy to adulthood.
Case
Study
[content
currently under development]