Category Archives: Seattle Children’s Autism Center

SPARK January Webinar – Addressing Autism in Today’s Criminal Justice System

Hello SPARK Community Partners!

See below for information about registering for SPARK’s January webinar on autism and the criminal justice system.

            SPARK Webinar – Creating a Culture of Prevention: Addressing Autism in Today’s Criminal Justice System

            Leigh Ann Davis, MSSW, MPA & Samantha Crane, JD

            Tuesday, January 23

            9-10am PST

            Click here to register.

Ms. Davis and Ms. Crane will discuss:

·         Individual strategies and system reforms that could increase the safety of individuals with autism when interacting with police and the criminal justice system

·         Ways to reduce unnecessary police interactions, improve access to emergency services, and ensure access to effective communication in emergencies or during police interactions

www.SPARKforAutism.org/UW

40th Annual Festival of Trees Gala Recap:

A few weeks ago, the 40th Annual Festival of Trees Gala took place at the Fairmont Olympic Hotel in Seattle! Seattle Children’s employees and supporters had a blast raising money for the Seattle Children’s Autism Center and Uncompensated Care at Seattle Children’s Hospital. Check out the link for more news and pictures from the festivities here:

http://www.seattlefestivaloftrees.com/events.html

 

Don’t forget to view this video shown at the Gala, giving you an inside look at the kind of work the Seattle Children’s Autism Center does. Featuring a few families who kindly gave us a glimpse into their experiences with the team, the video captures the essence of the impact the Children’s community has :

https://drive.google.com/file/d/1NWOgycOMv1CnoCfWwCCo7IXcMIoelS32/view

 

Come Participate! Genetics Research and Pirates- What could be better?

Our Research Team is hosting a PIRATE-THEMED Research Family Fun Day on Saturday, December 2nd!  Families interested in participating in autism genetics research will have the opportunity to complete 1-2 research studies in a single day!

The SPARK and PANGEA studies are exploring genetic differences related to autism.  Families who attend the family fun day will be able to complete online registration and saliva collection for SPARK and/or a blood draw for PANGEA.  There will be food, games, prizes, parking, and childcare available!  To RSVP to this event, please contact the research team at 206-987-7917 or at SCACstudies@seattlechildrens.org.

WHAT: Fun, research participation event for families

WHEN: Saturday, December 2 from 9am to 5pm

WHERE: Seattle Children’s Autism Center, 4909 25th Ave NE, Seattle, WA 98105

THEME: Pirates and Buried Treasure!

UW/SCAC SPARK Attends 13th Annual Northwest Autism Conference in Richland, WA

Last week, our lead SPARK study coordinator, Emily, visited the Tri-Cities for the 13th Annual Northwest Autism Conference.  This two-day conference is hosted for providers, educators, and family members affected by autism.  Presenters covered a range of topics this year including early identification and intervention, adolescence and puberty, and transition skills for adulthood.  This was the SPARK study’s second year as a vendor at this event.  Emily had a table with study materials for families and providers, and she answered questions from attendees about participating in SPARK and about autism research, in general. It was another great conference year!

Rare Autism-Related Genetic Consultation Clinic at Seattle Children’s Autism Center

The Seattle Children’s Autism Center has launched the new Rare Autism-Related Genetic Consultation Clinic (RARE Clinic)!

Children born with certain genetic changes (mutations) may have autism spectrum disorder; speech and language disorders; intellectual disabilities; physical differences; seizures; gastrointestinal problems; or sleep concerns. The RARE Clinic will provide a short-term consultation service, usually 3 to 4 appointments in a single day, to help address concerns related to your child’s genetic change. Your child will be see by experts in psychology; speech and language; and pediatrics.

For more information families should call 206-987-8080 and visit the Seattle Children’s Autism Center website!

Genetic changes include:

  • 16p11.2 deletion/duplication
  • ADNP
  • CHD2
  • CHD8
  • DYRK1A
  • GRIN2B
  • POGZ
  • SCN2A
  • TRIP12