The Severe Chronic Neutropenia
International Registry

The Severe Chronic Neutropenia International Registry (SCNIR) was established in 1994 to monitor the clinical course, treatment, and disease outcomes in patients with severe chronic neutropenia (SCN). The Registry has the largest collection of long-term data on patients with this condition in the world. Participation in the Registry benefits patients, their families and the physicians who treat them by providing the most up to date information to them on the natural history of SCN and its treatment options.

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Table of Contents

Types of Neutropenia

Long Term Management of Neutropenia

Patient Handbook

Newsletters

Support Groups

Forms

Protocol

Bibliography
Bibliography Update 2003-2008

European Liason Physicians

Links

Glossary of Terms

For registration or clinical questions please contact
Audrey Anna Bolyard at bolyard@u.washington.edu.

Contact other SCNIR offices around the world.

Mission Statement

Our mission is to establish a global database of treatment and disease-related outcomes for persons diagnosed with SCN. Collection of this information will lead to improved medical care and is used for research to determine the causes of neutropenia.

Disclaimer
This site exists to provide information on the Severe Chronic Neutropenia International Registry (SCNIR) to patients, families, and health care providers. The SCNIR does not track you as you explore our website. We do not place cookies on your computer, nor do we follow your internet activities. We do not collect computer addresses, personal information, or browser information, and we have no way of knowing who you are unless you directly contact us and tell us yourself.