The Severe Chronic Neutropenia International Registry

Support Groups

Support groups can provide assistance with linking families to others who
have a family member with SCN. These contacts can help alleviate the
alienation families often feel when one of their members is chronically ill.
National Neutropenia Network (NNN)
http://www.neutropenianet.org
Barth Syndrome Foundation
http://www.barthsyndrome.org
Cohen Syndrome Association
http://www.cohensyndrome.org/
Association for Glycogen Storage Disease
http://www.agsdus.org/
Shwachman-Diamond Syndrome Foundation
http://www.shwachman-diamond.org/

The views expressed on these websites do not necessarily represent
the views of the SCNIR. We do not promote or recommend any particular
clinical treatment. The relevance of any medical information on these
websites should be discussed with your physician.
We are not responsible for any errors in their content.


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