Support groups can provide assistance with linking families to others who have a family member with SCN. These contacts can help alleviate the alienation families often feel when one of their members is chronically ill.
The views expressed on these websites do not necessarily represent the views of the SCNIR. We do not promote or recommend any particular clinical treatment. The relevance of any medical information on these websites should be discussed with your physician. We are not responsible for any errors in their content.
|Neutropenia Support Association Inc.
Phone: 1-800-663-8876 (North America)
National Neutropenia Network (NNN)
Lee Reeves, NNN President
(SCN Registry Board Member, Patient Advocate)
Lucy Lyman, Member of NNN Board of Directors
(SCN Registry Participant)
Barth Syndrome Foundation
Shwachman-Diamond Syndrome Foundation
Phone: 1-877-737-4685 (inside the U.S. only)
Cohen Syndrome Association