Resources
The following web sites may be useful to our patients and their friends and families.
AUGMENTATIVE COMMUNICATION
Barkley Center for Augmentative Communication web site has information for both clinicians and consumers with lots of information about the range of devices available for individuals.
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BRAIN INJURY
To brain injury resources.
BURNS
The Burn Resource Center - medical information, support groups, and resources for burn survivors and their loved ones.
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DISABILITY ISSUES
A brief, extremely well-done article about disability including frank discussions about the discomfort some feel around individuals with disabilities; advice on assisting individuals with different disabilities such as people with visual, speech and hearing impairments, wheelchairs, etc; and a glossary of terms not to use.
AbilityHub - Assistive Technology Solutions (adaptive equipment and alternative methods available for accessing computers)
ABLEDATA (assistive technology and disability related resources)
Canine Companions for Independence
Disability Information and Resources – A resource list compiled and maintained by Jim Lubin, a C2 quadriplegic.
Discover Technology -- information for persons with disabilities and service providers
DO-IT Program -- Disabilities, Opportunities, Internetworking, and Technology at the University of Washington
Easter Seals Society
Liberty Resources (Independent Living Center in Philadelphia, PA)
MedSupport FSF International (Information and forums)
National Center for the Dissemination of Disability Research (NCDDR)
Through the Looking Glass (TLG) Services, training, materials and research concerning families in which a child, parent or grandparent has a disability or medical issues.
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DISABLED SPORTS
Canadian Wheelchair Basketball Association
National Wheelchair Basketball Association (USA)
United States Quad Rugby Association
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DISCRIMINATION
The Office for Civil Rights is the law enforcement agency whose primary responsibility is to ensure that recipients of federal financial assistance do not discriminate against students, faculty or other individuals on the basis of race, color, national origin, sex, disability or age.
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ELECTRODIAGNOSTIC MEDICINE (EMG)
Patient information on Electrodiagnostic Medicine (EMG): what it is and why it is done.
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GENERAL HEALTH INFORMATION
The Medicine Plus web site is extremely comprehensive and easy to navigate with links to hundreds of authoritative sites. Many experts say this is the place to start your medical search on any condition.
The Mayo Clinic has a web site with information on health topics that is easy to understand, user-friendly with lots of advice on recognizing and dealing with health problems.
The Medem site contains wide-ranging information from the libraries of 44 professional medical associations as well as a free children's health newsletter.
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LISTSERVS
Personal Care Assistance Mailing List: This e-mail discussion list for people who use personal care assistants (PCAs) focuses on locating, screening, and hiring PCAs, and serves as a forum for information and discussion on all aspects of PCA use and legislation. To join the list, send an e-mail message to listserv@maelstrom.stjohns.edu with only the words "Subscribe PCA" followed by your first and last names in the body of the message (do not include punctuation in the message).
Vent Users Mailing List: This Internet mailing list is a forum where ventilator users can communicate with one another. To join, fill out the online form at the website of list owner Jim Lubin.
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MEDCON
The University of Washington offers a 24-hour, toll-free consultation and referral service for health care professionals and their clients with spinal cord injury. To contact MEDCON, dial 206-543-5300 if you live in the Seattle area or 800-326-5300 if you are calling long distance. An operator will direct your call to the physician or other health care professional best able to answer your question.
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MULTIPLE SCLEROSIS
The National Multiple Sclerosis Society site has information and links to medical facts, publications, research and local resources.
Multiple Sclerosis Research and Training Center. This site has information about current research and patient information.
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MUSCULAR DYSTROPHY AND OTHER NEUROMUSCULAR DISEASES
The Muscular Dystrophy Association site has extensive information on neuromuscular disorders, research information and many links to outside publications.
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NEUROLOGICAL DISORDERS
National Institute of Neurological Disorders and Stroke web site has brief articles about various neurological disorders that are linked to the specific national associations. This is another site for clinicians and consumers and includes information on strokes, multiple sclerosis (MS), Parkinson's disease, Huntington's disease, etc.
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PAIN
The American Chronic Pain Association web site is a good source of information for patients with chronic pain.
The National Pain Foundation provides an online educational and support community for persons in pain, their families, and physicians. The information on treatment is peer reviewed by pain specialists.
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PARALYZED VETERANS OF AMERICA
The Paralyzed Veterans of America site is for Veterans who have experienced spinal cord dysfunction (SCI). It has a good section on living with SCI which can be accessed by the public.
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PHYSIATRISTS-REHAB PHYSICIANS
The American Academy of Physical Medicine and Rehabilitation web site has information on locating a PM & R physician, the conditions that our physicians treat, opportunities for medical students, background about the specialty, etc.
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SPINAL CORD INJURIES (SCI)
To spinal cord injury resources.
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