Patient Resources:
Brain Injury Section
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Patient Resources - Traumatic Brain Injury
Brain Injury Organizations & General Information:
- To translate any website into another language go to:
http://babelfish.altavista.com
- Perspectives Network has frequently asked questions about brain injuries in 10 different languages.
- En Espanol:
empresas.mundivia.es/braincenter
- Brain Injury Association of America works to create a better future through brain injury prevention, research, education and advocacy.
- Brain Injury Information Network offers an extensive list of resources including mailing lists and on-line support groups. Spanish language support groups are available.
- Another on-line support group for survivors of TBI can be found on this Yahoo website. Simply look for the "Join This Group" link toward the upper right.
- National Institute of Neurological Disorders and Stroke
Primary NIH research agency on TBI
- National Center for Injury Prevention and Control
General information on TBI – definitions, causes, preventive measures, and resources.
- Center for Brain Injury and Repair at the University of Pennsylvania
- Brain Injury Association of Washington is dedicated to improving the quality of life for people who have sustained a brain injury and their families by providing services such as information resources, legislative advocacy, public awareness campaigns, and support groups.
- Ohio Valley Center for Brain InjuryPrevention and Rehabilitation conducts research, provides education, and develops programs to improve the quality of life for all who are effected by TBI, serving individuals, families, and professionals throughout North America.
- Vancouver Island Head Injury Society offers support groups, training, community events, a library and newsletter.
- Brain Injury Association of Idaho
- Brain Injury Association of Oregon
- Brain Injury Association of Wyoming
- Brain Injury Association of Montana
- Brain Injuries in Alaska
For any questions regarding service or assistance in Alaska , please contact The Brain Injury Association of America's National Family HelpLine at (800) 444-6443 or FamilyHelpline@biausa.org
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Caregiver Information and Resources:
- Caregiver Magazine offers general resources for caregivers.
- Centre for Neuro Skills (CNS) provides comprehensive resource information about community programs, books, articles, and medical news on traumatic brain injury. It also has convenient search tools to look up specific questions you may have about brain injury.
- Family Caregiver Alliance offers a clearinghouse of resources for caregivers including fact sheets with straightforward information.
- NFCA: National Family Caregivers Association provides extensive resources for caregivers.
- Waiting.Com is a resource on brain injury coma and the early stages of recovery for family members and friends of persons with brain injuries. It explains what is taking place in the intensive care unit, answers frequently asked questions that family members have, and provides a place to email questions that are still unanswered.
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Resources for TBI Survivors:
- My New Friend is a Seattle based organization that encourages independence for each individual based upon his or her special needs, interests, and abilities. The qualified staff provides personalized assistance for each individual.
- Frequently Asked Questions about head injuries and seizures. A compilation of FAQ from the Brain Injury Association of Texas, formerly known as the Texas Head Injury Association.
- Traumatic Brain Injury Survival Guide explains TBI in a clear and concise manner. By Dr. Glen Johnson, Clinical Neuropsychologist, Clinical Director of the Neuro-Recovery Head Injury Program.
- MedPrompt is a very useful service for those in need of extra help remembering when to take their medication. The service uses a pager system that alerts users with a customized electronic notice that tells them when, which, and how much medication to take.
- Mind Tools helps develop time management and organizational skills.
- Senior Services is a nonprofit agency available to seniors in Seattle and King County, Washington that provides a comprehensive list of community activities, transportation, and other resources.
- RAMP, the Regional Access Mobility Program, using all volunteer labor, builds ramps for individuals with mobility problems. Currently there is not enough funding to build the ramps at no cost, but most materials are obtained at contractor's discounts, and this savings is passed on to the consumer. As funding grows, so does the dream to someday offer ramps at no cost. For further information, or to make a donation, call (425) 220-5452 or write to:
RAMP
2812 Lombard #107
Everett, WA 98201
- "Making Your Case" Advocacy Training is a free, Internet-based learning program designed for use by people with disabilities, family members, and concerned citizens interested in creating policy change through advocacy. There is no cost for this interactive, self-paced learning program. It takes about three hours to complete, and is available 24 hours per day, seven days a week.
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Legal & Financial Matters:
- Brain Injury Law Office provides assistance in dealing with the diagnosis of brain injury and other issues relating to brain injury and the law.
- Neuro Trauma Law Nexus helps explain how the legal system works with brain and spinal cord injury cases.
- Municipal Research & Services Center provides information on legal issues that relate to the cities and counties of Washington .
- Northwest Justice Project provides a clearinghouse of legal self-help materials and tools that provide information about non-criminal legal problems affecting low-income people in Washington State .
- Social Security & Benefits
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Books, Journals, and Articles:
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