Chronic Pelvic Pain Studies
The University of Washington Center for Clinical and Epidemiological Research (CCER) is part of the TransMAPP Research Network and is currently recruiting participants for two different studies of people with chronic pelvic pain.
If you experience pain, pressure or discomfort related to your bladder and or pelvic region and are over 18 years of age, you may be eligible to participate in one of these studies, especially if you have had symptoms for less than two years.
You can contact a study coordinator at firstname.lastname@example.org.
MAPP stands for Multidisciplinary Approach to the Study of Chronic Pelvic Pain. This is a research project funded by the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), which is part of the National Institutes of Health (NIH). It consists of a network of thirteen sites around the country that are studying people with Chronic Pelvic Pain and comparing them to control participants who do not have pelvic pain symptoms.
The TransMAPP Network consists of sites around the United States and Canada that are recruiting participants, laboratories analyzing biological samples and a Data Coordinating Center.
The TransMAPP Research Network was formed to focus on a broad approach to studying Chronic Pelvic Pain. Chronic Pelvic Pain is a pain syndrome in which people experience pain in their pelvic area and/or bladder for an unknown reason. The pain is poorly understood and often treatment is unsuccessful. The medical diagnoses often given to people with Chronic Pelvic Pain are Interstitial Cystitis (IC) and Chronic Prostatitis (CP). Some people may have Chronic Pelvic Pain but may not be diagnosed with IC or CP for many years, or may never get this diagnosis.
The MAPP studies will help doctors gain a better understanding of how Chronic Pelvic Pain affects people’s overall health, and how it relates to other chronic pain syndromes, including the kind of symptoms often seen in people diagnosed with Chronic Fatigue Syndrome, Fibromyalgia or Irritable Bowel Syndrome. This may help in developing better treatments for Chronic Pelvic Pain.
The MAPP studies are observational studies. This means that no treatment is given and no changes are made to the medical care of participants. Questions are asked and information is gathered about the health and life of the participants for research purposes. The goal is to understand how pain is felt in people with chronic pelvic pain.
The first study (Project 1) is a descriptive study of men and women who have Chronic Pelvic Pain. This study is currently recruiting participants.
The second study (Project 2) is a study of female twins where one has Chronic Pelvic Pain and the other does not. Participation in this study is limited to members of the University of Washington Twin Registry.
Both MAPP studies take place at the Center for Clinical and Epidemiological Center (CCER) in downtown Seattle.
TransMAPP Study Coordinator
TJ Sundsvold, MPH
| MAPP TWIN STUDY
MAPP Twin Study Coordinator
Roberta Spiro, MS
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