Communication issues: input from specialist
§Neurologist/ epileptologist
§Psychiatrist/ psychologist
§Clinical pharmacist
§Others: OT, PT, Speech Pathologist, Audiologist
§
As mentioned, a significant percentage of adults with severe DD have epilepsy.  Most will have a neurologist who follows them.  It is critical that the primary care physician stay in close communication with the neurologist.  Anti-epileptics have many side effects, drug interactions, and actions which must be understood.  The same is true for psychiatric care and the use of psychotropics. It is important to realize that the same “behaviors” which are tracked and responded to with psychotropic medication administration may, at times, be the patient’s effort to communicate physical distress from an underlying medical problem.  Therefore it is important that the psychiatrist know when medical problems are present and that the PCP know when psychotropics have been added or changed.
Adults with severeDD may require numerous medications posing the risk for drug interactions or other medication related problems.  Consultation with a clinical pharmacist can provide a valuable “second look” at the therapeutic approach.
Just as in other populations where an “interdisciplinary team” is engaged in care, e.g. residents of skilled nursing facilities, it is important that the PCP be an active team leader and engage the services and input of appropriate clinicians. These other clinicians may include OTs, PTs, and speech pathologists, audiologists, nutritionists, and assistive technology (communication, mobility etc) specialists.