Quote from a health care provider:
uA caring, knowledgeable advocate must always accompany the patient to the health provider’s office and participate as much as necessary by providing all of the information, ask the questions and subsequently ensure that diagnostic tests are done, all specialists are seen, follow-up visits are attended, and finally the treatment plan is followed. “
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This is a quote from the comments section of a survey of health care providers which asked about ways to obtain better health care for people with developmental disabilities.