Health Care for
Adults and Elders with Developmental Disabilities Research and Training
A Project of the University Center for Excellence in
Developmental Disabilities (UCEDD)
funded by the Washington State Developmental Disabilities Council
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for Family and Residential Providers > Text Version of Promoting
Healthy Care for Adults and Elders with Developmental Disabilities
Promoting Healthy Care for Adults
and Elders with Developmental Disabilities
Doug Cook, PhD,
Director: Program for Adults and Elders
Center on Human Development and Disabilities (CHDD)
University of Washington, Box 357920 - Seattle WA 98195
- Definition of Developmental Disabilities
- Population Estimates
- Washington State Caseload
DEFINITION OF DEVELOPMENTAL DISABILITIES
- A person who has at least one of
the following conditions:
- Mental Retardation
- Cerebral Palsy
- Neurological conditions similar to mental retardation
- Disability must occur
before age 18;
- Disability must be expected to continue indefinitely; and
- Disability must result
in a substantial impairment
POPULATION ESTIMATES FOR PEOPLE WITH DEVELOPMENTAL
- Estimates are 1.2% of Total US Population.
- Population is Aging--e.g., Increased
|Persons with Mental Retardation
|1930s - 19 years
|1970s - 59 years
|1993 - 66 years
|2000 - -------
WASHINGTON STATE CASELOAD:INDIVIDUALS IDENTIFIED BY DIVISION OF DEVELOPMENTAL
Caseload in: 1990 2000 2003
Total: 14,879 28,303 32,004
0-21 years: 5,994 16,187 0-17 yrs: 13,470
22-34 years: 4,426 5,807
35-44 years: 2,292 3,990
45-54 years: 1,145 2,567
55-64 years: 579 1,175 18-64 yrs: 17,775
65+ years: 434 712 759
Unknown: 2 15
POPULATION ESTIMATESof Persons with Developmental
Disabilities(BASED ON 1.2% OF TOTAL CENSUS)
3,460,424 (3 1/2 million)
- Washington State-2002 Estimate
72,828 (73 thousand)
WHERE DO PEOPLE WITH DEVELOPMENTAL DISABILITIES LIVE?
began in the 1960’s.
- Few individuals still live in institutional settings
where they traditionally received health care.
- Currently, the majority of
people with developmental disabilities live in the community.
LivingResidential Habilitation Centers (RCHs)
Graph showing the number of caseloads ranging from 0 - 3,000 during the years
from 1977 to 2003.
Community Living includes
family and individual residences, adult family homes and group homes
Graph showing the number of caseloads ranging from 0 - 35,000 during the years
from 1990 to 2003.
|Adult Family Homes
|Adult Residential Centers
|State Operated Living Alternatives
|Intermediate Care Facilities
|Relative,Advocate,Self or Unknown
|Total caseload in community
2003 Washington State population estimate residential breakdown
DEVELOPMENTAL DISABILITIES AND AGING
- Adults and Elders with Developmental Disabilities experience many of same
changes as general population.
- Generally they need the same information and
- Potential differences include:
- Smaller social network and fewer long-term
- Fewer skills to maintain or create relationships
- Difficulty identifying
and/or expressing sadness or grief
- Less routine and less skilled medical care
- Less angst about “the meaning
Changes include a high incidence of:
- Sensory Loss (Vision, Hearing)
A Psychosocial Perspective on Aging
- A psycho-social perspective has four elements:
- An awareness of our own aging.
- An awareness of the psychosocial (social,
emotional and spiritual) changes that occur with aging.
- An awareness
that we can take better care of ourselves if we make this a priority
and we are positively reinforced.
- An awareness of the experiences of
older people with developmental disabilities.
General Psychosocial Changes That Come With Aging
- Social Changes
- roles and responsibilities change
- routines can become less varied and less
- social networks become smaller
General Psychosocial Changes That Come With Aging
- Family and old friends become more important
- More acceptance of their lives (or despair)
- Increased isolation can lead to
- Increased depression
The Opportunity Of Health Promotion
- Most of the medical and psycho-social issues that come with aging can be
prevented, postponed or alleviated through health promotion strategies
- Optimal health has
- A social life that emphasizes interactions among friends, family
intellectual life that emphasizes continued learning, career development
and personal achievement.
- A spiritual life that focuses on hope, love, charity
and purpose in life.
- A physical life that emphasizes fitness, good nutrition,
medical self care and control of substance abuse.
- An emotional life that emphasizes
good mental health and stress management.
HEALTH PROMOTION STRATEGIES HAVE
THE FOLLOWING GOALS
- Promote health and wellness
- Prevent disease
- Postpone further disability
DEFINITION OF HEALTH PROMOTION
The maintenance and enhancement of existing levels of health through the
implementation of effective programs, services and policies.
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