Publications

Articles & Editorials:
Renet A, Azoulay E, Reignier J, Cariou A, Renault A, Huet O, Pochard F, Engelberg RA, Kentish-Barnes N. “It’s all about setting the stage.” The nurse facilitator trial: perceived outcomes and implementation issues. A qualitative study among ICU clinicians and nurse facilitators. Intensive Care Med. 2024 Oct;50(10):1657-1667. Epub 2024 Aug 19.

Dotolo DG, Pytel CC, Nielsen EL, Im J, Engelberg RA, Khandelwal N. Financial Hardship: A Qualitative Study Exploring Perspectives of Seriously Ill Patients and Their Family. J Pain Symptom Manage. 2024 Nov;68(5):e382-e391. Epub 2024 Aug 13.

Im J, Kross EK, Engelberg RA, Dotolo DG, Ungar A, Nielsen E, Torrence J, Abedini NC. Applying human-centered design to adapt the Jumpstart Guide for goals-of-care discussions in persons living with dementia. J Am Geriatr Soc. 2024 Jul;72(7):2111-2119. Epub 2024 May 27.

Pollack LR, Nomitch JT, Downey L, Paul SR, Reed MJ, Uyeda AM, Kiker WA, Dotolo DG, Dzeng E, Lee RY, Engelberg RA, Kross EK. Mechanical Ventilation in Older Adults With Dementia: Opportunities to Promote Goal-Concordant Care. J Pain Symptom Manage. 2024 Aug;68(2):142-152.e2. Epub 2024 Apr 27.

Kentish-Barnes N, Azoulay E, Reignier J, Cariou A, Lafarge A, Huet O, Gargadennec T, Renault A, Souppart V, Clavier P, Dilosquer F, Leroux L, Légé S, Renet A, Brumback LC, Engelberg RA, Pochard F, Resche-Rigon M, Curtis JR. A randomised controlled trial of a nurse facilitator to promote communication for family members of critically ill patients. Intensive Care Med. 2024 May;50(5):712-724. Epub 2024 Apr 4.

Pollack LR, Downey L, Nomitch JT, Lee RY, Engelberg RA, Weiss NS, Kross EK, Khandelwal N. . Factors Associated with Costly Hospital Care among Patients with Dementia and Acute Respiratory Failure. Ann Am Thorac Soc. 2024 Jun;21(6):907-915.

De Panfilis L, Veronese S, Perin M, Cascioli M, Farinotti M, Kruger P, Zagarella RM, Curtis JR, Sudore RL, Nielsen EL, Engelberg RA, Giordano A, Solari A; ConCure-SM project. Italian cross-cultural adaptation of the Quality of Communication questionnaire and the 4-item advance care planning engagement questionnaire. PLoS One. 2023 Mar 23;18(3):e0282960.

Hicks KG, Downey L, Elketami A, Nielsen EL, Engelberg RA, Jennerich AL. Before-After Study of a Checklist to Improve Acute Care to ICU Handoffs. Am J Med Qual. 2023 Jan-Feb 01;38(1):37-46. Epub 2022 Nov 10.

Curtis JR, Lee RY, Brumback LC, Kross EK, Downey L, Torrence J, LeDuc N, Mallon Andrews K, Im J, Heywood J, Brown CE, Sibley J, Lober WB, Cohen T, Weiner BJ, Khandelwal N, Abedini NC, Engelberg RA. Intervention to Promote Communication About Goals of Care for Hospitalized Patients With Serious Illness: A Randomized Clinical Trial. JAMA. 2023 Jun 20;329(23):2028-2037.

Ambler M, Rhoads S, Peterson R, et al. One Year Later: Family Members of Patients with COVID-19 Experience Persistent Symptoms of PTSD. Ann Am Thorac Soc. 2023 May;20(5):713-720. Epub 2022 Dec 12.

Uyeda AM, Lee RY, Pollack LR, et al. Predictors of Documented Goals-of-Care Discussion for Hospitalized Patients With Chronic Illness. J Pain Symptom Manage.  2023 Mar;65(3):233-241. Epub 2022 Nov 22.

Curtis JR, Lee RY, Brumback LC, Kross EK, Downey L, Torrence J, Heywood J, LeDuc N, Mallon Andrews K, Im J, Weiner BJ, Khandelwal N, Abedini NC, Engelberg RA. Improving communication about goals of care for hospitalized patients with serious illness: Study protocol for two complementary randomized trials. Contemp Clin Trials. 2022 Sep;120:106879. Epub 2022 Aug 10.

Modes ME, Engelberg RA, Nielsen EL, Brumback LC, Neville TH, Walling AM, Curtis JR, Kross EK. Seriously Ill Patients’ Prioritized Goals and Their Clinicians’ Perceptions of Those Goals. J Pain Symptom Manage. 2022 Oct;64(4):410-418. Epub 2022 Jun 11.

Curtis JR, Higginson IJ, White DB. Integrating palliative care into the ICU: a lasting and developing legacy. Intensive Care Med. 2022 Jul;48(7):939-942. Epub 2022 May 16.

Amass T, Van Scoy LJ, Hua M, et al. Stress-Related Disorders of Family Members of Patients Admitted to the Intensive Care Unit With COVID-19. JAMA Intern Med. 2022 Jun 1;182(6):624-633.

Lee RY, Kross EK, Downey L, Paul SR, Heywood J, Nielsen EL, Okimoto K, Brumback LC, Merel SE, Engelberg RA, Curtis JR. Efficacy of a Communication-Priming Intervention on Documented Goals-of-Care Discussions in Hospitalized Patients With Serious Illness: A Randomized Clinical Trial. JAMA Netw Open. 2022 Apr 1;5(4):e225088.

Uyeda AM, Curtis JR, Engelberg RA, Brumback LC, Guo Y, Sibley J, Lober WB, Cohen T, Torrence J, Heywood J, Paul SR, Kross EK, Lee RY. Mixed-methods evaluation of three natural language processing modeling approaches for measuring documented goals-of-care discussions in the electronic health record. J Pain Symptom Manage. 2022 Jun;63(6):e713-e723. Epub 2022 Feb 16.

Stapleton RD, Ford DW, Sterba KR, Nadig NR, Ades S, Back AL, Carson SS, Cheung KL, Ely J, Kross EK, Macauley RC, Maguire JM, Marcy TW, McEntee JJ, Menon PR, Overstreet A, Ritchie CS, Wendlandt B, Ardren SS, Balassone M, Burns S, Choudhury S, Diehl S, McCown E, Nielsen EL, Paul SR, Rice C, Taylor KK, Engelberg RA. Evolution of Investigating Informed Assent Discussions about CPR in Seriously Ill Patients. J Pain Symptom Manage. 2022 Jun;63(6):e621-e632.

Rosenberg AR, Engelberg RA, Kross EK. Truths, Principles, Maxims, and Other Smart Things We Learned From J. Randall Curtis. J Pain Symptom Manage. 2022 Jun;63(6):e595-e600. Epub 2021 Dec 30.

Cox CE, Ashana DC, Khandelwal N, Kamal AH, Engelberg RA. Improving Outcomes Measurement in Palliative Care: The Lasting Impact of Randy Curtis and his Collaborators. J Pain Symptom Manage. 2022 Jun;63(6):e579-e586.

Curtis JR, Levy MM. Providing Compassionate Care in the ICU. Am J Respir Crit Care Med. 2022 May 1;205(9):990-991.

Curtis JR. Three Stories About the Value of Advance Care Planning. JAMA. 2021 Dec 7;326(21):2133-2134.

Khandelwal N, May P, Downey LM, Engelberg RA, Curtis JR. Advance Identification of Patients With Chronic Conditions and Acute Respiratory Failure at Greatest Risk for High-Intensity, Costly Care. J Pain Symptom Manage. 2022 Apr;63(4):618-626. Epub 2021 Nov 15.

Curtis JR. Life lessons after a career in intensive care medicine. Intensive Care Med. 2022 Feb;48(2):257-258. Epub 2021 Nov 8.

Hochendoner SJ, Amass TH, Curtis JR, Witt P, Weng X, Toyobo O, Lipnick D, Armstrong P, Cruse MH, Rea O, Van Scoy LJ. Voices from the Pandemic: A Qualitative Study of Family Experiences and Suggestions regarding the Care of Critically Ill Patients. Ann Am Thorac Soc. 2022 Apr;19(4):614-624.

Abedini NC, Curtis JR. Implementing and Enhancing Multifaceted Systems Interventions to Improve Goals-of-Care Discussions Among Patients With Serious Illness-An Opportunity for Human-Centered Design. JAMA Netw Open. 2021 Aug 2;4(8):e2121497.

Abedini NC, Merel SE, Hicks KG, Torrence J, Heywood J, Engelberg RA, Kross EK, Curtis JR. Applying Human-Centered Design to Refinement of the Jumpstart Guide, a Clinician- and Patient-Facing Goals-of-Care Discussion Priming Tool. J Pain Symptom Manage. 2021 Dec;62(6):1283-1288. Epub 2021 Jun 18.

Curtis JR, Kentish-Barnes N, Brumback LC, Nielsen EL, Pollak KI, Treece PD, Hudson L, Garzio G, Im J, Weiner BJ, Khandelwal N, Resche-Rigon M, Azoulay E, Engelberg RA. Facilitating communication for critically ill patients and their family members: Study protocol for two randomized trials implemented in the U.S. and France. Contemp Clin Trials. 2021 Aug;107:106465. Epub 2021 Jun 3.

Creutzfeldt CJ, Schutz REC, Zahuranec DB, Lutz BJ, Curtis JR, Engelberg RA. Family Presence for Patients with Severe Acute Brain Injury and the Influence of the COVID-19 Pandemic. J Palliat Med. 2021 May;24(5):743-746. Epub 2020 Nov 17.

Lee JD, Jennerich AL, Engelberg RA, Downey L, Curtis JR, Khandelwal N. Type of Intensive Care Unit Matters: Variations in Palliative Care for Critically Ill Patients with Chronic, Life-Limiting Illness. J Palliat Med. 2021 Jun;24(6):857-864. Epub 2020 Nov 6.

Jennerich AL, Hobler MR, Sharma RK, Engelberg RA, Curtis JR. Unplanned Admission to the ICU: A Qualitative Study Examining Family Member Experiences. Chest. 2020 Oct;158(4):1482-1489. Epub 2020 Jun 2.

Modes ME, Heckbert SR, Engelberg RA, Nielsen EL, Curtis JR, Kross EK. Patient-Reported Receipt of Goal-Concordant Care Among Seriously Ill Outpatients-Prevalence and Associated Factors. J Pain Symptom Manage. 2020 Oct;60(4):765-773. Epub 2020 May 7.

Curtis JR, Kross EK, Stapleton RD. The Importance of Addressing Advance Care Planning and Decisions About Do-Not-Resuscitate Orders During Novel Coronavirus 2019 (COVID-19). JAMA. 2020 May 12;323(18):1771-1772.

Khandelwal N, Engelberg RA, Hough CL, Cox CE, Curtis JR. The Patient and Family Member Experience of Financial Stress Related to Critical Illness. J Palliat Med. 2020 Jul;23(7):972-976. Epub 2020 Jan 2.

Kross EK, Rosenberg AR, Engelberg RA, Curtis JR. Postdoctoral Research Training in Palliative Care: Lessons Learned From a T32 Program. J Pain Symptom Manage. 2020 Mar;59(3):750-760.e8. Epub 2019 Nov 24.

Khandelwal N, May P, Curtis JR.Financial stress after critical illness: an unintended consequence of high-intensity care. Intensive Care Med. 2020 Jan;46(1):107-109. Epub 2019 Sep 23.

Long AC, Brumback LC, Curtis JR, Avidan A, Baras M, De Robertis E, Efferen L, Engelberg RA, Kross EK, Michalsen A, Mularski RA, Sprung CL; Worldwide End-of-Life Practice for Patients in ICUs (WELPICUS) Investigators. Agreement With Consensus Statements on End-of-Life Care: A Description of Variability at the Level of the Provider, Hospital, and Country. Crit Care Med. 2019 Oct;47(10):1396-1401.

Modes ME, Engelberg RA, Downey L, Nielsen EL, Lee RY, Curtis JR, Kross EK. Toward Understanding the Relationship Between Prioritized Values and Preferences for Cardiopulmonary Resuscitation Among Seriously Ill Adults. J Pain Symptom Manage. 2019 Oct;58(4):567-577.e1. Epub 2019 Jun 19.

Khandelwal N, Long AC, Lee RY, McDermott CL, Engelberg RA, Curtis JR. Pragmatic methods to avoid intensive care unit admission when it does not align with patient and family goals. Lancet Respir Med. 2019 Jul;7(7):613-625. Epub 2019 May 20.

Lee RY, Engelberg RA, Curtis JR, Hough CL, Kross EK. Novel Risk Factors for Posttraumatic Stress Disorder Symptoms in Family Members of Acute Respiratory Distress Syndrome Survivors. Crit Care Med. 2019 Jul;47(7):934-941.

Kross EK, Pollak KI, Curtis JR. Addressing the Psychological Symptoms of Critical Illness: The Importance of “Negative” Trials in Guiding Next Steps. JAMA. 2019 Feb 19;321(7):649-650.

Modes ME, Engelberg RA, Downey L, Nielsen EL, Curtis JR, Kross EK. Did a Goals-of-Care Discussion Happen? Differences in the Occurrence of Goals-of-Care Discussions as Reported by Patients, Clinicians, and in the Electronic Health Record. J Pain Symptom Manage. 2019 Feb;57(2):251-259.

Coats H, Downey L, Sharma RK, Curtis JR, Engelberg RA. Quality of communication and trust in patients with serious illness: An exploratory study of the relationships of race/ethnicity, socioeconomic status and religiosity. J Pain Symptom Manage. 2018 Oct;56(4):530-540.e6. Epub 2018 Jul 17.

Brown CE, Engelberg RA, Sharma R, Downey L, Fausto JA, Sibley J, Lober W, Khandelwal N, Loggers ET, Curtis JR. Race/Ethnicity, Socioeconomic Status, and Healthcare Intensity at the End of Life. J Palliat Med.2018 Sep;21(9):1308-1316. Epub 2018 Jun 12.

Curtis JR, Downey L, Back AL, Nielsen EL, Paul S, Lahdya AZ, Treece PD, Armstrong P, Peck R, Engelberg RA. Effect of a Patient and Clinician Communication-Priming Intervention on Patient-Reported Goals-of-Care Discussions Between Patients With Serious Illness and Clinicians: A Randomized Clinical Trial. JAMA Intern Med. 2018 Jul 1;178(7):930-940.

Hobler MR, Engelberg RA, Curtis JR, Ramos KJ, Zander MI, Howard SS, Goss CH, Aitken ML. Exploring Opportunities for Primary Outpatient Palliative Care for Adults with Cystic Fibrosis: A Mixed-Methods Study of Patients’ Needs. J Palliat Med. 2018 Apr;21(4):513-521. Epub 2018 Jan 3.

Curtis JR, Sathitratanacheewin S, Starks H, Lee RY, Kross EK, Downey L, Sibley J, Lober W, Loggers ET, Fausto JA, Lindvall C, Engelberg RA. Using Electronic Health Records for Quality Measurement and Accountability in Care of the Seriously Ill: Opportunities and Challenges. J Palliat Med. 2018 Mar;21(S2):S52-S60. Epub 2017 Nov 28.

Hicks K, Downey L, Engelberg RA, Fausto JA, Starks H, Dunlap B, Sibley J, Lober W, Khandelwal N, Loggers ET, Curtis JR. Predictors of Death in the Hospital for Patients with Chronic Serious Illness. J Palliat Med. 2018 Mar;21(3):307-314. Epub 2017 Sep 19.

Sathitratanacheewin S, Engelberg RA, Downey L, Lee RY, Fausto JA, Starks H, Dunlap B, Sibley J, Lober W, Loggers ET, Khandelwal N, Curtis JR. Temporal trends between 2010 and 2015 in intensity of care at end-of-life for patients with chronic illness: Influence of age under versus over 65 years. J Pain Symptom Manage. 2018 Jan;55(1):75-81. Epub 2017 Sep 5.

Jensen HI, Gerritsen RT, Koopmans M, Downey L, Engelberg RA, Curtis JR, Spronk PE, Zijlstra JG, Ørding H. Satisfaction with quality of ICU care for patients and families: the euroQ2 project. Crit Care. 2017 Sep 7;21(1):239.

Khandelwal N, Curtis JR, Freedman VA, Kasper JD, Gozalo P, Engelberg RA, Teno JM. How Often Is End-of-Life Care in the United States Inconsistent with Patients’ Goals of Care? J Palliat Med. 2017 Dec;20(12):1400-1404.

Long AC, Downey L, Engelberg RA, Nielsen EL, Ciechanowski P, Curtis JR. Understanding Response Rates to Surveys About Family Members’ Psychological Symptoms After Patients’ Critical Illness. J Pain Symptom Manage. 2017 Jul;54(1):96-104. Epub 2017 May 26.

Lavin K, Davydow DS, Downey L, Engelberg RA, Dunlap B, Sibley J, Lober WB, Okimoto K, Khandelwal N, Loggers ET, Teno JM, Curtis JR. Effect of Psychiatric Illness on Acute Care Utilization at End of Life From Serious Medical Illness. J Pain Symptom Manage. 2017 Aug;54(2):176-185.e1.

Dotolo D, Nielsen EL, Curtis JR, Engelberg RA. Strategies for Enhancing Family Participation in Research in the ICU: Findings From a Qualitative Study. J Pain Symptom Manage. 2017 Aug;54(2):226-230.e1. Epub 2017 Apr 22.

Khandelwal N, Benkeser D, Coe NB, Engelberg RA, Teno JM, Curtis JR. Patterns of Cost for Patients Dying in the Intensive Care Unit and Implications for Cost Savings of Palliative Care Interventions. J Palliat Med. 2016 Nov;19(11):1171-1178.

Teno JM, Gozalo P, Khandelwal N, Curtis JR, Meltzer D, Engelberg R, Mor V. Association of Increasing Use of Mechanical Ventilation Among Nursing Home Residents With Advanced Dementia and Intensive Care Unit Beds. JAMA Intern Med. 2016 Dec 1;176(12):1809-1816.

Khandelwal N, Benkeser D, Coe NB, Engelberg RA, Curtis JR. Economic Feasibility of Staffing the Intensive Care Unit with a Communication Facilitator. Ann Am Thorac Soc. 2016 Dec;13(12):2190-2196.

Doorenbos AZ, Levy WC, Curtis JR, Dougherty CM. An Intervention to Enhance Goals-of-Care Communication Between Heart Failure Patients and Heart Failure Providers. J Pain Symptom Manage. 2016 Sep;52(3):353-60.

Whitaker K, Kross EK, Hough CL, Hurd C, Back AL, Curtis JR. A Procedural Approach to Teaching Residents To Conduct Intensive Care Unit Family Conferences. J Palliat Med. 2016 Oct;19(10):1106-1109.

Fakhri S, Engelberg RA, Downey L, Nielsen EL, Paul S, Lahdya AZ, Treece PD, Curtis JR. Factors Affecting Patients’ Preferences for and Actual Discussions About End-of-Life Care. J Pain Symptom Manage. 2016 Sep;52(3):386-94. Epub 2016 Jun 3.

Starks H, Doorenbos A, Lindhorst T, Bourget E, Aisenberg E, Oman N, Rue T, Curtis JR, Hays R. The Family Communication Study: A randomized trial of prospective pediatric palliative care consultation, study methodology and perceptions of participation burden. Contemp Clin Trials. 2016 Jul;49:15-20.

Curtis JR, Downey L, Engelberg RA. The importance and challenge of measuring family experience with end-of-life care in the ICU. Intensive Care Med. 2016 Jul;42(7):1179-81.

Curtis JR, Engelberg RA, Teno JM. Understanding variability of end-of-life care in the ICU for the elderly. Intensive Care Med. 2016 Jul;42(7):1179-81.

Khandelwal N, Benkeser DC, Coe NB, Curtis JR. Potential Influence of Advance Care Planning and Palliative Care Consultation on ICU Costs for Patients With Chronic and Serious Illness. Crit Care Med. 2016 Aug;44(8):1474-81.

Long AC, Downey L, Engelberg RA, Ford DW, Back AL, Curtis JR. Physicians’ and Nurse Practitioners’ Level of Pessimism About End-of-Life Care During Training: Does It Change Over Time? J Pain Symptom Manage. 2016 May;51(5):890-897.e1.

Brown CE, Engelberg RA, Nielsen EL, Curtis JR. Palliative Care for Patients Dying in the Intensive Care Unit with Chronic Lung Disease Compared with Metastatic Cancer. Ann Am Thorac Soc. 2016 May;13(5):684-9.

Downey L, Hayduk LA, Curtis JR, Engelberg RA. Measuring Depression-Severity in Critically Ill Patients’ Families with the Patient Health Questionnaire (PHQ): Tests for Unidimensionality and Longitudinal Measurement Invariance, with Implications for CONSORT. J Pain Symptom Manage. 2016 May;51(5):938-46.

Ramos KJ, Downey L, Nielsen EL, Treece PD, Shannon SE, Curtis JR, Engelberg RA. Using Nurse Ratings of Physician Communication in the ICU to Identify Potential Targets for Interventions to Improve End-of-Life Care. J Palliat Med. 2016 Mar;19(3):292-9. Epub 2015 Dec 18.

DeKeyser Ganz F, Engelberg R, Torres N, Curtis JR. Development of a Model of Interprofessional Shared Clinical Decision Making in the ICU: A Mixed-Methods Study. Crit Care Med. 2016 Apr;44(4):680-9.  Epub 2015 Nov 12.

Long AC, Muni S, Treece PD, Engelberg RA, Nielsen EL, Fitzpatrick AL, Curtis JR. Time to Death after Terminal Withdrawal of Mechanical Ventilation: Specific Respiratory and Physiologic Parameters May Inform Physician Predictions.  J Palliat Med. 2015 Dec;18(12):1040-7. Epub 2015 Nov 10.

Lee JJ, Long AC, Curtis JR, Engelberg RA. The Influence of Race/Ethnicity and Education on Family Ratings of the Quality of Dying in the ICU.  Pain Symptom Manage. 2016 Jan;51(1):9-16. Epub 2015 Sep 16.

Curtis JR, Treece PD, Nielsen EL, Gold J, Ciechanowski PS, Shannon SE, Khandelwal N, Young JP, Engelberg RA. Randomized Trial of Communication Facilitators to Reduce Family Distress and Intensity of End-of-life Care. Am J Respir Crit Care Med. 2016 Jan 15;193(2):154-62. Epub 2015 Sep 17.

Creutzfeldt CJ, Engelberg RA, Healey L, Cheever CS, Becker KJ, Holloway RG, Curtis JR. Palliative Care Needs in the Neuro-ICU. Crit Care Med. 2015 Aug;43(8):1677-84. Epub 2015 Apr 11.

Khandelwal N, Kross EK, Engelberg RA, Coe NB, Long AC, Curtis JR. Estimating the effect of palliative care interventions and advance care planning on ICU utilization: a systematic review. Crit Care Med. 2015 May;43(5):1102-11.

Khandelwal N, Engelberg RA, Benkeser DC, Coe NB, Curtis JR. End-of-Life Expenditure in the ICU and Perceived Quality of Dying. Chest. 2014 Dec 1;146(6):1594-603.

Howell AA, Nielsen EL, Turner AM, Curtis JR, Engelberg RA. Clinicians’ perceptions of the usefulness of a communication facilitator in the intensive care unit. Am J Crit Care. 2014 Sep;23(5):380-6.

Long AC, Kross EK, Engelberg RA, Downey L, Nielsen EL, Back AL, Curtis JR. Quality of dying in the ICU: is it worse for patients admitted from the hospital ward compared to those admitted from the emergency department? Intensive Care Med. 2014 Nov;40 (11):1688-97. Epub 2014 Aug 13.

Stapleton RD, Ehlenbach WJ, Deyo RA, Curtis JR. Long-term outcomes after in-hospital CPR in older adults with chronic illness. Chest. 2014 Nov;146(5):1214-25.

Long AC, Kross EK, Davydow DS, Curtis JR. Posttraumatic stress disorder among survivors of critical illness: creation of a conceptual model addressing identification, prevention, and management. Intensive Care Med. 2014 Jun;40(6):820-9. Epub 2014 May 8.

Johnson JR, Engelberg RA, Nielsen EL, Kross EK, Smith NL, Hanada JC, Doll O’Mahoney SK, Curtis JR. The association of spiritual care providers’ activities with family members’ satisfaction with care after a death in the ICU. Crit Care Med. 2014 Sep;42(9):1991-2000.

Curtis JR, Back AL, Engelberg RA. Training for effective patient communication–reply. JAMA. 2014 Apr 2;311(13):1356-7.

Ford DW, Downey L, Engelberg R, Back AL, Curtis JR. Association between Physician Trainee Self-Assessments in Discussing Religion and Spirituality and Their Patients’ Reports. J Palliat Med. 2014 Apr;17(4):453-62. Epub 2014 Mar 20.

Long AC, Engelberg RA, Downey L, Kross EK, Reinke LF, Cecere Feemster L, Dotolo D, Ford DW, Back AL, Curtis JR. Race, income, and education: associations with patient and family ratings of end-of-life care and communication provided by physicians-in-training. J Palliat Med. 2014 Apr;17(4):435-47. Epub 2014 Mar 4.

Slatore CG, Feemster LC, Au DH, Engelberg RA, Curtis JR, Uman J, Reinke LF. Which patient and clinician characteristics are associated with high-quality communication among veterans with chronic obstructive pulmonary disease? J Health Commun. 2014;19(8):907-21. Epub 2014 Feb 21.

Wysham NG, Mularski RA, Schmidt DM, Nord SC, Louis DL, Shuster E, Curtis JR, Mosen DM. Long-term persistence of quality improvements for an intensive care unit communication initiative using the VALUE strategy. J Crit Care. 2014 Jun;29(3):450-4. Epub 2013 Dec 21.

Curtis JR, Back AL, Ford DW, Downey L, Shannon SE, Doorenbos AZ, Kross EK, Reinke LF, Feemster LC, Edlund B, Arnold RW, O’Connor K, Engelberg RA. Effect of communication skills training for residents and nurse practitioners on quality of communication with patients with serious illness: a randomized trial. JAMA. 2013 Dec 4;310(21):2271-81.

Bays AM, Engelberg RA, Back AL, Ford DW, Downey L, Shannon SE, Doorenbos AZ, Edlund B, Christianson P, Arnold RW, O’Connor K, Kross EK, Reinke LF, Feemster LC, Edwards K, Alexander SC, Tulsky JA, Curtis JR. Interprofessional communication skills training for serious illness: evaluation of a small-group, simulated patient intervention. J Palliat Med. 2014 Feb;17(2):159-66. Epub 2013 Nov 1.

Kross EK, Engelberg RA, Downey L, Cuschieri J, Hallman MR, Longstreth WT Jr, Tirschwell DL, Curtis JR. Differences in end-of-life care in the ICU across patients cared for by medicine, surgery, neurology and neurosurgery physicians. Chest. 2014 Feb;145(2):313-21. Epub 2013 Oct 10.

DeCato TW, Engelberg RA, Downey L, Nielsen EL, Treece PD, Back AL, Shannon SE, Kross EK, Curtis JR. Hospital variation and temporal trends in palliative and end-of-life care in the ICU. Crit Care Med. 2013 Jun;41(6):1405-11.

Long AC, Curtis JR. Physicians’ decision-making roles for critically ill patients: what is the “right” approach? Crit Care Med. 2013 Jun;41(6):1587-8.

Gries CJ, Dew MA, Curtis JR, Edelman JD, DeVito Dabbs A, Pilewski JM, Goss CH, Mulligan MS, White DB. Nature and correlates of post-traumatic stress symptomatology in lung transplant recipients. J Heart Lung Transplant. 2013 May;32(5):525-32.

Decato TW, Engelberg RA, Downey L, Nielsen EL, Treece PD, Back AL, Shannon SE, Kross EK, Curtis JR. Hospital Variation and Temporal Trends in Palliative and End-of-Life Care in the ICU. Crit Care Med. 2013 Jun;41(6):1405-11.

Curtis JR, Downey L, Engelberg RA. The quality of dying and death: is it ready for use as an outcome measure? Chest. 2013 Feb 1;143(2):289-91.

Curtis JR. The use of informed assent in withholding cardiopulmonary resuscitation in the ICU. Virtual Mentor. 2012 Jul 1;14(7):545-50.

Downey L, Au DH, Curtis JR, Engelberg RA. Life-Sustaining Treatment Preferences: Matches and Mismatches Between Patients’ Preferences and Clinicians’ Perceptions. J Pain Symptom Manage. 2013 Jul;46(1):9-19. Epub 2012 Sep 24.

Curtis JR, Engelberg RA, Bensink ME, Ramsey SD. End-of-life care in the intensive care unit: can we simultaneously increase quality and reduce costs? Am J Respir Crit Care Med. 2012 Oct 1;186(7):587-92. Epub 2012 Aug 2.

Curtis JR, Ciechanowski PS, Downey L, Gold J, Nielsen EL, Shannon SE, Treece PD, Young JP, Engelberg RA.  Development and evaluation of an interprofessional communication intervention to improve family outcomes in the ICU. Contemp Clin Trials. 2012 Nov;33(6):1245-54. Epub 2012 Jul 6.

Kross EK, Nielsen EL, Curtis JR, Engelberg RA.  Survey burden for family members surveyed about end-of-life care in the intensive care unit. J Pain Symptom Manage. 2012 Nov;44(5):671-80. Epub 2012 Jul 3.

Osborn TR, Curtis JR, Nielsen EL, Back AL, Shannon SE, Engelberg RA.  Identifying elements of ICU care that families report as important but unsatisfactory: decision-making, control and ICU atmosphere. Chest. 2012; 142(5):1185–1192. Epub 2012 May 31.

Dickson RP, Engelberg RA, Back AL, Ford DW, Curtis JR.  Internal medicine trainee self-assessments of end-of-life communication skills do not predict assessments of patients, families, or clinician-evaluators. J Palliat Med. 2012 Apr;15(4):418-26. Epub 2012 Apr 4.

Ford DW, Downey L, Engelberg R, Back AL, Curtis JR. Discussing religion and spirituality is an advanced communication skill: an exploratory structural equation model of physician trainee self-ratings. J Palliat Med. 2012 Jan;15(1):63-70. Epub 2012 Jan 13.

Lewis-Newby M, Curtis JR, Martin DP, Engelberg RA. Measuring family satisfaction with care and quality of dying in the intensive care unit: does patient age matter? J Palliat Med. 2011 Dec;14(12):1284-90. Epub 2011 Nov 22.

Janssen DJ, Spruit MA, Schols JM, Cox B, Nawrot TS, Curtis JR, Wouters EF.  Predicting changes in preferences for life-sustaining treatment among patients with advanced chronic organ failure. Chest. 2012 May;141(5):1251-9. Epub 2011 Oct 20.

Au DH, Udris EM, Engelberg RA, Diehr PH, Bryson CL, Reinke LF, Curtis JR.  A randomized trial to improve communication about end-of-life care among patients with COPD. Chest. 2012 Mar;141(3):726-35. Epub 2011 Sep 22.

Curtis JR.  Reimbursement for advance care planning: why should intensivists care?  Am J Respir Crit Care Med. 2011 Aug 15;184(4):387-8.

Reinke LF, Slatore CG, Uman J, Udris EM, Moss BR, Engelberg RA, Au DH.  Patient-clinician communication about end-of-life care topics: is anyone talking to patients with chronic obstructive pulmonary disease? J Palliat Med. 2011 Aug;14(8):923-8. Epub 2011 Jun 1.

Muni S, Engelberg RA, Treece PD, Dotolo D, Curtis JR.  The influence of race/ethnicity and socioeconomic status on end-of-life care in the intensive care unit. Chest. 2011 May;139(5):1025-33. Epub 2011 Feb 3.

Curtis JR, Engelberg RA.  What is the “right” intensity of care at the end of life and how do we get there? (editorial) Ann Intern Med. 2011 Feb 15;154(4):283-4.

Janssen DJ, Engelberg RA, Wouters EF, Curtis JR.  Advance care planning for patients with COPD: past, present and future. Patient Educ Couns. 2012 Jan;86(1):19-24. Epub 2011 Feb 12.

Muni S, Engelberg RA, Treece PD, Dotolo D, Curtis JR.  The influence of race/ethnicity and socioeconomic status on end-of-life care in the intensive care unit. Chest. 2011 May;139(5):1025-33. Epub 2011 Feb 3.

Ho LA, Engelberg RA, Curtis JR, Nelson J, Luce J, Ray DE, Levy MM.  Comparing clinician ratings of the quality of palliative care in the intensive care unit. Crit Care Med. 2011 May;39(5):975-83. Epub 2011 Jan 28.

Janssen DJ, Curtis JR, Au DH, Spruit MA, Downey L, Schols JM, Wouters EF, Engelberg RA.  Patient-clinician communication about end-of-life care for Dutch and US patients with COPD. Eur Respir J.  2011 Aug;38(2):268-76. Epub 2011 Jan 13.

Curtis JR, Nielsen EL, Treece PD, Downey L, Dotolo D, Shannon SE, Back AL, Rubenfeld GD, Engelberg RA.  Effect of a quality-improvement intervention on end-of-life care in the intensive care unit: a randomized trial. Am J Respir Crit Care Med. 2011 Feb 1;183(3):348-55. Epub 2010 Sep 10.

Kross EK, Engelberg RA, Gries CJ, Nielsen EL, Zatzick D, Curtis JR.  ICU care associated with symptoms of depression and PTSD among family members of those who die in the ICU. Chest. 2011 Apr;139(4):795-801. Epub 2010 Sep 9.

Janssen DJ, Engelberg RA, Curtis JR.  Toward patient-tailored education in COPD. Patient Educ Couns. 2010 Oct;81(1):1-2. Epub 2010 Aug 11.

White DB, Engelberg RA, Wenrich MD, Lo B, Curtis JR.  The language of prognostication in intensive care units. Med Decis Making. 2010; 30:76-83.

Reinke LF, Shannon SE, Engelberg R, Dotolo D, Silvestri GA, Curtis JR.  Nurses’ identification of important yet under-utilized end-of-life care skills for patients with life-limiting or terminal illnesses. J Palliat Med. 2010 Jun;13(6):753-9.

Reinke LF, Shannon SE, Engelberg RA, Young JP, Curtis JR.  Supporting hope and prognostic information: nurses’ perspectives on their role when patients have life-limiting prognoses. J Pain Symptom Manage. 2010 Jun;39(6):982-92.

Engelberg RA, Downey L, Wenrich MD, Carline JD, Silvestri GA, Dotolo D, Nielsen EL, Curtis JR.  Measuring the quality of end-of-life care. J Pain Symptom Manage. 2010 Jun;39(6):951-71.

Cooke CR, Hotchkin DL, Engelberg RA, Rubinson L, Curtis JR.  Predictors of time to death after terminal withdrawal of mechanical ventilation in the ICU. Chest. 2010 Aug;138(2):289-97. Epub 2010 Apr 2.

Slatore CG, Cecere LM, Reinke LF, Ganzini L, Udris EM, Moss BR, Bryson CL, Curtis JR, Au DH.  Patient-clinician communication: associations with important health outcomes among veterans with COPD. Chest. 2010 Sep;138(3):628-34. Epub 2010 Mar 18.

Downey L, Engelberg RA.  Quality-of-life trajectories at the end of life: assessments over time by patients with and without cancer. J Am Geriatr Soc. 2010 Mar;58(3):472-9.

Billings ME, Engelberg RA, Curtis JR, Block S, Sullivan AM.  Determinants of medical students’ perceived preparation to perform end-of-life care, quality of end-of-life care education, and attitudes toward end-of-life care. J Palliat Med. 2010 Mar;13(3):319-26.

McCormick AJ, Curtis JR, Stowell-Weiss P, Toms C, Engelberg RA.  Improving social work in intensive care unit palliative care: results of a quality improvement intervention. J Palliat Med. 2010 Mar;13(3):297-304.

Billings ME, Curtis JR, Engelberg RA.  Medicine residents’ self-perceived competence in end-of-life care. Acad Med. 2009 Nov;84(11):1533-9.

Downey L, Curtis JR, Lafferty WE, Herting JR, Engelberg RA.  The quality of dying and death questionnaire (QODD): empirical domains and theoretical perspectives. J Pain Symptom Manage. 2010 Jan;39(1):9-22. Epub 2009 Sep 25.

Gries CJ, Engelberg RA, Kross EK, Zatzick D, Nielsen EL, Downey L, Curtis JR.  Predictors of symptoms of post-traumatic stress and depression in family members after patient death in the intensive care unit. Chest. 2010 Feb;137(2):280-7. Epub 2009 Sep 17.

Kross EK, Engelberg RA, Shannon SE, Curtis JR.  Potential for response bias in family surveys about end-of-life care in the ICU. Chest. 2009 Dec;136(6):1496-502. Epub 2009 Jul 17.

Ehlenbach WJ, Barnato AE, Curtis JR, Kreuter W, Koepsell TD, Deyo RA, Stapleton RD.  Epidemiologic study of in-hospital cardiopulmonary resuscitation in the elderly. N Engl J Med. 2009 Jul 2;361(1):22-31.

Downey L, Engelberg RA, Standish LJ, Kozak L, Lafferty WE.  Three lessons from a randomized trial of massage and meditation at end of life: patient benefit, outcome measure selection, and design of trials with terminally ill patients. Am J Hosp Palliat Care. 2009 Aug-Sep;26(4):246-53. Epub 2009 Apr 24.

Back AL, Young JP, McCown E, Engelberg RA, Vig EK, Reinke LF, Wenrich MD, McGrath BB, Curtis JR.  Abandonment at the end of life from patient, caregiver, nurse, and physician perspectives: loss of continuity and lack of closure. Arch Intern Med. 2009 Mar 9;169(5):474-9.

Engelberg RA, Wenrich MD, Curtis JR.  Responding to families’ questions about the meaning of physical movements in critically ill patients. J Crit Care. 2008 Dec;23(4):565-71.

Thornton JD, Pham K, Engelberg RA, Jackson JC, Curtis JR.  Families with limited English proficiency receive less information and support in interpreted intensive care unit family conferences. Crit Care Med. 2009 Jan;37(1):89-95.

Kross EK, Gries CJ, Curtis JR.  Post-traumatic stress disorder following critical illness. Crit Care Clin. 2008 Oct;24(4):875-87, ix-x.

White DB, Engelberg RA, Wenrich MD, Lo B, Curtis JR.  The language of prognostication in intensive care units. Med Decis Making. 2010 Jan-Feb;30(1):76-83. Epub 2008 Aug 27.

Gerstel E, Engelberg RA, Koepsell T, Curtis JR.  Duration of withdrawal of life support in the intensive care unit and association with family satisfaction. Am J Respir Crit Care Med. 2008 Oct 15;178(8):798-804.

Selph RB, Shiang J, Engelberg R, Curtis JR, White DB.  Empathy and life support decisions in intensive care units. J Gen Intern Med. 2008 Sep;23(9):1311-7.

Downey L, Engelberg RA, Curtis JR, Lafferty WE, Patrick DL.  Shared priorities for the end-of-life period. J Pain Symptom Manage. 2009 Feb;37(2):175-88. Epub 2008 Aug 22.

Kross EK, Curtis JR.  Burden of psychological symptoms and illness in family of critically ill patients: what is the relevance for critical care clinicians? Crit Care Med. 2008 Jun;36(6):1955-6.

Curtis JR, Treece PD, Nielsen EL, Downey L, Shannon SE, Braungardt T, Owens D, Steinberg KP, Engelberg RA.  Integrating palliative and critical care: evaluation of a quality-improvement intervention. Am J Respir Crit Care Med. 2008 Aug 1;178(3):269-75.

Curtis JR, Engelberg R, Young JP, Vig LK, Reinke LF, Wenrich MD, McGrath B, McCown E, Back AL.  An approach to understanding the interaction of hope and desire for explicit prognostic information among individuals with severe chronic obstructive pulmonary disease or advanced cancer. J Palliat Med. 2008 May;11(4):610-20.

Reinke LF, Engelberg RA, Shannon SE, Wenrich MD, Vig EK, Back AL, Curtis JR.  Transitions regarding palliative and end-of-life care in severe chronic obstructive pulmonary disease or advanced cancer: themes identified by patients, families, and clinicians. J Palliat Med. 2008 May;11(4):601-9.

Glavan BJ, Engelberg RA, Downey L, Curtis JR.  Using the medical record to evaluate the quality of end-of-life care in the intensive care unit. Crit Care Med. 2008 Apr;36(4):1138-46.

Pham K, Thornton JD, Engelberg RA, Jackson JC, Curtis JR.  Alterations during medical interpretation of ICU family conferences that interfere with or enhance communication. Chest. 2008 Jul;134(1):109-16. Epub 2008 Mar 17.

Gries CJ, Curtis JR, Wall RJ, Engelberg RA.  Family member satisfaction with end-of-life decision-making. Chest. 2008 Mar;133(3):704-12. Epub 2008 Jan 15.

Curtis JR, Burt RA.  Point: the ethics of unilateral “do not resuscitate” orders: the role of “informed assent.” Chest. 2007 Sep;132(3):748-51; discussion 755-6.

Diehr P, Lafferty WE, Patrick DL, Downey L, Devlin SM, Standish LJ.  Quality of life at the end of life. Health Qual Life Outcomes. 2007 Aug 3;5(1):51.

McCormick AJ, Engelberg R, Curtis JR.  Social workers in palliative care: assessing activities and barriers in the intensive care unit. J Palliat Med. 2007 Aug;10(4):929-37.

White DB, Curtis JR, Wolf LE, Prendergast TJ, Taichman DB, Kuniyoshi G, Acerra F, Lo B, Luce JM.  Life support for patients without a surrogate decision maker: who decides? Ann Intern Med. 2007 Jul 3;147(1):34-40.

Wall RJ, Curtis JR, Cooke CR, Engelberg RA.  Family satisfaction in the ICU: differences between families of survivors and non-survivors. Chest. 2007 Nov;132(5):1425-33. Epub 2007 Jun 15.

Curtis JR, Puntillo K.  Is there an epidemic of burnout and post-traumatic stress in critical care clinicians? Am J Respir Crit Care Med. 2007 Apr 1;175(7):634-6.

White DB, Braddock CH 3rd, Bereknyei S, Curtis JR.  Toward shared decision making at the end of life in intensive care units: opportunities for improvement. Arch Intern Med. 2007 Mar 12;167(5):461-7.

Wall RJ, Engelberg RA, Gries CJ, Glavan B, Curtis JR.  Spiritual care of families in the intensive care unit. Crit Care Med. 2007 Apr;35(4):1084-90.

Lautrette A, Darmon M, Megarbane B, Joly LM, Chevret S, Adrie C, Barnoud D, Bleichner G, Bruel C, Choukroun G, Curtis JR, Fieux F, Galliot R, Garrouste-Orgeas M, Georges H, Goldgran-Toledano D, Jourdain M, Loubert G, Reignier J, Saidi F, Souweine B, Vincent F, Barnes NK, Pochard F, Schlemmer B, Azoulay E.  A communication strategy and brochure for relatives of patients dying in the ICU. N Engl J Med. 2007 Feb 1;356(5):469-78.

White DB, Engelberg RA, Wenrich MD, Lo B, Curtis JR.  Prognostication during physician-family discussions about limiting life support in intensive care units. Crit Care Med. 2007 Feb;35(2):442-8.

Hsieh HF, Shannon SE, Curtis JR.  Contradictions and communication strategies during end-of-life decision making in the intensive care unit. J Crit Care. 2006 Dec;21(4):294-304.

Wall RJ, Engelberg RA, Downey L, Heyland DK, Curtis JR.  Refinement, scoring, and validation of the family satisfaction in the intensive care unit (FS-ICU) survey. Crit Care Med. 2007; 35(1):271-9.

Treece PD, Engelberg RA, Shannon SE, Nielsen EL, Braungardt T, Rubenfeld GD, Steinberg KP, Curtis JR.  Integrating palliative and critical care: description of an intervention. Crit Care Med. 2006 Nov;34(11 Suppl):S380-7.

Curtis JR, Engelberg RA.  Measuring success of interventions to improve the quality of end-of-life care in the intensive care unit. Crit Care Med. 2006 Nov;34(11 Suppl):S341-7.

Downey L, Engelberg RA, Shannon SE, Curtis JR.  Measuring intensive care nurses’ perspectives on family-centered end-of-life care: evaluation of three questionnaires. Am J Crit Care. 2006 Nov;15(6):568-79.

Engelberg R, Downey L, Curtis JR.  Psychometric characteristics of a quality of communication questionnaire assessing communication about end-of-life care. J Palliat Med. 2006 Oct;9(5):1086-98.

Engelberg RA.  Measuring the quality of dying and death: methodological considerations and recent findings. Curr Opin Crit Care. 2006; Oct;12(5):381-7.

Wenrich MD, Curtis JR.  Narratives of critical care: the missing link. J Crit Care. 2006 Sep;21(3):248-9.

White DB, Curtis JR.  Establishing an evidence base for physician-family communication and shared decision making in the intensive care unit. Crit Care Med. 2006 Sep;34(9):2500-1.

White DB, Curtis JR, Lo B, Luce JM.  Decisions to limit life-sustaining treatment for critically ill patients who lack both decision-making capacity and surrogate decision-makers. Crit Care Med. 2006 Aug;34(8):2053-9.

Stapleton RD, Engelberg RA, Wenrich MD, Goss CH, Curtis JR.  Clinician statements and family satisfaction with family conferences in the intensive care unit. Crit Care Med. 2006 Jun;34(6):1679-85.

Au DH, Udris EM, Fihn SD, McDonell MB, Curtis JR.  Differences in health care utilization at the end of life among patients with chronic obstructive pulmonary disease and patients with lung cancer. Arch Intern Med. 2006 Feb 13;166(3):326-31.

Engelberg RA, Patrick DL, Curtis JR.  Correspondence between patients’ preferences and surrogates’ understandings for dying and death. J Pain Symptom Manage. 2005 Dec;30(6):498-509.

Curtis JR, Cook DJ, Wall RJ, Angus DC, Bion J, Kacmarek R, Kane-Gill SL, Kirchhoff KT, Levy M, Mitchell PH, Moreno R, Pronovost P, Puntillo K.  Intensive care unit quality improvement: a “how-to” guide for the interdisciplinary team. Crit Care Med. 2006 Jan;34(1):211-8.

Curtis JR, Engelberg RA, Wenrich MD, Au DH.  Communication about palliative care for patients with chronic obstructive pulmonary disease. J Palliat Care. 2005 Autumn;21(3):157-64.

Curtis JR, Shannon SE.  Transcending the silos: toward an interdisciplinary approach to end-of-life care in the ICU. Intensive Care Med. 2006 Jan;32(1):15-7.

Norris WM, Wenrich MD, Nielsen EL, Treece PD, Jackson JC, Curtis JR.  Communication about end-of-life care between language-discordant patients and clinicians: insights from medical interpreters. J Palliat Med. 2005 Oct;8(5):1016-24.

West HF, Engelberg RA, Wenrich MD, Curtis JR.  Expressions of nonabandonment during the intensive care unit family conference. J Palliat Med. 2005 Aug;8(4):797-807.

Hough CL, Hudson LD, Salud A, Lahey T, Curtis JR.  Death rounds: end-of-life discussions among medical residents in the intensive care unit. J Crit Care. 2005 Mar;20(1):20-5.

Knauft ME, Nielsen EL, Engelberg RA, Patrick DL, Curtis JR.  Barriers and facilitators to end-of-life care communication for patients with COPD. Chest. 2005;127: 2188-2196.

Norris WM, Nielsen EL, Engelberg RA, Curtis JR.  Treatment preference for resuscitation and critical care among homeless persons. Chest. 2005; 127: 2180-2187.

Levy CR, Ely EW, Payne K, Engelberg RA, Patrick DL, Curtis JR.  Quality of dying and death in two medical ICUs: perceptions of family and clinicians. Chest. 2005 May;127(5):1775-83.

Hough CL, Curtis JR.  Long-term sequelae of critical illness: memories and health-related quality of life. Crit Care. 2005 Apr;9(2):145-6. Epub 2005 Feb 23.

Stapleton RD, Nielsen EL, Engelberg RA, Patrick DL, Curtis JR.  Association of depression and life-sustaining treatment preferences in patients with COPD. Chest. 2005 Jan;127(1):328-34.

Curtis JR, Engelberg, RA, Wenrich MD, Shannon SE, Treece PD, Rubenfeld GD.  Missed opportunities during family conferences about end-of-life care in the intensive care unit. J Respir Crit Care Med. 2005; 171: 844-849.

Mularski RA, Curtis JR, Osborne ML, Engelberg RA, Ganzini L.  Agreement among family members in their assessment of the quality of dying and death. J Pain Symptom Manage. 2004 Oct; 28 (4): 306-15.

Curtis JR, Engelberg RA, Nielsen EL, Au DH, Patrick DL.  Patient-physician communication about end-of-life care for patients with COPD. Eur Respir J. 2004; 24: 200-205.

Hodde NM, Engelberg RA, Treece PD, Steinberg KP, Curtis JR.  Factors associated with nurse assessment of the quality of dying and death in the ICU. Crit Care Med. 2004, Aug;32(8):1648-53.

Chan JD, Treece PD, Engelberg RA, Crowley L, Rubenfeld GD, Steinberg KP, Curtis JR.  Narcotic and benzodiazepine use after withdrawal of life support: association with time to death? Chest. 2004; 126:286-93.

McDonagh JR, Elliott TB, Engelberg RA, Treece PD, Shannon SE, Rubenfeld GD, Patrick DL, Curtis JR.  Family satisfaction with family conferences about end-of-life care in the intensive care unit: increased proportion of family speech is associated with increased satisfaction. Crit Care Med. 2004; 32:1484-1488.

Clarke EB, Luce JM, Curtis JR, Levy M, Nelson J, Solomon MZ, for the Robert Wood Johnson Foundation Critical Care End-of-Life Peer Workgroup Members.  A content analysis of forms, guidelines, and other materials documenting end-of-life care in intensive care units. J Crit Care. 2004; 19:108-17.

Treece PD, Engelberg RA, Crowley L, Chan JD, Rubenfeld GD, Steinberg KP, Curtis JR.  Evaluation of a standardized order form for the withdrawal of life support in the intensive care unit. Crit Care Med. 2004; 32:1141-1148.

Curtis JR.  Communicating about end-of-life care with patients and families in the intensive care unit. Crit Care Clin. 2004 Jul;20(3):363-80, viii.

Clarke EB, Curtis JR, Luce JM, Levy M, Danis M, Nelson J, Solomon MZ; Robert Wood Johnson Foundation Critical Care End-Of-Life Peer Workgroup Members.  Quality indicators for end-of-life care in the intensive care unit. Crit Care Med. 2003 Sep;31(9):2255-62

Patrick DL, Curtis JR, Engelberg RA, Nielsen EL, McCown EB.  Measuring and improving the quality of dying and death. Ann Intern Med. 2003 Sep2; 139 (5 pt 2): 410-5.

Curtis JR, Patrick DL.  Assessment of health status among patients with COPD. Eur Respir J Suppl. 2003 Jun;41:36s-45s.

Curtis JR, Burt RA.  Why are critical care clinicians so powerfully distressed by family demands for futile care? J Criti Care. 2003 Mar;18(1):22-4.

Rubenfeld GD, Curtis JR.  Beyond ethical dilemmas: improving the quality of end-of-life care in the intensive care unit. Crit Care. 2003 Feb;7(1):11-2. Epub 2002 Dec 18.

Wenrich MD, Curtis JR, Ambrozy DM, Carline JD, Shannon SE, Ramsey PG.  Dying patients’ need for emotional support and personalized care from physicians: perspectives of patients with terminal illness, families and health care providers. J Pain Symptom Manage. 2003; Mar25(3):236-46.

Carline JD, Curtis JR, Wenrich MD, Shannon SE, Ambrozy DM, Ramsey PG.  Physicians’ Interactions with health care teams and systems in the care of dying patients: perspectives of dying patients, family members, and health care professionals. J Pain Symptom Manage. 2003; Jan; 25(1): 19-28.

Curtis JR, Engelberg RA, Wenrich MD, Nielsen EL, Shannon SE, Treece PD, Tonelli MR, Patrick DL, Robins LS, McGrath BB, Rubenfeld GD.  Studying communication about end-of-life care during the ICU family conference: development of a framework. J Crit Care. 2002;17:147-160.

Curtis JR, Patrick DL, Engelberg RA, Norris K, Asp C, Byock I.  A measure of the quality of dying and death: initial validation using after-death interviews with family members. J Pain Symptom Manage. 2002 Jul; 24(1):17-31.

Curtis JR, Wenrich MD, Carline JD, Shannon SE, Ambrozy DM, Ramsey PG. Patients’ perspectives on physician skill in end-of-life care: differences between patients with COPD, cancer, and AIDS. Chest. 2002 Jul; 122(1):356-62.

Back AL, Curtis JR.  Communicating bad news. West J Med. 2002 May;176(3):177-80.

Byock I, Norris K, Curtis JR, Patrick DL.  Improving end-of-life experience and care in the community: a conceptual framework. J Pain Symptom Manage. 2001 Sep; 22(3):759-72.

Patrick DL, Engelberg R, Curtis JR.  Evaluating the quality of dying and death. J Pain Symptom Manage. 2001; Sep 22(3):717-26.

Back AL, Curtis JR.  When does primary care turn into palliative care? West J Med. 2001 Sep;175(3):150-1.

Wenrich MD, Curtis JR, Shannon SE, Carline JD, Ambrozy DM, Ramsey PG.  Communicating with dying patients within the spectrum of medical care from terminal diagnosis to death. Arch Intern Med. 2001; Mar 26;161(6):868-74.

Curtis JR, Wenrich MD, Carline JD, Shannon SE, Ambrozy DM, Ramsey PG.  Understanding physicians’ skills at providing end-of-life care: perspectives of patients, families, and health care workers. J Gen Intern Med. 2001; 16:41-9.

Curtis JR, Patrick DL, Shannon SE, Treece PD, Engelberg RA, Rubenfeld GD.  The family conference as a focus to improve communication about end-of-life care in the ICU: opportunities for improvement. Crit Care Med. 2001; 29:N26-33.

Curtis JR.  Communicating with patients and their families about advance care planning and end-of-life care. Respir Care. 2000, 45:1385-1394.

Curtis JR, Patrick DL, Caldwell E, Collier AC.  Why don’t patients with AIDS and physicians talk about end-of-life care? Barriers to communication for patients with acquired immunodeficiency syndrome and their primary care clinicians. Arch Intern Med. 2000; 160:1597-1601.

Curtis JR, Patrick DL, Caldwell E, Collier AC.  The attitudes of patients with advanced AIDS towards use of the medical futility rationale in decisions to forego mechanical ventilation. Arch Intern Med. 2000; 160:1690-6.

Patrick DL, Kinne S, Engelberg RA, Pearlman RA.  Functional status and perceived quality of life in adults with and without chronic conditions. J Clin Epidemiol. 2000 Aug;53(8):779-85.

Curtis JR, Patrick DL, Caldwell E, Greenlee H, Collier AC.  The quality of patient-clinician communication about end-of-life care: a study of patients with AIDS and their primary care clinicians. AIDS. 1999; 13:1123-31.

Stewart AL, Teno J, Patrick DL, Lynn J.  The concept of quality of life of dying persons in the context of health care. J Pain Symptom Manage. 1999 Feb;17(2):93-108.

Curtis JR, Patrick DL.  Barriers to communication about end-of-life care in AIDS patients. J Gen Intern Med. 1997; 12:736-41.

Patrick DL, Pearlman RA, Starks HE, Cain KC, Cole WG, Uhlmann RF.  Validation of preferences for life-sustaining treatment: implications for advance care planning. Ann Intern Med. 1997 Oct 1;127(7):509-17.

Patrick DL, Starks HE, Cain KC, Pearlman RA, Uhlmann RF.  Measuring preferences for health states worse than death. Med Decis Making. 1994 Jan-Mar;14(1):9-18.

Book:

Curtis JR, Rubenfeld GD (eds.). The Transition from Cure to Comfort: Managing Death in the ICU. Oxford University Press: New York, 2001.