Managing Health
Information in
Your Life
We are designing an information system to help people with breast cancer manager their health information. When making treatment decisions and undergoing treatment, patients are often overwhelmed by the accumulation of unfamiliar information that they need to keep and use. We want to make it easier for people to organize and maintain all of their information within the context of managing the rest of their lives and schedules.
We are looking for cancer patients or survivors (any type of cancer) to share their experiences with us through taking a short survey and for breast cancer patients to participate in a 6-week study.
Some recent popular press articles that mention our work :
Social networking makes it easier for patients to ask for help
Facebook boosts patient engagement
We would like to thank all of the breast cancer patients and survivors on our design team and advisory board. This work would not have been possible without you!
We are also thankful for our funding from the National Library of Medicine (Grant 1R01LM009143-01A2), an institute of the National Institutes of Health.