Institutional Palliative Care Clinical Programs
HARBORVIEW MEDICAL CENTER PALLIATIVE CARE CONSULTATION
About Palliative Care
Palliative care is specialized medical care for people with serious illness. The main focus of palliative care is to improve the quality of life for patients and their families. Palliative care is a team approach provided by doctors, nurses, social workers and other specialists who work together with a patient’s other doctors to provide an extra layer of support. It is appropriate at any age and at any stage in a serious illness and can be provided along with curative treatment. A visit from palliative care often involves learning who each patient is as a person, understanding their goals and values to develop a personalized plan of care, assisting with medical decision making, providing pain and symptom relief, and offering spiritual, cultural and emotional support.
History and Mission
The Inpatient Palliative and Supportive Care Consultation Team at Harborview Medical Center was founded in 2004 with a grant from the Robert Wood Johnson Foundation to Dr. Randall Curtis and the service was built and developed by Dr. Darrell Owens. Our team, along with the dedicated staff at Harborview, shares a mission to provide the best care possible to all our patients and their families, especially the most vulnerable individuals in our community. Additionally, since Harborview is the only level 1 trauma and burn center for the state of Washington and a leader in neurosurgery, stroke care, orthopedics, vascular surgery, and HIV care, our team has special expertise in supporting patients and families facing these illnesses.
Our team is available 24 hours a day, 7 days a week. We generally see patients in person Monday through Friday between 8:00am and 6:00pm. However we are available after hours and on weekends via phone, or in person if needed, for urgent situations or complex symptom management. Our services include, but are not limited to:
In addition to the team members listed below, we work closely with our colleagues in the Harborview Outpatient Palliative and Supportive Care Clinic. We also collaborate regularly with the spiritual care department and our team will soon be joined by a dedicated social worker.
For urgent concerns:
Contact the on-call provider through the Harborview paging operator at 206-744-3000
HARBORVIEW MEDICAL CENTER OUTPATIENT PALLIATIVE AND SUPPORTIVE CARE CLINIC
About Palliative Care
Palliative care is specialized medical care for people with serious illness. The main focus of palliative care is to improve the quality of life for patients and their families. Palliative care is a team approach provided by doctors, nurses, social workers and other specialists who work together with a patient’s other doctors to provide an extra layer of support. It is appropriate at any age and at any stage in a serious illness and can be provided along with curative treatment. A visit from palliative care often involves learning each patient’s story, understanding their goals and values to develop a personalized plan of care, assisting with medical decision making, providing pain and symptom relief, and offering spiritual, cultural and emotional support.
History and Mission
The Harborview Medical Center Outpatient Palliative and Supportive Care Clinic was founded in 2006 by Dr. Darrell Owens. Our team, along with the dedicated staff at Harborview Medical Center, shares a mission to provide the best care possible to all our patients and their families, especially the most vulnerable individuals in our community. Additionally, since Harborview is the only level 1 trauma and burn center for the state of Washington and a leader in neurosurgery, stroke care, orthopedics, vascular surgery and HIV, our team has special expertise in supporting patients and families facing these illnesses.
Our team is available 24 hours a day, 7 days a week. We generally see patients in person 5 days per week, Monday through Friday, either in the clinic or in the patient’s place of residence—personal place of residence, an adult family home, or in a skilled nursing facility. For those who are marginally housed or homeless, we are also able to make arrangements to visit in the various shelters and clinics in downtown Seattle.
In addition to providing consultative outpatient palliative care, our clinic also provides concurrent primary care for those with a prognosis of less than one year.
In addition to the team members listed below, we work closely with our colleagues in the Harborview Inpatient Palliative and Supportive Care Service should any of our clinic patients be admitted, or for hospitalized patients seen by our Inpatient team who would benefit from outpatient follow-up.
For urgent concerns:
Contact the on-call provider through the Harborview paging operator at 206.744.3000.
For non-urgent concerns:
Harborview Medical Center
Outpatient Palliative and Supportive Care Service
Click on video below to view: "Outpatient Palliative Care from UW Medicine"
NW HOSPITAL AND MEDICAL CENTER INPATIENT PALLIATIVE CARE CONSULTATION SERVICES
Northwest Hospital & Medical Center launched its Inpatient Palliative Care Consultation service in February 2013. The Palliative and Supportive Care Service at Northwest Hospital provides palliative care consultation services to patients and families seven days per week, in addition to providing care for patients requiring inpatient hospice care. The service focuses on enhancing quality of life for patient and family, optimizing function, helping with decision-making and providing opportunities for personal growth. It is delivered concurrently with life-prolonging care or as the main focus of care.
About Palliative Care
Palliative care is both a philosophy of care and an organized, highly structured system for delivering care. The Palliative Care Service is a specialty service dedicated to improving the quality of life and easing the suffering of patients, families and caregivers coping with serious illness. Palliative care offers personalized medical care, with special attention to the relief of symptoms, pain, and stress associated with a serious illness. Palliative care is appropriate, whatever the diagnosis, at any age, and at any stage of illness. And, it can be provided together with curative treatment.
A member of our palliative care team is available to meet with you to develop a comprehensive treatment plan that addresses your needs and what is important to you.
Our palliative care team of doctors, nurses, social workers, chaplains and other specialists, work closely with your other doctors, to address the physical symptoms, practical aspects of daily living, and emotional, social and spiritual needs that may arise during serious illness.
The Inpatient Palliative Care Team at Northwest Hospital includes:
Please call 206.368.6850 or email firstname.lastname@example.org for more information about our services at NWHMC.
SEATTLE CANCER CARE ALLIANCE (SCCA) SUPPORTIVE AND PALLIATIVE CARE SERVICE
Seattle Cancer Care Alliance (SCCA) is a world-class, NCI-designated comprehensive cancer center that unites doctors from Fred Hutch, UW Medicine, and Seattle Children’s.
SCCA’s purpose is to provide state-of-the-art, patient and family centered care; support the conduct of cancer clinical research and education; enhance access to improved cancer interventions; and advance the standard of cancer care regionally and beyond.
For more information about SCCA, please visit our website: http://www.seattlecca.org
What Is Palliative Care?
Palliative care is specialized medicine for people who have a life-limiting or life-threatening
condition. It is an extra layer of support for those with a serious illness, not just for those who
are dying. At SCCA, palliative care is for anyone with a cancer diagnosis, and it’s provided in
conjunction with your regular oncology appointments.
Palliative care is all about enhancing your quality of life, including:
• Relieving pain and other symptoms
• Helping you cope with the stress of having cancer
• Helping you understand your condition and your choices for care so you can make decisions that
are right for you
• Talking with your family about your illness, your treatment, and your wishes
• Determining what is most important to you
• Preparing for the future
• Helping you complete an advance directive for health care, living will, and durable power of
attorney for health care
• Helping you decide if and when it is right to enroll in hospice
If you are an SCCA patient, the team from our Supportive and Palliative Care Service can help improve
your ability to tolerate treatment and carry on with everyday life.
Available to Anyone with Cancer at Any Time
Palliative care is available to anyone with cancer regardless of the stage of their disease, the amount of time since their diagnosis, or the type of treatment they are receiving for their cancer. You can receive supportive and palliative care along with treatment to fight your cancer. The Supportive and Palliative Care team works with your oncology team at SCCA to provide in-depth symptom management and support. Your oncologist continues to make decisions with you about your care.
Who is on Our Team?
Molly Bumpus, MS, ARNP, ACHPN
Meagan Blazey, MS, ARNP
Charlie Pieterick, MS, ARNP, ACHPN
Jodie David, RN, CCRC
Judy Fihn, RN, CHPN
In addition, we utilize social workers, chaplains, the cancer pain clinic, psychiatrists, psychologists, child life specialists, physical therapists, nutritionists, and patient educators as needed.
Elizabeth Trice Loggers, MD, PhD.
Medical Director, SCCA Palliative Care; Assistant Member, Fred Hutch
Moreen Dudley, MBA, MSW, LICSW.
Administrative Director, SCCA Palliative Care;
Director, Supportive Service, Radiation Therapy and Specialty Clinics
Petr Horak, Program Coordinator
Proven Power of Palliative Care
The American Society of Clinical Oncology recommends that palliative care be integrated into standard
oncology care for patients with advanced cancer or significant symptoms at the time of their cancer
diagnosis. This recommendation comes from a randomized controlled study that showed improved survival in patients with newly diagnosed metastatic non-small cell lung cancer who received early palliative care along with standard oncologic treatment.1 These patients also had better quality of life and less depression. That’s why at SCCA, if you have advanced cancer or significant symptoms at diagnosis, we want to talk with you about integrating palliative care into your treatment.
Palliative Care Is Not the Same as Hospice Care
Hospice care is designed for people who are in the last six months of their life and who are not receiving treatment aimed at curing their disease or prolonging their life. Usually hospice care is provided in your home by your own caregiver (such as a family member) along with a hospice team (specialized nurses, social workers, chaplains, and volunteers) that visits regularly.
The Supportive and Palliative Care team can help you decide if and when it is right to enroll in hospice. We can also assist with referrals to hospice care and provide ongoing coordination of care with the hospice team, if and when this is appropriate.
Learn More or Make an Appointment
To find out more about SCCA’s Supportive and Palliative Care Service, ask your SCCA doctor,
call (206) 288-7474, Monday through Friday, 8 a.m. to 5 p.m., or email us at email@example.com.
To make an appointment, call the scheduler at (206) 288-7324, Monday through Friday, 8 a.m. to 5 p.m.
Appointments are usually available within one to two weeks. Learn what to expect during your first
appointment with our service.
SEATTLE CHILDREN'S PALLIATIVE CARE PROGRAM
What is the Palliative Care Program?
The Palliative Care Program is for any family whose child is facing a serious, possibly life-threatening illness. We understand that each family is different. We take a personalized approach to address the physical, psychological, social and other effects a possibly life-threatening illness can have on a family.
The team includes specialists in palliative care for children and teens:
• Nurse practitioners
• Nurse care coordinators
• Palliative care consultants who may have a background in social work, chaplaincy or nursing.
We work with you and your child’s medical teams to ensure that your preferences are always considered and that you are given all the available options.
How We Can Help
The Palliative Care Program supports you in being an active participant in the care planning and decision-making for your child. We work with your child’s healthcare team to help you make treatment choices that are right for you and your child. We help make sure the goals of your child and family remain at the center of all discussions with your child’s healthcare providers. This can take many forms, from care planning conferences to technical or psychological support when you are facing complicated medical decisions.
When your family has been referred to the Palliative Care team, you decide how much you would like us to be involved in your child’s care. Our support can include:
• Being there for you throughout the many different stages of your child’s care
• Working with your medical team to discuss different ways of managing symptoms
• Helping you understand what can sometimes be complex medical communications
• Keeping your family’s goals, hopes and values at the center of the decision-making process
• Ross M. Hays, MD, medical director
• Arika Patneaude, MSW, LICSW, manager
• Jeff Beck, MD
• Jori Bogetz, MD
• Eileen Rhee, MD, MS
• Kim Sawyer, MD
• Abby Rosenberg, MD
• Amy Trowbridge, MD
• Alisa Van Cleave, MD
• Macallagh McEvoy, ARNP
Nurse Care Coordinator
• Anne Anderson, BSN
• Daphne Lindsey, MSW, LICSW
• Lauren Schmidt, MSW, LICSW
• Maya Scott, MSW, LSWAIC
• Jennifer Butner, MDiv, BCC
• Dawn Marie Pares
How to Access Our Services
The Palliative Care Program is available through referral. Your child’s primary medical team can submit a referral, or you may speak directly to your care team and ask for a referral. After your provider places a referral, a member of our team will arrange a time to meet with you and your family.
If you have any questions or would like to learn more, please call the Palliative Care program coordinator at 206-987-7459. We are open Monday through Friday from 9 a.m. to 5 p.m. Once your family has begun working with us, our doctors are on call 24/7 through the hospital operator or your child’s bedside nurse.
UNIVERSITY OF WASHINGTON MEDICAL CENTER PALLIATIVE CARE SERVICES
The University of Washington Medical Center Palliative Care Consultation Service began in 2005 when UWMC invested a 0.5 FTE physician in a consult based Palliative Care Service (PCS) to support primary medical teams in the care of seriously ill patients and their families.
The PCS has been extremely successful. It expanded in 2009 from 1.5 FTE to 4.25 FTE with the goal of moving from a consult based service toward an integrated hospital system of care making Palliative Care a standard of care received by all complex, high case mix index patients from the first days of hospitalization.
We have been moving toward a system based model, which will become the standard of care. In 2009 we provided consults to 345 unique patients and in 2011 we consulted 658 unique patients and their families that generated a total of 780 new consults.
Our partners in all the adult ICUs, Regional Heart Center, Solid Organ Transplant, Surgery, and Oncology are clear that they want to be national leaders in the continued expansion of Palliative Care as part of the standard of care we provide all seriously ill patients and their families.
The UWMC Palliative Care Consultation Service plans to expand over the next few years based on the innovative opportunities UWMC has to offer and hopes to build on its demonstrated success. Such an expansion will allow UWMC to become a national leader among Academic Medical Centers in Palliative Care.
The faculty represents all major teaching sites and primary disciplines of palliative medicine within the UW School of Medicine. Core and affiliated UW faculty provide training in clinical care, research, and leadership, in keeping with all ACGME core competencies.
Clinical rotations include inpatient consult services, inpatient palliative care units, affiliated long term care facilities, home-based palliative care experiences including hospice care, and ambulatory outpatient clinics. Elective rotations include geriatrics, oncology, nephrology, pulmonary / ICU, interventional pain management, interventional radiology, radiation oncology, dementia units, and AIDS/HIV care settings.
The fellowship provides a mentored training experience to develop fellows' clinical skills, ensure core competency development as educators and program administrators, provide exposure to research and quality improvement, thereby fostering the development of future leaders in palliative care medicine.
The program includes comprehensive evaluation of individual fellows, faculty, and the training program. Each UW-affiliated institution has made major commitments to build and sustain an outstanding environment for palliative care practice and training.
VETERANS AFFAIRS PUGET SOUND HEALTH SERVICES
The VA Puget Sound Health Care System (VAPSHCS) is a two-Division facility with campuses in Seattle and at American Lake near Tacoma.
The VAPSHCS Palliative Care and Hospice Service (PCHS), in existence since 2001 with teams at both Divisions since 2010, provides a full range of consultative services addressing the patient’s physical, psychological, social, and spiritual needs.
The PCHS advises the primary care team or provider on symptom management, goal setting, discussion of code status, communication issues, decision-making, management of spiritual and existential distress, disposition issues, management of psychosocial issues, and care in the last hours of life. The PCHS provides information and emotional support to patients and their families, assesses patients’ appropriateness for and interest in hospice care, and facilitates discharge planning and referrals to community hospice programs (over 400 referrals for hospice care in the community are made each fiscal year). Additionally, team members communicate regularly with community hospices as case managers for hospice patients receiving home care.
The PCHS performed over 580 consultations in Fiscal Year 2014. Over a third of VA ICU patients who die receive palliative care consultation, and in Fiscal Year 2014, 81% of all inpatient deaths at VA Puget Sound Health Care System were seen by the PCHS in the year prior to death. In 2014, 43% of Veterans seen by PCHS had a cancer diagnosis, with the remainder having various diagnoses including end-stage cardiac, pulmonary, and renal disease; dementia; amyotrophic lateral sclerosis, and stroke. After the death of an inpatient Veteran at VA Puget Sound, bereaved family members are contacted between 1 and 3 months after the Veteran’s death to complete a voluntary 20 question survey regarding the quality of care provided in the facility prior to the Veteran’s death. The results of the Bereaved Family Survey for our facility are compared with data from other VA facilities throughout the nation. In the first 3 quarters of Fiscal Year 2014, 60% of family members contacted rated the overall care their loved one received as “excellent”.
The PCHS team includes physicians, palliative care and hospice nurses, palliative and hospice care coordinator, social workers, psychologist, chaplain, and administrative support personnel. Other professionals including pharmacists, psychiatrists, dietitians, physical therapist, occupational and recreation therapist are available by consultation. The interdisciplinary PCHS team meets weekly to review all active patients on the service, as well as to debrief regarding patients who have recently died. A Memorial Service for families of Veterans who have died is held semi-annually, and contact is made with bereaved family members via bereavement cards and telephone calls.
When hospitalization for end of life care is required, patients are admitted to hospice beds in the VA Puget Sound Health Care System’s Community Living Center (CLC) at either the Seattle or American Lake Division, or to community nursing homes with hospice support provided by community-based hospice agencies. The Seattle Division CLC is a 38 bed residential skilled nursing care setting within the acute care hospital. The Seattle CLC blends multiple missions including comprehensive geriatric evaluation and management, sub-acute rehabilitation, respite, and end-of-life care in a seamless continuum of care. The Seattle CLC has a Hospice Service staffed by the PCHS, which provides care for up to 10 Veterans receiving inpatient end of life care. Many of these patients require aggressive symptom management. The American Lake Division CLC is an 83 bed residential skilled nursing facility with a focus on long term care and dementia care, and with up to 6 beds for palliative care and 6 beds for hospice care.
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