Patient and Family Resources
Advance Care Planning
End of Life and Hospice
Advance Care Planning
This link accesses a dementia-specific living will form that will help individuals specify how much medical care they would want if they had Alzheimer's disease or another type of dementia. This form is free to download.
Making Your Wishes Known is an online decision aid to help individuals prepare for future medical decisions.
The Conversation Project is dedicated to helping people talk about their wishes for end-of-life care. -
See more at: http://theconversationproject.org/about/#sthash.0olezWLB.dpuf
The Conversation Project is dedicated to helping people talk about their wishes for end-of-life care.
In this workbook you will find information to help you talk with your family and friends about your wishes for your healthcare. Caring Conversations® also equips you with the tools you will need to formalize your wishes when you face a future illness. The workbook includes a form to appoint a Durable Power of Attorney for Healthcare Decisions and a form to complete a Healthcare Treatment Directive
BeginTheConversation.org is a public education program sponsored by Lower Cape Fear Hospice & LifeCareCenter to encourage everyone to identify and communicate their healthcare choices.
A New York Times blog: Thanks to the marvels of medical science, our parents are living longer than ever before. Most will spend years dependent on others for the most basic needs. That burden falls to their baby boomer children.
In The New Old Age, Paula Span and other contributors explore this unprecedented intergenerational challenge.
PREPARE is a program that can help you make medical decisions for yourself and others,talk with your doctors and get the medical care that is right for you.
Life-threatening emergencies can happen every day. Making medical decisions for critical or end-of-life care ahead of time makes sense for you and your loved ones. Having everything available 24/7 at the push of a button is "a must" in today's mobile society. Better than just a living will or medical power of attorney, MyDirectives is a free, secure, web-based system that allows you to document your advance medical directives so that doctors can provide the care you want, without undertaking the treatments you don't.
Aging with Dignity is a national non-profit organization, inspired by the life and work of Mother Teresa of Calcutta, whose mission is to affirm and safeguard the human dignity of individuals as they age and to promote better care for those near the end of life. Introduced in 1997, Five Wishes is now available in 23 languages.
A program of the National Hospice and Palliative Care Organization (NHPCO), Caring Connections is a national consumer and community engagement initiative to improve care at the end of life. The program provides free resources on end-of-life care issues and services, including information on hospice providers and state-by-state advance directives.
Adult Care Resources
Our goal is to help individuals manage quality of life issues when aging and illness undermine their independence and wellbeing. I also partner with families, to help them care for their aging or disabled family members. Various levels of service are available allowing flexibility yet continuity with one professional.
End of Life and Hospice
Consider the Conversation is a series of films created by Burning Hay Wagon Productions founded in 2009 by Terry Kaldhusdal and filmmaker, and Michael Bernhagen. Both lost loved ones to severe chronic disease during the first part of the 21st century. These personal experiences, combined with Mike's many years of work in the hospice field, led the pair to produce documentaries with one simple goal in mind - inspire culture change that results in end-of-life care that is more person-centered and less system-centered.
A four-part PBS series produced by Bill Moyers that follows him on a journey across the country from hospitals to hospices to homes to capture some of the most intimate stories ever filmed and the most candid conversations about end-of-life care ever shared with a television audience.
A four-part National Public Radio documentary produced by WBUR in Boston and featuring Jim Conway and Diane Meier, as well as other leaders in the field, including Joanne Lynn.
Life Matters Media
By providing a platform for the sharing of information, resources, communication and experiences of those living their final days fully, the vision of Life Matters Media is to create a community for ones facing the end of life and for those that care for them. Ultimately, we seek to foster a greater understanding of the capacity that end of life decisions have to nurture the human spirit.
We have witnessed the power of technology (ipods, ipads, tablets, smart phones) in patients' lives - they use their devices to "tune out" of the chemo process, while waiting for test results, and before and after surgery. The Create to Heal Mobile App brings the best of our guided meditations, music, art and animation directly to patients during these stressful circumstances, allowing them to relax, tune out and tune in to their creativity.
Hospitals around the country are increasingly starting palliative care programs, designed to relieve seriously ill patients’ pain, stress and symptoms regardless of how long they have to live. While some patients are close to death, others are still receiving treatment to extend their days. And as they do, the palliative care team, including doctors, social workers, nurses and chaplains, tries to improve their quality of life.
Here's what some of some of the UW faculty have say.
Many faculty members are part of the Cambia Palliative Care Center of Excellence - our collaborative attempt to standardize and promote excellent palliative care practices, research and education across UW Medicine and throughout the University of Washington.
This video tells two stories: a patient's widow and a patient with an artificial heart. Two physicians describe UW Medicine's approach to palliative care. Palliative care helps patients with serious illnesses and their families choose medical care that respects their needs, reduces pain and improves quality of life. Video produced for UW Medicine.
This site, provided by the Center to Advance Palliative Care (CAPC), offers clear, comprehensive palliative care information for people coping with serious, complex illness. Key components of the site include a Palliative Care Directory of Hospitals, a detailed description of what palliative care is and how it is different from hospice, and an interactive questionnaire to assist people in determining whether palliative care is appropriate for them or their loved ones.
This site has been developed by AAHPM to reach out directly to patients and their families who might benefit from specialized medical care.
The National Hospice and Palliative Care Organization (NHPCO) is the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end of life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones.
HealthCare Chaplaincy Network (HCCN) is a 501(c)3 national health care nonprofit organization that offers spiritual-related information and resources, and professional chaplaincy services in hospitals, other health care settings, and online. Our mission is to advance the integration of spiritual care in health care through clinical practice, research and education in order to improve the patient experience and help people faced with illness, suffering and grief find comfort and meaning, whoever they are, whatever they believe, wherever they are. We have been caring for the human spirit since 1961Providence Hospital Writing Through Grief Program
Providence offers a variety of opportunities for ongoing support and education regarding grief, loss, and life adjustments following the death of a significant person
© 2012 - 2021 Cambia Palliative Care Center of Excellence