{"id":610,"date":"2016-09-19T10:00:54","date_gmt":"2016-09-19T10:00:54","guid":{"rendered":"http:\/\/depts.washington.edu\/rablab\/?p=610"},"modified":"2016-09-16T18:03:21","modified_gmt":"2016-09-16T18:03:21","slug":"how-to-navigate-the-diagnosis-and-treatment-of-autism-tips-for-families-from-culturally-and-linguistically-diverse-backgrounds","status":"publish","type":"post","link":"https:\/\/depts.washington.edu\/rablab\/2016\/09\/19\/how-to-navigate-the-diagnosis-and-treatment-of-autism-tips-for-families-from-culturally-and-linguistically-diverse-backgrounds\/","title":{"rendered":"How to Navigate the Diagnosis and Treatment of Autism: Tips for Families from Culturally and Linguistically Diverse Backgrounds"},"content":{"rendered":"<h3>How to Navigate the Diagnosis and Treatment of Autism: Tips for Families from Culturally and Linguistically Diverse Backgrounds.<\/h3>\n<h3>By: Megan Frye, PhD, Licensed Psychologist<\/h3>\n<p><img loading=\"lazy\" decoding=\"async\" class=\" wp-image-6901 alignleft\" src=\"http:\/\/theautismblog.seattlechildrens.org\/wp-content\/uploads\/multiculture-300x286.jpg\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" srcset=\"http:\/\/theautismblog.seattlechildrens.org\/wp-content\/uploads\/multiculture.jpg 300w, http:\/\/theautismblog.seattlechildrens.org\/wp-content\/uploads\/multiculture-32x32.jpg 32w\" alt=\"multiculture\" width=\"219\" height=\"209\" \/>Obtaining a diagnosis and treatment for Autism Spectrum Disorder (ASD) can be an overwhelming process. Complications with long waitlists for initial diagnosis particularly in rural areas, confusing policies regarding insurance billing and navigating a multitude of appointments, and difficulties coordinating care between therapeutic and educational settings can create an isolating and confusing experience for many children and families. These issues often add additional stress to the daily ups and downs of caring for an individual with ASD.<\/p>\n<p>The situation is only made more complex for families from culturally and linguistically diverse backgrounds for whom English is a second language. The ability to communicate information about your child, your family culture, and your concerns and hopes as a parent is valuable and important in ensuring you receive the support you need and your child receives the highest quality of care possible. Thankfully, many professionals, legislators and families are working together in efforts to improve the system of diagnosis and treatment.<\/p>\n<p>Below are several tips that linguistically diverse families may find helpful in navigating the process of diagnosis and treatment for autism:<\/p>\n<p><strong>1.Ask for an interpreter.<\/strong> It is your legal right to access care in your first language for free. You may request a provider that speaks your language. If one is unavailable the services of an interpreter can be provided to help you communicate with your child\u2019s care team. All major hospitals provide these services. For assistance with making appointments at Seattle Children\u2019s Hospital call: 1-866-583-1527. Mention your first language, your child\u2019s name, the provider with whom you\u2019d like to speak.<\/p>\n<p><strong>2.Confirm what your insurance will and will not cover<\/strong>. Visits with a psychologist, psychiatrist, mental health therapist or behavioral consultant are usually billed as mental health services. Some insurance companies cover mental health services the same as medical services, others do not. Important questions to ask your insurance company include:<\/p>\n<ul>\n<li>How many mental health visits are allowed per year?<\/li>\n<li>Can my child see any provider or do I have to choose from a list?<\/li>\n<li>Are there any diagnoses that are not covered?<\/li>\n<\/ul>\n<p><strong>3.Share about your family and culture. <\/strong>Communicate your family\u2019s beliefs and cultural understanding of what is happening for your child. Share what you believe are your child\u2019s strengths and challenges. Remember, you know your child better than anyone else.<\/p>\n<p><strong>4.Ask for clarification<\/strong>. If you don\u2019t understand what the provider is asking or if you have questions about what they are saying, it\u2019s ok to have the doctor slow down and clarify or give examples.<\/p>\n<p><strong>5.Ask if there are materials and resources available in your first language.<\/strong> Many resources are available in Spanish and other languages and providers will be able to point you in the direction of books and other resources. The Autism Speaks website provides resources in several languages. Resources in Spanish can be found<a href=\"https:\/\/www.autismspeaks.org\/about-us\/en-espa%C3%B1ol\"> here<\/a>.<\/p>\n<p><strong>6.Use parent education and support resources. <\/strong>Getting an autism diagnosis and navigating treatment is life-altering. You are not alone. Speaking with other families who may be facing the same challenges and gaining support for yourself is essential in better supporting your child. Ask your provider about connecting you with other families from your language\/culture through groups and other supports.<\/p>\n<ul>\n<li>More information about <a href=\"http:\/\/www.arcsno.org\/programs\/parent-to-parent\">Parent-to-Parent support groups<\/a> in Spanish.<\/li>\n<li>The group Padres Unidos is a support group in Spanish for parents who have children with special needs. This group meets the third Friday of every month from 6-8pm at Child Strive 14 E Casino Road, Bldg. A Everett, WA 98208.<\/li>\n<\/ul>\n<p><strong>7.Request assistance with making scheduling more convenient if possible. <\/strong>Ask your provider if there are appointments available in the early mornings or evenings or if several visits with different providers can happen during one day to limit the need to take several days off of your own work schedule.<\/p>\n<p><strong>8.Prioritize Interventions. <\/strong>Request that your provider help you prioritize interventions and treatments that are the most important first, if your ability to attend multiple weekly appointments is limited.<\/p>\n<p><strong>9.Connect with school. <\/strong>Inquire if there are services that might be provided at your child\u2019s school or in the home setting to limit the need to travel to clinic for services.<\/p>\n<p><strong>10.Encourage provider collaboration. <\/strong>Request that providers communicate directly with each other rather than you having to pass along the message. Encourage community-based providers to connect with your child\u2019s school.<\/p>\n<p><strong>11.Be an active part of your child\u2019s treatment.<\/strong> Ask questions, speak up, advocate. You\u2019re the number one expert on your child. Your involvement and expertise is a key component to their care. They are lucky to have you and they will benefit from having you involved!<\/p>\n<p>&nbsp;<\/p>\n<h3>\u00bfC\u00f3mo enfrentar el diagn\u00f3stico y tratamiento del Trastorno del Espectro Autista? Consejos para las familias de diversos or\u00edgenes culturales y linguisticos<\/h3>\n<h4>Por: Megan Frye, PhD, Psic\u00f3loga Infantil<\/h4>\n<h3><img loading=\"lazy\" decoding=\"async\" class=\" wp-image-6901 alignleft\" src=\"http:\/\/theautismblog.seattlechildrens.org\/wp-content\/uploads\/multiculture-300x286.jpg\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" srcset=\"http:\/\/theautismblog.seattlechildrens.org\/wp-content\/uploads\/multiculture.jpg 300w, http:\/\/theautismblog.seattlechildrens.org\/wp-content\/uploads\/multiculture-32x32.jpg 32w\" alt=\"multiculture\" width=\"237\" height=\"226\" \/><\/h3>\n<p>La obtenci\u00f3n de un diagn\u00f3stico y tratamiento para el trastorno del espectro autista (TEA) puede ser un proceso abrumador. Las complicaciones con largas listas de espera para el diagnostico inicial sobre todo en las zonas rurales, confundiendo las pol\u00edticas con respecto a la facturaci\u00f3n del seguro y la navegaci\u00f3n por una multitud de citas, y dificultades para coordinar la atenci\u00f3n entre los ajustes terap\u00e9uticos y educativos pueden crear una experiencia de aislamiento y confucion para muchos ni\u00f1os y familias. Estos problemas suelen anadir tensi\u00f3n adicional a las subidas y bajadas diarias de cuidar a una persona con TEA. La situaci\u00f3n solo se hace mas compleja para las familias de diversos or\u00edgenes culturales y linguisticos para quienes el ingles es un segundo idioma. La capacidad de comunicar informaci\u00f3n sobre su hijo, su cultura familiar, y sus preocupaciones y esperanzas como padres es valiosa e importante para garantizar que reciba el apoyo que necesita su hijo y su que reciba la mas alta calidad de atenci\u00f3n posible. Agradecidamente, muchos profesionales, legisladores y familias trabajan juntos en los esfuerzos para mejorar el sistema de diagn\u00f3stico y tratamiento.<\/p>\n<p>A continuaci\u00f3n se presentan algunos consejos que las familias de habla hispana pueden encontrar \u00fatiles en la navegaci\u00f3n del proceso de diagnostico y tratamiento de TEA.<\/p>\n<p><strong>1.Solicite un int\u00e9rprete.<\/strong> Es su derecho legal para acceder a la atenci\u00f3n en su primer idioma de forma gratuita. Usted puede solicitar un proveedor de habla espa\u00f1ola. Si uno no est\u00e1 disponible los servicios de un int\u00e9rprete se pueden proporcionar para ayudarle a comunicarse con el equipo de atenci\u00f3n de su hijo en espa\u00f1ol. Todos los grandes hospitales ofrecen estos servicios. Para obtener ayuda con hacer citas en el Hospital de Ni\u00f1os de Seattle (Seattle Children\u2019s Hospital): <em>Llame Nuestra l\u00ednea gratis de Interpretaci\u00f3n Telef\u00f3nica 1866-583-1527. Menci\u00f3nele al interprete el nombre de la persona o departamento que necesita.<\/em><\/p>\n<p><strong>2.Confirmar lo que debe y no debe cubrir su seguro.<\/strong> Visitas con un psic\u00f3logo, psiquiatra, terapeuta de salud mental o consultor de comportamiento suelen ser facturados como servicios de salud mental. Algunas compa\u00f1\u00edas de seguros cubren los servicios de salud mental lo mismo que los servicios m\u00e9dicos, otros no lo hacen. Las preguntas importantes para hacerle a su compa\u00f1\u00eda de seguros incluyen:<\/p>\n<ul>\n<li>\u00bfCu\u00e1ntas visitas de salud mental se permiten por a\u00f1o?<\/li>\n<li>\u00bfPuede mi hijo ver a cualquier proveedor o tengo que elegir de una lista?<\/li>\n<li>\u00bfHay algunos diagn\u00f3sticos que no est\u00e1n cubiertos?<\/li>\n<\/ul>\n<p><strong>3.Compartir acerca de su familia y la cultura<\/strong>. Comunicar las creencias de su familia y la comprensi\u00f3n cultural de lo que est\u00e1 sucediendo a su hijo. Compartir lo que usted cree son las fortalezas y desaf\u00edos de su hijo. Recuerde, usted conoce a su hijo mejor que nadie.<\/p>\n<p><strong>4.Pida una aclaraci\u00f3n.<\/strong> Si usted no entiende lo que el proveedor est\u00e1 pidiendo o si tiene preguntas acerca de lo que est\u00e1n diciendo, que est\u00e1 bien tener el m\u00e9dico reduzca la velocidad y aclarar o dar ejemplos.<\/p>\n<p><strong>5.Pregunte si hay materiales y recursos disponibles en su lengua materna<\/strong>. Muchos recursos est\u00e1n disponibles en espa\u00f1ol y los proveedores ser\u00e1n capaces de se\u00f1alar en la direcci\u00f3n de los libros y otros recursos. Un recurso \u00fatil Sobre el autismo en Espa\u00f1ol es el sitio de web de \u2018<a href=\"https:\/\/www.autismspeaks.org\/about-us\/en-espa%C3%B1ol\">Autism Speaks<\/a>.<\/p>\n<p><strong>6.Utilizar los recursos de educaci\u00f3n y apoyo para padres<\/strong>. Conseguir un diagn\u00f3stico de autismo y la navegaci\u00f3n por el tratamiento altera la vida. Usted no est\u00e1 solo. Hablando con otras familias que pueden estar enfrentando los mismos desaf\u00edos y la obtenci\u00f3n de apoyo para usted es fundamental para apoyar mejor a su hijo. Pregunte a su proveedor acerca de que la conexi\u00f3n con otras familias de la lengua \/ cultura a trav\u00e9s de grupos y otros soportes.<\/p>\n<ul>\n<li>Puede encontrar m\u00e1s informaci\u00f3n sobre<a href=\"http:\/\/www.arcsno.org\/programs\/parent-to-parent\"> los grupos de apoyo de padre a padre en espa\u00f1ol <\/a>accediendo.<\/li>\n<li>El grupo de Padres Unidos es un grupo de apoyo en espa\u00f1ol para los padres que tienen ni\u00f1os con necesidades especiales. Este grupo se re\u00fane el tercer viernes de cada mes de 6-8 pm en Child Strive 14 E Casino Road, Bldg. A Everett, WA 98208.<\/li>\n<\/ul>\n<p><strong>7.Solicita ayuda con la fabricaci\u00f3n de programaci\u00f3n m\u00e1s conveniente si es posible<\/strong>. Pregunte a su proveedor si hay citas disponibles por la ma\u00f1ana temprano o por la noche o si varias visitas con diferentes proveedores pueden suceder durante un d\u00eda para limitar la necesidad de llevar varios d\u00edas fuera de su propio horario de trabajo.<\/p>\n<p><strong>8.Prioriza Las intervenciones<\/strong>. Solicita que su profesional medico le ayudara a priorizar las intervenciones y tratamientos que podr\u00eda ser la primera m\u00e1s importante si su capacidad de asistir a varias citas semanales es limitada.<\/p>\n<p><strong>9.Conectar con la escuela.<\/strong> Preguntar si hay servicios que pueden ser proporcionados en la escuela de su hijo o en el hogar para limitar las necesidades de viajar a la cl\u00ednica para recibir servicios.<\/p>\n<p><strong>10.Fomentar la colaboraci\u00f3n proveedor<\/strong>. Solicita que los proveedores se comunican directamente entre ellos en lugar de tener que usted transmita el mensaje. \u00a0Formenta a los proveedores basados en la comunidad para conectar con la escuela de su hijo tambi\u00e9n.<\/p>\n<p><strong>11.Sea una parte activa del tratamiento de su hijo<\/strong>. Hacer preguntas, hablar, defender. Usted es el n\u00famero uno experto en su hijo. Su implicaci\u00f3n y la experiencia es un componente clave para su cuidado. Son muy afortunado de tenerte y que se beneficiar\u00e1n de tener que participar!<\/p>\n","protected":false},"excerpt":{"rendered":"<p>How to Navigate the Diagnosis and Treatment of Autism: Tips for Families from Culturally and Linguistically Diverse Backgrounds. By: Megan Frye, PhD, Licensed Psychologist Obtaining a diagnosis and treatment for Autism Spectrum Disorder (ASD) can be an overwhelming process. Complications with long waitlists for initial diagnosis particularly in rural areas, confusing policies regarding insurance billing &hellip; <a href=\"https:\/\/depts.washington.edu\/rablab\/2016\/09\/19\/how-to-navigate-the-diagnosis-and-treatment-of-autism-tips-for-families-from-culturally-and-linguistically-diverse-backgrounds\/\" class=\"more-link\">Continue reading <span class=\"screen-reader-text\">How to Navigate the Diagnosis and Treatment of Autism: Tips for Families from Culturally and Linguistically Diverse Backgrounds<\/span> <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8,18,13,16,19],"tags":[],"class_list":["post-610","post","type-post","status-publish","format-standard","hentry","category-bernier-lab","category-educational","category-news","category-research","category-seattle-childrens-autism-center"],"_links":{"self":[{"href":"https:\/\/depts.washington.edu\/rablab\/wp-json\/wp\/v2\/posts\/610","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/depts.washington.edu\/rablab\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/depts.washington.edu\/rablab\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/depts.washington.edu\/rablab\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/depts.washington.edu\/rablab\/wp-json\/wp\/v2\/comments?post=610"}],"version-history":[{"count":1,"href":"https:\/\/depts.washington.edu\/rablab\/wp-json\/wp\/v2\/posts\/610\/revisions"}],"predecessor-version":[{"id":611,"href":"https:\/\/depts.washington.edu\/rablab\/wp-json\/wp\/v2\/posts\/610\/revisions\/611"}],"wp:attachment":[{"href":"https:\/\/depts.washington.edu\/rablab\/wp-json\/wp\/v2\/media?parent=610"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/depts.washington.edu\/rablab\/wp-json\/wp\/v2\/categories?post=610"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/depts.washington.edu\/rablab\/wp-json\/wp\/v2\/tags?post=610"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}